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Nikki Stern

Nikki Stern
Location
Princeton, New Jersey, USA
Birthday
April 10
Title
whatever sounds good
Company
Sure, come on in
Bio
Author of "Because I Say So: The Dangerous Appeal of Moral Authority" (www.nikkistern.com) and "Hope in Small Doses" to be released June 1, 2010 by Humanist Press.

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APRIL 24, 2010 5:11PM

Wanted: Dead or Alive

Rate: 49 Flag

 

M  om asked me to "put an end to her misery" only twice; but she asked my sister dozens of times. Fully immobilized by a succession of strokes, she was daily roused by the kindest caretakers imaginable, dressed, fed, propped up in a wheelchair too small for her spreading frame, and wheeled into the living room of her apartment where she spent the day alternately staring at my ailing father or out a window. At first, when she could still speak--a mumble, really, as if she was working out the mechanics of her voice, which she was--she'd try to engage my father in conversation. But he, hard of hearing and facing his own precipitous decline,  would not, could not hear her and instead depended on the comforting noise of the television at a decibel level that clearly pained her. When either of us came to visit --and in my newly minted widow's grief I didn't get there often enough--she had almost forgotten how to talk and had lost interest in any subject save one: how she might hasten her end. One day she suggested my sister throw her off the patio; another time she muttered "arsenic' with a chuckle. The password in her final days to her heart's desire was captured in three letters: DNR -- "Do Not Resuscitate" .

 Dad had a liver ailment that should have killed him years earlier; Mom hadn't moved on her own in nearly five years. They used to bet on who would outlast the other, a sort of "til death do us part, but you go first" scenerio. They each possessed a formidable internal will, which is why Mom's talk of suicide was particularly wrenching.

In the end, Dad died first, following a heart attack. Within a month, we'd airlifted mom from Florida to a nursing home in New Jersey near my sister and me. She rallied briefly, but as the cold weather she hated approached, she began to whisper again, "I wish I could die." One day, I looked back at her and said, "You can." 

I couldn't give my mother what she wanted, a way to break out of  her mental and physical prison.  She could only demand that she not be kept artifically alive. And so she did.  As the temperature dropped, she grew weaker and refused hospitalization. Finally in hospice she was made comfortable, at last able to pass peacefully, while I held her hand and whispered, "You're good to go, Mom."

NS-Mom11-04  my mother and me, late 2004


 

 

 

 

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This was so great of you, and your Mom. Letting go isn't easy, but if a person in there own mind thinks is's time and they are lucid, God Bless them.
Great Post!
Oh Nikki, this was very moving. So many of us here are faced with the debilitation and ultimate demise of our parents, whether we want to think about it or not, it is inevitable. Not everyone gets to depart this earth quietly and in "one's sleep." Like life, dying can be messy.

I am thankful to writers like you and Hawley who have so generously shared this most personal of experiences. It is as if you are carrying a lamp in dark tunnel that I do not want to enter, but know I will have to travel down one day with my own mother.

Thank you.
What an amazing piece you've shared with us...
Thanks so much, guys. I can't tell you how awkward it is for me to put this kidn of stuff out there.
@ablonde: the beauty of community is that there are others who will help you get through the tunnel...
What a strong lady your mom must have been, and what a sense of humor... Thank you for sharing this with us.
Thanks for your honesty here, and especially for the picture - it's nice to have a face to go with the story. Beautifully written, and that last line caught in my throat.
This type of self revelation, self discovery is particularly difficult. I know you Mother must have felt relief for you to be able to let go -- and what courage for you, I know it's not easy. Love the post, you have great skills.
Same story; same year for me. Still adjusting to being an orphan.
Letting go is difficult enough. Letting go on their terms is what love is all about. Beautifully rendered, Nikki. Hugs to you.
Sorry to hear about your mom, but at least now she is resting. R
Nikki, that last line "You're good to go, mom" had me crying as my own story did not. Brave, sad, and yes adult orphans we are. rated. beautiful. sad.
Heart-wrenching and very personal, Nikki. I appreciate the enormous loss you suffered within a short period of time and how difficult that was for everyone. For many, death becomes increasingly that welcome stranger and less the ominous bogeyman. Thank you for sharing your mother's story.
Sheblogs: she was

Amanda: back at you for your post

Spudman: yeah

Aim and Marty's husband, crazeczar and trudge : thank you

Cartouche: I guess she passed on her terms...but the five years before weren't lived on her terms in the least. It was twilight at best. Which is why I think the "rightness" or "wrongness" of suicide--assisted or not--depends on individual conscience, but I don't want it to be illegal.

Wendy: wow
thank you Kathy - means a lot
I never know how to deal with this or what to say. My best thoughts are with your Mom and you.
Rated.
After her stroke, my beloved "Nanny" retreated into a personality that wasn't her own. She couldn't even articulate her wishes to die. Instead she smiled a fool's grin, lived someone else's life for ten long years. I knew KNEW she wanted to die, or if she was herself she would have wanted to die, living like that. Trapped. Every now and then her eyes came into focus, and she knew. Those moments were almost worse than when she was foolish and lost. Finally, she broke her arm and after ten years of inactivity, that started a downward spiral. Though nothing was said about assisted suicide, on the last day of her life we gathered and there was pain medicine given, probably (but not "certainly") too much, little by little, until her breathing stopped. I've never been a big fan of mortuary makeovers, but when I saw Nanny in her casket, she looked exactly like herself, and I was able to cry and cry, ten years worth. "You're good to go, Mom." I'm sure those words brought her so much peace.
difficult as it was to write, nikki, it's a beautiful piece and extraordinarily well-written. i'm glad you decided to get uncomfortable and do it. may give me a nudge.
So much love in your writing here, Nikki. Thanks for sharing this with us.
Beautiful Nikki. Beautiful daughter.
Lezlie
Nikki...this is somehow so heartbreaking and then freeing at the same time...your sense of center shines through...your love for your parents, your recognition of their pain...your humanity. Bless you. xox
The drawn-out last days of my grandmother were terrible. My grandfather opted to refuse treatment at the hospital and just "made comfortable" when he decided it was time to go after he was diagnosed with pneumonia. My father died of liver cancer, it was too quick, but not quick enough if you get my meaning.

It must have been very difficult for you, with grief of your own, to deal with so much at once. Even more difficult to write about it. Thank you for trusting us with your memories.
I hope that I will be as gracious and gentle as you when the time comes to let my mother go.
A lamp in a dark tunnel, yes. We need more lamps folks..

Thank you Nikki for speaking out - it comes easier to talk about it as you go along. My dad left here 'under his own steam' as it were, with his own DNR. This code was posted on the door plaque along with the room number, there catching the eyes *every time one entered the room* - and it was a comfort actually, to see it. It meant that his wishes were being followed. My mother will have one too should she not be fortunate enough to simply dream herself away.. and I will fight tooth and nail should anyone other than her God dare to try to keep her here one moment longer than she wants to stay.

Rated for a soul bared.
"you're good to go"

Says it all for me.

Lovely story, and the photo drives home the message wonderfully
This is simple and, yes, beautiful.
Thanks for writing about something so difficult. I love the picture of you with her.
I'm just glancing at these moving comments before heading upstairs. I appreciate the feedback so much. I always wished I could grant my mom her wish much earlier but even though the last five years were excruciating, the end (no tubes, no wires) was what she was allowed -- by law -- to dictate.
Thanks for sharing this, Nikki. I know how hard it can be.
Beautifully written.
sometimes in the great rush to proling life, we only postpone death and prolong suffering. your mom was lucky to be able to make these choices for herself. she was lucky to have you as her daughter and her advocate.
Same situation here. My mom had been ready to go for years and went just as she wanted to, without lengthy suffering. She was always a lucky woman.
I'm working on one about my dad's passing. Calling it A Good Death is Hard to Fake. It would fit your beautifully written tribute to your mom, as well. She was blessed to have you with her. (r)
Thanks for illustrating this topic with a personal account Nikki. We'll all get there one of these days and it helps to know the views of others who have gone before.
Five years is such a long time to live like that ... but what else to do ?
Laws here are being challenged lately, again, change is glacial.
this is a beautiful story, what a gift you gave each other, to be there at the end of things, together

you're a wise and brave woman, Nikki
A great piece that goes right to the heart of the subject that everyone is currently discussing...assisted suicide. Like you, I could probably never do it, but I do believe it is a moral question, not a legal one. If you can't control your own life, what is freedom, anyway?
I could never have taken my Grandmother's life, but after years of suffering, I felt relieved for her when she finally passed away. Life should be about more than merely breathing.
A very touching post. My Mom had some bad moments last year, talking about assisted suicide -- her mantra was "Oregon", the only state where it's legal. A friend put her in touch with a doctor there and she was seriously considering the residency requirements. Of course I'm relieved and delighted that she changed her mind -- her quality of life has gone up and her natural buoyancy re-asserted itself. But I'm still angry that I would have been prosecuted for a felony in Massachusetts for helping her. What a sick sad world. It seems like you found a reasonable compromise. Thanks for sharing it with us.
There is much I'd like to say, but I won't clutter up your excellent post, Nikki. Your final words to your Mum were exquisite, and I hope when my time comes, someone will say them to me. Thank you for posting this.
Eden: glad to have you posting again
Poppi: exactly
xenonlit: I do wonder if my mom was lucky...except at the end
Clark: write it; that's a brilliant title
abrawling: we will with our parents, and then with ourselves
kim: a very long time
Roy: not sure about wise or brave but definitely learning

Fay: I don't know if I would have administered something to my mother but I would have put her in touch with someone who would have perhaps...because it was a LONG five years and I wasn't sure what living like that was supposed to prove.

Steve A. I was angry as well. I'm not sure my mom was in pain but what's it like to just lie around all the time...no reading, no talking, no nothing? My own mantra is "Oregon" -- trust me.

Boanerges1: likewise
Hi Nicki,

Hospice is the answer to a lot of this, particularly in cases of extreme pain and discomfort. Even for those that have over 6 months to live, Palliative Care is gaining speed in mainstream medical practices. My cousin with lung cancer refused treatment and sustenance and was taken care of beautifully by hospice. Your mother managed to find her way there, as well. Even though I'm a born and raised Oregonian, I am no fan of assisted suicide. As Steven's mother's situation shows -- in many cases, people change their minds, whether because they emerge from a depression, or make it to a point where they get better.

I think a lot about how I will handle my death. It is really the last gift we give to our loved ones: having them watch us grow to a point where dying is a meaningful process.
Nikki -- Sorry. I misspelled your name. Ack!
You have an understated way of expressing deepest feelings and emotions. Ironically, that could the most expressive way of all.
Denese: The end is never far from my mind and PS: don't worry about the misspelling...I sometimes address myself as Molly (my dog)

Lea: high praise from you, my friend
My mother only wanted to be at home...and all agreed that is where she should be...she died four days later.

So tough these stories.
R
You were a great daughter and a great writer too.
A moving example of grace under pressure.
Such an important piece. Thank you for sharing something so close to you.
It is hard to go into the"danger zone" when we write of moments like this. Yet, by sharing you make others reflect on similar times and hopefully bring some clarity to your own. As mother's day approaches in two weeks perhaps we will all share a hug and a glass of wine.
My sympathy on the loss of your mom. There comes a point when life is not worth living. When Herb visited his mother in the nursing home (everyday,) he would see many men and women lined up in wheelchairs left to sit in the hallway all day, essentially waiting for their turn to die..
So sad.
R
Well written post.
DNR has some dignity, as have you, and your mom. blessings on you both.
Buffy: we kept the folks at home, but we couldn't leave just Mom...
Sheepy: thank you
Hawley: same to you
anna: you're welcome
Brown-eyed: pass the wine
Steve: yeah, we'd find my mom parked in the hallway; I hated that
dianaani: Certainly DNR is on my living will
Nikki, thanks for sharing this very personal account. Hospice care is a blessing.
It has to be one of the toughest periods in your life. My sympathi is to you.
I was there holding my dad's hand when he died and whispering in his ear "It's okay, Dad, you can go."
Linda and old new: thanks
Tom: I appreciate your sharing that
Beautiful and inspiring.
Nikki,
My Mum had DNR instructions too. It wasn't like it was on TV, it wasn't pleasant and I wished it was easier for her but she held on with all the tenacity she had in life. But I was there with her when she drew her last breath, as she was with me when I drew my first.
And in the end, that was all that mattered.

Thanks for sharing your story. What a beautiful picture.
yes I'm learning (finally) that it's as much about those of us who go on...