Dorinda Fox

Dorinda Fox
Location
Orlando, Florida, United States
Birthday
May 20
Bio
I teach writing at several universities. My two daughters are five and 16. I adore my children, have trouble raising them, and you will read more about them than you care to. I am a cancer survivor. I was born and raised in Arkansas. I am addicted to Starbucks black iced tea. "What if it's boring... or if it's not boring, it might be too revealing, or worse, it might be too revealing and still be boring." Lily Tomlin referring to her teenage diary, in an interview in Movie magazine (July 1983) "The trouble with the world is that the stupid are cocksure and the intelligent are full of doubt." -- Bertrand Russell "I'm teaching myself to live without sleeping because I don't trust my dreams." -- Jon Stewart on the Daily Show

Dorinda Fox's Links

Salon.com
SEPTEMBER 9, 2009 9:31PM

Why I Can't Watch President Obama's Speech

Rate: 65 Flag

President Obama is fighting for his mother and honoring her memory. President Obama often referred to his mother arguing with insurance companies on the phone from the sickbed in which she died.

That is unforgivable.

Been there and done that except for the dying part because I was lucky enough to be receiving treatment at a cancer hospital which hired someone to make those phone calls and fight for me when I was too ill from chemo, surgery, radiation, working full-time, and raising two kids to fight for myself. I HAD to work to pay the insurance premiums. I dragged my sorry sick butt from the bed to the couch to a computer where I taught classes while linked to hydration lines to fight off nausea so I could earn money for the mortgage and very expensive COBRA health premium.

The first couple months I handled the calls myself. My insurance company’s policy was either to deny coverage on first presentation or to have a “nurse” call to talk me into refusing coverage. They wore me out.

Now I will tell you why the hospital paid someone to do it for me.

I could not work, take care of my kids, and handle the insurance company.

The ugliness that has surrounded the healthcare debate has horrified me. But the ugliness of insurance companies should not surprise me.

I was diagnosed in August 2007 with invasive inflammatory breast cancer in my left breast. The kind of cancer that before the invention of herceptin killed over 90% of the patients who contracted it very quickly. It still isn’t the best kind of cancer to have had. The diagnosis of this type of cancer used to be a death sentence. I could not have had a mastectomy at the time because it would have certainly maimed me and more than likely killed me.

I have two children. One just started Kindergarten this year.

I presented to the surgeon with two tumors of 8 cm and 9 cm. For those of you unfamiliar with that lingo they were big ass tumors in the back of my breast growing dangerously close to my heart and lungs. Without treatment I would not have lived until Christmas.

EVERY Friday afternoon for three hours I endured chemotherapy treatment that hurt enough to require simultaneous painkiller. 52 Fridays. I then went home alone for three days while my kids were with their ex- to try to recover enough to face another week of working to pay for the premiums to pay for the treatment and the roof over our heads.

I took one week off. I was selfish. I love Lyle Lovett. I love cruises. He was performing in February 2008 on a Cayamo cruise with many other artists. I could not travel alone because I was so weak from chemo. My best friend Carla who works 60 hours a week for a software company and who has two adopted Chinese children under five went on the trip with me. The Cayamo people were incredible and we had front row seats for a litany of amazing musicians – but I had promised my oncologist to be in bed by 10 p.m. so we went to the early shows.

I went horseback riding in the ocean on that Jamaica trip. A young cowboy who looked like a black Barney Fife tied a rope to my horse and guided me through the ocean waters telling corny jokes the whole time. To this day he remains the most handsome man I have ever seen.

I thought it was the last time I would see the ocean. It wore me out to be on the horse for an hour but others helped me back on the bus.

The morning Carla and I returned from the trip where my mother had been taking care of the girls I opened the mail.

Twenty years before when I was unmarried I was listed on the state retirement system as single meaning I could only COBRA for 18 months. The insurance company hired someone to find that information and they tried to give me less than 30 days notice that my insurance was to be terminated. As an ex-wife of an insurance receipient I was actually entitled to 36 months of COBRA coverage. They tried to get around that by changing my employee ID.

I made a dozen phone calls that day crying and trying to explain that without coverage I would die. No one cared.

My mother lost it and called my ex-in for help. My insurance coverage did not get denied because he had a high enough position to get someone from the Department of Insurance on the phone that day to restore the coverage I had been paying for at a very high price.

DO NOT TALK TO ME ABOUT DEATH PANELS. THEY ARE ALREADY HERE AND IF YOU GET TOO EXPENSIVE FOR THE INSURANCE COMPANY THEY WILL FIND A WAY TO DISPENSE WITH YOU.

That insurance company was willing to kill the mother of two children who was fighting harder than could be imagined to save money through a technical loophole they had to find.

I can’t write about this any more. I can’t watch Obama because he has to win this.

Whoever it is in that congressional chamber that heckled him this is my reply, “Fuck you.”

 

……………………………..

 

I am in remission. I hope to remain there.

Like Obama I will never forgive.

Neither should you.

 

wow.  A lot of people have read this and I am humbled  and thankful if it advances the cause of improving healthcare. 

However, I am somewhat worried.  I am healthy and in remission.  I have had no treatment for a year.  So I beat the disease and go to work everyday just like anyone else.  I may have taught better while I was on hydration just because I was so determined to do so.   Focus can be a good thing.  If any of my students read this please don't worry ;0)  Oddly I rarely talked to anyone about cancer when going through it.  Now . . . I really need to train myself to talk about other subjects.   Perhaps sports ;0)

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This needs to be widely read, Dorinda. I only have the smallest understanding of what you've been through and what you're feeling, and even that small bit scares me greatly. I understand why you can't watch.
Painful to read.Unfathomable to have lived.

The yeller was Joe Wilson. Republican from South Carolina.
Dorinda: I have a friend going through this right now -- not breast cancer, another deadly form of the beast that will not be tamed. I'm so sorry you had to go through all that. It really is insult to injury.

The speech as great.

BTW, I did a post a little while ago called "We`Already Have Death Panels." So I get that.

Be well. R
You're in remission!!!!!!!!!! That is the best part. Dont bother yourself with Joe Wilson. That nut will probably be a hero in South Carolina, but he is an instant heel most other places. So glad that things are looking up for you!
Rated. This should be an EP. I'm so glad you're winning the fight and are here to tell this story. I can't say anything more because your words say EVERYTHING.
Thank you for writing this. It's hard for to disguise the contempt I hold for the insurance business. They are predators of the first order and while I appreciate the overtures toward health care reform in this nation, it is internally unsettling to see the elaborate dance we perform to prop up that immoral industry. I know as well as anything that we would all be so much better off if we could eradicate it altogether and go to single payer but the aspects of American culture erected around tenets of selfishness and greed make that difficult.
hear hear for survivors!
I simply can't stand to read life stories like this any more. I, too, hope you and my other friends in remission stay there. Like Obama and you I will never forgive the indignities brought on patients and their families. We all have to win this one.
I agree wholeheartedly. Thanks for this post.
I'm a survivor too, but I must admit that I had a much easier treatment than you did. When I read this story it becomes crystal clear that we have to make sure that we all get the help that we need. I hope your remission lasts until you keel over at age 109. Rated.
it looks like the usa will still have the worst, most expensive health care system in the world.

but there will be enough improvement for dem pollies to face their constituents. it's an imperfect world at best, and the usa is not the best part of it, no matter what lies they feed you.

glad you made it, tell your daughters, if they get out of line, that you maybe aren't perfect, but they could easily have done worse.
I love you and your inimitable fighting spirit and you know it. From the depths of my soul, NO ONE could have written this better. Heading to Digg and Reddit with this. Because I want you around for a long, LONG time. And because the world needs to know. xoxo
I posted this to my profile on Facebook Dorinda. What they did to you ought to have criminal consequences.

My best friend died of breast cancer, she was a public health nurse with an advanced education. She spoke at conferences of people who treat breast cancer. She did every thing she could do. I helped her as much as I could and so did our women friends. It wasn't quite as bad with the insurance companies ten years ago, but it wasn't good, it wasn't easy -- the way I think it should be when you are going through the hardest fight of your life.

I agree with you. FUCK JOE WILSON.
This is such an outrage. No one should have to worry about the status of her health insurance coverage when she should be focussing all of her efforts on regaining her health. Watching those Republicans remain seated with their grim I-won't-budge-and-you-can't-make-me faces made me want to scream. How can they not get it? Is health insurance a privilege only for the rich?

Thanks for sharing your story. Best wishes for PERMANENT remission and good health.
I agree that this needs to be widely read. People--especially those uninformed about the issue-- need to see the human cost of the system we have now.

Access to available medical care should not be dependent on someone else's profit motive.

Bastards.
Horror with a side order of horror. You will see most of the speech eventually, like it or not. There is a march for health care reform in Port St. Lucie this Sunday, FYI. I don't know if I can afford to attend, but thought you might like to know. I have written several posts about HCR and feel much better about our chances after Obama's speech. I could not not watch it. He was brilliant and the Republicans to a man mostly just sat there glaring, so it's pretty much a done deal that their attitude will not change. They are the lackeys of the insurance giants and that was painfully obvious at tonight's speech.
I was thinking of you tonight.... Indeed, I use your story a lot when speaking with people about this important issue, because I've been reading your stories for a while now.

Your voice matters. Tremendously.
You shouldn't watch the speech. We did. We need to do this for you. for all the others, like my sister. For his mother, who should have been the living Mother of the President of the United States.

I am so sorry. We are here, and we will do this. We have to do this.
Stay well. Stay strong.
You know you are in my thoughts, now more than ever! I feel your pain. Our Obama did ok tonight. The public option is still on the table. The repugs were rude idiots. He said alot about regulation of the insurance companies. We'll see. I agree with Kevin's above comment. ...selfishness and greed will make this difficult to reform.
Rest tonight.... I feel better about the future...for the first time since the election! sending peace your way....
Amazing -- both your recounting of what you went through and your strength when you did it. This is so powerful.
I do not and will not forgive. I sincerely wish for your remission to be permanent.

You're right, we must win this fight. Thank you for this post.
Dorinda - thank you for sharing your story. No one should have to endure what you went through. Hope you continue to stay strong and well.
Not sure what to say except I am glad you are a fighter and still with us. Your story is very important to those who think there is no need for reform.
Dorinda, I DID watch, partly through my fingers because I was afraid he would back down. I am heartened somewhat, but I know rhetoric and "speechifying" when I hear it. Somehow, 3 years turned into 4 years -- what if he doesn't get re-elected and some fool Republican turns out the potential light?

I've been through the heinous insurance quagmire much like you have. I just went through it again last month when my insurer tried to rescind my policy because "they paid out too many claims last year." I lost my husband to cancer in 1991; his insurance company canceled his policy in 1989, in the midst of intensive chemo and radiation. I simply am agog that the debate is still going on with nothing is being done in the here and now. And now, I will vilify Joe Wilson at every opportunity. He puts a real nasty face on South Carolina.

May you continue to be in good health and hands, may your children always have their mother watching over them, and may your struggle be lightened by a hopefully better system to come.

Peace be to you
Thank you for your bravery in sharing this. I am so saddened to read how blithely you were dismissed by the insurance company. And yet, sadly, I'm not as surprised as I should be. I hope someday we can tell stories to our grandchildren about the bad old days when things like this happened. And yes... FUCK JOE WILSON! Even Captain Hook would recognize that kind of behavior as bad form!
This is brave and truthful and should be distributed far and wide. I'm so glad you're in remission--and I do know about the insurance run-around with my parents--it is a nightmare. But more than anything, the kind of rage you express cannot be manipulated or spun into some kind of movement. It needs to be heard.
You are one of my heroes, Dorinda.
I'm so sorry you had to go through that Dorinda.

And I agree. We absolutely have to win this one. This has dragged on too long.
You are the reason he must carry through. Admiration to you, Dorinda. You are strong and smart and you managed to work through it all. Brava! And hooray for herceptin.
I am posting this on facebook.
If it is possible, I have even greater respect for you now than before. I probably could not have watched that speech either given what I know now.

Yes, fuck you Joe Wilson, and all your cretinous, amoral kind. May you rot in hell.
I'm so sorry - I never realized it was inflammatory breast cancer . I woke one morning with the symptoms and know the prognosis from my research at the time. (of which mine turned out to be a blocked duct thank heavens). But now I understand If you've told me that earlier, I am again so sorry I didn't hear that.

I've been reading recission horror stories lately, and this is one of the worst I've seen. Thank you for opening your soul and sharing it to make this point.

If spirit and attitude really do beat disease, you are on top of that and then some. XO
Dorinda, you are my hero.

For health care to be linked in any way whatsoever to one's ability to hold a job is INSANE.

This needs wide distribution. I dugg and reddited and recommend others do likewise.
Oh I love you Dorinda...for your passion and honesty, for your advocacy for yourself and for others. I have a dog in the hunt too, but one I cannot talk about publicly, for personal and empathic reasons. You're fighting for me too and the ones I love, fighting with me. Thank you Dorinda xo
I read this and send you my prayers and respect. I know well of the bullshit the Insurance Companies dump on those who believe they are covered. Obama's speech was impressive... rAted!
With you all the way, Dorinda. I could not watch it. I am having to avoid the horrible media coverage. I am become irrational about Republicans in general. I called the office of one of our two Republican Senators who I knew would oppose this bill and very nearly lost it with his aide.

I am self-employed and pay for my own health insurance. I have a huge deductible and huge out-of-pocket expenses, but at least when I got cancer I had insurance. I used up my life savings and racked up about $15,000 in credit card bills (that I still owe) paying my portion of the bills.

In the 3 1/2 years since I finished treatment my insurance company has been steadily hiking my premiums. I don't know how much longer I will be able to afford it. But I can't switch to a different insurer because no one will insure me now that I've had cancer.

People die every single day because our health care system is so horribly broken. When did evil hate mongers like that Congressman who yelled "You lie!" at our President (your President, too, you bastard) completely take over the Republican party? When will someone stand up and say "Enough"??
You are a superwoman. Tony Wang's latest posting tells us how to REALLY stick it to Rep. Joe Wilson. Check it you. And Dorinda, you are super-rated!
Dorinda I want to be commenting on your posts for the next several decades, so you stick around, you hear me?
Rated and hugged and massively cheered for.
awesome post, rated, and thank god you lived so we could get to read ya!! :)
Dorinda, I hope this is on the cover of salon. I'm so impressed that you have spoken publicly and honestly about your struggle not only with cancer but with the health care system. I don't think you're alone, but you are a good reason for why reform (real reform not the phony any change is better than no change reform) is needed now. It's needed yesterday.
How terrible, Dorinda. Ditto Verbal.
There are no words I could possibly find to express my admiration for you, young lady. Of course I agree with you 1000%.

Any self-respecting compassionate person laying claim to humanity would.
You humble me, Dorinda. Your strength and courage absolutely amaze me. Many blessings.
Dorinda, you are so right! But it is not Obama who will win! It is The United States that wins; the American people who win ... even those who don't know they are winning will win; righteousness that wins; common sense ... which wins. And a "more perfect Union" that occurs.

And those that would stand in the way; albeit zealots, companies, industries, associations or any other special interest that places their interest above that of the total citizenry, do not deserve to be a part of this democracy ... which by the way, by definition is a republican democracy (democratic republic). How ironic is that?

May you be blessed for your courage and your words.
I so admire your resolve, your passion, and the clarity with which you express this important message, and I hope you remain in remission for decades.
Only someone who has lived it can write like this. I agree, this needs to be widely read! Excellent post!
Ugh. I. hate. this. too.
I am so sorry Dorinda. It is beyond me why we have to argue for health insurance/care for all.
Dorinda, thank you for sharing this. It is a clarion call for all of us.
Thank you for sharing your story. My very best wishes to you and your family - you are so brave and so inspiring.
I was posting bits of Sicko to another site because they dont seem to believe it is people who actually are working, and insured who are being fucked over by the people insuring them in the HMO death panels. Avoid milk and dairy. Most dairy is made with Monsanto's growth hormones pumped into cows made from E. Coli bacteria that gives cows mastitis, and humans a whole host of cancers and ailments.
If I could comment and rate and comment and rate and comment and rate again on this I would. You need to be heard. I am so sorry for your agony and travail. This episode is truly a heinous example of why reform is such a dire necessity.

God Bless you, your children and your friends and family...and godspeed to a continued remission and good health.