Life's a Journey

We'll just have to see where the road takes us...

AspergerMom

AspergerMom
Location
Somewhere,, Texas, USA
Birthday
February 12
Bio
Complicated and eccentric, loving and loyal, cranky and short-tempered but yet patient and kind. I'm an oxymoron personified. Do you really need to know more?

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AUGUST 27, 2009 12:20PM

Finding Myself Again - a Self-Deprecating Journey

Rate: 13 Flag

There's not really much to say right now.  I'm lower than low - lower than I've felt in a long time.  Some of it is chemical, I'm sure.  But the truth is that  I am low because I feel kind of empty. 

Overseeing the needs of a special needs child is all encompassing.  It is a full time, frustrating, rewarding, loving, hating seige. It seemingly never ends.  Only for a brief moment -- it has.

Now that my Asbergers son is off to college, I feel very lost.  He is not communicating his needs, experiences, or whether he is living up to his agreements.  There were no thank you's, see you soon, I'll let you know when I need something, comments.  After 19 years of watching his every move, band-aids on every scrape, advocating for his needs and rights at school, in organizations, etc.  Well, I just feel dropped flat.  I feel disappointed - I'm sure not unlike a million empty nester moms.

Did I realize that this was all so much a part of my own identity?  I guess I really didn't.  Caring for and about my son was innate - the tasks I fulfilled on his behalf simply became woven into my daily life and my being. The joy and pain of living with him daily became routine.

Now I find myself doing work I hate, and in an industry that I often detest.  I'm an Aquarius for heavens sakes.  I'm a fighter, an innovator.  I march to the beat of my own drum and want to save the world from all wrong.  My background is working with the elderly, alzheimers and hospice.  At least I was contributing something to society back then. 

I daresay, the addition of another cream, device, or product for narcissistic middle-boomers, doesn't exactly check that altruistic box.  So, I need to find out what to do, to bring joy back into my life -- to bring purpose.  All of my apptitudes say "counselor" or "psychologist".  Like I am really going to go back to school again - at age 52!  Not that my husband would allow it.  Not that I could afford it, or fit it in.  So, I need to find purpose again in my life.  A sense of purpose and passion that was drained from the psychological burden of being the parent of a special needs child.   A HIGH functioning special needs child.  Some people would say that I am lucky that my son is so high functioning.  Yes -- in many ways, I am. 

What they don't realize is with that high function and super-intelligence comes the most skewed logic, reasoning and frustrating verbal gymnastics known to man.  It's like trying to reason with an Alzheimer's patient.  You can't force them to see the world the way you do.  Their reality is THEIR reality.  Those educated in the field know that you just jump into their fantasy and re-direct from there.

Well, that is almost easier.  Because an Asbergers individual DOES have to try come out of their alternate universe long enough to function, communicate and participate.  It is the hazy in-between that is so difficult for friends, family, and co-workers.  Like most sufferers of mental illness, they alienate all of those who care most about them.  They alienate, mis-treat and abuse to the point that they are alone.

 I guess that is the real fear I have for my son.  He can be a real jerk.  He can be volatile, demanding, un-bendng, unappreciative, and on and on and on.  I fear he will be alone.  I fear he won't make it through this process and end up under a bridge somewhere. 

So this journey will continue.  I suppose we are both self-actualizing on different planes.  If I could just get them to intersect on occasion - think I could learn to be content with that.  Meanwhile, it is time for me to go on.  I have opportunities available to me to earn a good living.  None of them however, bring passion to my being.  I think in order to find some iota of happiness, I have to feel passionate about what I am doing.  I guess it is time for me to dust of my credentials, and see if I can bring service to others. Service is always the best salve for sadness.  Take the focus off of yourself and give to others.  At least that is what I have heard.  At least that is the advice I give others!

 I guess we will just have to see where the road takes us...

 

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Hang in there. This appears to be a never-ending windy road. Do one good thing for yourself every day and climb back into a life that's about you.
"Like I am really going to go back to school again - at age 52! Not that my husband would allow it. Not that I could afford it, or fit it in. So, I need to find purpose again in my life."

You're a great mom. You haven't had much time for yourself. Enjoy the time you have now. I am a little worried when you say your husband wouldn't allow you to go back to school. If you really want to, then do it. Find out what you want and go for it. Don't let anything get in your way!
It's not that he wouldn't ALLOW it, it's just that I am expected to work full-time and provide income for our family. Can't really do that, go to school full-time, pay for two kid's college, etc... guess, I'll figure it all out. .
Going through a miniature version of what you're experiencing today, as I put my 11-year old Aspie son on the bus for the first day of middle school. He's so sure he's got it all in hand, and I'm equally sure that next week I'll be at the school figuring out strategies with the shell-shocked special ed department. During all of the brief pre-school meetings he had with the staff, everyone assured me he would be fine, he's a great kid. Heh. They haven't seen him in action yet....In the meanwhile, I just bought myself a box of chocolates and am nervously eating my way through them while awaiting his return.
Delurking to recommend a book you may find useful: I Could Do Anything if I Only Knew What It Was. It has a chapter addressing empty nesters looking for a new purpose in life.

Also, if you're interested in taking classes you should consider distance learning programs. You may not be able to attend school full time, but taking classes online is a good way to accumulate credits and ease back into school.
ok, I am just going to say this, because my heart goes out to you and I can so see this in my future (2 boys, PDD-NOS)..you are fucked. You are a great mother..no matter how high functioning (I know, I know...me too), he wouldn't be in college now were it not for you..no way..no how..But of course, after putting your entire being into getting him their..you feel a sense of tremendous loss...how could you not with a heart as big as all outdoors? Give yourself time...it will get better and easier..breath deep sweetie..you deserve this. Love to you.
You are the expert here and have most likely done this but if he is not registered with the university's disabilities office then he needs to be. As an instructor if I was told by that office that this student is not acting out but being belligerent due to an illness then that would be helpful. That office usually also lets the student and the instructors know what resources are available. Once a student is registered as disabled instructors have to accommodate whether they agree with the request or not since it is federal law.

I hope it all works out. I felt heartbroken when my teenager moved away and realize you are hurting.
There's a book I reread from time to time called "Necessary Losses," by Judith Viorst (yes, the children's author). It's very insightful. The kids leaving home chapter applies even to us moms with not-so-neurotypical kids. I feel ya.
Oh. This causes me to stop breathing for a moment. Shit. I hate being a mom sometimes because of times like this: Times when we are supposed to be able to step back and know we've done our best, blah blahblahblah. Of course we did our best. BUT that does not mean we don't still feel the lows of a relationship that is not/can not be as reciprocal. Not quid pro quo, that's not healthy parenthood, but the feeling of being acknowledged somewhere, sometimes, somehow, from the being(s) we put so much time into.

I'm sorry you are feeling low. I hope that as time slides by that you might have a bit more energy for you. Without self-deprecation! :)
I have been exploring all sorts of things lately, looking for the outlet I need. I've been on painting binges, reading cookbooks and cooking like there is no tomorrow (hell, I even applied for Next Food Network Star!). I have allowed myself to admit I HATE GARDENING. I kill plants and I will no longer partake of that pasttime.

All to say. Be low. Enjoy something. Breathe. Write your son two notes: 1) to send, I love you; 2) to not send, AUGH!

Best.
At least, his variation of AS allowed him the high intelligence to get into college. What people often ignore is that not all AS children are highly intelligent. I have a ver learning disabled child with AS. But I feel for all Moms who have a child on the Autism spectrum, PPD NOS included. We are all in it together, and often alone too.
I have a high school AS kid who won't go to high school, is experimenting with community college. If his anxiety lets him go into the class and he canremember the assignments, he may finish the semester with some units. He can take the high school equivalency test in California but twice he has panicked and refused to go in, the other time he misunderstood the directions and didn't complete it. I think Asperger moms have no choice but to be consumed while these kids are in their house. I can imagine the vacuum you feel although I would relish a little freedom right now. But even more I know more than a lot of the responders that anxiety you feel about the outcome of this latest adventure of his and the feeling of waiting for the other shoe to drop. Letting go of these kids is not the same. I expect my brilliant son to perhaps be an adult at 25 - with a lot of help and understanding from the adults around him. But nobody understands him like you do. I will think of you with white light. Thank you for sharing.
I think it is a herculean task that you've just completed: delivering an asperger's child through childhood to college. Sounds to me like you deserve a nice, long soak in ambivalence with some pity salts thrown in to the mix. Frankly, if you can do what you've just done, I believe you can do anything. Soak a while, then chin up.
My Asperger's son is in his second week of college, 3,000 miles away from home. He got himself involved in student government, music group, community service, honors classes, etc. right away, and kept busy. But I just got off the phone with him, and learned that he is eating most of his meals alone in his room, and having trouble "getting settled." He is one of those Appie kids who refuses to acknowledge his diagnosis and wouldn't ask for help on that basis. I'm reading your blog and feeling thankful for your writing it, because we share experiences beyond my expectations. But I can also see that my anxieties aren't going to be relieved by his absence, and hopefully he will seek out the help he needs.
Wow. I am a mom of a 11 year old Aspergers kid. I see so much of our story in yours. My life is consumed by him and his needs. He started middle school 3 weeks ago and I have been on pins and needles waiting for 'THE CALL' it came this week, have more meetings with all teachers, theripists, special ed, etc. I have not been able to work for the past 2 years because I was constantly called in to his schools for behavior issues that the school could not understand. It is so painful to see this amazing kid who is so creative, funny, and brilliant be so lonely and angry. Aspergers is so confusing! I so appreciate your blog. Mine is about my struggles with one Aspergers kid and one kid that is struggling to understand his brother.
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