“How much longer until I can just die?” my father asks.
Ironically, he doesn’t know he’s actually dying—slogging through death’s stages, step, by excruciating step. No one tells him that his life is ending. He is suffering from late stage dementia and will not remember even if we did tell him—our words will evaporate, lost in the fog that clouds his mind.
It seems more cruel to give him the facts over and over so instead we watch in silence as his body begins to shut down, one organ at a time.
Death takes its time with him. It makes him wait, lurking in the distance, mocking.
My father can no longer walk. He has lost most of his vision. Bed sores have begun to erupt on his legs. His breath is labored. He eats nothing but two to three teaspoons of applesauce daily.
He will likely die of dehydration and that takes time.
The hospice doctors tell me he will be dead within weeks—possibly months, but they are reluctant to give me any real predictions. It’s impossible for me to make them understand that I’d rather know the truth than wonder.
I’m sure they know what is likely to happen but they will not share that with me. They stick to their script.
“Can’t we just go for a walk?” My father asks. “I’m tired of just lying around all the time.”
He is staring at the ceiling. I am next to him, on the floor. It’s 4 am. He still does not understand that he can’t walk anymore and he never sleeps. He does not understand that he will never leave this room.
Outside the seagulls are singing. The sky is a cruel blue, but he is now locked within a world he can no longer experience.
He tries to get up, but fails.
I want to end my father’s life.
I know with 100% certainly he’d want me to. I try to look for loopholes in the laws. There is nothing. We can only wait, hoping that death will grace us sooner rather than later.
After many hours of research I discover a solution that just might be viable: Palliative Sedation, a fancy name for basically sending someone who is near death anyway into a drug induced coma until they die. This is as controversial as it sounds but often practiced by hospice doctors when suffering warrants it and all other options for pain relief—both physical and psychological—have been exhausted.
In reality it is a form of assisted suicide—but it’s legal.
I beg my father’s doctors to do this for him but they refuse. Their subjective view of his level of suffering does not warrant such a gift.
Here’s what I think about assisted suicide: It’s a gift. It’s a vehicle to die on your own terms. It is a way to end unbearable and needless suffering.
It is a personal choice.
Why should someone else’s religious or political opinions affect our very fate?
Will I be forced to endure needless suffering because someone else’s God deems that ending my own life is immoral? Will I rack up ridiculous medical bills because it’s illegal for me to die on my own terms?
I hope not.
When my day comes and it is me that straddles the vast chasm between life and death I can only hope I'll be able to opt out on my own terms.
I hope Jack's still around when I come knocking.
*my father died six months ago--without the dignity he deserved. This is a present tense reflection on that time*


Salon.com
Comments
My father, as many of you know, died several months ago--without dignity. I wish I could've helped him leave this world with more grace....
As a healthcare professional I was taught to be objective. I do believe assisted suicide is a gift.
Trilogy, my friend! I know, I am full of sad stories but when I noticed the open call on assisted suicide I felt compelled to write about this again--sigh. I loved your "fiction" piece too. You've got a great attitude even with all you've been through. I love that about you.
My prayers are with you, your family and your father.
R
The idea that there is a real difference between “active euthanasia” and “passive euthanasia” seems like an absurd distinction to me. Yet, it is one on which the medical profession bases its judgments about such matters. Better to let them suffer through a long agonizing death than to make it easier on them and their loved ones. I don’t get it.
RATED
There is a wonderful Canadian film about end of life and heroin called" Barbarians at the Gate" by Denys Arcane sp? that, despite its horrid title, is superb. What I learned from that is that heroin is absolutely preferable to morphine. This was my association. I did help my mom die but that's another story. So sorry this was not done more humanely, Edan. Thanks for posting it. r
Then there are the health care professionals who limit pain medication because of it's addictive potential -- surely the epitome of illogic.
I have understand from my British friends that heroin is vastly superior to morphine for pain relief. If someone is terminally ill I don't understand why the best drug is not given to the patient. Are the authorities so afraid that death may actually be an "enjoyable" experience?
I hope you'll continue to tell this story, and I hope more that there will continue to be people who will listen and take these lessons to heart
~BIG HUGS~
Rated.
r
I wrote a post quite some time ago that you might find interesting;
What Is Dignity
Wendy-Thank you for stopping by. I am definitely going to check out the film. I had no idea heroin might be even better than morphine. If I would've known that then I may have ended up on a street corner in a bad neighborhood looking for a supply for my dad. I did help him die in the end--the last 48 hours were mine and I made sure he had plenty of morphine for the last stretch. I'm looking forward to reading your post too.
Lunchlady 2-Thanks for stopping by, good to see you. I know you can understand and you knew this story from the beginning when I first joined OS. I'm sorry you too had to endure such torture. There is nothing worse than watching a loved one suffer.
Ablonde-I am with you all the way. There is no logic in the system. I vote for making death enjoyable. In a way you could compare dying to giving birth--you can do it naturally and endure the pain and suffering or you can get the damn epidural and enjoy the experience because you're not in so much pain. Thanks for taking the time to read and comment.
Studman--many hugs back to you and a great big thank you for getting this from my very first post. It's wonderful to feel understood. I am with you--this is such an important cause. I want to fight the fight too. ox
Sophie-Thanks for stopping by. I'm so glad your mom was able to make that choice for herself and died peacefully.
Scylla-Thank you for reading, I'm glad you get it too.
Miss Joan: Missed you too girl. Glad to be back. Looking forward to reading you again...
Mary-I agree. This is my biggest fear too. I think I'll try to make some advance plans to make sure it never happens to me. I still have a stash of morphine:))) Thanks for reading.
WantMyMindBack-Thank you for reading and understanding. Your comment is appreciated.
Hi Elisa-Thanks for reading and sorry you had to endure this too. It's all so crazy and archaic I'll never understand it. Our lives and our deaths need to remain our own.
Tink-agreed 100%. Once there is no quality of life I want to be done. If I can't do it myself I want assistance. Fuck the rest.
Thanks for stopping by.
When simply being awake is too much,...when pain is a constant companion,...there has to be a balanced approach to the value that life then has.
We should not value life simply for life's sake. We should value life for what it allows...a certain amount of freedom,... loving and being loved,...the ability to make a difference in our lives and those of others.
When a time comes that life has no further value..and worse yet... becomes a nitemare...then perhaps that balanced view needs to be respected.
I know that this is a bit naive on my part,..and the possibility for abuse are staggering....but I do feel this way.
And I also feel like you are both an amazing person, and an amazing writer. What love you show!
r-
When there is no more life left in your life it's time to be set free.
ox Eden
Peace.
Nikki-Sometimes I'm just feeling inspired and able to write something out in a few minutes ( in this case I was at work!) One of things I enjoy about writing here is being able to express myself without feeling like it needs to be perfect:) Thanks for stopping by.
But, that said, I am a sucker for creative wordsmithing also--no matter what the topic.
Looking forward to catching up on some of what I've missed from you these past couple of months...
I'm new here so I'll say welcome back (and with a bang!).
Rated for sincerity.
This was beautifully and sensitively done. I doubt the subject could have been treated in a manner that gives more honor to your father or his passing by its intent.
I am deeply sorry for all of the pain he suffered and you felt as a result. I wish you peace and thank you for posting this moving and thoughtful piece.
Rated and appreciated.
Kissinglessons-Thank you. I am glad you enjoyed the writing. I was always saddenend by the blue sky that beckoned just outside my father's door as he lay inside a dark room slowly drifting away. I appreciate you taking the time to read and comment.
Dennis-I can't tell you how happy it makes me when you stop by. You've really been missed here. I appreciate your kindness and sincerity and thank you for reading.
Thank you for a piece of hard won wisdom my friend.