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Bella Joffre

Bella Joffre
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Sometown, New Jersey, USA
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June 27
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Senior Writer and Editor
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The Joffre Pen
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"See, the human mind is kind of like... a pinata. When it breaks open, there's a lot of surprises inside. Once you get the pinata perspective, you see that losing your mind can be a peak experience." ~ Jane Wagner The Search for Signs of Intelligent Life in the Universe

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JULY 15, 2009 9:43AM

My Struggle With Hashimoto's and FVL* (story #1)

Rate: 15 Flag

I haven't posted in a while, because I have been struggling with debilitating fatigue.  This fatigue is all too common and familiar in my life.  It is the result of a lifelong struggle with depression, and what I found out to be (several years ago) -- a struggle with Hashimoto's Disease.  Hashimoto's Disease happens to be the number one cause of hypothyroidism in the United States, and one of the first autoimmune diseases that has been widely studied by researchers.  But for some reason, when I tell most people what I have they look at me strangely and laugh.  I think it is just the name of the disease!  The complexity of the issue seems to be that I am also extremely overweight, and a lot of people seem to believe that people who are overweight should just join a gym, or go on a diet and exercise some more and stop complaining.  As if it were that simple, or that those of us who are in this situation hadn't tried those things before. 

It isn't that simple.  My body has been working against my mind's attempts over this matter for years, and anyone who knows anything about psychology might know something about the concept of learned helplessness.  This is what I feel has happened to me over the years.  And on many days, like today, I don't feel very energetic.  Yesterday, I didn't feel like caring or fighting anymore.  In fact, I felt  unbelievably exhausted- from doing nothing. From taking my fat, lazy bumper from the couch to the kitchen to get a healthy lunch, and then to take a long afternoon nap, and then to wake up and watch television... and start the routine again with the evening meal. yes. woooohooo. Tough day.  From what I can see as I look out into my back patio, the weed in between the patio bricks fought harder for a life than I did in the last several days. 

 Okay, I am not giving myself credit here.  It took me a long time just to get to this place

Everyday is a fight. I take a lot of medication to keep my spirits and my energy levels up.  Taking the meds is a fight.   The thyroid meds are important, but I hate taking medication for depression- and I wish I could get off of them and kiss them all goodbye.  Sometimes I wonder about being on all of this stuff. Health and Happiness does have a price. 

I should also say that it took me nearly 4 years to get my thyroid medication levels to my own definition of perfection.  There are so many doctors who REFUSE to prescribe the medication that I take for my thyroid.  WHY?  For reasons I do not understand. I am on a natural and NOT a synthetic thyroid hormone replacement.  I take dessicated pig thyroid, called ARMOUR.   Doctors all over the United States refuse to prescribe Armour because it competes with the pharm. industry's main drug- Synthroid.  I will NOT go through another maddening fight with the pharmaceutical industry to have my Armour medication.  I understand that they are now only making it in certain doses-- which limits availability to consumers even more. 

And finally, my feet are swollen today.  I think I have been sitting for too long at the computer and I need to elevate my legs.  But ANYTHING that concerns my legs/feet is a HUGE concern for me.  A couple of years ago, I had two clots that originated in my leg- as I mentioned in a previous post (see The Door Dwell).  Because of the blood disorder that caused the clots, I had to take coumadin for a period of time exceeding a year.  I still fear that every pain in my left leg is another clot in formation.  Once you have that pain, the memory of it is like passing a baby through a straw. Clots turn the legs into hardened, itchy, bread dough.  But scratching is not an option; it could move the clot inside. Clots are painful and extremely frightening and I NEVER want to have another clot again.  I keep my legs moving constantly. 

I go to the doctor tomorrow afternoon to discuss all of these things.  I thought I would share all of them with you because many of you have written to me asking me to continue to share my health stories -- so that maybe they can help someone.  Maybe they can.  I HOPE they can. 

 *I will keep going with this as a continuous story, and I will number the posts.

Thyroid Disease Awareness Ribbon FVL Awareness / Blood Disorder Awareness   
©2009 BLOG POST by  Bella Joffre
All Rights Reserved

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Comments

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You have my sympathy. I deal with depression: it has many disguises. My thyroid also became inactive for awhile, why it started behaving, I don't know. I do know trying to get through the fatigue is like running in quicksand. rAted!
I know how hard this must be. Chronic illnesses of any kind are a burden to bear and we don't live in a compassionate society.
Sistah, you're not alone. I'm posting this between long bouts of sitting slumped over my desk with my head in my hands.

Hope things get better for you reeeeaaaalll soon.
i'm so glad you posted this. i didn't know about hashimoto's and you just never know who you might help with this information! you know that i know all about depression and exhaustion so you have all my empathy. lvoe love love and gratitude
Your author tags pretty much describe me....
Don't be too upset having to take you anti depressant medications,what would life be without them?
Would you be able to order ARMOUR from an overseas company,
or even from the manufacturer,direct?
Hope you are feeling better soon. I know it is hard, but you sound strong!
Depression is a serious thing, but is not well understood by those who have never suffered from clinical depression. It can definitely cause havoc in your life. I am sorry that you suffer.
depression is, well, depressing! I should know.
I do hope you feel better. You do have a lot of issues to deal with. Take care!
I feel bad for you. There are people in my family with thyroid problems. Just do the best you can! thoughts and prayers your way...
Just read this. I am sure ? you have heard from others or your doctors of the very good coumadin can do and how it can destroy if not properly monitored. So that is my warning label to you, because of what happened to a family member.
Thanks for sharing your story. Be well.