aging hippie chick

aging hippie chick
Location
Nevada City, California, US
Birthday
June 02
Title
Horticultural Goddess
Bio
Aging, yet immature, hippie chick. Married, musical, compulsively creative and scattered. Still trying to make sense out of life via Buddhism, composting, etc.

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Salon.com
OCTOBER 24, 2009 10:23PM

A time to die

Rate: 19 Flag

I recently spent 45 minutes talking about death, and hospice, with my husband’s sister in Maryland. Her mother (my mother-in-law) — a delightfully quirky 91-year-old activist who still spends her days faxing her congressmen — just signed on with the local hospice.

I’m a hospice nurse, by far the most rewarding work I’ve done in 35 years in the profession. I’m doing my best to help them navigate these new waters.

I understand so well what she’s going through — teetering on that invisible line between wanting to cheer someone on to keep trying, and allowing them to decide that it’s OK to stop fighting what is inevitable for all of us.

Esther has, by my estimation, months, maybe a year left in her increasingly frail body.

Although she’s still very sharp, mentally, she forgets things more, has to stop more often to catch her breath, and can’t really muster any enthusiasm for exercising with her walker.  She spends more time in bed or on the couch, wakes up later, goes to bed earlier. I see the familiar signs of someone looking beyond this mortal coil.

Considering the quality of those months is, to my mind, far more important than wringing out more of them by pushing her to eat more and take more walks.

There comes a time with an aging parent when you have to stop trying to make things better, and decide to just love them, respect their wishes, and be present. I think that time has come with Esther.

At this stage, it’s important to distinguish between what COULD be done and what SHOULD be done.

Still, it’s hard. Damned hard. As I remember well with my own Dad, it’s easy to decide in an abstract way that you don’t want to prolong life unnaturally, to trade quality for quantity.

Yet, when my rapidly declining father broke his hip, I was heartbroken to hear that he decided not to have surgery (in retrospect, this would have been a miserable experience he might not have survived).

I wanted to let him go peacefully, without a lot of high-tech, dehumanizing interventions. I just didn’t want to do it YET. No matter how clear we are, in a theoretical way, about wanting a peaceful, dignified end for our loved ones, we’re never ready for this moment to be the last we have with them.

That pain is something we sign on for when we let ourselves love someone or something impermanent. Which is, alas, everyone and everything.

Loving the impermanent is one of the necessary pains included in this beautiful, untidy package we call life; I’ve decided to learn to live with it.

The alternative, to harden ourselves and not get “too attached” (a concept that has taken much of the heart out of medicine, in my opinion) is not one I care for. This is what I love most about working for Hospice — we get attached to, and often fall in love with, our patients; it’s a given.

And although I’m aware of how much we bring to patients and families we care for — comfort, supplies, clarification of what’s important, understanding of what they’re going through and what’s ahead — I always feel I’ve received more than I give.

It’s an honor to be with people who are facing their own mortality. Somehow frivolous concerns seem ... frivolous; the specter of death has a way of distilling what’s important in life. And being reminded of our universal mortality reminds me not to squander this life I have on resentments, or worries, or acquiring more things.

I’m more aware of the beauty, and the fragility, of the world and our relationships.

So, I answered the questions I hear so often. Joining hospice does not generally cause people to give up and die — often the support we give causes them to rally and live longer and more comfortably; sometimes they even “graduate.”

Pain medicines, used appropriately, do not cause addiction or hasten death, but the need for them often coincides with a decline that has already begun to accelerate; ideally medications relieve pain and air hunger in patients’ last months, even sometimes increasing activity.

And yes, there are always gray areas: How long is it safe to leave her alone? How much should we push her to eat and exercise?

As always, I suggested she answer these questions from her best understanding of, and respect for, Esther’s wishes, and by exploring them with the hospice staff.

We’ll fly out over winter break; I look forward to spending some bittersweet, heart-ful time with my beloved mother-in-law.

And I hope to make sure she’s comfortable, and help love her out of this life. That’s the best any of us can do, and what we all hope for in our last days.

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Comments

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You ask a lot of important questions from a place of knowledge, heart and compassion.
All my experiences with hospice have been good. Whenever I speak to people about their experience with hospice, they can't say enough good things about it. My father died in my home under the excellent care of the hospice team. His pain was controlled, a hospital bed was provided, he was turned in his bed to prevent bed sores, his teeth were cleaned, his mouth was washed, and my mother and I were assisted in countless ways. These activites may not sound sophisticated, but they contribute immeasurably to the comfort of the patient and, by extension, the family. At a time when the health profession is often criticized, hospice continues to receive rave reviews. This is an excellent and important post. Thank you for writing it.
As we wait on our mom to find peace it was getting harder and harder for my sister to deal with. One nurse wanted to turn her in for elder abuse for not feeding her anymore. Even though when you fed her she hurt so bad after and has no wants to use a diaper to do her business. A woman 81 with severe dementia, broken hip last year and two broken vertebrae in her neck. We know it is time to let her go. My sister has contacted the hospice and they will be there on Tuesday. I hope for my mom and my sister that they can help let our mom go. This is not what she wanted and we all know that. I am very thankful for the hospice and what you write is beautiful. Especially help love her out of this life. Thank you for what you do.
I lived with a person who was in hospice care at home. It was exceptional. Kudos to you.
Excellent post.
What more could a person possibly want than to be loved out of this life. To travel the last mile at our own natural pace, unhurried and unhindered....just loved. Your Mother in law is a lucky lady to have you in her life. I bet she knows that too.

Rated.
Fine post and admirable strength.
I echo Steve Blevins' comment ( like to hear the echo of his voice). Hospice remains one of the very few humane acts of kindness under the most stressful circumstances. Those who choose to work in this aspect of healthcare are angels of transition whose love and dedication cannot be adequately rewarded. You are one special person.
I know how hospice helps those who are going and those left behind. My mother's last days were spent at home, where she wanted to be.

My husband had it in the hospital...dear Gina...I'll never forget her kindnesses to him, to me.

I admire you and the others I have known...and the countless others I don't know, but someone else will.

Thanks for this.
Beautiful post from a beautiful heart!
Rated
My dad never had hospice. He was on the cusp of the end of the whole must remain hospitalized to die business. My brother was cared for by hospice and he died at home surrounded by family with much less trauma for everyone. So I'd like to pass this on to you from a family that has seen the benefits of that care. Thanks to you and anyone else who finds the room in their hearts to assist with the difficult days of loss. This story may interest you.

http://open.salon.com/blog/bobbot/2009/03/17/life_and_death
Excellent post and kudos to you for giving so much of yourself to others.
My aunt was a hospice nurse for many years, and described the experience similarly. This line caught me, "I hope to make sure she’s comfortable, and help love her out of this life." Amen. Blessings, ahc.
How difficult some days must be for you. How encouraging to know that you are in such a position, and that you treasure the choice. As a daughter who engaged Hospice for her father, I thank you.
My mother spent about three weeks in hospice last spring, and the staff was just incredible. Although she had a lot of trouble eating due to the cancer, they bought her tea in a china cup every morning, and I remember her smiling brightly, telling the staff how she felt like she was getting the royal treatment.

The family was a little uncertain about hospice, but at least for us, it was a joyful experience, in as much as such things can ever be. Towards the end, Mom was determined to squeeze every bit of joy out of the time she had left, and there were so many little random moments of laughter, that the staff didn't just tolerate, but participated in at times. Thinking back, I feel deeply blessed by the whole experience.
Golly! Thanks, all. I'll try to write back to some folks individually. I appreciate the kudos, but it's an honor to do this work, and often a joy. XOXO AHC
All y'all: Please feel free to contact me if there's anything I can do to be helpful. AHC