Sprezzatura

Because neurotic is the new black....

Ann Nichols

Ann Nichols
Location
East Lansing, Michigan,
Birthday
December 31
Bio
I write, I read, I clean up after people and I worry about things. I have a chronic insufficiency of ironic detachment. My birthday isn't really December 31; it's March 22 but it won't let me change it.

MY RECENT POSTS

Ann Nichols's Links

Salon.com
Editor’s Pick
JULY 16, 2010 10:25AM

"B" is for "Boundaries"

Rate: 46 Flag

I sat down at the computer this morning to write about poetry. “They’ve had enough,” I thought to myself, “I need to write about something other than my mother, the hospital, my thrawn, tired, pathetic, disconnected life.” I even took, and uploaded a picture of my most beloved, tattered book of poems to put at the top of the post. I took the dogs out, fed them, and opened the front door to let in the relatively cool morning air. I made a pot of coffee, talked to Rob who is starting his working day in another state, and texted Sam, who is at his cousin’s house, undoubtedly still asleep. Like a cartoon pianist, I interlaced my fingers and extended my arms, warming up my typing hands. The phone rang, as I had known, in some recess of my soul, that it would. There is no free pass, quite yet.

It was my father, groggy, still half asleep and gravel-voiced. He had gotten a call at midnight, he said, from my mother. He hadn’t had his hearing aids in, but he thought that the call had been placed by a nurse and that maybe my mother had fallen. He told me that when my mother was given the phone she had talked for ten minutes about how awful he was, how awful I was, and how we were trying to control her and ruin her life. This is par for the course at the moment, but no easier for being the status quo.

She’s been through this before; we all have. There seems to be something in her wiring that causes her, at some point in the long process of clearing anesthesia and narcotics from her body, to become angry, resentful, and not a little paranoid. My-brother-the-doctor explains that part of it is post-traumatic and involves the frontal part of her brain. Her filter is missing, and the Id is minding the store. We see a confusing mash up of her “real” self, which is assertive, passionate, and used to being in charge, and her “crazy” self, which lacks the ability to apply the brakes.

All of those days that I longed for her to wake up again, worried about coma, brain damage, and death have led me to this place where I am struggling to balance compassion for her against concern for my dad, and the need to set some boundaries. My brother, who has pointed out correctly that my father and I did not come equipped with adequate fence-building materials, has told me that we can be kind and loving and supportive, but that there is no need to sit and take abuse. He says she won’t remember, that she doesn’t mean it, and that in some ways it’s positive that she’s pushing back and fighting rather than remaining passive. We can walk away, hang up the phone, try again later to see if the wind has shifted.

Easier said than done. I have always had a hard time setting boundaries; I always had the drunk, miserable and/or suicidal friends who called and kept me on the phone for hours as I convinced myself that I alone stood between them and certain ruin. I had difficulty walking away from the genuinely terrible situations in which my clients often found themselves, and ended up driving them to the hospital, calling the electric company or attempting to smooth over family issues. I cannot, now, end a phone conversation easily, say “no” to something I do not want to do, or mentally detach from the idea that someone else needs help. Like “The Empath” on the old “Star Trek,” I absorb other people’s need and it somehow becomes part of my own mission.

There is undoubtedly secondary gain, I probably get off on the feeling of being a White Knight, but that stuff is subliminal. In my conscious mind I feel tired, and yearn for boundaries. Yesterday, my father and I met with the Nursing Supervisor, her assistant and one of the residents. I was all about pragmatism, balance, and boundaries. I explained that, because she was so smart, my mother compensated well for the lapses in her cognition. She could appear perfectly fine to a nurse popping in to change an IV, but she really shouldn’t be left to her own devices in a chair, or expected to remember to order her own meals. I also requested that she not be permitted to call my father in the middle of the night. The staff was responsive, and the meeting was highly satisfactory. They could help, they really hadn’t understood the Big Picture, and we all wanted to help her get better and be more independent while keeping her safe and making sure my dad wasn’t worn to a nubbin. I left the conference room feeling smart, caring, and surrounded by the whitest of boundary fences. I believed that I could only do what I could do, and then it would be okay for me to walk away if she was irrational and unkind.

 She knew about the meeting, and she was livid. Things were said, ugly things that I will not preserve for posterity because she didn’t mean them, can’t have meant them. “How would you feel?” she asked at one point, looking at me with eyes that were her own, real eyes and not those of a delirious person. How would I feel? I told her that if I felt like I had just woken up and found myself in a prison in which everyone thought I was crazy, and prevented me from going home, moving around or eating good food, I would be angry and frustrated and hurt. Before I was finished answering, she was gone, replaced by the Irrational Other. I envisioned my strong, white fence, took my lumps for fifteen minutes, and excused myself. I called her later and she seemed to have forgotten; she sounded worn out and we talked in a desultory way about how hot it was, whether she could have her own pajamas, and what was on television.

Then, some time in the middle of the night, she was furious again. She wanted to call my father and was told (because of my request) that she could not use the phone. After becoming increasingly agitated for an hour, she climbed out of her bed despite the sides being raised and the bed alarm being set. Before they could get there, she fell. All my tidy and appropriate setting of boundaries had energized and enraged her to the point where she hurt herself. I keep wondering how much of her rage is delirium, id, and chemical residue and how much is legitimate. How would I feel? How do I set reasonable boundaries without really knowing what I am shutting out, what’s legitimate human suffering and what is just a thousand tiny paper cuts from a chemically-altered mind? What good is that high, white boundary fence if it made her panic and fall in an attempt to climb over it and rejoin her life as the matriarch of our family? It’s hard to tell from my current position, skewered on a picket and flailing impotently. I’ll climb down, or I’ll fall. We’ll see.

Your tags:

TIP:

Enter the amount, and click "Tip" to submit!
Recipient's email address:
Personal message (optional):

Your email address:

Comments

Type your comment below:
This is so hard to read, and I'm sure so much harder to live through. Keep repairing that fence, and take care of you.
I wish I could give you perfect advice. I think you've done the right thing. I'll repeat what sixty said, "take care of you". have compassion for everyone, yourself included. you're doing your best. that's all anyone can do.
Shaking my head, nodding my head, yes, oh yes. Different circumstances, same lesson I'm learning with my family of origin (not my beloved family) and that is: B is for Boundaries. Well told, Annie._r
I've known a few people who have gone through what you are dealing with. It's not your fault and you are truly a saint for not just throwing in the towel and saying "I'm not going back". And I am glad you have a place to vent.
Ann, you never have to apologize for speaking your mind or heart. We are here to read and help in anyway we can. Hang in there, your last paragraph summed it all up. She is loosing the matriarch position, but you must make these decisions on her behalf for her safety. Try to stay calm and take care of yourself.
Prayers and Blessings, Blu
this is yes so tough bc while it's no one's job to take abuse it's also true that legitimate self-protection trips too easily into at least feelings of neglect and guilt (((Ann))) r
My mother has called me a whore multiple times. So many other things she might have called me that were actually true.

I'd read your musings on jello boxes if you chose to write about those, but right now, I am getting much from your hospital contemplations. You have an ability to express things that I cannot, and there is something important about that.
Wow, you are burdened with so much to think about. I feel for you because none of it is easy. Hopefully the writing of it helped a tad.
I hate the thought of you skewered on a picket. Write about what you need to write about. It's part of the fence.
oh ow- god I am sorry Ann
Been there. Sometimes you have to be the gatekeeper and the enforcer for people who are not able to do it under compromised circumstances. It isn't always effective, and it is always challenging. My heart is with you.
I went through some of this when my mother was first put in a nursing home - the angry accusations quickly forgotten, the occasional rage directed at the staff. By coincidence, I posted this morning about alcohol abuse and the Id and the effect is the same - things said that nobody really means. You have to develop a thicker skin - easier said than done - and realize that it's not the real her speaking. You're a caring person, Ann, which is why it hurts, but you'll climb down. You're also an eloquent writer, which is why we feel your pain.
Oh, Ann. My heart is with you.
My mother went through a similar period during her hospital days - hostile, mean and demanding. Reporting fantasies as fact. Without a doctor-brother to translate, it was so hard to hear those acid demands and accusations. One always wants to meet a parent's needs, but sometimes, one just can't. Or - not both parents. You can only struggle on, cope with the feelings of inadequacy and uncertainty, and keep telling yourself you're doing the best you can, today.
My mother came home from that hospital, died peacefully with hospice and family beside her, and my father moved in with me. That was seven years ago. We do OK - I am fortunate in that he is ambulatory and healthy, at 87.
Wishing you the best outcome possible. Keep writing. You're right - this is a real community, and even those of us who lurk in the shadows feel connected to it.
"...a thousand tiny papercuts of a chemically altered mind..."

Just wow to that and so many other beautifully constructed thoughts and feelings over a very helpless situation. I feel for you and your father so much. This is excrutiating to endure, both outside and inside your mother's hospital room.

Prayers for you all. Hang in there!
Your "thrawn" musings are making a first-tier empath out of me. You are a magnificent woman, and don't you dare fall off that fence. Again, I would note how fortunate you are to have a brother who knows. I would heed that doctor's advice. - Love, The Little Frog who Cares
I had a reaction similar to your mother's after anesthesia which others did not understand and which I largely do not remember. It has been difficult to be judged for that. Your mother most likely does not remember either. It will be hard but I recommend leaving her alone with the professionals who won't be emotionally injured when she expresses her rage. Being ill and becoming helpless and dependent on others while losing parts of oneself create rage. I am sorry she is expressing hers inappropriately and causing you pain.
Thank you so much for writing about this part of your life. Anger first comes from fear and that is where your mom is coming from. She is afraid of all kinds of things. No filter. Everyone has given you the one great bit of advice that you need. Take Care of Yourself First. Do whatever you need to to maintain your strength because without that you are no help to anyone.
One of the frustrating things in life is to (a) calmly consider a problem, (b) come up with a good, sane, humane solution, (c) apply it [if possible - sometimes the disconnect happens here], and then (d) realize that it either made no difference or, more likely, made things worse. Enough to make you throw up all over your hands (my mis-hearing of a blues song that really was 'throwing up both of your hands').

So sorry about all this. I have no advice, since I've never figured things out. Stumble and bumble thru, that's about it... Take care of yourself in between as best you can...
Here, let me help you off that fence.
You are doing what you need to be doing the best you can.
That is all any of us can do.
(The boundary things rings loud and clear with me too-still learning them.)
I cannot even imagine.
Dear Ann, you did the right thing. Learning boundaries is very hard but you have great insight. Mostly we find ourselves having to create boundaries with people who are unreasonable by the very fact they don't get they are crossing/trespassing. Sometimes it is because people are conscious but self-absorbed but this is not your mom's case. I think we all understand her fear and rage but my guess is if she were in her right mind she'd want both you and your dad to get some sleep.

In the meantime, once people become unreasonable (and in your mom's case thru no fault of her own), it is common for them to resent and rage against anyone setting boundaries. Now you and the hospital know the lengths she will go to, maybe this will help inform how to deal with further crises. Expect she will not like these, but she also won't remember them.

Does the hospital have sitters? Someone who can stay in her room during the night to ensure she does not hurt herself?

Prayers and good wishes to you.
There is nothing easy in this stuff . . . there just isn't. But Ann . . . you are bringing your grace and compassion to the situation, and you're learning to give yourself that gift, too.
what complexity...you are the magnificent writer you are because of your empath... but how to balance and build the right fences.
Blessings...
This is the horrible aspect to certain folks' end of life that no one wants to talk about......why some people die peacefully and others let out rage and frustration...after sitting with many loved ones' end of life period I began to wonder and still do, is it that what belongs to Earth stays here and certain things must come out before we go?

I don't know, but I'm so sad you are having to go through this, it's tough! especially when it's Mom...
Ann, I am so sorry. You are in my thoughts.
It wasn't your fault and it didn't happen because you set some boundaries. I am sorry that you are dealing with so much.
You write so beautifully and honestly of that which is so raw and deep and personal and heart wrenching. Who are we supposed to be while this goes on and what mask are we supposed to wear so that it will deflect the pain that is too much to bear? Reading your words lets others know that they are not or were not alone.

When we are so close to what might be our own demise, we are not on that road with anyone. Others might be there but they will not make this journey with us. Only we can make it and we will make it alone. We who are there, want to be there, try to be there, care and yet often we become the clearest mark. Perhaps it is because we will not walk away. Not really. We will love whatever happens. Somewhere that is known and so words come because boundaries vanish. Everyone needs us and everything comes our way, filtered or filter free.

Writing these words, I hope, is a help for you. Know how much they are also a help for those who read and care. Thinking of you as you face each day. Hope you find ways to give yourself permission to rest and breathe and nourish yourself in whatever ways help most.
This breaks my heart. I am sorry that you have to deal with this. I truly empathize and feel, because 1) I worked in a nursing home as a teenager with people who were like this, there sometimes and mad at you for controlling them, and then not there again and because 2) I am now 'here' sometimes, and then drugged and not, and I lash out at my husband when he tried to keep me safe. I just handed my last couple of cases over to someone else because I am sick, and medicated, and can't drive (so now I have to go through a bunch of mess to get paid also. no money coming in AT ALL. *SIGH*). My insurance company also told my husband that if I am caught driving, they will no longer pay for my home health care or housecleaning/cna service.....so I no longer steal the keys when he isn't looking and sneak away. However, when he is tired, and I scream and yell and demand that he gives me rides places, it is just because I feel helpless. I know that he is looking out for me.

I do the same in the hospital when he refuses to let me have my own laptop becuase I am drugged and will drop it on the floor and destroy it (as I have done to other electronic devices) and I cry on the phone when he leaves. It is the drugs. All I can say is, bear with your Momma. She loves you. And even in the Angry moments, just say to yourself "and this too shall pass." R!
I am so sorry, Ann. When we put some much-needed boundaries in place, we are willing to deal with some possible consequences that may result. Hang in there. R-
Time is the escape. Time alone, time to repair. Time is okay to take. R
Dementia in whatever form is so hard to deal with - my friend's mother told her several times, when she took away her mother's car keys and gun, "If I had my gun, I would shoot you. I would!" Because my friend is the only one in her family with the strength to set boundaries, she is the cause of everything that enrages her mother, and now her mother doesn't remember who my friend is except that she knows she is angry with her. So hard. Just know you have the support of all those nameless people with the same struggles.
My own mother commented when I had spent a week trying to organize her paperwork and bills, "Well, at least when I die, you kids will know where my bills are..." That kind of letting go is accompanied by so much fear, frustration, and anxiety. I can see it coming for myself someday too. I only hope my own daughters are more patient than I am...Take a deep breath.
All you can do is make the decisions that feel right at the time, which is tough, since this is virgin territory for you. And, it's a given that no matter what you do, no matter the outcome, you will look back and rethink those decision, both big and small, wondering if they were really the right ones. But, you're there for her and that's the only decision that really matters in the end.
Seems very hard. I'm sorry.

Is the hospital social worker involved, and advising you at all? She/he may helpful in making some of these decisions.

Take care.
This is a tough situation. You were simply trying to protect your father from the 4 a.m. phone calls. You couldn't have known and therefore, couldn't be blamed for your mother's accident. Be good to yourself.
Lezlie
When someone I cared about was out of his mind in the hospital, he ripped off all the tubing and his hospital gown and took off running. I still laugh to remember the sight of 4 nurses tackling this naked man. They strapped him in for a couple of days, and he recovered, having no memory of the incident.
Wow. Well, you've done what you set out to do - you spoke to the staff and they apparently listened. That is a good thing.

How much longer till the residue of delerium passes? Any estimates? And your dad, well, he might want to turn off the phone. I know - he'll maybe miss an oh-so-important call, but then you could get that call first, maybe....
I'm sorry - I'm not offering much good advice at all. I'll just watch and learn. And offer up some salutations to the powers that be to help things get better.
A PS Ann: are you familiar with Caroline Myss? She believes that the people we encounter with whom we have the most difficulties are really our spiritual friends because they force us to learn lessons we might not otherwise learn. So Caroline would say you and your mom made a sacred contract long before you and she came to earth school that one of the things she would help you (and perhaps your dad?) learn is being generous of spirit (cat don't make dog as they say) while maintaining good boundaries. It may not feel great at the moment but maybe seeing this fro a spiritual perspective will help, if this fits in with your beliefs.
Such a gift for creating something soaring and lyrical out of chaos, humdrum, heartache and just plain mess. I think part of the struggle is that this kind of thing remains stubbornly opaque, won't be made clearer with the most dedicated analysis. You're too insightful to make anything more than human 'errors', and those are dear and quite simply unavoidable. Please don't torture yourself -- this is the price you must pay for being so keenly alive. You're as fine a human being as any I have known and you write purely, like an angel.
You have Got to let yourself off the hook. Please. The guilt eating at you is so misplaced. You're all in an impossible situation but your brother is right. She needs time, and you need to SEE the boundaries. No matter how often she's 'herself,' if there are times she's not, then she hasn't healed yet and must be protected from herself.

Think about this. No matter how upset and angry you were, if it was you, right now, you who was sick and recovering, would you demand to call anyone in the middle of the night? Would you endanger Yourself by climbing over the bed rails? No, you wouldn't. You understand real boundaries and you do her an enormous service to help keep her safe within them.
After reading this through twice, it seems that you are providing the best boundaries possible for your mom's safety and for your sanity. I can't imagine your distress and questioning. But your intent is pure and you can only draw from the information you've being given, which seems sound. I'm so impressed with your integrity and resolve and especially, your incredible devotion. Bless you, Ann....
and yet...you convey it all so clearly with your writings and musings and you allow us to be here to carry this a little ways with you on your journey. It means a lot to us Ann. It's an impossible situation with no solutions other than what works in the moment. The conference was a really good step, do it again and again as you feel the need. They can carry this too - and are actually a big part of the heavy lifting team. Carry on, and on -- until something changes, and imho -- you're doing it beautifully.
sally's right. it doesn't make it any easier, but she is. keep writing about it if it helps get the weight off your shoulders. thinking about how i'd handle it, it probably does. xoxo
thank you so much for writing this - what a difficult place to be in, to navigate through, to negotiate and one I relate to with my own poor fencing and a father whose dementia is worsening. I am learning that I must also be a recipient of my own compassion, and hope you will be able to care for yourself as you care for your loved ones.
P90X Extreme Fitness System ONLY ONLY 42$$$$$$$
sorry to disturb u. just take u a little time.
If you are in need,
welcome to : http://www.betterwholesaler.us
50%off ca,ed hardy t-shirt$15 jeans,coach handbag$33,air max90,dunk,polo t-shirt$13,,lacoste t-shirt $13 air jordan for sale,l nba jersy for sale sale,$35,nfl nba jersy for sale
free shipping
accept paypal credit card
lower price fast shippment with higher quality
BEST QUALITY GUARANTEE!!
SAFTY & HONESTY GUARANTEE!!
FAST & PROMPT DELIVERY GUARANTEE!!
Packing: All the products are packed with original boxes and tags also retro cards/ code
numder
Features: AAA QUALITY, COMPETITIVE PRICE AND SERVICE
1) The goods are shipping by air express, such as EMS,the shipping time is in 5-7 business days
2) They are in stock now;
3) Various styles and color for clients’ choice
4) The Products are fit for most people, because of our wholesale price
puma gucci$35,nike jordans six ring,yeezy$%5!!
new era caps$13 gucci handbags jeans,t-shirts sunglass,caps
true religion jeans$35,ca,ed hardy jeans$35
LV,CHANAL,HANDBAGS$35
NIKE SHOX+AIR MAX+TL3+OZ+NZ ONLY $35
UGG TIMBLAND+LACOSTE SHOES+ED HARDY SHOES$35
DIESEL T-SHIRT,GSTAR T-SHIRT,CA T-SHIRT,50% OFF FOR SALE $15
DIOR SUNGLASS,DG SUNGLASS$15
new brand watches only $$$$$$$60
our website: http://www.betterwholesaler.us
I like this site very much

===== http://www.shopstrade.us ====

jordan air max oakland raiders $34–39;

Ed Hardy AF JUICY POLO Bikini $25;

Christan Audigier BIKINI JACKET $25;

gstar coogi evisu true jeans $35;

coach chanel gucci LV handbags $36;

coogi DG edhardy gucci t-shirts $18;

CA edhardy vests.paul smith shoes $32;

jordan dunk af1 max gucci shoes $37;

EDhardy gucci ny New Era cap $16;

coach okely Adidas CHANEL DG Sunglass $18;

===== http://www.shopstrade.us ====
I like this site very much

===== http://www.shopstrade.us ====

jordan air max oakland raiders $34–39;

Ed Hardy AF JUICY POLO Bikini $25;

Christan Audigier BIKINI JACKET $25;

gstar coogi evisu true jeans $35;

coach chanel gucci LV handbags $36;

coogi DG edhardy gucci t-shirts $18;

CA edhardy vests.paul smith shoes $32;

jordan dunk af1 max gucci shoes $37;

EDhardy gucci ny New Era cap $16;

coach okely Adidas CHANEL DG Sunglass $18;

===== http://www.shopstrade.us ====
I like this site very much

===== http://www.shopstrade.us ====

jordan air max oakland raiders $34–39;

Ed Hardy AF JUICY POLO Bikini $25;

Christan Audigier BIKINI JACKET $25;

gstar coogi evisu true jeans $35;

coach chanel gucci LV handbags $36;

coogi DG edhardy gucci t-shirts $18;

CA edhardy vests.paul smith shoes $32;

jordan dunk af1 max gucci shoes $37;

EDhardy gucci ny New Era cap $16;

coach okely Adidas CHANEL DG Sunglass $18;

===== http://www.shopstrade.us ====
You are inspiring to the some of us who face similiar challenges. Especially we "empath" ones who need to frame up the fencing soon. Can't be of service to others if I am spent.
"I’ll climb down, or I’ll fall"
Echoing in my mind ...
Pain of powerlessness
Jumps over every fence
Of reasoning ...
There is no secret key
To hidden gates of love
Sometimes the best way
Is to be crazy
And unpredictable
For loved one
Except Mother ...