Allie Griffith

Allie Griffith
Location
Memphis, Tennessee,
Bio
Writer, game developer, artist. Also raconteuse, dilettante, and passionate advocate. I've been called an angel of wisdom and I've been called a judgmental idiot. Sooner or later I'm bound to say something that you disagree with; feel free to tell me your side of the story. I listen to other people's opinions and have occasionally been known to concede that they might have a point and alter mine. I use too many semicolons and I have terrible taste in music. I'm the sort of person who thinks it's more telling to mention that than that I'm married and had a foster daughter but she's grown now. By objective standards, my life is probably a disaster - no health insurance and a chronic illness - but my happiness quotient is the highest of anyone I know. Sometimes I tell sad stories but please don't let them make you sad.

Allie Griffith's Links

Salon.com
MARCH 27, 2009 4:51PM

Claritin Rant

Rate: 8 Flag

At least I'm not going backward. I weigh now what I weighed one week ago.

Before that, I was losing, on average, .45 pounds per day. Since the middle of January I've lost 35 pounds. I lost them by increasing exercise and eating healthy food and not eating unhealthy food;  I haven't been trying to restrict calories, but on average I've been eating less than 2000 cal/day.

I still have a long way to go... about 30 pounds before I reach what's considered merely "overweight" instead of "obese."  And I need to lose this weight - due to problems with autoimmune disease, I have a damaged heart muscle.

Here's the problem:  a little over a week ago, for the first time in my life, I got hives.

Not just a couple of hives. Hives covering my thighs from my knees to my belly. After three days I looked as if I'd been horribly abused, and I was starting to have blisters from my jeans rubbing against the hives. I also determined that whatever caused them, it wasn't food. (One benefit of writing everything down as part of my diet is that I was able to test everything I had eaten before the first outbreak.) It's something downstairs in my house, since the hives disappear after a few hours upstairs. It's possible I'm suddenly allergic to my cats, which I've had all my life - that happens sometimes. Sometimes people in middle age suddenly develop severe allergic reactions to things that never bothered them before. Once the new reactions come up, they never go away.

I'm trying various approaches, such as throwing out all my throw rugs and misting the house with Ozium every few hours, which does seem to help but doesn't stop the hives. It's possible that the hives are in response to a combination of my backyard which is literally yellow with pollen, stress, lupus (which causes something like 40% of all hives), and something downstairs.

What stops the hives is antihistamines. I can't take Benadryl constantly because I need to be able to drive a car and I'm not willing to live as a zombie. That means I need a second-gen antihistamine like Claritin. And the Claritin, after 24 hours to get into my system, did stop the hives.

And I have not lost one ounce since I started taking it. I'm working my ass off, biking 6 miles a day and walking half an hour and dancing at least 15 min, I've been eating an average of 1500 cal/day, which is below my basal metabolic rate, and on some days my weight actually goes UP. Part of this is water retention - Claritin is an anti-diuretic - but even accounting for that, I'm not losing weight the way I was before.

After a week of being pissed off and frustrated every time I stepped on a scale, I googled "Claritin and weight gain." I learned two things:  first, the company that makes Claritin says, "Well, if you're having weight gain as a side effect that's probably not the Claritin, it could be a freak reaction involving just you but the odds would be very against it, it's so unlikely..." and everyone else who has ever used it says, "I gained 8 pounds the first month of taking it," "Can Claritin cause weight gain?  Cause I'm eating 1200 cal/day and working out and I'm not losing any weight," and similar things, on and on for hundreds of pages.

Grrrrrrrrrrrrrr.

Today I'm switching to Zyrtec. But the Zyrtec people are at least honest and admit that Zyrtec causes weight gain. It seems likely to me that since the two work on the same principle, if I'm having weight gain on one I'll have problems with the other. Plus, I'm terrified that the Zyrtec won't work versus the hives.

I just want to go back to two weeks ago when my own house wasn't trying to kill me and working out meant I lost weight.

Oh, and my immune problems are flaring up, which means I have to be very careful working out since my heart is already stressed. But if I waited for the perfect day to exercise, I'd have... well, pretty much what I have now, a fat, out-of-shape body from never working out. 

You know how you're supposed to go to the ER if you ever get a crushing sensation in your chest with pain radiating to your arm and neck?  Yeah. I used to go to the ER. I don't do that anymore. It doesn't accomplish anything except increasing the number of medical bills I have no way of paying. I have pain in my chest every day, and there's nothing to be done about it, because there's no treatment for autoimmune disorders inflamming the lining of my heart. I've had so many EKGs that I can tell the nurse she's forgotten one of the leads.

Am I having a heart attack right now?  Who the fuck knows?  That's the beauty of autoimmune disease. So many things hurt, so much of the time, so many doctors never find a thing wrong. It becomes a game of "Is it an Emergency yet?"  Is this pain and heat in my leg a blood clot, or merely vasculitis?  What about this one in my lung, pleurisy, or pneumonia?   (One time it was pneumonia, but I mistook it for my daily pleurisy until my fever spiked to 103.)

Am I even supposed to exercise?  Well, some authorities say yes, some say no. That whole "See a doctor before starting a new exercise program?"  That's a joke. I live in America. I don't get to see a doctor. I have to use my own judgment based on what I can glean from the internet. And that says exercise may help to stretch the scar tissue inside my heart. Or it may wear out my heart muscle, increase the inflammation, and kill me. Depends, who knows. On the rare occasions when I've been so sick that I've had to pay to see one whether I could afford it or not, I've asked doctors and the doctors don't know.

You know, I have never once, not in my entire life, received treatment from a doctor that actually helped me?

I'm not exaggerating. Even the pneumonia turned out to be viral, so the antibiotics the doctors prescribed were usless. Which didn't prevent them from sending me a 3k bill for an antibiotic drip in the ER.

Not once, not even when I was a child, have I ever received any form of medical care that was an improvement over no medical care at all. I know modern medicine saves lives - my dad would have died without a defibrillator and a heart valve replacement - my mom needed her gallbladder taken out after it ruptured. It's just me. I'm the one who once went to the doctor for a sore throat. "It's probably viral." He sends me home to fight it off. A year later when I visit him for another reason the doctor says, "Oh, that strep, did the antibiotics work?"

What antibiotics?  "Oh, we got your work back and I told my nurse to call in a prescription for you because it was strep."  Yeah. Like the girl who works there has ever passed a message between doctor and patient in her entire life. How can you work with her every day and not know that about her?  Anyway, the strep is gone now, only took two months of my life and possibly was responsible for the severe heart inflammation which the ER said was almost certainly auto-immune related but they lost the blood samples they took so who knows. Thanks for caring.

The only time I've ever gotten any help in a medical setting, it came from a physical therapist. I was there because of severe, constant pain. The doctor, having not so much as looked at me, says (and I quote) "There's nothing on your shoulder that could be causing a problem." Physical therapist?  Runs her hands over me, without even knowing why I was supposed to be there yet, says, "Oh, did you know you've got a mass in your shoulder muscle?  Feels like a trigger point. I bet you're in constant pain."  And presses it hard for 30 seconds. And then advises me how to the same. And that gave me back my life for a while, until my body figured out new ways to fuck up.

I hate my body for being perverse and attacking itself for no good reason and having stupid reactions to the drugs I take to stop it from doing that. Hate  doctors for being useless. Hate America for being a country where it's a moot point that doctors are useless because I can't afford to go to one anyway. And I really hate Claritin right now, almost as much as I hate whatever in my living room is giving me hives.

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Sorry for ranting - just had to unload some of this.

(And I'm sure there are fine doctors somewhere, just never when I need one.)
You are in a bad mood I guess... I hope you feel better soon, Allie, and it´s great that you´ve been able to lose so many pounds. Be persistent, you will make it no matter how many tricks for body makes. Rated!
Oh my Allie, that was a great rant.

I'm sorry claritin sucks for you. I hope you don't react to Zyrtec the same way.
This is going to sound weird but it worked for me. I had really bad hives one spring in Florida and trust me I am the allergic kid, from cradle to my grave allergies are me. It was not from eating or drinking anything. This was a new one on me. I went to this dermatologist hoping for some relief but not willing to do any steroids.

Go and get yourself some tagamet. Yes tagamet. It has been proven to work on certain allergies and the side effects were nil for me, and in fact I didn't need to use it for long at all.
The active drug is called cimetidine, if you want to google it. But it is cheap, no scrip required, and worth a shot. I have so much empathy for those suffering from allergies because it has been the story of my life! Good luck!
I enjoyed reading this. I hope you feel better. Please take good care of yourself.
Zyrtec is great. It doesn't make you drowsy, works FASTER than Claritin AND I have not gained any weight with it!
Poor Allie, you have every right to rant, and I have to agree with you wholeheartedly. You're body really is fighting you and resisting. There was a doctor on NPR talking about people with inflammatory diseases and diets, how your body finds ways to outsmart the diet and fight back, weird.

I've had doctors help with things for my son and I, big things like gallbladder surgery for me and kidney stones (if only they'd sell morphine OTC could have saved me a lot of cash), but lots of time you pays your money and you takes your chances. Years ago I had a doctor tell me that if I didn't hear from them about the results of my pap smear--I interjected kiddingly, that means you've lost my phone number and address--he didn't even blink, he just said no, it means it's fine. Yeah right. When I was on Tegretol for my epilepsy which will totally dehydrate you causing stomach upset and sinus trouble and teeth trouble, I saw an otolaryngologist who told me he would not perform sinus surgery just because I was in a bad marriage. I was in a bad marriage, but he didn't know that, and since when do bad marriages equal sinus surgery?

When my son was born with spina bifida, the delivering doctor was down the hall and nearly back to his office having declared my son's health to be perfect. It was the nurse and my ex who found the lesion on his back when he went to get weighed.

When I found out I didn't need to go the doctor was when I lost my insurance and got off the Tegretol. There are lots of home remedies for stuff that work better than going to the doctor, and cost a fraction of that.

I hope things get better for you. Sometimes it's hard to tell what is worse, the meds or the condition you're treating. I didn't mean to make this about me, just trading stories.
Marcela, thanks for the encouragement! Logically I know I will get past this, but it was getting me down. Your pep talk helps a lot!
Kaysong, thanks! I should be good at ranting now, lots of practice :)
Ablonde, thanks for the recommendation. I'm leery about trying the tagamet though, because I looked it up, and one of the side effects is an increase in the effect of estrogen. Since my lupus-like syndrome reacts strongly to estrogen (had to stop taking the Pill) I'm afraid it would be a problem.
Patrick, thank you so much! I left a comment on your latest post about obesity.
Yekdeli, good to hear. I'm hoping the Zyrtec turns out to be a good thing :)
Latethink, don't mind at all, glad to hear your stories. It does seem sucky that medicine is the one field where doctors get paid whether they do any good or not, but the alternative was worse - back in the days when doctors only got paid if the patient got better, doctors would simply turn away very sick people.

Your experience with your son and the nurse sounds all too familiar. Gotta make friends with those nurses, tech people, machine operators, they often know things the doctors miss! I hope your son is doing well now.
Oh jeez Allie - I'm sorry you're experiencing this. Hives are the suckiest.
Allie--That sucks. Hives are hell.

I don't know whether you should take this with Claritin and lupus or not, but Midol is a diuretic. (My hands and feet swell up really bad during that time of the month, all due to fluid retention. This also seems to happen when I get the flu. Midol makes me pee like a racehorse, but the swelling is gone within a few hours.)

For a more "natural" diuretic, unsweetened strong black tea.
And congratulations on the weight loss!
Well, so far today the Zyrtec is a big FAIL! I feel tired and logy (didn't realize Zyrtec makes you sleepy, unlike Claritin) and I gained 2 lbs in water weight on it overnight. My face and fingers were literally puffy. Back to the drawing board. Wish I could afford a doctor for a scrip for Allegra. I'm thinking I'm going to try half the dosage of Claritin and see if that works for me.

AnniThyme, Sao Kay - Thanks. Yeah, I had always thought "hives" meant a few little bumps, but this is giant red welts. Of all the things, sheesh.

Leeandra - I haven't had much luck with Midol as a diuretic. Apparently whatever's in it doesn't have much effect on me. And I have to be careful with the tea because I tend to be hypersensitive to caffeine. :S Oy vey. Thanks for the good wishes!
Thanks for your comment to my last post. I have replied.

I have two questions for you.

1) Have strangers ever made unkind remarks about your body?

2) What kind of bodies did these individuals themselves have?