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dharmabummer

dharmabummer
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June 04
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yogi, grad student, dog lover, treehugger- still broke as hell but married to the finest man in the great southwest.

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FEBRUARY 14, 2009 2:12PM

My sweetheart is dying

Rate: 28 Flag

 

I found out through email.

The subject line read: “Won’t you please pray for our friend Sam?” I opened the email and read and then nearly fell to my knees.

Sam’s symptoms: headaches, double vision, slurred speech, difficulty walking and swallowing. The diagnosis: Glioblastoma.

A near stranger to me now but once he was my sweetheart-- my high school sweetheart-- and my first love. We met during Senior year. He was in the marching band and I was on the kick line so we shared the football field but didn‘t know of each other‘s existence until we were both cast in the Senior Play. He was tall and lanky with spiky hair and had a slightly off-center front tooth that gave him the most adorable little lisp. I thought he hung the moon.

Glioblastoma, an inoperable brain tumor which rests on the brain stem. It is recruiting his own healthy blood vessels to help it grow.

I remember our first moment -- the first moment when we both realized that we felt something more than friendship for each other. It was just after the last performance of the play and we were rapidly dismantling the stage. Sam’s older brother had come home from college to surprise him and I saw him peering around the stage apron, looking for him. I went backstage to fetch Sam, who was busy taking off his stage makeup and I grabbed his hand to lead him through the maze of cables and scenery to the place where his big brother was waiting. The moment I grabbed his hand he squeezed mine and in that tiny moment there was everything. Everything that we would be to each other, everything that we would feel and everything that we would become was cupped in our palms at that moment.

Glioblastoma multiforme is the highest grade glioma (grade 4) tumor and is the most malignant of the astrocystomas. Only 1 out of every four patients with this type of tumor survives two years

I nursed him through an S.A.T. induced near nervous breakdown. He taught me to drive a stick. We grew closer slowly, in stages. We had both been in minor, short-term relationships before, but they were nothing like this. We learned how to kiss together. I mean really kiss. We would sit on the couch at my parents house, watching videos and then kissing with the sound turned down. We kissed until the sweet plum flesh of our lips was raw and our heads dizzy and flooded with hormones. Fully clothed and afraid to go any further, we pressed our bodies together for hours; finding the ways that they fit, writhing in an exquisitely painful embrace. We did that for months.

While the tumor is inoperable, there is treatment. Avastin and CP-11 show a 75% rate of cell death but as the tumor cells die they expand and release toxins, thus worsening symptoms

We held hands as we walked down the hall-- terrific grins on our faces. We couldn’t conceal it if we’d wanted to. We were witnesses to each other’s awakening. We were breaking into blossom, coming alive. I had the sense that I was unfolding somehow, that I was opening up in a very new way and that this opening would be so good, so fulfilling and endlessly deep.

Oral chemotherapy, anti-convulsants, thickening liquids so that he can swallow, Accutane to blindside his cancer cells-- and he still goes to work every day.

We graduated from high school on my 18th birthday and he gave me a promise ring adorned with a microscopic sliver of a diamond. In my yearbook he wrote, “ I’m yours forever. I need you, I want you, I love you sooooooo much.” In his I wrote: “We will be so good together. We belong to each other.“

We were kids and we didn’t know what real love was but we were addicted to each other like cough syrup and we didn’t care how drippy we got.

He can no longer drive, or even walk across the street without help but he still reads to his children every night and musters every last ounce of strength to remain sitting upright at the dinner table with them-- holding it together just long enough so that he can tuck them in at night and maintain some semblance of normalcy and routine in their young lives.

But he was going to school in Michigan and I was staying here. Our tenuous plans for holiday meet-ups were dashed when his parents moved to Florida. We no longer had a state in common and it tore us apart. It was all over but for the crying by the time we left for school.

Won’t you please pray for Sam and his family? His wife and two young children?

Today, a picture of Sam rests on my altar. He’s right there, in between Ganesh, the remover of obstacles and the little angel carved out of balsa wood. That is where I kneel to pray.

Sam: 

Today it is Valentine’s Day and here I sit at my computer, alone but well and you are so very sick, but surrounded by the ones you love. To say that the whole thing is colossally unfair is a gross understatement and I would carry this burden for you if I could. But since I can’t I’ll bless you instead.

Bless you, Sam, for being my first, though today may be your last. Thank you for being my first sweetheart, my first love; for giving me such tender memories which only grow sweeter with time.

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I've changed his name to "Sam" so that his wife-- in the off chance she should stumble upon my wonky blog-- will be spared from having to read of her husband "writhing" with anyone other than herself.
This moves me to tears... I have, as you know, so much more to say; but for the moment, I will leave it at that. It's those embryonic discoveries of relationship that we all wish we might claim afresh and re live again. And if I am, myself, a fool for love, then let it be so.
Beautifully written. Is it me or is bittersweet taking over our life at some point, with us getting older and losing people we love..
rated for honesty and a painful sort of beauty.
Thank you, Bruce. More later.
We never, ever forget that first love. EVER.
I'm very sorry to hear this for you.
Condolences and my the day get brighter for you.
(rated)
Thank you for coming by, Gayle. And thank you for the praise.
Thank you for this one...
thanks, greg. i'm fine. i've just been working on a piece about "sam" for months and i finally just had to wrap it up and put it out there. much like the 'first time' i wanted this one to be perfect, you know what i mean? it falls short but there it is:)
thanks for coming by newsie:)
This is so sadly beautiful and so unflinchingly honest as to render a response superfluous. The contrasting of the deepest emotions with the clinical analysis bespeaks a powerful mind, one that is able to own feelings and yet examine them critically, it is indicative of the writer's mind that can be in and outside of events at one and the same time. That mind, and that heart, has served you well in this tragedy, and I suspect it will serve you well in all that you do. Be well.
I'm so sorry. For him, for his wife and family, for you. So sorry.
Well done. Rated for never forgetting
thank you, waking

thanks, shel:)
Tom!
Gobsmacked by your praise.
I have known about 'Sam's' condition for months but couldn't figure out how to write about it. I didn't want to feel like I was exploiting him -- or exploiting my own feelings. I feel comfortable with how this turned out. Thank you so much for reading and responding.
Sweet and beautiful. Now you've got me thinking of my own first love - no idea where he ended up.
Thank you, Allie. I loved your piece about your first kiss. Shoulda' been an EP.
If the piece you write about your first love is half as good as your first kiss story then it will definitely be and EP and I can't wait to read it!
Janie! You finally come over to MY blog. I mean, I know your blog is cozier and everything but...
Anyway, thank you. Sorry to get you weepy. "Sam" has a lot of love and good vibes around him. I hope you do, too:)
oh, this is devastating, sweetheart. so beautifully written. thank you, dharma. god i feel like a freaking wuss for not doing more when my george is only benign and i'm only getting one treatment. sam is in my prayers and so are you.

love love lvoe
Teddy: you inspire me. thank you for reading and sharing.
Thank you for sharing this news which I am sure was a very painful exercise. I will certainly be praying for all who are close to "Sam" through this time, as well as praying for Sam as he likewise struggles through this experience.
thank you very much, jon. this was difficult to write on many different levels.
I'm sorry you're losing him again, but I am glad he was there to be your first love. He sounds wonderful.
thank you, hy. thanks for coming by:)
oh, Dharma. what a lovely tribute.
I wish you could let him know how important he is to you, while you can.
thanks, sci chick. he knows i am praying.
I'm so terribly, terribly sad. The piece made me both cry and smile. I smiled because you still remembered him as he was. A wonderfully written and moving piece...
Luis, thank you so much.
You must have a big heart:)
That was beautiful. I remember well all the hours I spend learning how to kiss. It is a very under appreciated skill.

My heart goes out to Sam. Life is so unfair.
I am so sorry for your friend and him and his wife and family. This is just not fair.
Dharma,
My deepest sympathies. I have to tell you that your post was a beautifully written blend of sadness and gladness. You illustrated your time with him in such a loving way, but tempered it with the reality of his illness. Thank you for allowing us a peek into your life.
What a neat love story. Unfortunately, life does stink on occasion and it is not fair. You and Sam will have those young memories forever. You have such good energy and it shows on everything you do. Sam and you were very fortunate to find each other and share those moments together. Thanks for sharing. May God bless you and watch over Sam and his family.
Hi, Cap'n.
Thanks for coming by and for your condolences.
Btw, I wouldn't mind reading your 'learning to kiss' story:)
D
Always so nice to see and hear from you Corgigirl. Thank you for the kind remarks.
Bubba:
Thank you so much for saying that. You are all heart, mister.
You have created an elegy of such painful beauty with this moving tribute to first love juxtaposed against the horror of cancer and woven through with the varying levels of innocence, growth, courage, triumph and loss. Instead of anger, you've chosen blessings... the greatest tribute of all. Bless you for your kindness.
Sally:
Thank you so much for reading and for commenting with such eloquence. Thank you.
This a truly beautiful piece, smartly written and deeply touching. I'll send a prayer to your first.
This is lovely. I am sorry your friend is going through this.
hope they are well. stay well for in you is that part of his spirit that is beautiful and fair. keep it burning in your own he
after reading our most recent post about your friend, this one got me in the guts. M, my friend who passed - same cancer, same location, same effects.... i am weeping.
truly bittersweet.