APRIL 23, 2010 2:47PM

Will you die with dignity?

Rate: 34 Flag

“How much longer until I can just die?” my father asks.

 

Ironically, he doesn’t know he’s actually dying—slogging through death’s stages, step, by excruciating step.  No one tells him that his life is ending.  He is suffering from late stage dementia and will not remember even if we did tell him—our words will evaporate, lost in the fog that clouds his mind. 

 

It seems more cruel to give him the facts over and over so instead we watch in silence as his body begins to shut down, one organ at a time.

 

Death takes its time with him.  It makes him wait, lurking in the distance, mocking.

 

My father can no longer walk.  He has lost most of his vision.  Bed sores have begun to erupt on his legs.  His breath is labored.  He eats nothing but two to three teaspoons of applesauce daily. 

 

He will likely die of dehydration and that takes time.

 

The hospice doctors tell me he will be dead within weeks—possibly months, but they are reluctant to give me any real predictions.  It’s impossible for me to make them understand that I’d rather know the truth than wonder. 

 

I’m sure they know what is likely to happen but they will not share that with me.  They stick to their script.

 

“Can’t we just go for a walk?” My father asks.  “I’m tired of just lying around all the time.”

 

He is staring at the ceiling.  I am next to him, on the floor.  It’s 4 am. He still does not understand that he can’t walk anymore and he never sleeps. He does not understand that he will never leave this room.

 

Outside the seagulls are singing.  The sky is a cruel blue, but he is now locked within a world he can no longer experience. 

 

He tries to get up, but fails.

 

I want to end my father’s life. 

 

I know with 100% certainly he’d want me to.  I try to look for loopholes in the laws.  There is nothing.  We can only wait, hoping that death will grace us sooner rather than later.

 

After many hours of research I discover a solution that just might be viable:  Palliative Sedation, a fancy name for basically sending someone who is near death anyway into a drug induced coma until they die.  This is as controversial as it sounds but often practiced by hospice doctors when suffering warrants it and all other options for pain relief—both physical and psychological—have been exhausted. 

 

In reality it is a form of assisted suicide—but it’s legal.

 

I beg my father’s doctors to do this for him but they refuse.  Their subjective view of his level of suffering does not warrant such a gift.

 

Here’s what I think about assisted suicide:  It’s a gift.  It’s a vehicle to die on your own terms.  It is a way to end unbearable and needless suffering.

 

It is a personal choice.

 

Why should someone else’s religious or political opinions affect our very fate?

 

Will I be forced to endure needless suffering because someone else’s God deems that ending my own life is immoral?  Will I rack up ridiculous medical bills because it’s illegal for me to die on my own terms?

 

I hope not. 

 

When  my day comes and it is me that straddles the vast chasm between life and death I can only hope I'll be able to opt out on my own terms.

 

I hope Jack's still around when I come knocking.

 

 

 

*my father died six months ago--without the dignity he deserved.  This is a present tense reflection on that time*

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Hi all~I haven't been here for quite some time--I've missed you! I popped on and saw the open call on assisted suicide and had to whip this up.

My father, as many of you know, died several months ago--without dignity. I wish I could've helped him leave this world with more grace....
I wish you much peace. Wonderful post.
Many thanks to you, Dr. Ziggy. Peace is coming to me, little by little. Appreciate you reading and commenting~
With death imminent, it is extremely hard to watch someone suffer. My best thoughts are with you. Excellent post, rated.
Thank you Thoth. Nice to see your face again and appreciate you stopping by~
"I beg my father’s doctors to do this for him but they refuse. Their subjective view of his level of suffering does not warrant such a gift."

As a healthcare professional I was taught to be objective. I do believe assisted suicide is a gift.
Understood and appreciated. Well expressed, Eden.
Bonnie-Thanks for stopping by:) I was brave, he is gone now, but seems like just yesterday that I was holding his hand willing death to come relieve him--
Chuck--Thanks for stopping by. I admire the ability to be objective in the face of suffering and death. I don't know if I could do it. I will always view assisted suicide as a courageous gift.
Oh Eden, it was so good to see your face! But it was so sad to hear your story yet again. wonderfully and bravely told and i agree.
Owl-thanks for stopping by and understanding.

Trilogy, my friend! I know, I am full of sad stories but when I noticed the open call on assisted suicide I felt compelled to write about this again--sigh. I loved your "fiction" piece too. You've got a great attitude even with all you've been through. I love that about you.
I wish the best for you and your father. Sitting around waiting for the inevitable is cruel to the patient and so heartbreaking for the loved ones.. I agree with you that when the time is appropriate assisted suicide is the answer.
My prayers are with you, your family and your father.
R
Thanks, Steve. Good to see you again, it's been awhile for me. Looking forward to catching up on your posts. ox
I'm so sorry that this wasn't an option for you or your father (yes, I read your post carefully) and that he couldn't die with the dignity that he asked for, deserved and that you begged for on his behalf. I'm also sorry for your loss but am glad to see you here. Hugs.
Cartouche--happy to see you here. Thank you for your careful read--I appreciate it and have always respected your wisdom and writing. Good to be back:)
My father-in-law was stricken with prostate cancer several years back. He refused any treatment once it was determined it would likely have very little, if any, effect aside from dragging out the process of dying. Having been athletic and a track coach for most of his adult life, the loss of activity was bad enough, but when told the cancer would slowly destroy his brain, as well, and being a college instructor and intellectual all of his adulthood, the thought of becoming “mindless” and incoherent was simply more that he could bear. He chose no treatment aside from pain meds, and virtually the entire family was by his side when he died.

The idea that there is a real difference between “active euthanasia” and “passive euthanasia” seems like an absurd distinction to me. Yet, it is one on which the medical profession bases its judgments about such matters. Better to let them suffer through a long agonizing death than to make it easier on them and their loved ones. I don’t get it.

RATED
Rick--I don't get it either. I don't get it at all. Thanks for stopping by. I am happy your father-in-law was able to make that choice himself. My dad had dementia--nothing he said mattered to the doctors.
I missed your wonderful writing. I am so very sorry about the circumstances of your father's death. Peace and healing to you Eden.
I just came from my doctor who had to take a call about an 86 year old man with so many disabilities, 2 cancers, alzheimers, low blood pressure, refusal to eat, etc etc that just listening I was upset. When he got off the phone I said, "Why not hospice?" Because I thought death by morphine is legal here if someone is going to die.

There is a wonderful Canadian film about end of life and heroin called" Barbarians at the Gate" by Denys Arcane sp? that, despite its horrid title, is superb. What I learned from that is that heroin is absolutely preferable to morphine. This was my association. I did help my mom die but that's another story. So sorry this was not done more humanely, Edan. Thanks for posting it. r
As I wish I could have helped my mom. She would scream let me die over and over and over, then cuss God. It was horribly hard to watch.
I'm sorry your father was forced to endure such a miserable death. I fail to understand how we as a society often afford our dogs with a great higher degree of grace at the end of their lives than our fellow man.

Then there are the health care professionals who limit pain medication because of it's addictive potential -- surely the epitome of illogic.

I have understand from my British friends that heroin is vastly superior to morphine for pain relief. If someone is terminally ill I don't understand why the best drug is not given to the patient. Are the authorities so afraid that death may actually be an "enjoyable" experience?
The more I hear this story, and the many many others like it, the more it gives me strength and resiliance to keep fighting for this worthy cause of Death with Dignity.

I hope you'll continue to tell this story, and I hope more that there will continue to be people who will listen and take these lessons to heart

~BIG HUGS~
I.can't.rate.this.enough..Thank.you,.Eden.
I am sorry-you both suffered--this is an important post. My mother was lucky--she chose to end dialysis, which is legal, and died a few days later, in her sleep.
The sorrow and the strength. The shame of us all.
Rated.
"It is a personal choice." Eden, I couldn't agree more. I've missed you, by the way._r
My heart goes out to you for the loss of your father and knowing that he was not allowed to die with dignity. I've had a similar experience with one of my parents. My biggest fear, honestly, is to have my life end this way. Excellent post.
I'm so sorry. Thank you writing about it. I know the "Sedation" approach. Yes, I do. Here in Oregon, we voted in legal means. Twice.
r
Eden,

I wrote a post quite some time ago that you might find interesting;
What Is Dignity
Great piece, and highly rated. We should be giving the option to die with dignity, not hooked up to some machines, tubes everywhere, there is no life function on that scale. :(
Rita-good to see you here. I've missed OS too, glad to be back. Thanks for stopping by and for your kind words.

Wendy-Thank you for stopping by. I am definitely going to check out the film. I had no idea heroin might be even better than morphine. If I would've known that then I may have ended up on a street corner in a bad neighborhood looking for a supply for my dad. I did help him die in the end--the last 48 hours were mine and I made sure he had plenty of morphine for the last stretch. I'm looking forward to reading your post too.

Lunchlady 2-Thanks for stopping by, good to see you. I know you can understand and you knew this story from the beginning when I first joined OS. I'm sorry you too had to endure such torture. There is nothing worse than watching a loved one suffer.

Ablonde-I am with you all the way. There is no logic in the system. I vote for making death enjoyable. In a way you could compare dying to giving birth--you can do it naturally and endure the pain and suffering or you can get the damn epidural and enjoy the experience because you're not in so much pain. Thanks for taking the time to read and comment.

Studman--many hugs back to you and a great big thank you for getting this from my very first post. It's wonderful to feel understood. I am with you--this is such an important cause. I want to fight the fight too. ox
Amanda-Thank you. I'm so glad you get it too. Of course I knew you would:)

Sophie-Thanks for stopping by. I'm so glad your mom was able to make that choice for herself and died peacefully.

Scylla-Thank you for reading, I'm glad you get it too.

Miss Joan: Missed you too girl. Glad to be back. Looking forward to reading you again...

Mary-I agree. This is my biggest fear too. I think I'll try to make some advance plans to make sure it never happens to me. I still have a stash of morphine:))) Thanks for reading.

WantMyMindBack-Thank you for reading and understanding. Your comment is appreciated.

Hi Elisa-Thanks for reading and sorry you had to endure this too. It's all so crazy and archaic I'll never understand it. Our lives and our deaths need to remain our own.

Tink-agreed 100%. Once there is no quality of life I want to be done. If I can't do it myself I want assistance. Fuck the rest.
Thanks for stopping by.
Eden you are a super daughter. Rated
Thank you, Sheep. Now I'm a super orphan I guess. I feel lost without my father to ground me and my mom, well she's more like a distant cousin:)
I hope for the day when we can give one another the same end of life dignity and compassion that we give our pets. You have my belated condolences. ~r!
Amen to that, Kit. It really is a crazy world we live in. Thanks for stopping by.
A month ago, I helped my ancient (twenty-one-years-old at least) cat die. He was blind and deaf, confused and incontinent. I could have let him slowly starve to death as he became weaker and weaker, losing his desire for food and water -- unable to find his food and water, or get up to find it. Of course, everyone applauded and supported my decision, even as I cried and beat myself up about it. They made it easy for me. Said it was NECESSARY. Said "Who would want to live like that? Who would want to DIE like that?? Slowly, from hunger and dehydration?" And yet, it is likely I won't be afforded that same luxury -- to die peacefully, painlessly, guiltlessly. I hope that when my time comes things have changed. Too late, of course, for you and your father. Thank you for writing about your experience.
In a society where life is so valuable, we have gone to far past "balanced" in our approach to it.
When simply being awake is too much,...when pain is a constant companion,...there has to be a balanced approach to the value that life then has.
We should not value life simply for life's sake. We should value life for what it allows...a certain amount of freedom,... loving and being loved,...the ability to make a difference in our lives and those of others.
When a time comes that life has no further value..and worse yet... becomes a nitemare...then perhaps that balanced view needs to be respected.
I know that this is a bit naive on my part,..and the possibility for abuse are staggering....but I do feel this way.

And I also feel like you are both an amazing person, and an amazing writer. What love you show!

r-
Bell-ironic isn't it, the way we are applauded for putting our pets "out of their misery" while the humans we love the most are forced to suffer, sometimes horribly. I'll never understand it. Thanks for stopping by to read and comment and sorry about your cat. It's hard losing pets too~
JD-Thank you so much for your thoughtful comment. I agree with you completely and really find it hard to understand how logically it could be seen any other way. One of my favorite quotes is from The Little Prince: "only with the heart can one see rightly. What is essential is invisible to the eye."

When there is no more life left in your life it's time to be set free.
ox Eden
Eden, one reason I came here that I didn't mention is the title, very enticing!
Thanks, Brie. I know you understand.
A gift. I agree completely. And you ably illustrate here why assisted suicide should be legal.

Peace.
This is very impressive for just having whipped it up (not surprisingly). R
Pilgrim--glad you agree too. Thanks for stopping by.

Nikki-Sometimes I'm just feeling inspired and able to write something out in a few minutes ( in this case I was at work!) One of things I enjoy about writing here is being able to express myself without feeling like it needs to be perfect:) Thanks for stopping by.
i've missed you, my dear. your posts are raw and no bullshit, which is what i admire on a website like OS where we can sometimes get lost in the pretty words and images, or polictical rants, or who won dancing with the morons the night before. this sort of post is why i stay. rated.
DD-good to see you. Thanks for stopping by. I've never been one for fluff either. I could care less about recipes and tv recaps. I am always drawn to the raw humanity in writing and in life.
But, that said, I am a sucker for creative wordsmithing also--no matter what the topic.
Looking forward to catching up on some of what I've missed from you these past couple of months...
Eden I think you've provided a definitive answer to your title question, without doubt. Excellent, if heartbreaking, post.

I'm new here so I'll say welcome back (and with a bang!).

Rated for sincerity.
Peace be with you, Eden. This is a beautiful post and I appreciate your point of view. You writing is just lovely here. I get that you loved your father. Somehow I especially liked the seagulls and the stark blue sky juxtaposed with the interior setting of a room with a terminally ill patient whose end time is very uncertain. It must have been very hard to always wonder when the time would come. Peace and love to you.
Eden,
This was beautifully and sensitively done. I doubt the subject could have been treated in a manner that gives more honor to your father or his passing by its intent.

I am deeply sorry for all of the pain he suffered and you felt as a result. I wish you peace and thank you for posting this moving and thoughtful piece.

Rated and appreciated.
Words seem so inadequate here, but I am glad to have read your piece. You and your father will be in my thoughts for a fair while.
Seer--Nice too meet you and welcome to OS. I was new myself just a few months ago. I appreciate you coming by to read and comment.

Kissinglessons-Thank you. I am glad you enjoyed the writing. I was always saddenend by the blue sky that beckoned just outside my father's door as he lay inside a dark room slowly drifting away. I appreciate you taking the time to read and comment.

Dennis-I can't tell you how happy it makes me when you stop by. You've really been missed here. I appreciate your kindness and sincerity and thank you for reading.
As a Veterinary Technician I have assisted in the gift of death for many beloved family members. I have always felt it unfortunate that we cannot give the same gift to the people that we love. This is beautiful and sad.
"Their subjective view of his level of suffering does not warrant such a gift." That is a deep pity - only the dying should have this right.

Thank you for a piece of hard won wisdom my friend.