So it's an interesting world we live in.
It took all of a couple weeks after the MS diagnosis for both my wife and I to realize we need to continue the separation process and looking for the duplex. We've simply gone too far to really turn back time effectively.
There is between us still love and liking; this is definitely good at this point. At the same time, there's a frustration and needing to move to the next stage of life, to find out what comes next for each of us. Sometimes we both get frustrated with each other and with it all...
In some ways, the idea of a duplex is even better now, because if I do have a MS flare (which I don't believe I will, not for many years, but you never know), my wife can have the kids upstairs while I heal up. Likewise if I have a really tiring day and need to catch my breath. Help is literally 30 seconds away; and at the same time we can both have our independence.
As of now I'm controlling the fatigue with my acetyl l-carnitine; it's working wonders. That plus the vitamin supplements and more sleep are keeping me going. I am definitely ready for bed earlier, but that's not necessarily a bad thing. Still, I definitely have lost a great deal of my usual energy, and I'm not able to do as much as normal, at least for now.
The physical portions of the MS are all invisible to others; the fatigue, primarily; then my numb/tingling hand, which I've pretty much successfully reprogrammed in terms of tactile feedfack so I can type almost as fast as I used to, the numb part of my face and tongue that comes and goes, the numb part of my foot.
Since they're all not evident, I don't have to scare my kids with them, and I can work and function normally, at least externally. The little things are still more difficult; I don't have the tactile feedback I need to choose ripe fruit well, for example. Still, I'm just relearning until the day my body catches up and regains its normal function.
The next step is to begin packing up the house. I've decided to try to do at least one box a night while I'm ill; that way when I regain my strength I can tackle the greater tasks in the house that must be done before we sell it. There is outdoors painting, bathrooms to be redone, tons of heavy lifting to do. It'll come.
I'm definitely grateful to my wife for sticking by me with this. I came home last night to find her reading up on the MS and ordering me a couple specialty items designed to help keep me cool in the summer heat. (MS patients are notoriously affected by heat; I have always been sensitive to it, now I know why!) I was truly touched.
However, we can only keep the hold on for so long, and in some small way, it's time to start the moving on process again. It's already been longer than expected, and I think if she and I ARE to remain good and caring friends and co-parents at the end of it all, it's necessary to feel like we're on the move.
Thanks for listening.
ds


Salon.com
Comments
A word of hope for you - 14 years! - and he has done very, very well. We travel several times a year together, and he takes at least one exotic scuba trip with buddies on top of that. You guys seem to have an interesting arrangement planned. Hope all works very well for you and sending good throughts your way. Peace!
Thanks for the thoughts. So far I've been able to be patient...I guess it's a skill I still have to work more on.
Best,
ds
Best, ds
Thank you for the hope and the offer for support and advice. I'll take you up on it going forward, I expect.
14 years and doing well? That's awesome :) My wishes for his continued thriving!
Best,
ds
brian, thanks for listening :)
thanks both,
ds
Ordinarily, moving would put me over the edge, but right now the idea of NOT moving is even worse. So it's on with the show.
Thanks much...I'm definitely including myself on the list of people to take care of right now...
ds :)
Well, I wouldn't personally go THAT far...but you're sweet, thanks.
Reader Not Writer, I just think we're being good friends, but I appreciate the flattery!
Thanks both,
ds
Once again, you're a better man than I.
You sound so level-headed and able to cope w/this curve-ball. You're handling it eons better than I did when I had to contend w/my Big Fall (9 ft) during the divorce waiting period.
But I recovered--took 5 yrs, but it finally happened. I'm now in a place in my life that came about b/c of that accident. As you will come to see that, for whatever reasons, MS came to you for reason(s) yet unknown to you.
You'll take this path as a result of the diagnosis, and doing so will take you to that place where you need to be. But you sound like you're coping amazingly well--and STBX, at the very least, has rallied to your side as you both deal w/what's yet to come.
I'll pray for you, as no doubt others here are already doing...
I'm just glad you recovered. Honestly, this is a huge curveball, and there are many things to come that are going to test me (the daily injections that start soon, for example - I'm dreading those), but I'm determined to keep as good an attitude as I can through it all.
If not for me, then for my kids, you know?
Thanks much as always,
ds
-ds
Yeah, the ads cracked me up...but I DID see a good price on the acetyl l-carnitine! Have to check that out...
Thanks for the kind words, and the respect.
Much appreciated...
ds
Thanks for sharing your story and keeping us updated.
ds
A few weeks ago I met with an acquaintance whose MS is responding to low-dose naltrexone. The drug has been used for many years in other applications, so its safety is established. Just another arrow for your quiver, so to speak.
I had a dear friend with MS. Aren't you going to enter some sort of exercise regimen? It's what made a huge difference for him, in addition to being an artist and having his work to occupy him when all else failed.
Your bravery is extraordinary and if not the example to your children you wish to leave them, I don't know what other legacy any of us can leave. With admiration,
You are a smart guy, DS. You're doing well.
Best of luck!
What I can tell you is that I've also spent some time bearing witness to the ending of the marriage of someone I care for deeply. It's been filled with fits of stops and starts which just ends up causing more pain.
One thing you said in a prior post that is so true:
"However, it's pretty clear right now: beyond the affair, beyond the gender preference issue, it comes down to the basic fit of the marriage.
And it doesn't."
That really says it all, doesn't it? Remember that, please, when you get bogged down in the memories.
Roger, thank you for the thoughts and well wishes. I agree, best that we make good and sound decisions about it all.
Scribblenerd, I'll look into naltrexone, thank you!
Ben Sen, I'm exercising, taking care of myself and doing well. I honestly think the duplex IS the best arrangement, because if neither of us are able to be "free", it just means more mess. This is regardless of whether we ever reconcile or not, I think. Thank you for your thoughts and comments, I appreciate them.
Wakingup, thanks for the tip. :) Doing as well as I can...!
Buffy, thank you.
Thanks all for commenting...
ds
cartouche, I'm humbled. Thank you.
FabuloulyFlirty, thanks for the comment and the insights. I will definitely remember the fit issue, for sure.
Snap, thank you for your concern. I am very aware of the "brain fog" issue, but in my particular case, there doesn't seem to be much to it in terms of decision-making. Delayed reaction time to make decisions, perhaps. In any event, the marriage fit just wasn't right, regardless of my diagnosis. Thank you for raising the point, however!
Thanks to all for commenting -
ds
Peaceful and healing vibes your way, hon. Bug hugs!
dcvdickens, thanks. I can see how divorce can become bitter, but I'm really hoping to avoid that...
Conniemack, thanks very much. Eventually the kids will know, but all in good time.
Charles, thank you. I'm glad any of this can be helpful at all...
LadyMiko, thanks for the support :) I appreciate it very much.
Thanks all,
ds
Glad you are finding your way. I have not read every comment. What I would say is, please learn how to ask for help, if you haven't yet done so. I have a friend who is chronically ill, and is hoping to sell her home. She has a tremendous vision for how the house should look-where the furniture should go, the paint colors, etc. She just doesn't have the physical strength to do it all herself. So if she or you have the vision but not the muscles, hire/ask friends to do the heavy lifting! You will be surprised how much people want to help. They just don't always know what to do....:))