Anne Cameron Cutri

Anne Cameron Cutri
Location
HOT SPRINGS NATIONAL PARK, Arkansas, USA
Birthday
November 09
Bio
I feel I have been lead to write a psalm everyday. I do this by faith and obedience not for any illusions of being a writer. However, I pray some of these psalms will speak to you and bless you. psalm   –noun 1. a sacred song or hymn. 2. (initial capital letter) any of the songs, hymns, or prayers contained in the Book of Psalms. 3. a metric version or paraphrase of any of these. 4. a poem of a similar nature. __________________________________________ All of the artwork I created unless otherwise noted. If you'd like to buy one of my paintings or contact me to say oh, give me a million dollars to help me in my artistic endeavors : acreator3@gmail.com. The link to purchase my work has it priced very high and you'd be better off contacting me directly for an incredible discount! __________________________________________ The scriptures are usually taken from the New Revised Standard or the New King James.

SEPTEMBER 1, 2009 8:55PM

Warrior for the Body: In the Trenches Round 2, Week 1

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THE ENEMY

squamouslung

THE AMMUNITION

chemo bags

THE TRENCHES at theBattlefield

chemo room

GENTLEMAN START YOUR ENGINES chemo bag

Day 1

This was the first chemo treatment, the second battle. Pat is getting a total of 3 different chemos. Two in the chair in the trenches, and one he's taken home with him, carried in a shoulder pack, motor and all, set to a slow drip to be completed in 5 days. Though frightened the night before, when you're at battle with your full armor on, bravado takes control when prior battle stories are bantered around with fellow warriors. The first day, the nurses on either side of you watch for the least indication of reaction to the drug, the man across from you shares how his arms couldn't stop shaking when he had it. Or in round one how that person's whole body was on fire and he was laying on the ground convulsing. Really conforting and uplifting to the person on the hot seat facing the unknown. But there is confort in mutual misery. However professional staff ought not join in.

I find it incredibly insensitive that a nurse when Pat asked, , describes a person that had an adverse reaction to a medication , "looked like they'd been hacked up with a meat cleaver".

I asked Pat, "She didn't really use those words, did she?"

"Oh ya, I asked her and she said the man was all broken out...." he stops because I interupt him "like from a meat cleaver?"

"Ya, she said those words."

I guess when you're in the trenches day after day you become hardened to the realities and descriptions thereof. Either that or Pat is putting his particular spin on things. We were both in the Doctor's office when he described what could happen to the bones, particularly the spine if not treated. Pat swears the doctor said that a person could be walking and their back could just snap in two.

I said, " I didn't hear that, not even close." He's still convinced he did.

Warriors who have already battled one go round, must be operating with PTSD or would it be CTSD for Current Tramatic Stress Disorder? The fact that they have the courage to battle at all is beyond me. Every day I am consistently amazed at this one man's bravery. So many others are being brave too. They are modern day heroes, heroes to themselves for chinning up to the challenge, and setting an incredible example showing their strength of the human heart, mind and will.

Day 2

I had planned to take Tuesday's off from work, to go prayer group in Little Rock, and to take Pat with me. Last week we went and he enjoyed it, so we're going to keep going. This group, I call it a prayer group but it's more than that. It is Holy Spirit lead in the sense that, these are mature Christians well versed in the bible, who are totally devoted to God. Most of them minister in their own churches, have remarkable faith , and have seen movement in the spirit that produced miracles. I just happen to be a lucky duck to have been invited years ago, and have always felt close to them in my heart. It's been over a year since I'd been there, and because my boss is understanding and knows the gravity of the situation with Pat, she's agreed to let me take Tuesday's off to return to my "spiritual family".

When Pat called me this moring, I could tell he was having trouble. He'd been up all night with nausea and vomiting. The chemo was obviously effecting him neurologically, in that it was hard for him to get out a sentence. I told him stay put I'd come get him. He said no,(he mananged to stumble out a few words) he was just going to go to work and do a few things. I said, "Are you sure you're not endangering your life or anyone else's?" He was sure. When he got to my house, it was as if he had had a mild stroke or was struck with, as Pat asked, "What's that thing Michael J. Fox has?" Parkinson's? "Ya." he says not quite able to control his mouth. He let me know that it looks worse on the outside than on the inside. In other words he could think clearly enough he just couldn't get all the synapses to fire correctly. Still, he wanted to go to the prayer group.

So off to Little Rock we went. He was very uncomfortable, his back still ached ; which the doctor said should subside in a couple of weeks, his head was spinning; a result not only from the chemo but also the other chemicals to counteract side effects, including steroids. For most of the first hour of the prayer meeting, Brother Jim was sharing some things about what he thought the Lord was doing, double checking with others in the group to see if they were in agreement,while many had scriptures to back up what he was saying. Several times, Pat was offered the chance to lay down, as he was obviously uncomfortable, but he declined. Jim said among other things that if he felt it was someone's appointed time to see the Lord that he would simply pray for God's will. He told Pat that they were going to have him sit in the chair up front in the middle of the semi-circle of participants. He was not going touch Pat, he was simply going to pour blessed annointing oil on his head and then let God do the work. We all prayed and praise music was playing. Many got up and read scriptures as they were lead. The nature of this group is that if one has an issue we all need to look at that issue, whether it is pride or stubborness or anger. We're coming up on Rosh Hashanah, (Feast of the Trumpets), so repentance is in order.

It was clear as Pat rolled back in the chair, back arched, hands outstretched and tears rolling down his face, that he had a breakthrough. He certainly looked a lot better when it was all finished. This is not something Pat would normally be open to, in fact I've been trying to get him to go since last Thanksgiving. I am so grateful that he is going and that it is providing comfort for him and a renewed faith.

Day 3

This is the third day and I'm worried that I'm not doing enough for Pat. He was up again last night heaving, and looked terrible. I brought him some other nausea medicine from the pharmacy. It seems to be working and he's been sleeping most of the day. Because this is only day three and we have a long way to go, I determined I needed to get him a recliner. Last time he went through chemo and radiation and couldn't even keep the food down from the stomach tube, they discovered he has a hiatal hernia. I thought if he just had a comfortable place to sleep elevated that might help. There seemed to be an unused recliner in the back office I thought I might borrow or purchase. As it turns out, the chair has sentimental value to the owner of the business I work for, whose departed grandfather sat in for hours. But, he offered to buy one for Pat which was a very kind gesture. All set to take me at lunch break to buy this chair and have it delivered, his sister calls and says she has a practically new recliner that she's not using that he could have. Well the owner was already in chair mode and he grabs his buddy to go get the same departed grandfather's truck to pick up the chair and deliver it to Pat's house. It's times like these when you realize there are plenty of people more than willing to help and can be very generous, all they need is a little direction or something to do. Since my lunch break was now free, I drove to Pat's to check on him. He was sleeping, but managed to mumble that he didn't want a [stinking] chair.

Since the aforementioned generousity of practically strangers was already in motion, I could hardly stop it now. I said, "We'll just have them leave it in the carport."

"No," he said with eyes still closed and laying flat on his back,"it's supposed to rain all week." Okay, I thought to myself, he still has sentient coherent thoughts, good, good.

"Well, I could move the chair over there and put the recliner in it's place." I said pleadingly.

"You're not hearing me, I don't want a chair." [I would have put an exclamation point at the end of that sentence but he didn't have enough strength to exclaim.]

I said, "Think of it as a tool toward you're recovery, we can move it as soon as you're done with all this. Besides, you may end up enjoying it and thanking me for it later."

There was no response but I knew he wasn't convinced, he just didn't have the strength to argue. I'm not sure his not wanting the chair was an issue that he's working on, which is more gracious receiving, or that it is my issue of wanting to do something for his comfort and this wasn't going to help one iota, particularly if he wasn't going to sit in it out of stubborness. Last go round I tried everything I could think of : nature sounds and calming music cds, new linens, heating pad (for aches), vaporizer (for his dry mouth), scriptures and positive thoughts taped everywhere (which were promptly torn down by his mother), a juicer, (for those high-vitamin drinks) and a whole bunch of other stuff that doesn't amount to much when you're in such agony. Still I have to try.

Night 3

I lay in the next room calling out to you

Lord, Jesus, Father Son and Holy Spirit, Yaweh, Maker of Heaven Earth,

This is just the third day, he's already not able to eat

I'm not strong enough, I'm not bright enough, I'm too naive, at almost 50 I can't believe how naive I am

Make me strong I call out not expecting any answer and yet

I feel Your Presence pressing on me

I can't seem to believe it but I turn around

and there    You    Are    opening my heart

like a squeaky                      camera lense

a rusty rose                            it opens

with tears I                              breathe in the sacred DNA

    I see him                              covered in it too

      and I know,                  I hope, I pray

                            this is real.

Day 4

While Pat is getting hydrated I'm sitting at work and I should be working but I was reminded by meta's drawings on their post of Story People by Brian Andreas, and was happy to find they've moved to animation:

Well I couldn't get the widget to come up so here's the link:

http://storypeopleblog.blogspot.com/

That's okay I found something better and more pertinent. Carol Irvin who has a blog here did this artwork while on chemo:

 

I hope Pat will do better tonight, his brother is taking over so I can focus on my daughter. He was persribed stronger nausea medicine, and the doctor said he should be feeling better in a few days. I just wonder why he won't sit in that chair, seems to me it would really help him be comfortable, and help with keep nausea and hiatal hernia at bay, to be elevated. I've never understood that about people, suffering more than they need to. I've done that a few times in small ways, like being cold at night but not getting out of bed to get another blanket, so losing some times a whole night's sleep, thinking I'll get warmed up in a minute. Why do we do that? Why a momentary lapse in good judgement and logic. Do we think we don't deserve it? Do we get so adapted to discomfort that we can't believe there's any way to relieve it?
Day 5
When I checked in on Pat this morning he looked better. He was trying to eat some oatmeal he had fixed himself and some juice.
He said "If I have to do this for 5 months I'm gonna die."
This wasn't the first time he had said this. I asked, "Did you tell your doctor that?"
"Yes" he said.
"What did he say?"
"That my system will get more used to it and it will level off." he spoke unbelieving.
There is no way to know how terrible he feels, I can only measure improvements by appearance. We did get his pills organized so he can make sure to take the anti depressant/anxiety medicine. And ibuprofen. And nausea pill. And now the diarrhea has set in. Lord, please help him to keep some liquids and food down.
It's times like these when one needs to count the small miracles. Every time I go to Pat's house I really feel like I'm in a trench in  the battlefield nursing the wounded. Especially seeing him half covered laying sideways partially off the couch and in an agonizing position. I finally convinced him to take advantage of the chair I got him. And gosh he admitted it was much more comfortable. It's these little somethings that count as a small victory in the day in life of a chemo patient. Today we will start our painting together, as part of the healing process, even if he's just pointing or orchestrating, he's doing. Painting or making art is a very life-affirming, pro-active, in-the-now thing to do. I did these prayer paintings during my high-risk pregnancy. I was an older mother with a fibroid tumor possibly getting in the way and causing complications, even death (I was told, if I didn't abort her).

Here's one of them:

gestation 2 

GESTATION-Oil on canvas

gestation detail 

GESTATION-detail

This mandala at the center of the womb was the focus of my mediation. The star of David,  the cross, and whatever else I intuited. My daugther was born beautiful, healthy and normal annnnnnnnnnnnd it was a natural child birth. I pray these paintings do as much for Pat as they did for me.

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Comments

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There is not much I can do except to offer both of you hope. My mother is a cancer survivor. She has been cancer free for over 20 years now. But like Pat she had to undergo chemo and she had radiation too. My heart goes out to anyone dealing with what you are going through.
I offer you the traditional Rosh HaShanah prayer, "May it by They will, O Lord, Our God, to grant us a year that is good and sweet."
I am glad he has your support. I'm just a former patient but this reaction

he was laying on the ground convulsing.

was mine only to what they call the initial loading dose of one of the chemos. Somehow the body adjusts and while the joints still do get achey it there were no longer convulsions.

What people need to understand that this is intentional poisoning of the body for medical purposes and people react as if they have been poisoned. Not that you need to understand that - just people reading your account of Pat's treatment.
Thank you Dorinda and Obsolete Man for your comments. Yes it is poisoning, And I'm so glad to hear from Cancer survivors. Because as an unlooker, and supposed care giver, it is excruciating to witness and not really be able to do anything to help.
Anne, bless your heart and bless Pat's. You are doing much more for him than you think. He's hurting and he will continue to have a "problem" receiving help. Just keep on keeping on! And I'll be you he is sitting in that chair within the week! And keep writing!
You are in my prayers!
I know firsthand what you are going through. It is hard to be at front and center to something as heart wretching as this. I wish I could give great advice that can help, but I can't. All I can tell you is I really understand what you are going through right now and if you want a friend, I can help with that. Really hard for me to revisit, but I am willing to help another. I have tried posting about my own experience, but it is still too painful and close. Keep in touch, support is always the best remedy. PM me if you want to chat offline. Support is often focused on the patient (who obviously needs and desreves it). Attention is rarely paid to those who support the individual fighting this fight. Like I said, we can chat offline, but I can't share about it in the open. At least, not yet.
This is amazingly brave and inspiring, Anne. Thank you for your courageous witnessing on behalf of Pat and for sharing it with both humor and love.

—Melissa
Wanderer and Yellow Starlings thank you so much for your thoughtfulness. I may take you up on it wanderer, though I don't wish to force you to open up on my account. I did speak with my mother whose cancer is in remission. I guess you can't say it's absolutely gone until 3 years? Anyway she assured me that, the little bit I'm doing ,does help. It is a lonesome journey for the cancer patient, because there's no way for the other to identify with what they're going through. I'm so glad I found this blog, this is a great release.
O. .. dont know wht to say...wd come bk...

er, thx for tht link
pleased to be on your reading list, thank you, Anne for adding me
Cancer is my greatest fear. Why, I don't know, but I have so much respect and awe for those who must endure the cruelties of such an insidious and sneaky disease.

You write with a flair that draws the reader in, giving us a brief glimpse into your story. I thank you for sharing and hope that writing about your journey helps you cope.

You and Pat will most certainly be in my thoughts and prayers. God bless!
thanks wind I enjoy you're writing too. yes it does help me cope, and I hope it helps others.
Anytime you want to touch base feel free. I can talk about it, writing about it has been difficult. I found having people to share common experiences in this area gives you more strength and courage, than you can find alone. Postings can be a great place for this. You are lucky to discover OS now, it will definitely help you in your journey. Keep in touch :)
Wonderful courage and strong faith are both evident here. What a hard, hard journey. My prayers, of course. Always.

Monte