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Bella Joffre

Bella Joffre
Location
Sometown, New Jersey, USA
Birthday
June 27
Title
Senior Writer and Editor
Company
The Joffre Pen
Bio
Full name: Isabella. Go by Bella/e or some call me Ella. Grew up by the ocean. My soul is still there. I love the sound of the sea- and no matter where I have lived, I have always had to be near a body of water or I do not feel welcome. I have taken everything in my life very seriously. I was (and still am) a serious student. A serious teacher. A serious singer. A serious actor. A serious writer. As a result, I am a burned out young woman in her mid thirties with a lovely cat. But I don't take my life as seriously anymore. I do not take my self as seriously anymore. I choose to laugh. To go with the flow. When I started teaching over a decade ago, teaching taught me. Columbia University prepared me. Life hadn't. It was normal for a person my age to lack what it took in capacity, strength, wisdom, and virtue. I like to think I have made up for that now. But then, as many teachers do, I worked with much less than I actually needed in situations vastly different from what I would have chosen for my special endowments. The best thing I could do then- or even now in this economy- when I am asked to take on such an assignment, is to make wherever I am lost as much like home as I can. Just as I entered critical junctures with my students, we both had to learn to give up the need for each other, to let each other go, and to not hold each other back in the middle of a school year. Today, I give thanks for the opportunity to serve these kids in the time that I did. I met something called "change" in my life. Would that life were like the shadow cast by a wall or tree, but it is like the shadow of a bird in flight. (Talmud) I was a Catholic once. Now I am a Jew. When I embraced the waters, I realized that life is about going on creating oneself endlessly. I know I cannot control the waters. I can only go with the flow... When I struggle and try to organize all the waters to my specifications, I sink. If I flail and thrash and growl and grumble, I go under. But if I let go... I am born [again]... And that is where my bio begins. Photo credit: deviantart.com Blog design complements of RicTresa. Many thanks, Ric.

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JUNE 9, 2009 2:22PM

The Door Dwell

Rate: 19 Flag

As it turns out, most building managers have set their elevators to something called "door dwell," a disabling feature on the "door close" button enforcing a 2-4 second delay on the time it takes the elevator doors to close once passengers have boarded.  Passengers thank goodness for this feature because it saves their limbs, and managers thank goodness because it saves them from lawsuits against their company.  I like this feature.  It enables me to madly hit the "door close" button without hurting anyone.  I feel a sense of powerlessness in my life, and the little things help.  Sometimes.  Sometimes, they delay dealing with the inevitable.

Yes, I have an anxiety disorder.  For someone like me, everything in life today is cause for anxiety.  It takes me an inordinate amount of time to carry out my daily errands, because I worry that I have forgotten something before I have left the house, or that perhaps I will want to complete one more task while I am out and I should have thought of bringing that certain something with me that would be required.  I have what I call my "out day," when I make ridiculous plans in order to eschew other time consuming plans, so that I can calm my inner voice that says, "you should be doing better with your time right now."  I think that ultimately this anxiety is about a deep concern that I have that I am not connected with my true self:  the real motives for my work, life, or anything, have failed me.  I feel an emptiness that I know is getting in the way of just about everything.  At one time, I was sure that this all came from emotional constraints.  I was forced to decide on a career to young, too fast.  My twenties were a big blur.  Big questions, not enough time. Now-- even though I know that this emptiness is from both emotional and physical contraints, it does not make it any easier.

I became very sick 4 years ago.  Not terminally ill or anything.  Just extremely tired.  Dragging.  Okay, I couldn't function.  My hair was falling out. I was mixing up my words, and slurring my speech. I was showing the beginnings of periodontal disease, even though I take exceptional care of my teeth and gums.  I was seeing enormous cysts (acne) all over my face for the first time since I was a teenager.  And I was beginning to get hives. HIVES.  I had to go to the emergency room twice (ala Jennifer Lopez in Monster in Law).  Not funny at all!  These symptoms got in the way of teaching. I had to stop.  I faced the questions from the kids, and the parents.  No, I am not dying!  I am fuzzy. Frazzled. Confused. So tired that I cannot, with all of my will, get myself up before 2 in the afternoon.

I found out that I had autoimmune thyroid disease (Hashimoto's Disease). Not easy. Getting to the diagnosis, I mean.  Having Hashimoto's Disease means taking medication for the rest of my life.  I'll live. 

But for some reason, we seem to be lacking a clear understanding in this country of what it is that defines hypothyroidism.  I went from doctor to doctor to doctor complaining of what were clearly thyroid symptoms, and was given the same tests over and over and over again.  It was not until I found out that there was a NEW way that doctors had begun reading the tests since 2003, that it occurred to me I should be seeing a doctor who had actually been keeping up with the latest research in his own field (not all of them do).  Who was I to think that a top rated researching physician from one of the major universities near my home wouldn't know best how to treat me? He didn't.  His colleague didn't.  And I did not like being told that I was perfectly fine, and to go home and get some more rest. 

The doctor I found now is truly exceptional.  He knows what he is doing, and he put me on the right medication.  It is truly amazing what the right medication can do for a person.  A week into taking the right thyroid hormone, I felt like a new person-- until the next problem started.  There had to be another problem.  This IS me, afterall.

I had been on birth control for over a decade in order to regulate my periods, and beginning thyroid medication changed my hormonal cycle.  I had to change my birth control pills to a different brand.  As luck would have it, as soon as I changed brands, I began experiencing pain in my legs.  The pain began to be persistent in my left leg, but I never associated it with my new birth control pills.  In fact, I had also begun a new cholesterol medication at the same time, and my pharmacist said that the cholesterol medication could cause leg cramps.  For a few days, I attributed a charlie horse pain-in my leg- to a cholesterol drug, and dangerously walked around trying to rub it and strectch it out.  Soon, it was in two spots.  It was in my leg muscle and behind my thigh.  The pain was unbearable. I made an emergency appointment with my doctor, who then made an emergency appointment with a radiologist, and within hours, I was admitted to the hospital. 

I had a clot.  It had traveled, and it was continuing to travel FAST.  The emergency room nurse gave me an injection of morphine and another injection in my stomach of a clot busting drug.  The treatment would be more of these stomach injections, a year of coumadin, frequent blood checking, and careful attention to NOT bumping that leg.  Blood analysis at the hospital found that I had a rare blood disorder: factor V leiden deficiency.  No more birth control pills for me.  Ever.  Amazing that I lived to see this day.

Working was out of the question for a while. So, I took some time off.  I went back to school and earned some credits.  I got a couple of certificates.  As they say, "Got the T-Shirt."  But, eh. I wasn't ready to go back to teaching and I am still not. I am not sure what I am doing with my life for - perhaps- the first time.  The powerlessness is overwhelming. I feel impatient, like I do when I want to hit the "door close" button on that elevator!  Knowing that my favorite elevator button is set on a time delay, I might just have to rethink my philosophy here.  I certainly asked my doctors to rethink the way they treated me.  Why wouldn't I rethink the way I treat myself?   Things cannot move along any faster by pushing a button, human beings beings are not open and shut cases on any level, and some of life's biggest questions, like "who am I, really?" cannot be answered in the same time it takes to figure out what I want for breakfast.  I need a little "door dwell" for a while. I might take some time to even step out. 

 

©2009 BLOG POST by  Bella Joffre
All Rights Reserved

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first of all, WELCOME!!!! it is so wonderful to have you here on OS. your writing is fabulous. this is a great and comprehensive post. it's a lot to take it. it might make sense to divide this into a few posts to kind of ease people into your set of illnesses and challenges. it's overwhelming, as least for me, to read long posts with a lot of information but i know that there are many on here who have no trouble with that. i am so sorry that you had to deal with all of this carp/crap!!! my god, this is so much to have on your plate.

it's so interesting because there is someone on here who was diagnosed as having fibromyalgia and turned out to have hypothyroidism also. diagnosis is not an exact science at all and that sucks. is the test they are now using a Saliva Test??? i hope so. they are very accurate while the blood tests are not. i would love it if you could PM me about what meds you are taking for this. i take a thyroid med but im' convinced taht i either need more of it or a different medb ecause my baseline temp is 97.1.

anyway, i am soooo pleased that you found this place and that i have been able to help you in some ways by being so honest and oversharing. :) it warms my heart. i'm not a hugely generous people in this way but i'm going to PM my friends andd have them come and read your post and welcome you. and i won't even ask you to send anyone to me. :) big big step for me. i'm usually very protective of my pals. love love love and gratitude.

PS. please consider breaking this up into a few posts so people can really "hear" you. so many on here know all about what it is like to have to start all over again, because of illness and/or losing a home or a job.
Hello! I, too, am glad that you are here. I loved the metaphor of the elevator. I am sorry for your struggles, but I think that it is fine if you take time off to look around.
:)
Sympathy for your medical situation - I know the feeling of having doctors tell you to go home and get some rest, which is what they did for years while I suffered from an undiagnosed autoimmune disorder. If symptoms don't present in a typical way, seems like doctors would prefer to ignore them!
Welcome to OS. I hope things continue to get better for you.

Theo, thank you for pointing me in this direction.
Thank you ALL for your comments to my very first post, and thank you T for all of your gracious help and support! I do have so much respect for you and can see where you are steering me with the writing. Thank you for the suggestion about dividing it up. I will give this some thought as the day goes on today. Love love love and gratitude right back to ya-
Bella
Welcome to OS.
Doctor's seem to be much more interested in writing a
prescription,instead of actually doing a diagnosis,which would
mean they would have to pretend to be knowledgeable,and up to date.
Not all Doctors are like that,of course.
Welcome, and you wrote well about your problems.
I too had a similar mystery disorder about 15 years ago and they never diagnosed it. It burned out after about a year. So glad you are getting correct diagnoses and look forward to reading more.
Welcome to OS! And kudos to you for writing about your problems. You will soon find you are not alone here at OS when it comes to problems! LOL
Welcome to OS. I relate well to what you write of, my problem became Type II diabetes. I also fight with anxiety disorder every so often. The metaphor of the elevator (its delayed door) is powerful. Sometimes one needs to slow down and contemplate the eloquence of being. Thanks Theo. Rated
Glad you are here. Please take time and have compassion for yourself. Who else will?
I’ll add my welcome as well. Clever analogy with the elevator doors. Looking forward to reading more.
Welcome from a former "Jersey Girl" who suffers from hypothyroidism and panic disorder. Perhpas it has something to do with those toxic fumes in NJ? Only kidding...can't wait to read more from you.
I need a door dwell too right now in my life. I love the metaphor, and your post. welcome.
I also would welcome you! Your writing was so clear and your analogy just perfect. I truly hope your medical problems remain treatable and you will continue to improve.

Enjoy your time here, it's a wonderful respite.
Looking forward to more of your work.
see, bella, i have some very lovely friends who came on over. i'm grateful for you and im' grateful for them. love love lvoe
You are such a love T. And what a wonderful group of friends. Thank you for this beautiful welcome.
trailing the posse, may I add my 'welcome', too? This 'elevator' metaphor is remarkable. You are, indeed, far from 'open and shut', Bella. Thanks to Teddy for tipping me off to this :) I've paid the price for a mis-diagnosis as well -how many ineffective doctors are there out there? I can't rant too much, though, because I was treated perfectly well by other doctors when I ended up in A&E (your ER), finally. It was just very painful and scary getting there. Rated for revelation.
Angry Monkey also welcomes you to OS. Excellent post and rated as such.
Thanks, Theodora, for sending me to this post...awesome! I feel for you, though I don't share your afflication, I think everyone has experienced at least transcient bootes of anxiety. And, when we do, it might seem like the whole world is transpiring against us. Thanks for sharing, deLuvCoach ...let me know if I can be of assistance...