President Obama is fighting for his mother and honoring her memory. President Obama often referred to his mother arguing with insurance companies on the phone from the sickbed in which she died.
That is unforgivable.
Been there and done that except for the dying part because I was lucky enough to be receiving treatment at a cancer hospital which hired someone to make those phone calls and fight for me when I was too ill from chemo, surgery, radiation, working full-time, and raising two kids to fight for myself. I HAD to work to pay the insurance premiums. I dragged my sorry sick butt from the bed to the couch to a computer where I taught classes while linked to hydration lines to fight off nausea so I could earn money for the mortgage and very expensive COBRA health premium.
The first couple months I handled the calls myself. My insurance company’s policy was either to deny coverage on first presentation or to have a “nurse” call to talk me into refusing coverage. They wore me out.
Now I will tell you why the hospital paid someone to do it for me.
I could not work, take care of my kids, and handle the insurance company.
The ugliness that has surrounded the healthcare debate has horrified me. But the ugliness of insurance companies should not surprise me.
I was diagnosed in August 2007 with invasive inflammatory breast cancer in my left breast. The kind of cancer that before the invention of herceptin killed over 90% of the patients who contracted it very quickly. It still isn’t the best kind of cancer to have had. The diagnosis of this type of cancer used to be a death sentence. I could not have had a mastectomy at the time because it would have certainly maimed me and more than likely killed me.
I have two children. One just started Kindergarten this year.
I presented to the surgeon with two tumors of 8 cm and 9 cm. For those of you unfamiliar with that lingo they were big ass tumors in the back of my breast growing dangerously close to my heart and lungs. Without treatment I would not have lived until Christmas.
EVERY Friday afternoon for three hours I endured chemotherapy treatment that hurt enough to require simultaneous painkiller. 52 Fridays. I then went home alone for three days while my kids were with their ex- to try to recover enough to face another week of working to pay for the premiums to pay for the treatment and the roof over our heads.
I took one week off. I was selfish. I love Lyle Lovett. I love cruises. He was performing in February 2008 on a Cayamo cruise with many other artists. I could not travel alone because I was so weak from chemo. My best friend Carla who works 60 hours a week for a software company and who has two adopted Chinese children under five went on the trip with me. The Cayamo people were incredible and we had front row seats for a litany of amazing musicians – but I had promised my oncologist to be in bed by 10 p.m. so we went to the early shows.
I went horseback riding in the ocean on that Jamaica trip. A young cowboy who looked like a black Barney Fife tied a rope to my horse and guided me through the ocean waters telling corny jokes the whole time. To this day he remains the most handsome man I have ever seen.
I thought it was the last time I would see the ocean. It wore me out to be on the horse for an hour but others helped me back on the bus.
The morning Carla and I returned from the trip where my mother had been taking care of the girls I opened the mail.
Twenty years before when I was unmarried I was listed on the state retirement system as single meaning I could only COBRA for 18 months. The insurance company hired someone to find that information and they tried to give me less than 30 days notice that my insurance was to be terminated. As an ex-wife of an insurance receipient I was actually entitled to 36 months of COBRA coverage. They tried to get around that by changing my employee ID.
I made a dozen phone calls that day crying and trying to explain that without coverage I would die. No one cared.
My mother lost it and called my ex-in for help. My insurance coverage did not get denied because he had a high enough position to get someone from the Department of Insurance on the phone that day to restore the coverage I had been paying for at a very high price.
DO NOT TALK TO ME ABOUT DEATH PANELS. THEY ARE ALREADY HERE AND IF YOU GET TOO EXPENSIVE FOR THE INSURANCE COMPANY THEY WILL FIND A WAY TO DISPENSE WITH YOU.
That insurance company was willing to kill the mother of two children who was fighting harder than could be imagined to save money through a technical loophole they had to find.
I can’t write about this any more. I can’t watch Obama because he has to win this.
Whoever it is in that congressional chamber that heckled him this is my reply, “Fuck you.”
……………………………..
I am in remission. I hope to remain there.
Like Obama I will never forgive.
Neither should you.
wow. A lot of people have read this and I am humbled and thankful if it advances the cause of improving healthcare.
However, I am somewhat worried. I am healthy and in remission. I have had no treatment for a year. So I beat the disease and go to work everyday just like anyone else. I may have taught better while I was on hydration just because I was so determined to do so. Focus can be a good thing. If any of my students read this please don't worry ;0) Oddly I rarely talked to anyone about cancer when going through it. Now . . . I really need to train myself to talk about other subjects. Perhaps sports ;0)


Salon.com
Comments
The yeller was Joe Wilson. Republican from South Carolina.
The speech as great.
BTW, I did a post a little while ago called "We`Already Have Death Panels." So I get that.
Be well. R
but there will be enough improvement for dem pollies to face their constituents. it's an imperfect world at best, and the usa is not the best part of it, no matter what lies they feed you.
glad you made it, tell your daughters, if they get out of line, that you maybe aren't perfect, but they could easily have done worse.
My best friend died of breast cancer, she was a public health nurse with an advanced education. She spoke at conferences of people who treat breast cancer. She did every thing she could do. I helped her as much as I could and so did our women friends. It wasn't quite as bad with the insurance companies ten years ago, but it wasn't good, it wasn't easy -- the way I think it should be when you are going through the hardest fight of your life.
I agree with you. FUCK JOE WILSON.
Thanks for sharing your story. Best wishes for PERMANENT remission and good health.
Access to available medical care should not be dependent on someone else's profit motive.
Bastards.
Your voice matters. Tremendously.
I am so sorry. We are here, and we will do this. We have to do this.
Rest tonight.... I feel better about the future...for the first time since the election! sending peace your way....
You're right, we must win this fight. Thank you for this post.
I've been through the heinous insurance quagmire much like you have. I just went through it again last month when my insurer tried to rescind my policy because "they paid out too many claims last year." I lost my husband to cancer in 1991; his insurance company canceled his policy in 1989, in the midst of intensive chemo and radiation. I simply am agog that the debate is still going on with nothing is being done in the here and now. And now, I will vilify Joe Wilson at every opportunity. He puts a real nasty face on South Carolina.
May you continue to be in good health and hands, may your children always have their mother watching over them, and may your struggle be lightened by a hopefully better system to come.
Peace be to you
And I agree. We absolutely have to win this one. This has dragged on too long.
I am posting this on facebook.
Yes, fuck you Joe Wilson, and all your cretinous, amoral kind. May you rot in hell.
I've been reading recission horror stories lately, and this is one of the worst I've seen. Thank you for opening your soul and sharing it to make this point.
If spirit and attitude really do beat disease, you are on top of that and then some. XO
For health care to be linked in any way whatsoever to one's ability to hold a job is INSANE.
This needs wide distribution. I dugg and reddited and recommend others do likewise.
I am self-employed and pay for my own health insurance. I have a huge deductible and huge out-of-pocket expenses, but at least when I got cancer I had insurance. I used up my life savings and racked up about $15,000 in credit card bills (that I still owe) paying my portion of the bills.
In the 3 1/2 years since I finished treatment my insurance company has been steadily hiking my premiums. I don't know how much longer I will be able to afford it. But I can't switch to a different insurer because no one will insure me now that I've had cancer.
People die every single day because our health care system is so horribly broken. When did evil hate mongers like that Congressman who yelled "You lie!" at our President (your President, too, you bastard) completely take over the Republican party? When will someone stand up and say "Enough"??
Rated and hugged and massively cheered for.
Any self-respecting compassionate person laying claim to humanity would.
And those that would stand in the way; albeit zealots, companies, industries, associations or any other special interest that places their interest above that of the total citizenry, do not deserve to be a part of this democracy ... which by the way, by definition is a republican democracy (democratic republic). How ironic is that?
May you be blessed for your courage and your words.
God Bless you, your children and your friends and family...and godspeed to a continued remission and good health.