Keep Breathing

Erica K

Erica K
Location
New Jersey, USA
Birthday
September 26
Bio
Grew up in Jackson Heights, New York, but now live in Jersey. Married and the proud owner (servant?) of 4 cats, including a little blind guy named Quincy. Jobs have included: English teacher in U.S. and abroad, cabaret performer and member of a NYC sketch comedy troupe; now a full-time legal secretary and freelance writer. Other jobs: canvasser for NYPIRG/cannery worker in Naknek, Alaska (a fisherman told me it was "the ugliest part of Alaska")/dog kennel cleaner/member of the swine and poultry crew on a California farm. This year a memoir piece will be published in Telling Our Stories Press and poems in The Awakenings Review. Currently working on a one-woman show. "Ever tried. Ever failed. No matter. Try again. Fail again. Fail better." Samuel Beckett

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Salon.com
Editor’s Pick
JUNE 30, 2011 3:51PM

Guttersnipe

Rate: 33 Flag

Merriam-Webster’s definition of “guttersnipe”:
1.  A homeless vagabond and especially an outcast, boy or girl in the streets of a city.

2.  A person of the lowest moral or economic station.

 

From an early age I was schooled in the art of burying my feelings.  My job was to take care of mom and not let anyone know she was crazy.  The shame lived deep under my skin.  Mom was eccentric, not mentally ill.  In 1969 she started taking Valium to sleep.  She stayed up all night and went to bed when my brother Rick and I sat down for our morning cereal that she laid out for us on the plastic-coated placemats with bowls and spoons. 

 

A few years after the divorce mom moved from Jackson Heights (“JH”) to Greensboro, NC (“NC”) to live near her sister Rony.  Nothing was ever the same.

 

She never had a proper home after that.  The only home she ever had, so she says, was the one in JH, what she used to refer to as the “family home.”  That’s when life was good. 

 

In the past thirty years, mom has moved from JH to NC to the Bronx, then to NC, then to Queens.  I got her on a waiting list at a building for low-income people and those with special needs called Goodwill Terrace in Astoria in 1996.  I was living in Astoria at the time so it gave me a chance to be closer to her.  She loved it at first, but within three months everything went to hell.  That’s when the Puerto Rican Conspiracy began.  She said the upstairs tenant was leaching chemicals through the ceiling to poison her.  She lit a fire with newspaper in front of his door one day, and called the Fire Department and the EPA.  She said the entire Puerto Rican community was out to get her.  Within a year or two it was back to NC, then back to the Bronx.  She got evicted wherever she went.  The cycle was endless and exhausting.

 

Now she is back in the Bronx, in the Riverdale section, at Park Gardens Nursing and Rehabilitation Center.  She never asks about her prior residence, although she sometimes mentions the family home, “when life was good.”

 

When I spoke to dad on Sunday he said that Pat (my stepmother) was visiting her mom Thelma, who is 102 (egad!) years old and recently broke her hip.  Thelma is as sharp as a tack and resides at an assisted living facility near LA.  He said that he, Pat and my stepsister Alicia took turns visiting Thelma during the week.  “How delightful,” I thought.

 

I said to dad, “I wish I wasn’t the only one visiting mom,” and “Nancy [my childhood friend] thinks Rick isn’t strong enough to see her.”

 

Dad said, “She might be right,” followed by, “Does she still know who you are?”

 

“Yes,” I replied, as if that made a difference.  He always ask me the same question when we speak on the phone.

 

It took a day to sink in but the conversation stung me.  I was depressed all day Monday and angry all day Tuesday; the reality of the situation sunk in.

 

Mom was abandoned years ago.  I envied Pat for having a coterie of family and friends to visit her sick mother.  I envied the fact that she and dad could take vacations and have other people look in on Thelma.

 

I, too, have been abandoned.  I am a guttersnipe in a modern Dickens novel, begging for assistance from relatives—alms for the poor, visiting the sick—with grubby hands outstretched, always coming up empty.

 

Now that mom has Alzheimer’s disease, she seems more “legit” to a lot of people.  She’s not just that crazy woman on 89th Street anymore, leaving the door ajar at 3:00 a.m. while she does laundry in the basement or vacuums under her children’s beds.

 

Like a gypsy, I have travelled with her; we have been allies, fellow urchins, struggling to survive.

 

Judy Garland and Fred Astaire 

 

Judy Garland and Fred Astaire in Easter Parade singing “We Are a Couple of Swells.”


 

I am actively grieving since mom transitioned from semi-independent apartment living to institutionalization.  However cared for and comfortable she might be, she is now a ward of the state.  She doesn't have the choices Thelma has.  It comes down to social strata, dollars and cents, the haves and the have-nots.  Alzheimer’s has robbed her of the dignity of choice, of planning a retirement.  There will be no “golden” years.  Her meager social security check goes into her account at Park Gardens, to be used for visits to the hair salon, clothing and possibly, funeral expenses.

 

My apologies for the grim nature of this piece.  It’s been a rough week.

 

the commercial 

 

Me, mom and Rick, re-enacting the Dutch Masters Cigar commercial,
our cat Mitzi in the background, circa 1964.

 

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Comments

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Apologies are not necessary.
What a beautiful and touching piece. Erica, I wish I could send you a vacation to a marvelous and relaxing piece. You deserve it.
I understand and admire you for your love and loyalty. And that requires no apologies. Hugs.
Thanks, Brass, Mary and Fusun. I appreciate your kindness. Best, Erica
It seems so much better now -- she is wearing clean clothes, lying clean sheets, using a clean bathroom -- someone else is keeping her that way. I hope you can find something to be happy about, Erica. It's okay, you deserve it!
Following along here with you. She is in the right place. You can let go a little. It is a long good bye so pace yourself. Much Love to you!
Your love and care for your mum is a beautiful thing but please make sure to love and care for you too. It sounds like you deserve a little break right about now. Mum is okay. Make sure you are too.
Dianaani, Zanelle and Little Kate, Thank you for your support and kind words. I guess I've been down in the dumps these days. I am hoping for better days.
-E
Nothing to apologize for-Brava! The more people like you, and me, talk about the reality for caring for people with mental illness, dementia, and just plain craziness the btter off the world will be. Too many people don't ever think about the realities of caring for someone aging with mental illness until reality comes knocking at the door. Our country is stuck in a vicious cycle of ignoring people until they end up in jail or hospitalized and there is a better way. Caregivers like you make a difference.
Thank you, Patti. Most people don't want to know about the realities of caring for the mentally ill. In many ways, we're still stuck in a Victorian attitude towards it, many would prefer they were shut away in attics like Rochester's mad wife in Jane Eyre. Most of my family has no interest in dealing with her or knowing about the truth of her situation.
You and I have a lot more in common than growing up in Astoria. My mom had Alzheimer's too. It was a stomach turner to see someone you love, who was so independent, deteriorate right before your eyes, literally. R
Trudge,
It's an awful disease. Where does your mom live?
Erica
@Erica, my mother passed away a little over ten years ago.
Trudge, I am so sorry.
Erica
Very well written piece, felt the anguish and loneliness here. Take care.
Oh, Erica. It is astonishing how unfair, and just plain wrong, life can be.
Pauline,
Yes, it stinks sometimes. I feel I'm getting better with dealing with it, though. Helps so much to write it out. I know that better times are ahead. I also believe in karma.
Erica
Don't apologize.
{{{{{HUGS}}}}}}
For some of us completely understand......
Thanks, dysf. I guess that's another bad habit, apologizing for other people and myself. Thanks for the hugs too!
Erica
Great piece, as an adult child of a mentally ill parent, it rang so very very true. I often worry and wonder what would have happened if my dad hadn't stayed around. I wrote this one about not talking about it a year ago...

http://open.salon.com/blog/sueinaz/2010/08/03/prayer_garden
I will read it, Sueinez.
E
I work at a ltc place for the mentally ill (mostly medicare/caid and 50 patients to 1 nurse, except when it's double that, so it's not the ritz). Really like the people I work with, but could not imagine what it must have been like growing up as a child and having to assume all of the responsibility that early. I wish you happiness Erica. I can tell you that some of my patients are truly happy (getting married, hanging out, making real friendships), I hope you allow the same goodness into your life and know that you have earned it.
Your mom sounds now well taken care of but it is you that sounds frazzled now Ericka. please take some time off as I doubt your mom will notice.
And spend some 'me time'....apologize no more. And continue to write about this. many have been there beside you and more are joining in.
Julie,
You're doing great work, and I know it isn't easy. Mom is doing okay, I'm doing okay. Trying to live my life more now that she is safe and being cared for.
Best,
Erica
Mission,
Thanks for your kind words of support. I am doing for "me" things and trying to get out of guilt mode, gradually. -E
Please do not apologize for this touching piece of writing. Your sadness is palpable. I can only imagine how hard this is for you. Remember to take care of yourself. ~r
It's amazing the many strange things families endure that nobody else sees except those struggling to get out of the insanity. It was a revealing post, the pictures are great especially the one of you and your sister doing the Dutch Master Cigar commercial. Good luck with Mom
Joan, thank you for your comments.

Momsacomic, that's my brother Rick in the photo with the wigs, ha ha. Best, Erica
I was so touched by your story. Several years ago when I was between teaching jobs I accepted a job as a caregiver for dementia patients, and worked with a woman named Betty for three years. I will never forget her, even though she asked me once a week why Joan Crawford wasn't making movies any more and she thought Ronald Regean was still president. Her 89 year old husband Bob was sharp as a tack and they hid the fact they had actually divorced 25 years ago when she developed schizophrenia and cut up all the living room furniture with a saw. It was broken and she was fixing it.

Her daughter married a millionaire and I helped Betty move from one facility to another. She hoarded clothing and would steal from her roommates and to get her to bathe was a struggle.

We often went to lunch and a movie or shopping and once in a restraunt when I was cleaning out Betty's completely stuffed purse (she had a million notes , she wrote down everything so she wouldn't forget, notes stuck with melted butter and chocolate).

A woman came up to me and said, 'You are a saint." I had no idea what she meant and she nodded to Bob and Betty and said "Parents?" I shook my head no, and she said, "double saint, then."

I'm no saint, but Betty sure reminded me I wasn't a failure either. And Bob was a liberal from Pennslyvannia and we agreed on all things politics and shared books. I loved talking to him and driving them around in my beat up Saturn cuz I was afraid to drive the Mercedes left in the garage for our use.

Not everyone is Mercedes people,don't ever be ashamed of that, and often non-family members can cope because they can emotionally detach.

Erica, you're a saint, too!
Kate,
Thank you for sharing that story with me. I don't think I'm a saint; I'm simply doing what I'd hope a loved one would do for me if I were in mm's shoes. What makes me lonely is that no one else in the family knows (cares?) what is happening.
I took care of my father at the end of his life, about 15 years after my mother left him. I can identify with the sadness that one parent doesn't seem to care how the other is after a divorce. It was like the family that I had grown up in wasn't real, it had completely dissolved, and in it's place was mom's new family and dad's new family, and I wasn't part of either one. Dad didn't remember who I was in the end, either...but there was a sweet kind soul still in there, and I felt grateful to have the time with him.
I meant to also say, hang in there. You'll get through this. R+
Friends and family are supposed to lighten the load. You could "walk away" but you don't. I admire and envy your courage and your integrity.
Helvetica,
I'm sorry you had to go through that. I don't expect my dad to get involved as he has been remarried for 30 years now, but I have hoped (and since given up on hoping) that my brother would come to see her and/or participate in her caregiving, financially or otherwise and he has never done so.

Cynthia,
Thanks for the kind words. Nothing to envy, but thank you again.
You are a good daughter and there is nothing grim about that. Be free in the knowledge that you are one of the natural aristocracy that Jefferson spoke about.
The charming photo of you three belies so poignantly the sorrow ahead. My sympathies, Erica. If you're a guttersnipe, you're one with an angel's heart.
Miguela, Thank you for that. A member of the natural aristocracy, I accept that wholeheartedly.

Thank you, Matt.
Erica
You are no guttersnipe. Only those who are morally bankrupt are guttersnipes. I wish the best for you and your mother.
Thanks, fernsy. I often feel like a "guttersnipe" on the inside.
Erica
I am deeply touched by your struggle. You are in the vanguard of this moral tribulation. I am looking over the precipice with a beloved parent myself. Keep sane. Keep writing. You are not God. "Having done all, stand". I know that a contemplative consolation will fail when you are being stoned by fate, but your stand is the purpose of human life.
R+
I admire you for you ability to stay connected, when I am sure it would have been much easier perhaps to disconnect. This was a well written piece.
Ash,
I'm sorry you are going through a similar experience, it's no fun
Sheila, thank you. I have been tempted to disconnect many a time.
Best, Erica
The hardest part is knowing that people do the best that they can with what they have to work with. Your best just happens to be better. -R-
What a serene piece, beautifully sentimental, and a wonderful read. R
I hope you will be able to mother yourself as you have so lovingly mothered your mother all these years. Even if it just means buying yourself an ice cream cone at the shore. Double scoop!
Erica, I only a few hours ago got a "heads up" about this post of yours from Kate O'Hehir, so given the time zone differential between here and China I'm more than a bit slow ?"chiming in"?. :-(

I'm glad at least that you haven't ... yet, any way, closed the comments thread!

"Age-wise", I'm on the opposite side of the perhaps implicit divide [sic?] of your post. By which what I mean is I'm more your mom's age than yours so that by now my age-related concerns about Alzheuimers and other age-related dysfunctions have to be more about how to prepare for what's necessary for who's going to have to do what for me when I can't any more (sorry to be so longwinded) than this long long struggle you've borne so valiantly.

That does not in the least diminish my sympathy, empathy, agony, and respect love and appreciation for all you've been bearing and handling so exquisitely for so long!

I do hope you'll keep posting here at OS (where I can't log in and participate as often as I did earlier, while trying to fix some computer problems). You are (as you and all your friends know) one helluva brave, loving and long-reliable person, Erica ... daughter and OS-er!

Thanks so much for sharing all of this of you with all of us, and congratulations (which feel to me a bit off the mark in a sense as to all of this post of yours) for your EP!

podunkmarte
Grace and Thoth, Thank you for the kind words.

Pam, I will indulge in extra ice cream (one of my favorite desserts)!

Podunkmarte,
Thank you for chiming in! How long have you lived in China or were you born and raised there?
I wish you good health and happiness.
I will continue posting on OS and look forward to reading your work as well.
Best,
Erica
Thanks for sharing your story.
What can I say? I admire you greatly for reporting on the Dickensian conditions of our current society, with your mom as a real-life microcosm. I'm so sorry.