Merriam-Webster’s definition of “guttersnipe”:
1. A homeless vagabond and especially an outcast, boy or girl in the streets of a city.
2. A person of the lowest moral or economic station.
From an early age I was schooled in the art of burying my feelings. My job was to take care of mom and not let anyone know she was crazy. The shame lived deep under my skin. Mom was eccentric, not mentally ill. In 1969 she started taking Valium to sleep. She stayed up all night and went to bed when my brother Rick and I sat down for our morning cereal that she laid out for us on the plastic-coated placemats with bowls and spoons.
A few years after the divorce mom moved from Jackson Heights (“JH”) to Greensboro, NC (“NC”) to live near her sister Rony. Nothing was ever the same.
She never had a proper home after that. The only home she ever had, so she says, was the one in JH, what she used to refer to as the “family home.” That’s when life was good.
In the past thirty years, mom has moved from JH to NC to the Bronx, then to NC, then to Queens. I got her on a waiting list at a building for low-income people and those with special needs called Goodwill Terrace in Astoria in 1996. I was living in Astoria at the time so it gave me a chance to be closer to her. She loved it at first, but within three months everything went to hell. That’s when the Puerto Rican Conspiracy began. She said the upstairs tenant was leaching chemicals through the ceiling to poison her. She lit a fire with newspaper in front of his door one day, and called the Fire Department and the EPA. She said the entire Puerto Rican community was out to get her. Within a year or two it was back to NC, then back to the Bronx. She got evicted wherever she went. The cycle was endless and exhausting.
Now she is back in the Bronx, in the Riverdale section, at Park Gardens Nursing and Rehabilitation Center. She never asks about her prior residence, although she sometimes mentions the family home, “when life was good.”
When I spoke to dad on Sunday he said that Pat (my stepmother) was visiting her mom Thelma, who is 102 (egad!) years old and recently broke her hip. Thelma is as sharp as a tack and resides at an assisted living facility near LA. He said that he, Pat and my stepsister Alicia took turns visiting Thelma during the week. “How delightful,” I thought.
I said to dad, “I wish I wasn’t the only one visiting mom,” and “Nancy [my childhood friend] thinks Rick isn’t strong enough to see her.”
Dad said, “She might be right,” followed by, “Does she still know who you are?”
“Yes,” I replied, as if that made a difference. He always ask me the same question when we speak on the phone.
It took a day to sink in but the conversation stung me. I was depressed all day Monday and angry all day Tuesday; the reality of the situation sunk in.
Mom was abandoned years ago. I envied Pat for having a coterie of family and friends to visit her sick mother. I envied the fact that she and dad could take vacations and have other people look in on Thelma.
I, too, have been abandoned. I am a guttersnipe in a modern Dickens novel, begging for assistance from relatives—alms for the poor, visiting the sick—with grubby hands outstretched, always coming up empty.
Now that mom has Alzheimer’s disease, she seems more “legit” to a lot of people. She’s not just that crazy woman on 89th Street anymore, leaving the door ajar at 3:00 a.m. while she does laundry in the basement or vacuums under her children’s beds.
Like a gypsy, I have travelled with her; we have been allies, fellow urchins, struggling to survive.
Judy Garland and Fred Astaire in Easter Parade singing “We Are a Couple of Swells.”
I am actively grieving since mom transitioned from semi-independent apartment living to institutionalization. However cared for and comfortable she might be, she is now a ward of the state. She doesn't have the choices Thelma has. It comes down to social strata, dollars and cents, the haves and the have-nots. Alzheimer’s has robbed her of the dignity of choice, of planning a retirement. There will be no “golden” years. Her meager social security check goes into her account at Park Gardens, to be used for visits to the hair salon, clothing and possibly, funeral expenses.
My apologies for the grim nature of this piece. It’s been a rough week.
Me, mom and Rick, re-enacting the Dutch Masters Cigar commercial,
our cat Mitzi in the background, circa 1964.


Salon.com
Comments
♥
-E
It's an awful disease. Where does your mom live?
Erica
Erica
Yes, it stinks sometimes. I feel I'm getting better with dealing with it, though. Helps so much to write it out. I know that better times are ahead. I also believe in karma.
Erica
{{{{{HUGS}}}}}}
For some of us completely understand......
Erica
http://open.salon.com/blog/sueinaz/2010/08/03/prayer_garden
E
And spend some 'me time'....apologize no more. And continue to write about this. many have been there beside you and more are joining in.
You're doing great work, and I know it isn't easy. Mom is doing okay, I'm doing okay. Trying to live my life more now that she is safe and being cared for.
Best,
Erica
Thanks for your kind words of support. I am doing for "me" things and trying to get out of guilt mode, gradually. -E
Momsacomic, that's my brother Rick in the photo with the wigs, ha ha. Best, Erica
Her daughter married a millionaire and I helped Betty move from one facility to another. She hoarded clothing and would steal from her roommates and to get her to bathe was a struggle.
We often went to lunch and a movie or shopping and once in a restraunt when I was cleaning out Betty's completely stuffed purse (she had a million notes , she wrote down everything so she wouldn't forget, notes stuck with melted butter and chocolate).
A woman came up to me and said, 'You are a saint." I had no idea what she meant and she nodded to Bob and Betty and said "Parents?" I shook my head no, and she said, "double saint, then."
I'm no saint, but Betty sure reminded me I wasn't a failure either. And Bob was a liberal from Pennslyvannia and we agreed on all things politics and shared books. I loved talking to him and driving them around in my beat up Saturn cuz I was afraid to drive the Mercedes left in the garage for our use.
Not everyone is Mercedes people,don't ever be ashamed of that, and often non-family members can cope because they can emotionally detach.
Erica, you're a saint, too!
Thank you for sharing that story with me. I don't think I'm a saint; I'm simply doing what I'd hope a loved one would do for me if I were in mm's shoes. What makes me lonely is that no one else in the family knows (cares?) what is happening.
I'm sorry you had to go through that. I don't expect my dad to get involved as he has been remarried for 30 years now, but I have hoped (and since given up on hoping) that my brother would come to see her and/or participate in her caregiving, financially or otherwise and he has never done so.
Cynthia,
Thanks for the kind words. Nothing to envy, but thank you again.
Thank you, Matt.
Erica
Erica
R+
I'm sorry you are going through a similar experience, it's no fun
Sheila, thank you. I have been tempted to disconnect many a time.
Best, Erica
I'm glad at least that you haven't ... yet, any way, closed the comments thread!
"Age-wise", I'm on the opposite side of the perhaps implicit divide [sic?] of your post. By which what I mean is I'm more your mom's age than yours so that by now my age-related concerns about Alzheuimers and other age-related dysfunctions have to be more about how to prepare for what's necessary for who's going to have to do what for me when I can't any more (sorry to be so longwinded) than this long long struggle you've borne so valiantly.
That does not in the least diminish my sympathy, empathy, agony, and respect love and appreciation for all you've been bearing and handling so exquisitely for so long!
I do hope you'll keep posting here at OS (where I can't log in and participate as often as I did earlier, while trying to fix some computer problems). You are (as you and all your friends know) one helluva brave, loving and long-reliable person, Erica ... daughter and OS-er!
Thanks so much for sharing all of this of you with all of us, and congratulations (which feel to me a bit off the mark in a sense as to all of this post of yours) for your EP!
podunkmarte
Pam, I will indulge in extra ice cream (one of my favorite desserts)!
Podunkmarte,
Thank you for chiming in! How long have you lived in China or were you born and raised there?
I wish you good health and happiness.
I will continue posting on OS and look forward to reading your work as well.
Best,
Erica