Existential Angst.

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Deborah Young

Deborah Young
Location
Honolulu, Hawaii, U.S.A.
Birthday
July 30
Title
C.E.O.
Company
Existential Angst, L.L.C.
Bio
I'm a political analyst and cultural voyeur & usually write about when those two things merge. I'm an amateur mother, a professional reader and excel in generalized anxiety, although sadly there is very little reimbursement for that particular skill. And of course, I love books & dogs.

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OCTOBER 1, 2009 12:59PM

Breaking Out of the Hospital: A renegade tale

Rate: 21 Flag

It took 10 male nurses to restrain my husband and tie him to his bed like a scene from One Flew Over the Cuckoo's Nest. There was blood everywhere.

Two nights ago my husband looked at me wild-eyed. It was day 7 of being in the hospital which has no neurologist, no neurosurgeon and no neurology floor yet my husband with neurological problems was unable to be transferred to the right hospital. His neurologist had literally walked away from us 6 days previously, he had been living on morphine and sugar water and tied to his bed via I.V. with a foley attached as well.

It is Sunday and all afternoon he has regaled me with news of his upcoming death. How he will see his younger brother again, how we never saw this coming. How you have to die sometime. He begs my visiting friend to take care of me, I'll need her in the next two weeks. I have alternately sobbed, been stoic and prayed, in random rotation. We are being held hostage in a hospital that has no idea what to do with him but will not release him and he is incapacitated anyway.

Friday night I had called his beloved son and told him flat out: Your father is fighting for his life. He shrugged me off and then didn't even call the next day to find out how his dad was doing. My sister-in-law who flew in from Minnesota & I were literally keeping him alive day to day. I handed off the step-children to her - his daughter had called the day before and airily asked if her father was still in the hospital. I pull the phone away and look at it. Are they insane or am I?

My sister-in-law calls his son to impress upon him how serious this is. He coldly thanks her and hangs up. We shrug and give up, not important anyway. And then my husband plots his escape in his dilaudid haze, sleep deprivation and agony of pain. I'm alone with him in the hospital room, he tells me to grab his stuff we're making a break for it. His male nurse tries to give him his xanax, my husband puts it down, telling us we're trying to kill him. Uh-oh. The nurse and I make eye contact, I psychically tell him to go and get help FAST. He's not a good mind-reader and still attempts to reason with Ken even as Ken starts to rise up and puff his chest out all the while telling me: "Let's go! Let's go! Let's get out of this hotel!"

Oh God.

I go to the door and turn to him, he starts pulling out his I.V. lines. Blood spurts everywhere. "I need help!" I call to the nearest nurse. She comes in and is aghast at what she sees. The male nurse runs up with one other man but it's way too late. Ken pushes past them and almost makes it to the elevator screaming at me "Dial 911! Dial 911!" I am huddled by the nurse station, telling him I am, telling the nearest nurse to shoot him full of sedatives NOW! Over the hospital intercom is the ominous CODE GREY, CODE GREY and gives my husbands room number. Patient out of control. It takes 10 male orderlies to surround him and get him into a wheelchair. Ken is screaming they are trying to kill him and that I am too. I shiver and shake and weep, furiously calling my sister-in-law who is on her way.

The mass of men move him back into his bedroom and restrain him to his bed, put a vest on him so he can't pull off his telemetry pads. They give him a shot of Haldol to calm him down. I am slumped at the nurses station; my sister in law arrives and goes in to see him. "Get my phone, Lori. Get my wallet. Get me out of here!" She has to walk away and leave him as he tells her I am trying to kill him along with everybody else. We weep together.

An hour earlier his son had called me and screamed at me that we were exaggerating Kens condition in order to persuade him to fly over and sit by his bed so that me and my sister-in-law could go shopping, or lolly gag or whatever he envisions stupid, bovine women do. I hung up on him in mid-scream. The staff had violated HIPPA rules and told his sister over the phone that Ken's "vital signs" were good. So he kept saying over and over "His vital signs are good! His vital signs are good!" Shit, everybody's vital signs are good...until they die. Asshole.

So world war three started with Kens kids throwing accusations and names at my sister-in-law and I as we sat hollow-eyed and sleep deprived next to Ken. I was seeing a pattern. At every juncture in this fight for his life, we had betrayals. His neurologist left him, the hospital couldn't help him. My own sister wouldn't help us, his 2 children accused us of lying to them. His new neurologist promised to show up Monday and then Tuesday and did not. Betrayal at every turn, just another Judas experience. We will all experience betrayals, it's hardwired into the human experience.

Tuesday we wait for his new neurologist to show up all day. He promised after he didn't come the day before. They took Ken off all dilaudid so the neurologist could get a clear neuro exam of Ken when he arrived. We prayed he'd transfer Ken to his hospital, the one with the neurological ward. Ken told us all day he would die if he spent one more night here. He had to be transferred. He had to be.

Then the nurse glibly tells us the neurologist will not be coming. He was called off-island for an emergency. My sister in law and I look at each other and for a moment we think: Ken will die. The hospitalist is gone off rotation. There is literally no Dr. at this moment taking care of my husband. I take a deep breath. I think. I call the director of Risk Management and tell her: "This is a 911. Ken will kill himself if he spends one more night here, so he either needs to be transferred to the right hospital or pull his foley and his I.V. now and we're taking him home. He has a neurosurgeon appt. in 48 hours; we'll take care of him until then."

Risk Manager calls the nurse who pages the floor manager who consults with all of the Big Heads who hear my ultimatum and they finally decide this. We will let you take him home. We'll send you home with meds and sedatives to hold you over for 48 hours. And if anything happens, drive him the ER of the right hospital. Sorry we couldn't help you.

We tell Ken: "We're breaking you out of here buddy. We're taking you home."

I look at my sister in law and manage to say: "You can't make this shit up."

 

 

 

 

 

 

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Comments

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Oh my god. Are you home? Maybe you can't make this up but this has the urgent, frightening feel of a drama. Worse, it's your drama. You are going through hell, Deborah, but you are damned good at writing about it.
Oh... my... there is so much wrong here, I don't know how to respond. Aren't we supposed to have the Cadillac of health care? God. So sorry. R.
I got goosebumps how horrendous. You are so brave. What is it with the offspring? My friend who is in stage 4 cancer's son is equally self absorbed and cold.
"And if anything happens, drive him the ER of the right hospital. Sorry we couldn't help you."

Deborah, good grief, everything is already happening, please tell me you're at that hospital now. You can't care for him alone and it sure sounds like he needs IV meds, not pills. Is health care truly this bad in Hawaii? What about the University? I am so sorry for this awful experience.
We're meeting with the neurosurgeon today. If he deems it, he can admit Ken into his hospital; otherwise he'll send him home with us to take care of him.
Holding you all in my thoughts and prayers. I'm so sorry this is happening this way.
This had me boiling, Deb.

I don't like throwing this word around, but this reeks of SERIOUS malpratice.

I hope your huband is put in the correct hosiptal, for both of your sakes. Regarding the family issue, if his son isn't taking this seriously, its not your problem. You have enough to worry about right now. Also, if I may . . . I KNOW how stressful this is, it drains you, body, mind and soul: Please remember YOU, even if its just an hour, give yourself time to rest, eat, shower whatever you need to do.

Big hugs, love. Both of you are in our prayers.
Mother of God. Literally, Mother of God. Deborah.

You know what? I'm not going to address the immense emotional aspect of your piece and talk about your writing. Just because...I don't know why.

It's an amazing piece of writing. Truly amazing. And not because of the experience but because of YOU.

"An hour earlier his son had called me and screamed at me that we were exaggerating Kens condition in order to persuade him to fly over and sit by his bed so that me and my sister-in-law could go shopping, or lolly gag or whatever he envisions stupid, bovine women do."
You my dear are amazing.

I'd tell you to try to keep strong, but for the life of me I don't know how I would manage that myself.

Best of luck.
My God, Deborah. I am in shock. You and Ken are in my prayers.
I'm hoping that your next post will be less horrific and that your husband is finally getting some proper and humane health care.
I hope and pray that the neurosurgeon comes through and admits your husband to the hospital where he will get the proper care. This is torture for him, obviously, but you and your sister-in-law must be beyond despair. I admire how you've been able to muster enough strength to wade through the drama and red tape and fight this terrible injustice. Through your grit and determination I am convinced you will be able to get someone to do the right thing.
There are lessons to be learned in this very cautionary tale. Best wishes making it through to a happier conclusion.
Geeze Deborah, I am so sorry that you are going through this medical Armegeddon.
I hope you and your husband and your sister in law are able to find help soon. It sounds terrifying and isolating to be trapped at the point where you are.
I know (some of) this experience. The worst human behavior possible always seems to come out when you need humans by your side. My heart breaks for you. His children have a very hard lesson ahead of them to learn. From the sound of it, maybe they won't. Better luck next life. Why this didn't get an EP is beyond me. This is real life at its very worst. You captured it in writing with the urgency and attention this reality deserves. My love and prayers to you.
why is the help people need hardly available? *sigh*
sending warmth and light your way...
Deborah, Your experiences are beyond real, they are experiences that can break a person,make one scream into the night for justice and empathy. I'm so sorry for all of you, but I know that doesn't help much.
Rated
Ken is home right now. We're going ahead with gamma knife procedure in the next couple of weeks [radiation to the trigeminal nerve]. He's on a new mix of meds. We'll be meeting with a lawyer.
I can't even begin to tell you how much of this I relate to. I will say you are my hero. I pray whatever is happening now is better than what was happening when you wrote this. Love and thoughts of you.
I hope the new mix of meds works and brings him some relief.

I hope your anger takes over and you kick some ass....but that can be saved for later when you have some strength. I send you a moment of peace and hope you have time for it.
You can't make this shit up, but this seems to be modern medicine. My God, I can so relate...
To think there are thousands of stories like ours.