Ed Bartosik's Blog
MY RECENT POSTS
- Living with ALS: The Greatest
Abandonment
June 17, 2013 12:52PM - Living with ALS: Feeding Tube?
June 01, 2013 08:11AM - Living with ALS: Alien
Abduction
May 30, 2013 04:47PM - Living with ALS: Know Thyself!
May 26, 2013 03:54PM - Living with ALS: What Up
Homie!
May 18, 2013 11:22AM
MY RECENT COMMENTS
- “As a dad with regrets
myself. I see the need to heal
in your
piece. I hope to
d…”
June 18, 2013 01:32PM - “Thank you for your
understanding. It was and
still is a hard
battle to stay
invo…”
June 18, 2013 01:24PM - “Thank you for
this.”
April 17, 2013 08:17AM - “Wow, what a great story!
You are a talented writer.
Happy I
found you.
Thanks.…”
April 13, 2013 09:50PM - “Thanks for that. Even
though I am only 56, I've had
to learn
fast about what
loo…”
January 23, 2013 05:42PM
Ed Bartosik's Links
- New list
- www.edbartosik.com
- Living with ALS
Living with ALS: The Greatest Abandonment
Blog Post 53
June 17, 2013
It has been awhile since my last blog entry. I have been working on my memoir, which is really a daunting task as I try to make sense of my early childhood experiences. Chapter one is just about finished/… Read full post »
Living with ALS: Feeding Tube?
Blog Post 52
June 1, 2013
Alright, so I've been agonizing over this for about two weeks now. Should I go ahead with the procedure of placing a PEG in my abdomen or not? The reason for having the procedur/… Read full post »
Living with ALS: Alien Abduction
Blog Post 51
May 30, 2013
There were wires coming out of my body! There were electrodes with wires, dozens of them, streaming along my body to a junction box near my head as I lay in a darkened room. Wir/… Read full post »
Living with ALS: Know Thyself!
Blog Post 50
May 25, 2013
"Every now and then when I smell the sweet aroma of honeysuckle in late summer or the musky odor of damp fallen leaves in autumn, I am transported to my days at the Lt. Joseph P. Kennedy Jr./… Read full post »
Living with ALS: What Up Homie!
Blog Post 49
May 18, 2013
I received a visit from my Kennedy Home homies Anna De Jesus and Larry Byrnes. I haven't seen these guys in about 40 years. We were the original homies long before "homie" became a thing you called your friend/… Read full post »
Living with ALS: Decisions, Decisions, Decisions
Blog Post #48
May 12, 2013
To live or not to live, that is the question.
Is it better to stay, and suffer all of the ridiculous highs and
lows of life?
Or to leave, and avoid the trials and tribulations altogether?
We/… Read full post »
Living with ALS: Health Update
Blog post #47
May 10, 2013
Health Care in the US is such a mixed bag, continuity of care being a major speed bump. I have all the equipment I need and then some without co-pays. So, I guess I can't complain too much. However,/… Read full post »
Living With ALS: Yins and Yangs
Blog Post #46
April 29, 2013
It was a great ending of a pretty mundane week on Sunday; our first barbeque of the year with king fish, roasted peppers, chicken wings, grilled asparagus and a slamin' mac-n-chees… Read full post »
Living with ALS: He Ain't Heavy, Part 9 Final Chapter
Regrets
Blog Post # 45
April 24, 2013
My theatre career was in full swing after mom died, while Joe was heading deeper into agoraphobia. Joe and I would meat up and spend a few hours together as he was just letting go of Ruby. He/… Read full post »
Living with ALS: He Ain't Heavy Part 8, Moms Gone Missing
Blog Post 43
April 16, 2013
Eight years and another failed marriage later, Joe was still fixated on the Ruby episode. Although we were civil to each other, the closeness and affection I felt toward my brother growing up had/… Read full post »
Living with ALS: Chills, Spills and Other Thrills
Blob Post 44
April 13, 2013
Well it's been one of those weeks. So much for quality of life. I am still having trouble getting used to the hospital bed. The bed looks like something that was made in the 1960's. Brown metal and steel bed/… Read full post »
Living with ALS: Of Beds, Bedpans and Love
Blog Post 42
April 8, 2013
Well we did it! We moved to the first floor one bedroom apartment. The space is pristine and has had very little use over the years from visiting family and friends. Spring is right around the corner and I/… Read full post »
Living with ALS: Part 7, Wake Up Maggie...
Ruby and Me Christmas 1973
Living with ALS: He Ain't Heavy, Part 7
Blog Post #41
March 31, 2013
"Wake up Maggie, I think I have something to say to you..." Rod Stewart.
To tell you the truth, I do not… Read full post »
Living With ALS: What a Week!
Blog Post #40
March 21, 2013
Taking a little break on the Joe story.
All the health services provided by Visiting Nurse Service kicked in this week. I've received visits by the Physical Therapist, Occupational Therapist, Speech Therapist and I now have a/… Read full post »
My Window Pain
My Window Pain
by Ed Bartosik
March 13, 2013
Rain washes my gloom
Away to a place
The mind in some space
To tic toc tic toc
Like a clock in time
Streaking through the brain
Of my window pain
Streaming… Read full post »
Living with ALS: He Ain't Heavy, Part Six
Blog Post #39
March 17, 2013
I believe the old Bronx Veteran's Hospital on Kingsbridge Road in the Bronx got a bum rap from the movie "Born on the 4th of July" starring Tom Cruise. Perhaps I am being too benign/… Read full post »
Living with ALS: He Ain't Heavy, Part Five
Blog Post #38
March 12, 2013
Trying to bring this chapter about my brother Joe to an end is complicated. I started out to write a short description of my brother's life but I am now in the flow of what our rel/… Read full post »
Living with ALS: He Ain't Heavy, Part Four
Blog Post #36
March 11, 2013
It has been a real struggle to write or to do much of anything else for the last few weeks as my advancing ALS is beginning to affect my upper-body strength. More importantly, my ps/… Read full post »
Living with ALS: He Ain't Heavy, Part Three
Blog Post 36
March 3, 2013
It has taken me some time to recover somewhat from the news of my brother's death. I feel I am slowly coming back to life only to realize my ALS has progressed some. … Read full post »
Living with ALS: He Ain't Heavy, Part Two
Blog Post 35
February 17, 2013
My brother Joe died in 2007 and I only found out a few days ago
while researching my family history. This news has sent me into a
deep depression with negative thoughts and feelings of despair. I
hate myself so much right… Read full post »
Living with ALS: He Ain't Heavy, Part One
Blog Post #34
February 15, 2013
I started a project a day or two ago to map out my family tree. The internet makes this task somewhat easy with sites like ancestry.com and geneology.com. Ship's passenger manifests, alien registration cards, and census d… Read full post »
Living with ALS: Nosce te ipsum
Blog Post # 33
February 12, 2013
I can be such a wus, such a coward. What? You might say. Writing about one's end days in an honest way is courageous, ballsy. Truth is I am scared shit. I am scared about knowing and uncovering what no one knows; the/… Read full post »
Living with ALS: Wonder Woman and the Snow People
Blog Post #32
February 9, 2013
Dressed in patriotic red, white and blue Wonder Woman would fight the evils of our society even though she was from a secretive Amazonian culture. I never quite understood the comic book character as a kid and the 70's TV show starring Lynda Carter/… Read full post »
Living with ALS: Farting Around with Art
Blog Post #31
February 7, 2013
Two of my favorite Kurt Vonnegut, Jr. quotes "To practice any art, no matter how well or badly, is a way to make your soul grow. So do it," and "I tell you, we are here on earth to fart around, and don't let/… Read full post »
Living with ALS: Use of First Person (consider revising)
Blog Post #30
February 5, 2013
How does one write a memoir or a blog about one's own fatal condition without the use of "First Person?" You've written several paragraphs of gut wrenching, soul searching prose that at times makes you blush for being so brazen or so sad for/… Read full post »
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