Darkside

darkside

darkside
Birthday
December 31
Bio
Lots of layers. Not like a onion has layers, nor an ogre...but layers nonetheless.

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Salon.com
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JUNE 29, 2009 6:55AM

Divorceland Primed: MS can only slow it down

Rate: 24 Flag

So it's an interesting world we live in.

It took all of a couple weeks after the MS diagnosis for both my wife and I to realize we need to continue the separation process and looking for the duplex.  We've simply gone too far to really turn back time effectively.

There is between us still love and liking; this is definitely good at this point.  At the same time, there's a frustration and needing to move to the next stage of life, to find out what comes next for each of us.  Sometimes we both get frustrated with each other and with it all...

In some ways, the idea of a duplex is even better now, because if I do have a MS flare (which I don't believe I will, not for many years, but you never know), my wife can have the kids upstairs while I heal up.  Likewise if I have a really tiring day and need to catch my breath.  Help is literally 30 seconds away; and at the same time we can both have our independence.

As of now I'm controlling the fatigue with my acetyl l-carnitine; it's working wonders.  That plus the vitamin supplements and more sleep are keeping me going.  I am definitely ready for bed earlier, but that's not necessarily a bad thing. Still, I definitely have lost a great deal of my usual energy, and I'm not able to do as much as normal, at least for now.

The physical portions of the MS are all invisible to others; the fatigue, primarily; then my numb/tingling hand, which I've pretty much successfully reprogrammed in terms of tactile feedfack so I can type almost as fast as I used to, the numb part of my face and tongue that comes and goes, the numb part of my foot. 

Since they're all not evident, I don't have to scare my kids with them, and I can work and function normally, at least externally.  The little things are still more difficult; I don't have the tactile feedback I need to choose ripe fruit well, for example.  Still, I'm just relearning until the day my body catches up and regains its normal function.

The next step is to begin packing up the house.  I've decided to try to do at least one box a night while I'm ill; that way when I regain my strength I can tackle the greater tasks in the house that must be done before we sell it.  There is outdoors painting, bathrooms to be redone, tons of heavy lifting to do.  It'll come.

I'm definitely grateful to my wife for sticking by me with this.  I came home last night to find her reading up on the MS and ordering me a couple specialty items designed to help keep me cool in the summer heat.  (MS patients are notoriously affected by heat; I have always been sensitive to it, now I know why!)  I was truly touched.

However, we can only keep the hold on for so long, and in some small way, it's time to start the moving on process again.  It's already been longer than expected, and I think if she and I ARE to remain good and caring friends and co-parents at the end of it all, it's necessary to feel like we're on the move.

 

Thanks for listening.

 ds

 

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healing, ms, separation, divorce

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So sorry you are going through your illness and a divorce. It can't be easy for anyone involved. You're gonna need a lot of patience. Good luck!
As usual, you are level-headed and sensible in the face of emotional (and now physical) trials. Such an admirable trait. Your children are very fortunate to have you as their dad. Continued best wishes!
My husband was diagnosed with MS 14 years ago. Wouldn't presume to offer advice - everyone's course is different - but please feel free to write if you need a word of support or have a question about a treatment or symptom. We've done lots of them.

A word of hope for you - 14 years! - and he has done very, very well. We travel several times a year together, and he takes at least one exotic scuba trip with buddies on top of that. You guys seem to have an interesting arrangement planned. Hope all works very well for you and sending good throughts your way. Peace!
Hi MiddleAgedWomanBlogging -

Thanks for the thoughts. So far I've been able to be patient...I guess it's a skill I still have to work more on.

Best,
ds
As an RN I've seen this take such differing courses through people's lives and never stop being amazed by the realationships that are strengthened, forged and dismantled along the way - "because of MS". I think the relationships would have turned out the same, regardless - the MS just sped up the process. And, hey, if you're looking for time to save, this is as good a way as any to figure out who is really with you, and who you need to move beyond on your personal journey. All the best in health, wealth and good days ahead.
thanks for sharing.
Kellylark, thanks for the kind words and wishes. For me, it's just another layer of stuff to figure out, I guess...

Best, ds
Hi annette2009 -

Thank you for the hope and the offer for support and advice. I'll take you up on it going forward, I expect.

14 years and doing well? That's awesome :) My wishes for his continued thriving!

Best,
ds
Darkside, just the activity of moving drives me over the edge so I can't imagine doing that while both adjusting to the idea of your diagnosis and dealing with the definition of your relationship. Please remember to take care of and pamper yourself through this.
gabbyabby, you make some good points. I honestly didn't think MS was going to save the marriage...but I did think we'd have a bit longer before we needed to start moving the separation along. Oh well, that's life...and yes, I'm learning who's able to cope with me being diagnosed, for sure.

brian, thanks for listening :)


thanks both,
ds
DS, you and your stbx-wife are a couple of my newest heroes. Really. Just wanted to say that out loud.
Hi coyote -

Ordinarily, moving would put me over the edge, but right now the idea of NOT moving is even worse. So it's on with the show.

Thanks much...I'm definitely including myself on the list of people to take care of right now...

ds :)
verbal took the words right out of my mouth. The love and kindness you continue to have for each other is incredible.
Hey VR :)

Well, I wouldn't personally go THAT far...but you're sweet, thanks.

Reader Not Writer, I just think we're being good friends, but I appreciate the flattery!

Thanks both,

ds
Dmeister--

Once again, you're a better man than I.

You sound so level-headed and able to cope w/this curve-ball. You're handling it eons better than I did when I had to contend w/my Big Fall (9 ft) during the divorce waiting period.

But I recovered--took 5 yrs, but it finally happened. I'm now in a place in my life that came about b/c of that accident. As you will come to see that, for whatever reasons, MS came to you for reason(s) yet unknown to you.

You'll take this path as a result of the diagnosis, and doing so will take you to that place where you need to be. But you sound like you're coping amazingly well--and STBX, at the very least, has rallied to your side as you both deal w/what's yet to come.

I'll pray for you, as no doubt others here are already doing...
This must have took a lot of courage to write. I don't know if I could do it, think that far in advance. Like Michael J. Fox, who always seems to have a smile, even though you know he has good and bad days. I hope only good days for you!!
Hi Elsma03 -

I'm just glad you recovered. Honestly, this is a huge curveball, and there are many things to come that are going to test me (the daily injections that start soon, for example - I'm dreading those), but I'm determined to keep as good an attitude as I can through it all.

If not for me, then for my kids, you know?

Thanks much as always,

ds
Scanner, thanks much for your comments. I look up to Michael J. Fox, always have. He's inspirational, and if I must go through this, at least I have an amazing role model.

-ds
Hey, DS--good to hear from you again. I'm sure you've noticed the ads that populate the blog spaces now. I'm actually having a good time seeing what ads are placed on which blogs. Have you noticed yours yet? One for "How to stop an affair," one for "How to survive infidelity," and one for "Pure Alpha-Lipoic acid." I wonder how they decide what to put where--tags? Anyway, it often gives me a chuckle when I see which ones are chosen. Thanks for letting us know how you're doing. I know you're making the decisions that need to be made in a calm and reasonable manner because that's what you do. You have my respect. Rated, of course. D
Hi Yarn Over -

Yeah, the ads cracked me up...but I DID see a good price on the acetyl l-carnitine! Have to check that out...

Thanks for the kind words, and the respect.

Much appreciated...
ds
DS... so glad you've decided to move forward with your life, despite the MS. You deserve to find love again and I have no doubt you will find it because if just a fraction of the good karma you are putting out in the world comes back to you-- you will be a happy man.

Thanks for sharing your story and keeping us updated.
newsie763 - Thank you for the encouragement and the kind words. Much appreciated!

ds
Having followed this saga, especially your first post about MS, I thought that after the initial shock of the diagnosis wore off you would proceed with the divorce, and I think that's a good thing. Not a good thing that you are divorcing necessarily, but good that the disease didn't cause you and your wife to make decisions that you would both regret. Sorry if this sounds so personal but I do think that you;re on the right track. Lastly, best of luck with the disease and the divorce and what lies ahead for you!
Rough times for you, sorry to hear, but the duplex is a great idea!

A few weeks ago I met with an acquaintance whose MS is responding to low-dose naltrexone. The drug has been used for many years in other applications, so its safety is established. Just another arrow for your quiver, so to speak.
Isn't your health now the priority, and aren't there other ways to work out the "arrangement" with your wife's lover? She may have more love for you than you know that she may want to express, even if her sexuality now has another "object" how does she know how long that is going to last?

I had a dear friend with MS. Aren't you going to enter some sort of exercise regimen? It's what made a huge difference for him, in addition to being an artist and having his work to occupy him when all else failed.

Your bravery is extraordinary and if not the example to your children you wish to leave them, I don't know what other legacy any of us can leave. With admiration,
One quick tip? Try to never get in a hot car. That kind of heat can take hours off of your day and really exacerbate your symptoms. An auto-car starter is key for summer, or ask someone else to start your car and cool it off before you get in. I know, sounds silly, but getting in a 100 plus degrees car is just not a good idea.

You are a smart guy, DS. You're doing well.
You sound strong and focused, both traits you need during this stressful time.

Best of luck!
I feel your commitment to yourself and your children. And even to your wife. If everyone can find some happiness, I am so very happy for you. I commend you for taking the steps toward some independence. And thank you for visiting my post...interesting how we're on the opposite sides of illness. Much love and hugs.
Your decency in the face of all that you have on your plate never ceases to amaze me. My thoughts are with you.
I had no clue about your saga so I've just spent some time reading through your previous posts. And having done so, and although you hardly need anyone to tell you so, I believe you're doing the right thing. Moving forward. Getting on with the inevitable.

What I can tell you is that I've also spent some time bearing witness to the ending of the marriage of someone I care for deeply. It's been filled with fits of stops and starts which just ends up causing more pain.

One thing you said in a prior post that is so true:

"However, it's pretty clear right now: beyond the affair, beyond the gender preference issue, it comes down to the basic fit of the marriage.

And it doesn't."

That really says it all, doesn't it? Remember that, please, when you get bogged down in the memories.
Careful, MS does mess with your ability to make administrative decisions. And divorce falls into that category. I know. I know that you are being brave and sensible, but this disease sometimes robs your mind of the ability to make sound decisions, could have even contributed to the disintegration of your marriage. Just a thought to share, not a judgement. Best of everything to you and your spouse. And here's to a journey of enlightenment and challenge.
Wow, catch up time.

Roger, thank you for the thoughts and well wishes. I agree, best that we make good and sound decisions about it all.

Scribblenerd, I'll look into naltrexone, thank you!

Ben Sen, I'm exercising, taking care of myself and doing well. I honestly think the duplex IS the best arrangement, because if neither of us are able to be "free", it just means more mess. This is regardless of whether we ever reconcile or not, I think. Thank you for your thoughts and comments, I appreciate them.

Wakingup, thanks for the tip. :) Doing as well as I can...!

Buffy, thank you.

Thanks all for commenting...

ds
Outside myself, it is odd, isn't it. I wish you such peace and freedom from guilt. I am convinced that joy will come, for me, the kids, my wife. Time will tell.

cartouche, I'm humbled. Thank you.

FabuloulyFlirty, thanks for the comment and the insights. I will definitely remember the fit issue, for sure.

Snap, thank you for your concern. I am very aware of the "brain fog" issue, but in my particular case, there doesn't seem to be much to it in terms of decision-making. Delayed reaction time to make decisions, perhaps. In any event, the marriage fit just wasn't right, regardless of my diagnosis. Thank you for raising the point, however!

Thanks to all for commenting -

ds
You continue to amaze me. Keep healing, stay cool, good luck and peace to you, friend.
Thanks, dharmabummer....I appreciate the encouragement. Hope you're well :)
Good luck to you. Thank goodness you are both good and reasonable people and though can't stay married, still have love for one another. I always wonder how divorces (can) become so horribly contentious between two people who "plight their troths" to one another, and went through that whole awful process of getting married in the first place.
Best of luck. Take it as easy as possible. Sounds like you're reading up and planning for the future. It's imperative you be prepared for anything. That includes eventually sharing all with your children. They can be warriors on your behalf, and learn how to fight without fear.
I agree with you about just wanting to move on... so hard. keep going sir. Your writings have been helpful to me.
Oh DS, I so glad that your wife is being supportive during this time and that the two are moving forward in a positive way. The Duplex is a GREAT idea.

Peaceful and healing vibes your way, hon. Bug hugs!
hi folks -

dcvdickens, thanks. I can see how divorce can become bitter, but I'm really hoping to avoid that...

Conniemack, thanks very much. Eventually the kids will know, but all in good time.

Charles, thank you. I'm glad any of this can be helpful at all...

LadyMiko, thanks for the support :) I appreciate it very much.

Thanks all,

ds
Hellloooo ds!

Glad you are finding your way. I have not read every comment. What I would say is, please learn how to ask for help, if you haven't yet done so. I have a friend who is chronically ill, and is hoping to sell her home. She has a tremendous vision for how the house should look-where the furniture should go, the paint colors, etc. She just doesn't have the physical strength to do it all herself. So if she or you have the vision but not the muscles, hire/ask friends to do the heavy lifting! You will be surprised how much people want to help. They just don't always know what to do....:))