Existential Angst.

AND OTHER FUN THINGS.

Deborah Young

Deborah Young
Location
Honolulu, Hawaii, U.S.A.
Birthday
July 30
Title
C.E.O.
Company
Existential Angst, L.L.C.
Bio
I'm a political analyst and cultural voyeur & usually write about when those two things merge. I'm an amateur mother, a professional reader and excel in generalized anxiety, although sadly there is very little reimbursement for that particular skill. And of course, I love books & dogs.

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SEPTEMBER 17, 2009 2:01PM

Panhandling for Vitamin B-12

Rate: 11 Flag

"Hey brother! Got any B-12 on you?"

In America today we can get a 90 day mail order supply of tegratol, neurontin, baclofen, klonopin, xanax, ambien. Naproxen and even steroids. What we cannot get easily is Vitamin B-12. Which you cannot overdose on. Which stores any overages in your liver and makes your liver happy when it does so.

My husband has been diagnosed with a rare and severe B-12 deficiency. At some unknown point his body stopped absorbing it from food. And slowly his body depleted all of his stored up B-12 until he ended up acting and talking like a 90 year old drunk man. So now he must receive B-12 injections for life and also B-12 I.V.'s when appropriate to get it into his system. He also suffers from excrutiating pain from trigeminal neuralgia and he may or may not have M.S. according to which neurologist you talk to and what day of the week it is. Yep, you can imagine he feels pretty lucky these days.

So once he was diagnosed in the hospital with a simple blood test [get thee to a Dr. 20% of patients labelled with dementia in nursing homes actually suffer from B-12 deficiencies, according to the Hospitalist.] his treatment plan was established.

"Let's be aggressive!" said his neurologist. She told us to return to our PCP who would handle the B-12 injections. We returned. He said he would start Ken on a once a week injection, 1 ml. of cyanocobalamin [synthetic B-12].

That doesn't sound aggresive.

Especially when now he can't work, can't think and it's probably making his pain much worse. So we got real assertive with his primary care Dr. and demanded a shot every day for the first week out of the hospital. We asked for an IV once that week with a B vitamin cocktail [protocol]. We asked for 2 ml. shots of methylcobalamin [higher grade B12, higher dosage]. He refuses to give an IV cocktail. He refuses to give the higher dosage, higher grade B12. He relented on a daily injection the first week out and then stubbornly went back to the once a week injection. For the man acting like a 90 year old drunk.

kenb12shot

You know Doctors? There is something called the internet out there with tons of information on protocols, clinical studies and other patients' success stories. Did you know that?

So we've stepped outside of the medical model to get him more and better vitamin B-12. But it comes with its' costs both monetary [fine by me, not by my husband] and psychological.

First of all, full disclosure. For 30 years of my adult life I have had to step outside of the medical model for optimal healthcare. And I have done so gladly and willingly, paying out of pocket because my health is important. I have gone to Naturopathic physicians, massage therapists, chiropractors and acupuncturists. Where mainstream medicine fails me when it comes to treating backpain, PMS, anxiety, hormonal imbalances and pregnancy issues, I gladly turned to alternative healthcare and have found profound relief. And not once have I complained that I had to pay out of pocket. I was never guaranteed free healthcare for life that would actually cure what ails me. I live on planet earth, an imperfect and flawed little blue marble.

I cannot comprehend the people who are in pain or very ill who tell me flat out they will not go to any Dr. that their insurance doesn't cover. It doesn't matter that their physician may not be able to help them, if insurance doesn't cover it, they won't go. At one point a couple of years ago I counted 10 professional women I knew sick with chronic illnesses [diabetes, breast cancer, bipolar illness, etc.] whose quality of life was severely impaired and/or their ability to work was severely impaired. And while mainstream medicine could help them to a point, it couldn't cure them and for every one of these women they reached a point where the Dr. gave them pills, patted them on the head and sent them home.

My husband also has the medical model imprinted on his cognitively declining brain and has never considered not going to just the doctors for which his insurance will cover the visit. This is despite the fact that he watched his little brother and his father and his mother DIE using that same medical system that was unable to help them.

So when I told him we'll go to my naturopath for a vitamin B12 I.V. cocktail and for ensuing extra B-12 shots of the higher amount, higher grade he was skeptical and not excited.

"Why should I have to pay out of pocket when I HAVE insurance?" he demands.

"Because mainstream medicine doesn't have the capacity to help everybody all of the time with everything that ails them," I explain. "They have certain models they follow. You can get surgery for backpain, or go to a chiropractor or accupuncturist for backpain. There are alternatives! And there have been for over 2000 years. AND your doctor refuses to treat this aggressively!"

He resists me but we go anyway. On Monday the naturopath gives him a B-12 IV which includes other vitamins and minerals. He tells Ken they will focus on whatever Ken wants to focus on: he is steering this ship. Ken wants to focus on aggressive treatment for the B-12 deficiency. $90.00 for the I.V.; $20.00 for each injection. So he returns Tuesday for a B-12 injection. Wednesday we go to his regular physician for their weekly B-12 injection. Tomorrow he'll go back to the naturopath for another injection. We'll work with mainstream medicine and go outside of it for more and better - it's worked for me for 30 years.

I'm praying this works for my husband.

 

 

 

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Comments

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It's a shame you have to seek additional injections [out of pocket]. I do hope the B-12 works.
My grandmother's GP was a firm believer in Vit B-12 shots!

Around our house it's called "vitamin big" since a professor of mine was lecturing about it, turned around to see what he'd written on the board and thought the "2" looked like a "g", so he dotted the "1"!

Hang in there!!!
B-12 is the one that gives you all the energy, is it not? When I'm feeling pooped, I take B-12.... love it!
here's hoping it works! yeah, sometimes out of the mainstream there is another path. been there. and we also take research to not only our docs, but to the vet for L&P. it helps most of the time. good luck and sending good thoughts that it works for him.
I'm praying with you. :-)
You wrote:
"I cannot comprehend the people who are in pain or very ill who tell me flat out they will not go to any Dr. that their insurance doesn't cover."

Let me help you comprehend this - they can't afford it.

Personally, I've used both conventional and holistic methods in my health care. I have good insurance and I'm also financially well off enough that any health care I do need or want, I can receive.

A lot of my friends don't have this luxury. You can pay for the alternative treatment - good for you! It is indeed a luxury not everyone has.

I think we can tackle the argument of "alternative" care after we have "basic" care provided for every man, woman, and child in this nation. One step at a time - let's allow my 29 year old female friend without any insurance or a job to get her OB/GYN checkups and pap smears and such, or go to a real doctor when she gets sick, before we start discussing B-12 injections and macrobiotic diets...

Just my personal take on things.
Maybe you should go black market and get some B13 or B14... :-)

Good luck. I hope the B12 helps and think it is perfectly normal to pay for the treatment you want from your own pocket.
it's called integrative medicine, using regular western medicine and also making use of alternative modalities. you might want to go on dr. andrew weil's website, drweil.com. he answers questions and there is a huge archive of things he's talked about. he might have an idea about this. i know your politics but i believe that alternative therapies should be covered by insurance. back when i had money and wasn't disabled, i went to chiropractors, naturopaths, acupuncturists and used alternative medicines. the saliva test for hormones and those for other things, are so much more accurate than blood tests. it's all deeply flawed an heart breaking.
Sounds like you and I are in the same sort of boat. My husband's got two kinds of existence: sane and demented, and I have yet to figure out what the triggers are.

I have a thiamine deficiency which runs in the family, my life changed with supplements!!!! My uncle died from end stages of this deficiency and then some say it does not exist...

My heart goes out to you and hang in there...