cindy capitani

cindy capitani
Location
Rutherford, New Jersey,
Birthday
August 11
Company
www.cindycapitani.net
Bio
wordsmith. left the paragraph factory for a private atelier. www.cindycapitani.net follow me on Twitter @cindycap

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SEPTEMBER 30, 2010 8:59AM

Her body's 97, but her mind is perfect. What to do?

Rate: 27 Flag

About 10 years ago, maybe a little longer, my grandmother told me if she ever ended up in a nursing home, I should just push her wheelchair into the Hudson River and walk away.

My grandmother and my son Tyler
                         My grandmother & my son Ty.

 Those are not her exact words – but you get the essence.

 She worked hard for her home in Hoboken, NJ. The $97 (or so) monthly mortgage was hard to make, and at one time, she had to borrow $500 from her employer to avoid foreclosure. But she got her family out of the projects; she intended to keep it that way.

 Grammy. She’ll be 97 next week. She’s had a hell of a busy life – a career woman before there was such a term, a mother of four boys, a God-fearing Catholic, the wife of an alcoholic Vet and the eldest of three sisters and a brother. All of her sisters died of breast cancer long ago.

 Grandpa. Her husband. Shell-shocked from the war, she was told. Got the benefits to go with it, which eventually made her house tax-free when he finally keeled over at 71. That’s the best thing he ever did for her – being a Vet and keeling over. But she loved him – and was bringing him steak and sausage from the butcher to build his strength when she found him dead, a lit cigarette in his fingers, a half bottle next to his chair.

 I go to see Grammy in the nursing home every week – more than I ever saw her in the Hoboken brownstone she misses so dearly. The nursing home is by far the nicest one I’ve ever been in (and I’ve been in a lot – used to sing with various church groups over the holidays, trying to find God and save my soul).

 When I was in those nursing homes – mostly full of women in wheelchairs – I knew my grandmother was right: dramatic drowning. I never wanted to see her head lobbed to the side, drool trickling out of the corner of her mouth. Or babbling to an imaginary, long-dead friend – or worse --  feeding pigeons in the hall that weren’t there at all.

 But she’s now in a nursing home,  and has been wheelchair-bound for years. Reverse mortgages kept her in the house she once fought to keep, and the equity afforded her 10-16 hours a day help. But eventually the banks said no more, and no one – not even my cousins Brian and Chris, who were there daily to help , or my father who’s a master at mortgages – could prevent the inevitable.

 She’s been in the nursing home about two months now. And she hasn’t asked me to push her into the Hudson, which is a just a few blocks away. She’s in a great space, really. The help is prompt, the walls sparkly, and there’s no nursing home smell. She gets physical therapy everyday – in the hope that she’ll be able to shuffle with a walker and move upstairs with the other residents who go on regular outings – even to Atlantic City, one of her favorite places.

 I asked her yesterday: Is the therapy helping? Do you think you’ll walk?

 No, she said. But if she could just stand  and make it from the wheelchair to the bed at night … that’s all she wants. The Hoya lift – she said it hurts. And she hates the process, which limits her decision to hang out in one place or another.

 When you’re physically 97 and mentally 67 (or even 57) – it’s not a happy crossroad. She hasn’t walked in many, many years. Her bones and joints failed long ago, but her mind flourished. She reads a book a week and does a crossword puzzle when she’s stuck in the hallway during the daily room cleaning time.

 I try to get there during that time, just after lunch, when the others are lined up in the hall, and a nice aid plays catch with the ones who aren’t dozing. Gram? She does her crossword puzzle. Throw the ball at her? She’ll whip it back at you, dodge-ball style. She is so not playing catch!

 Gram? She’s lucky. And the envy of the very few people on her floor who still have a part of their brain working. That’s the blessing of a big Irish, Catholic(ish) family that tend to hang around where they grew up. She has visitors daily – sometimes a few at a time.

 My drunken grandfather left enough of a Vets pension – combined with her own, and the sale of her Hoboken brownstone – to ensure she’s in a kick-ass nursing home (if there is such a thing).

 The people are nice there – the employees. She’s made friends with them, and so many have said to me “your grandmother is a pleasure to have here. No one else here remembers my name.” They bring her coffee from home, and the newspaper everyday – they know she’s too bright to be among the mentally-missing that are all around her.

 But what to do when you’re older than old, smarter than smart, and can’t stand or walk? You’re dependent on the able-bodied people around you -- paid, unpaid, family or not.

 We can all learn from women like my grandmother, who alone raised her four crazy boys and took care of a drunken husband. She knows acceptance. She’s a living serenity prayer – “God grant me the courage to accept the things I cannot change, the courage to change the things I can, and the wisdom to know the difference.”

 Yesterday she told me that at first she hated this place, this nursing home, the loss of the house she worked so hard to hang on to, that home that ended up selling under-priced and handed to strangers who would never know its history.

 And she hates not being in charge. She wants her toast and coffee at a time that breakfast isn’t served. She doesn’t want to go to bed at 7:30 or 8 p.m. She said she hates having to do things when they say it’s time.

 But she also said she’s come to accept it. And she had gratitude because she knows she is blessed.

 Still. She said she prays to God everyday, asking to be done with this already. She’s ready to go. And when anyone visits, she’ll talk you’re ear off, like she just has to get every last word in … because it might be her last.

 And it might. But she’s OK with that. She accepts things how they are. And knows the only she can change is her attitude.

 The nursing home employees are right – she is a pleasure.  We’re all lucky to have her.  And I’m lucky she hasn’t asked to go for a walk to the Hudson River.

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What a pleasure to read of your grandmother and her amazing attitude. I only hope I will have as much grace, a caring family and a wonderful place to live should I approach her age. Thanks for sharing this amidst so many depressing stories.
I'm hoping for a joint resurgence. you just never know!
I like your Grammy. I recognize her.
She sounds wonderful, even in the face of all she has to endure. My mother is also in a nursing home but her situation is the opposite: she is physically fit and healthy, but her mind is mostly gone. It's all terribly sad.
Cindy, that's a fascinating story about your grandmother and to be 97 is a huge achievement! It's a shame that her physical abilities can't match her sharp mind. Kudos to you for being able to visit her every week!
it's the ice floe for me, but my kids point out that with global warming, they might have a hard time finding one.

great story, love your grandma.
I so enjoyed this look at your fabulous grandmother.
a lovely post... may God keep on blessing your grandmother.
it's good to hear that some make it to the end with light in the eye. but i think a civilized society ought to help with a pill for those who don't want to enjoy the later stages of dementia.
Grammy makes me proud that I picked that to be called that when I had a granddaughter. What a worthy namesake - if only I could live up to her.

(And if she's not already, you need to get that lady online. Imagine what she could do with a blog - for us as well as herself.)
thanks Buffy and bonnie -- i'm so glad you enjoyed reading this. i appreciate that.

ah, foolish monkey -- i hope so too. man, if she could walk ... she'd be on every trip they had the activities list

connie -- how sweet. thank you.

thanks emma. and i'm sad for your situation -- it can't be hard to visit someone with dementia. better to have the mind ...

thanks des. i'm lucky to have a weekday off when there are less visitors. i only wish i had been doing it all along. my loss.

haha brian. we all have the master plan. thanks.

spud and chuck -- thanks. i'm so glad her story was interesting to read. appreciate you guys.

i agree al. once the mind is shot ... a living will and a little pill. i totally support Dr. K.

Nerd -- so cool you're grammy as well. she' making do with a cell phone now and my fathers and his brothers want to get her a kindle (so she can make the type as large as she needs) ... i should blog her thoughts. i think the keyboard might be a bit much for even her!
She is inspiring. Thanks for bringing this to us.
If the staff like you, you have a much better experience. I know my mom was sweet that--even with Alzheimer's--was beloved as your mom is.
thanks o'stephanie. nice to hear that the dreaded A has an up side (I always hear and read so many awful things)
Beautiful. How many of us will end up just like her, but will we have the grace?
It's so hard, watching those we love go through this. You are right to give up and hang on. There are no easy answers.
You think you'll know what you want for yourself. At age 56 (I just happen to be 56), you'll say stuff like "If I every have to wear diapers, just take me out and shoot me." But I'll betcha when you get there, you'll say, "Gimme just one more day." If you're as sharp as Grammy.
Your Grammy sounds very much like my Granny, who died at 98 in 2006. She had hip replacements and knee replacements; stayed in a lot of pain. But her mind? Sharp as a tack. But when her mind started failing, the end of her life came rather quickly. She, however, had been predicting her imminent death for the 15 preceding years.

Lezlie
deb, we can only hope. that's why everyday is a treasure ...

thanks bell ... you're so right. what else to do? except bring her large print crossword puzzle book and scratch-off lottery tix and large print books .... and just listen.

Hells -- i think you're right. it's been a long time since she's asked me to take her to the river. she finds a bit of joy in each day, I think ...

Lezlie, I pray she goes before her mind does. it'd be unbearable.
this is very sweet. tell her she's famous online! haha
yo - i don't think she gets what online means hahaha. but next week i'm bringing my laptop to show her ... maybe. not sure how she'll feel. hmmm. lace irish cutains
Having a mother who is the opposite (young(ish) body and completely distorted mind, I wish that her life would be different... beautifully told and a well-dserved EP.
She is very lucky to have you and be loved by you. You are also a very fortunate man to have such an example of such A WOMAN ... GRANDMOTHER.
Bless you
Oops I meant woman instead of man. and also a grate example for your son. Children learn from example actions not from words.
God love her! And you. My dad is 90 now and your words helped immensely with what may become inevitable.
Throw the ball at her? She’ll whip it back at you, dodge-ball style. Keyboard too much? Huh? I-pad then. ;)
It's great to hear something positive about nursing homes. My mom worked in them all through my childhood. It's hard to see your grandparents in a situation like that, and it's even harder on them to have to give up their independence that they have worked so hard for, and even had to prove they deserve at times. All you can do is find other ways, ways that you can implement, to give them back what they have lost and anything you can to make her feel loved, remembered and included to those things that, unfortunately, she is unable to be a part of as the others.
It's great to hear something positive about nursing homes. My mom worked in them all through my childhood. It's hard to see your grandparents in a situation like that, and it's even harder on them to have to give up their independence that they have worked so hard for, and even had to prove they deserve at times. All you can do is find other ways, ways that you can implement, to give them back what they have lost and anything you can to make her feel loved, remembered and included to those things that, unfortunately, she is unable to be a part of as the others.