A VIEW FROM MY PEDESTAL

A blog by a woman/for women and the men who inhabit their world

Donna Carbone

Donna Carbone
Location
Palm Beach Gardens, Florida, USA
Birthday
April 21
Title
Owner
Company
Writers Bloc
Bio
Married for thirty four years and the mother of the two grown children, I began writing at the age of ten. My first success was winning a poetry contest in grammar school. From that moment forward, I realized that the written word was as vital to my survival as food and air. I continued to write all through my school years, but soon pots, pans and diapers replaced pens, paper and the freedom to create. My son's graduation from college with a degree in theater and his subsequent success as a screen writer awakened my desire for "more." I began writing poetry and short stories, and I am presently working on a semi-biographical work of fiction entitled "Private Hell," which I hope to finish by next summer. My son and I recently finished our first joint writing venture -- a movie script which has generated some interest among backers in Los Angeles. A number of my poems have graced A Long Story Short, and I have been published in the Lucidity Journal. Each day inspires me...what I see, hear and experience.... If it lingers in my consciousness, I write about it.

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NOVEMBER 4, 2009 3:55PM

My Mother Has Munchausen's Syndrome and I'm Sick of It!

Rate: 47 Flag

My mother is 96 years old and still going strong. She lives on her own, cooks, cleans and drives my sister and me crazy with her demands. She is going to outlive both of us because neither God nor Satan wants her.

I cannot remember one holiday or special occasion when my mother was not sick or injured. She did not attend my first communion, confirmation or graduation from either grammar school or high school due to (pick one) a fall, the flu, a hernia, ulcers, a migraine. I’m pretty sure she was there when I was born, but that was probably the first and last time she put in an appearance. Never once did I look into the audience during a school play to see her looking back at me. Come to think of it, the one time I got into a real mess of trouble at school, she sent one of my aunts to meet with the principal. Her excuse  -- she sprained her ankle.

Mom is not beyond manipulating a situation to suit her needs. If she is not getting enough attention (I have yet to discover the definition of enough), she will put herself in danger to get the desired results. I have visions of her standing naked and wet from the shower in front of the open freezer. Teeth chattering and icicles hanging from, no wait, that’s an image I don’t want to think about. Until she retired at the age of 70, she worked in an embroidery factory doing the mending. More often than not, she sewed her fingers to the fabric because band-aids full of blood are sure to be noticed.

 At my sister’s wedding, she told the family that my father had cancer and did not have long to live. He was surprised to learn he was sick but did not seem bothered by his impending death. I actually think he rejoiced at the thought of being free from mom’s antics. He lived ten more years. Poor guy. When I got married, mom came to the reception with her arms wrapped in ace bandages. Her arthritis, she claimed, was just too painful without them.

Mom has been known to drink sour milk, overdose on laxatives, burn herself while cooking, slam a door on her hand, cut herself with a sharp knife and fall down a flight of stairs…all for attention. Her favorite is to forget to take her blood pressure medicine. When the paramedics arrive, it’s like a reunion. They have been to her house so often that she now bakes cakes for them and has either my sister or I deliver them to the firehouse. How she hasn’t killed herself is a question we all ask, but then, we remember God and Satan and the answer is clear.

Recently, my family was involved in a criminal case that was devastating for all of us….except mom. Because of her age, we would not allow her to attend the trial, which lasted two weeks. Each day we arrived home emotionally drained and mentally beaten. Most days mom was waiting with another emergency. Twice she fell out of her chair and lay prone on the patio where the neighbors could see her and rush to her aid. Once we found her lying on the kitchen floor. She said she had passed out and hit her head on the cabinets.  Another time, she was kneeling over the toilet, sick to her stomach from “bad” food we had left her to eat.

There have been so many incidents over the years that I have lost track of them all…and I’ve lost patience in the process. Each time she has been hospitalized, my sister and I have informed the doctors and nurses of her condition. They look at us like we are crazy. Munchausen’s is not easy to diagnose and only Munchausen’s by Proxy causes any great concern in the medical community.

Mom is such a great actress. She has everyone convinced that she is just a sweet little old lady who wants nothing more than to be healthy and spend time with her family. At her age, most of her relatives have already moved on to the great beyond. Please, God, can you invite her to join them? Sorry, dad.

Author’s Note: Münchausen syndrome is a term for psychiatric disorders known as Factitious disorders wherein those affected feign disease, illness, or psychological trauma in order to draw attention or sympathy to themselves. It is also sometimes known as hospital addiction syndrome or hospital hopper syndrome.

Münchausen syndrome by proxy is a disorder in which a person deliberately causes injury or illness to another person (most often their child) usually to gain attention or some other benefit.

 

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Must.not.laugh.

I'm sorry. This is serious. But, damn, if you wanted me to keep a straight face, you should have edited out all the funny. Which would have left about 3 words.....
It Is funny.

And well-writ.

So (not) sorry for your (impending) loss.
Why is real life so much stranger than fiction? I could never have dreamed up an old lady like your mom.

She kinda sounds like a hybrid episode of CSI and Marcus Welby.
This a funny and sad story. My mother-in-law (age 90) is a clone of your mother. You have my sympathies.

Rated
Sort of repeating, but if this was not supposed to be funny I am sorry to say I am the sort who laughs at something like this. And if it were meant to be funny, well then yes I laughed. But it's not funny. It's hilarious.
Groucho Marx was asked once what the difference was between something that's funny and something that's hilarious.
To wit:
A man dressed up as a little old lady in a wheelchair careening downhill towards a busy intersection is funny.
If it is really a little old lady, that's hilarious.
The catalog of your mom's craziness IS overwhelming . . . she makes my mother look like a minor leaguer. However, I wonder what YOUR feelings would have been in just one, emblematic example (looking for her in the audience, having her steal the attention at a family event, etc.). More you in the picture could be very interesting.
Laughing keeps me from crying! If my sister and I hadn't found the humor in this years ago, we would have gone insane. Glad to have brightened your day.
Funny and sad at the same time, which is how most humor is. rated for humor, writing, and, well, sympathy.
Hells Bells:

To be honest, when I was young I dreaded mom appearing anywhere with me. I found her to be an embarrassment. Now, I get a kick out of whatever "new" disease she cooks up. An avid reader, she usually projects the disasters in the story onto herself. My sister and I take bets on which catastrophe we will be dealing with next.
Oh lord!

My mother had a hip replacement even though her hip was fine - because yes, she wanted the attention. And you're right, there is never *enough* attention. So it never ends.

Your mom can't go much longer, my friend. Hang in there.
Thank goodness you have your sisters with whom to share the misery/comedy. Great read, interesting story.
Sour milk, laxatives, no committments I understand. B ut I can't resist the humor implyed, even though at age 96 she obviously is due to out live those she has the most control over. She seems a bit sick of things you might think.
Wow--I guess I shouldn't complain any more about my mother's daily whining (acid reflux, vertigo, chest pains. . .)
Your mother would have done better on Broadway--she would have gotten all the attention she needed and her family would have been spared all the aggravation!
Sorry for what you've had to go through!
It sounds like your mother is determined to outlive both God and Satan. You are damn funny. And an O'Really Good writer.
O'Really?

My mother's day will come but the direction she will be heading is still to be determined. Thank you for the compliment. I sincerely appreciate it.
I feel for you. Dealing with someone who has a mental illness is difficult when they do not want any treatment for it. When that person's medical providers don't believe that they are mentally ill it must be frustrating beyond words. I recognized and appreciated the black humor in your description but it didn't make me laugh because living with (being raised by!) your mother must have been enormously painful. Good luck to you and your sister.
Very well written, and I'm so glad you can see the humor in this, but as Hells Bells pointed out, I'm sure your mother's condition must have seriously hurt you growing up. Though it seems like you have healthy boundaries today, I'm wondering how you came through this so well.

My mother is very similar, diagnosed not with Munchausen's but Borderline Personality Disorder, which is much more varied. Not only does she use medical issues to get attention, she'll use anything else: food, money, sex, for good attention or bad. The syndromes must be related.

Anyway, kudos to you for a good read and for being a survivor!
Oh, you do the funny side well! My mother out-law (ex mother in law) was a lot like that. I'd never seen one person have so many bandages and sprains and pulled muscles and tics and twitches and ohmygosh-itwascrazy. Now I can look back and laugh -- made me crazy listening to it all back then.
Lemoneyes:

I won't deny that living with my mother was difficult; my need to escape forced me into an disastrous early marriage. On the other hand, adversity has turned me into a pretty darn good person. I've learned to appreciate things that most other people take for granted. As I've often said, pain is a seed which sprouts either a flower or a weed. We must chose which garden to live in.
Rosemary,
When I was in my early twenties, I decided the only person I could blame if my life turned out miserable was me. Mom would never change but I did not have to allow her to control my life. Luckily, I met a wonderful man who supported me in every way and helped me stay strong when mom's antics threatened my sanity. Thirty four years later, he still helps me to laugh when I want to cry.
What will you do when she is gone and you have all that time on your hands to live your life? Damn, you can write a book!!!! Too bad you didn't do a reality show with her! She would have loved the attention.... You write about your pain and make the rest of us laugh. Hugs to you!!
I was about to say that you should have posted this to Cary Tennis over on Real Salon. But looking at your letter again, I had to say that I sympathize.

There is no cure for mental illness except death. People can manage to get themselves healthy, but no one can help them. Psychiatrists who claim they can help are frauds. The only real cure is one that modern people refuse to use; sticking the crazy person in the attic, locking the door, and shoving food under the door. Cheaper than a hospital or a rest home.

I realize that as a relatively modern woman, you will refuse to do the only solution. So you're in a waiting game, waiting for either you or her to die. (Or maybe both; she could burn down the house and take care of both of you.) I'm sorry that you've limited yourself to "modern" solutions that don't work.
Hi, MiddleAged...

I'm afraid to say this out loud but I fear Munchausen's is contagious. My sister is beginning to show signs........oh, when will it end!
tomreedtoon,
No, no, no! I have no intention of going first. Seriously, mom is only a danger to herself and, let's face it, she's 96. I pretty sure she knows just how far she can go or she wouldn't have lasted this long. The attic idea though....damn, I live in Florida. No attics. No basements!
Not to rain on anyone's parade, but I have seen this disorder first hand and it is evil. I work in peds in a big hospital so I have kind of seen it all but this is an insiduous disease as these  people are so deceptive to make you believe their child is sick, when they are making their own children ill.  R for surviving.
Aren't you lucky she doesn't have Munchausen syndrome by proxy... that would have made you REALLY SICK
Rita,

My intention was not to make light of a very serious condition. Believe me, my sister and I are all too aware of its dangers. We are also aware that our mother suffers in ways we will never know. She is always searching but will never find whatever is lacking in her life.
Terrible, awful....and funny! I'm sorry but it was!! I really am sorry for laughing, I couldn't imagine living with this...I doubt I'd have this good of a sense of humor about it.

"but then, we remember God and Satan and the answer is clear. " still snorting over that one.
Any way you can get her in assisted living? She seriously does not sound like someone who should be living alone. The paramedics really come that often? This is a huge waste of a community service. You and your sister should arrange for her to live in an assisted living community. You and she are both at the point where you should have long ago taken over the reins.
This Christmas, give your mother something she really wants. Stab her.
Does she not realize that she is seriously in "boy who cried wolf territory?" And at her age she really shouldn't risk people thinking she is crying wolf, again.

I suggest she has always been very insecure and desperate for attention. Once she got old there were many ways to get it. It's very sad, I'm sure she has some redeeming qualities and has accomplished much in her life, but will be these obvious manipulations and her selfish actions that she will be remembered by.

So be it.
This was such a wonderfull posting :) It must be so difficult to deal with, I have no idea, and yet I think you still love her. It is an illness, she can't help it, of course? Or can she be cured? Not at her age surely. I think you are very good about it.
My mother was the opposite, she was never ill she claimed. Always denying. That is a bit tyring too, but no way such a problem as yours. I wish you strength and patience in this last episode of her life.
Someone I care about acts in a similar manner. It is the NEVER-ENDING aspect of this that is so horrible. Just when the water gets still, SPLASH, a new disorder to contend with. Emotionally exhausting. Yes.
Donna, your good humor sounds like it has been a sustainer of sanity. I'm always so amazed at how well so many have turned out, despite the dysfunction of their parents. And I love how in one of your comments you realized that you were the one responsible for your own life. A testimony to your strength of character.
You have all offered so much support and valid comments that I would like to clarify a few points. Munchhausen's cannot be cured. Like most diseases of the mind, it can be controlled but not eradicated. My mom's troubles are the result of trauma in her young life. As a child, during WWI, she and her family were imprisoned in a displacement camp for people caught in the fighting. There was little food, poor living conditions and, illness was the only reason to draw attention to oneself. She learned early that being sick got her love and special care. She saw her mother give birth to twin girls and watched as they starved to death. Mom helped to bury them in unmarked graves. She was five. My mom was very beautiful as a child and the family (and others) would send her out to flirt with the soldiers in order to get an extra piece of bread or beans for soup. Meals mostly consisted of scouring the garbage for potato peels and usable discards. Thus, she is also narcissistic. So you see that, despite the pain she has caused my sister and I, we are well aware that she is suffering more than we are. Keeping that in mind makes loving her -- in an obligatory sense -- easier. She is not ready for assisted living. As capable as she is, we could never convince a court that she needs help. I tell my sister often that my biggest regret when mom dies will be that I won't have a mother to mourn...only relief for her and me.
Good for you for being able to write about your situation with such a killer wit, because if I were you, I would have shot myself long ago. 96 years of this?!?!? Omigod. I'm sick to death of dealing with family members with regular old mild depression. But this!

You have my congratulations for writing a great piece, and my compassion for having to endure it all.
Wendy,

Thanks for the kind words. I've told my kids that if I ever get to be like grandma, there's a supply of dry cleaning bags in the back of the closet. Knotted tightly around the head, they can be very effective.
this was hilarious. i can so relate! my mom was a milder version of yours. i can only be thankful she didnt escalate to the levels you describe. but she really was an attention whore.
that being said i miss her every day now that she's gone. life is strange like that.
I saw a program about this condition on Discovery. It was chilling.

This woman would regularly poison her child and wait until the toddler was near death, then whisk the poor victim to the ED, and breathlessly "save" her, relishing the props the ED docs lavished on her for catching the illness before the child died.

I'm not a shrink but Munchausen's by Proxy is one of the most bizarre and fascinating maladies out there.
Christopher:

Most mental disorders are fascinating and frightening at the same time....provided you don't have to live with them or the people who suffer the effects. If you have ever known an Altzheimer's patient or cared for one, you will know what I mean.
Middle-AgedWomanBlogging is right! This would make for a great reality show and kill two birds with one stone: she'd get attention and her care would be assured. You might even make some money. Producers! Are you listening? (on the other hand, you have my sympathy - there's always gonna be that ONE time she's not faking and you have to be vigilant to catch it. Ugh.)
wow. this could easily be my mother you are talking about. shy several decades.
I can see the humor here. I can also sense the hostility. And I can, to some extent, see both sides. Your mom sounds in many ways like my mom, who could out-drama Sara Bernhardt and who managed to have a gall bladder attack (?) on my sister's wedding day. (It just was a coincidence that she saw the marriage as my sister's abandonment of her...and as for me, I'd already abandoned her, having moved 600 miles away.) And when she had that massive stroke, mom was the one who decided that getting in the car and attempting to drive to the chiropractor's office was a proper and sane response. (She got to the parking lot and drove into a tree. Very dramatic.) She could be hard to take, no doubt about it. But later, when she got degenerative arthritis in her spine and was in excruciating pain, my sister blithely passed it off. "She's being Poor Ruthie again," she said. I had to buy a plane ticket, make an appointment with a pain specialist, fly down there and take her to the doctor myself because my sister would do nothing. My mom's pain was bad enough, in this doctor's opinion, to warrant morphine. Maybe you think I was snookered. Maybe you're right. And, just maybe, humor can mask hostility, and hostility can block compassion. I'm just sayin'.
Uh Oh. It's massive FORGIVENESS time! Your mother will reap what she sows, if not in this life then in the next. We all do! Forgive her now because carrying around this gripe is doing more damage to you and it ain't phasing her one bit!
Materallychallenged,

I know where you are coming from but I have no hostility toward my mother. Years ago, yes, before I suffered my own disillusionments and learned compassion, but not now. In every family, there is always one person who must be the "responsible one." I'm lucky to have a sister to share the burden with. Your mom is lucky to have you.
PS
An embroidery factory? That sounds like hell to me. There must be a huge backlog of pain in this woman. What was her childhood like? If she is this "accident prone" or that much in need of attention that she harms herself, then I suspect she is in terrible pain somewhere. I hope for her sake she will be released soon with love and acceptance surrounding her.
Dear Poet,

There is nothing to forgive. She is my mother. I would never let anything bad happen to her. And I don't think she will be punished in the afterlife. She has suffered enough on this earth.
Poet,

Mom was a part owner in the embroidery factory, a business that was quite profitable in years past. This was not a sweat mill. They made the lace for wedding gowns. As a kid, I enjoyed playing with the bobbins and thread. Mom loved going to work. As the boss, she got lots of attention. Retirement has been hell for her....and us.
See! This is why we need all those illegals! Just drive by the local hardware store and hire some illegals, their wives and their kids to go by mom's house every day and make a big fuss about her. Cheap. Soon mom will have had her fill. Anytime she slips back, just ask "So Mom. Looks like you could use another 'treatment' eh?"
Oh Donna -- you have my sympathy! My elderly mother doesn't demonstrate the exact form of manipulation yours does, but she's been "sick" for the last 87 years, requiring constant mothering from me and my sister. I guess it's made us strong women, but just once I'd like to be able to lean on her for a change. Not gonna happen.....
vose,

Yes, sometimes it would be nice to do the leaning instead of being leaned on, but strength is it's own reward. I've made certain to treat my daughter exactly the opposite of how my mom treated me.
I know the type and they are legion. My mom is only happy if everyone else isn't.
Lisa,

The misery lovers are spawning an epidemic.
"When the paramedics arrive, it’s like a reunion. They have been to her house so often that she now bakes cakes for them and has either my sister or I deliver them to the firehouse."

It takes real talent to turn this kind of dysfunction into humor. You've done so beautifully. Sometimes humor is our best survival skill. Rated "God and Satan."
Ever wondered if you met your close relatives in another life, and did not know you were related, would you have any interest at all in knowing them as friends?
I don't know whether to laugh or cry, but I sure was entertained. You are a fine, fine writer is all I can say.
Laugh, Michael. Laughing is good. Sincere thanks.
LORDY! And I thought I had it rough with a mom who sent us traveling all the time. Yes, one guilt trip after another.

I could use some extra attention from my kids. OW! OW! OW! I'VE FALLEN AND I CAN'T GET UP!
I'm so glad you have a wonderful husband and good sense of humor to keep you sane. Sounds like you don't take yourself or your mom too seriously, which I guess is another way to stay sane and not let it get to you. Too much.
Wow. What a mother! :-)
What a monster. At least your dad is enjoying his break.
Sorry, but I'm in a state of hard laughter right now. I can visualize every condition you wrote so well about. How embarrassing to be lying around on the patio waiting for the neighbors to notice her! Among everything else. And neither god nor satan wanting her? I don't know how she's outlived what she's done to herself! You have been given the greatest spiritual gift in life -- humor!! And loads of it. I'm so glad I found you! Rated, of course.