Keep Breathing

Erica K

Erica K
Location
New Jersey, USA
Birthday
September 26
Bio
Grew up in Jackson Heights, New York, but now live in Jersey. Married and the proud owner (servant?) of 4 cats, including a little blind guy named Quincy. Jobs have included: English teacher in U.S. and abroad, cabaret performer and member of a NYC sketch comedy troupe; now a full-time legal secretary and freelance writer. Other jobs: canvasser for NYPIRG/cannery worker in Naknek, Alaska (a fisherman told me it was "the ugliest part of Alaska")/dog kennel cleaner/member of the swine and poultry crew on a California farm. This year a memoir piece will be published in Telling Our Stories Press and poems in The Awakenings Review. Currently working on a one-woman show. "Ever tried. Ever failed. No matter. Try again. Fail again. Fail better." Samuel Beckett

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Salon.com
Editor’s Pick
DECEMBER 12, 2011 1:17PM

Christmas Without Kids

Rate: 28 Flag

My husband says I write too much about my mom and maybe I do, but she has been my “child” for so long I guess I can’t help myself.  Very co-dependent of me.  The mentally ill have a way of getting under your skin.

 

 

It’s almost the end of the year, so confessionals and resolutions seem in order.  I don’t have my own children, although I thought I wanted them a decade ago.  I won’t blame it on my ex or my mom or anyone else, but leave it to fate and me.  I hate the clichéd expression, but I suppose “it wasn’t meant to be.”  I’m the lady who buys Christmas gifts for my husband’s best friend’s son and other people’s kids and grandchildren.  The woman who spoils her mom like a child.  Here I go, a-wallowing.  I guess Christmas is one of those times when, if you don’t have them, you wonder what it would be like to see the little ones barrel towards the Christmas tree in their PJs and tear open gifts from Santa.  Okay, enough of that.  I’ve got cats.

 

In 2009, my mom made it to Thanksgiving with my husband’s family (see “Dueling Crazies”, posted on 11/20/11), and although we were sure she wouldn’t make it this year, she did.

 

I called her Thanksgiving morning while watching March of the Wooden Soldiers, a holiday tradition in my family. 

 

babesintoyland7 

 

Hardy, soldier and Laurel in March of the Wooden Soldiers (1934)

 

Mom said she didn’t think she was up to going to Lorin’s family, but asked if I could please stop by and visit with her for awhile.  Lorin waited in the car.  When I got to her room, mom was dressed in a kelly green jumpsuit (think prison wear, but in thick, padded cotton) that didn’t flatter her skin tone.  This was one of the outfits she had picked out when the clothing people came by on November 21.  I couldn’t take off work to shop with her, so I told the social worker she could pick out a couple outfits on her own, maybe something for the holidays. 

 

She was fumbling through the top drawer of her bureau and said, “I really want to go, but I look awful.”

 

I was surprised and happy that she wanted to come with us.  I texted Lorin to let him know and to call his grandma to say we might be late for supper.  I helped mom out of her green jumpsuit (no easy task with her severe arthritis) and into a pair of black yoga pants and a purple turtleneck sweater.  Now she was cooking with gas!

 

“Makeup, I need makeup, and my hair,” she said.

 

I pulled out the makeup case in the top drawer and applied foundation, followed by a touch of eyeliner, eyebrow pencil, rouge and lipstick.  She had no mascara or eye shadow, so we did without.  Then I combed her long salt and pepper hair and pinned it up with a rhinestone barrette.  She looked terrific!

 

I handed her the mirror.

 

“What do you think, mom?”

 

“Oh, much better,” she said.

 

I informed Miss Bell, the head nurse, that I wanted to take mom out for the day and needed the wheelchair too, and filled out the necessary form to get her released.  I turned the alarm on her wheelchair to the “off” setting and Miss Bell removed her ankle alarm bracelet.

 

We were off!

 

Mom can barely walk, so moving her from the wheelchair to the car was an ordeal.  She goes limp and cannot help you help her, so she ends up feeling way heavier than her 110 pound frame.  Lorin hurt his back from the effort.

 

The trip to Long Island from the Bronx was long:  lots of traffic and car accidents.  When we arrived at the Swenson’s at about 4:00 p.m., everyone had a smile on their faces except Lorin’s dad Dennis.

 

He said, “We weren’t expecting this.”

 

Lorin said, “Do you want me to bring her back?” and laughed his nervous-angry laugh.

 

Dennis said nothing and did not speak a word to my mom for the entire evening.  There was no sing-a-long this year.  He and his girlfriend Beatriz left early to go to her family for a second Thanksgiving meal.  Lorin said that his dad despised my mom for upstaging him in song at the Thanksgiving of 2009.  Oh, to have a monster truck-sized ego!

 

Mom was happy, and unlike in 2009, very quiet.  She sat at the head of the table in her wheelchair, and after dinner, in front of the fireplace. 

 

During the meal, I asked her if she liked the food, and she said, “Yes.  Thank you all for cooking.”

 

She wheeled around to and fro and rammed the fireplace screen a couple of times: this is something she does now.  She has to be in perpetual motion, doesn’t like sitting still except for meals.

 

Taking her to the bathroom was theatre of the absurd.  The bathroom is on the second floor, so Lorin had to carry her up a short flight of stairs and then through the door, but the door was so narrow, the two of them could not fit. 

 

Mom said in a frantic voice, "Don't drop me!" and clung to Lorin like a feral kitten.  He told me she dug her nails into his back and wondered if she had drawn blood.

 

I shouted for his Uncle Wes to assist us:  he is thin as a rail and we were sure he could fit through the door with her in tow.

So, relay-like, Lorin passed mom off to Wes, who in turn placed her on the closed toilet seat.  Success!  I thanked him and said I could take it from there.  

 

Mom grabbed the toilet paper holder while I diapered her and pulled up her pants.  She said, "Don't be frightened, now."  She was right, I was frightened she would lose her footing and fall or hit her head.

 

When we returned to the nursing home, I set up the wheelchair on the sidewalk and locked it so Lorin could place Mom in it.  It was 8:35 p.m.

 

“Thank God!” she exclaimed.

 

Lorin was angry at her lack of gratitude, and shouted, “No, thank ME.  Fuck you!”

 

“I’m sorry, I’m sorry,” she said. 

 

I wheeled her through the automatic sliding doors and up to the third floor.  She started demanding junk food.

 

“I need potato chips and a Coke, potato chips and a Coke,” she said.

 

I went to the nurses’ station and told them she was back for the evening and went to the first floor vending area in search of junk food.  I was spent, wanting this day to end.

 

I brought her back her snack and kissed her goodbye.

 

“Thank you, darling, I had a lovely time,” she said.  “Tell Lorin I’m sorry, I didn’t mean to make him mad.”

 

I waited almost 15 minutes for an elevator, one of them was stuck, and the other never stopped on 3. 

 

When I got in the car, Lorin said, “I’m sorry for cursing at your mom.”

 

“It’s okay,” I said.

 

Before mom was diagnosed with Alzheimer’s, she was mentally ill and extremely manipulative, often cruel.  Lorin hated how she treated me and found it difficult to be around her at all.  She was typically ungracious and ungrateful, and often said hurtful things to both him and me.  Now that has changed.  She is much kinder, grateful for everything we do.  But the wheelchair moment hit a nerve.

 

I am happy for the relationship we now have, but she is still not a mother to me.  She is more like my child, and sometimes, my friend.

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She still seems pretty spry mentally, or is feisty the better word? Your patience in these trying time is marvelous, Erica. If I had ever said "fuck you" to my mother-in-law (who could be difficult, too) I'd be living in the chicken coop - to the end of my days.
Erica, I find this very poignant as I empathize with you on so many levels. I've had a rough relationship with my mother too and she had, at one point four years ago, totally cut off any communication with me and practically rejected me. Now that she's immobile and at early stages of dementia, she has mellowed and forgotten her anger at me. My middle sister is her primary care giver. She is- like you- devoted, loving, giving, generous, and tolerates a lot. But isn't strange and sad that we become parents to our own parents at one point in our lives.

I wish you all the best in this holiday season.

R♥
She does seem very fiesty. This is a great post, very in-depth and poignant. Bravo for posting this.
Chicken Maaan, feisty she is, even though she's neurologically and physically impaired. I hear you. I accept the "fuck you's" sometimes you have to do it!

Fusun, thank you for your kind words. I didn't know your mom had dementia. It's an awful thing. I wish you and your family the best during this time and always. xo

Geraint, thank you. I had to let it out.
Holidays can be brutal, when your family veers from the Rockwellesque.
You said it, Pauline. My family is more "amityville."
You are a good daughter so carry on, dear.
I'm glad you can now get along with your mom, these are the years you should have had at an earlier age. A beautiful story!
Thanks, Miguela.

Thanks, scanner. I hold onto every precious moment.
Family Life is so ironic and complex; yes.

Beautifylly done.

r.
Your patience seems hereoic to me.
That it is, Jonathan. Thanks for the kind words.
"No, thank ME." You go, Lorin!

I am impressed by both of you. We all like to think we'd do the same, but you convey patience, affection and good humor in this post and I'm sure they are part of your actual interactions with your mom. I was at a gathering last night where "character" was a main topic - here I find you perfectly illustrating the concept.
Keri, thanks for stopping by. Sometimes I lose it with Mom, but I try very hard not to. I'd like to hear more about your party.
Theater of the absurd indeed. I could write 100 stories of high tragicomedy
About my dad, fallen to dementia.
Well, he didn’t see it that way.
He was out for a good time.
Except he lost all his patience for social convention
along w/ a lot of his wits. & memory.

Everyone called me a saint for taking care of Dad & mom, too.
I humbly thanked them. Then thought: well, this is damn important
What I am doing.
Damn important.

I am so glad I glided them both to easy quiet deaths.
I have been as many of these posts on your mother as I can Erika.
I admire you for having the courage to write them.
I hope many others see and read them and get some understanding of how hard and complex families can be.
I wish ya the best dear friend.....
You're a good man, James. And as you said, it is not an easy task.
Yeah, my mother in law is the caregiver in their household, so she takes a lot from my pop-in-law, if I said fuck you to her, I'd not be living in the chicken coop, I'd be buried under it!! :D

Great post. No kids here either, the wifey and I won't be having any either, but hey, it wasn't in the card and who cares, more toys for me!! :D

RATED!!!!
Holy Smokes! What a situation!

I live alone and am more thankful for that than I can say. I hope, more than anything, that I am able to die alone too when I decide it's time. I'd sooooo hate your life!

I send you a sincere wish for a peaceful and content holiday season.

.
Thanks for stopping by, Tink. Sometimes you just have to say "fuck you," as I said to Chicken Maaan. Right, more toys for me and hubby and the kitty cats!
Skypixieo, I go with the flow and rely on gallows humor to keep me alive. Happy holidays to you too!!
It was actually the end-of-season banquet for my daughter's high school volleyball team. The coach works to instill them with the building blocks of John Wooden's Pyramid of Success during their time in the volleyball program.

(http://www.coachwooden.com/pyramidpdf.pdf).

Building women of character is her goal more than winning, believing when these elements are in place, winning takes care of itself and that they won't be playing volleyball their entire lives, but they can take these lessons with them wherever they go.
Keri, she sounds like a wonderful coach!
We have kids and grandkids and this will be our first Christmas by ourselves. Holidays seem lonelier when you've shared them with family in the past. R
Very complex, this aging thing. This mother/child/mother thing. Nicely redolent, E.
I believe you have gained much invaluable experience in your long endeavor. Well said, Erica. BTW, I am still a huge fan of Laurel and Hardy, they will always remain unmatched. R
Wow, do I sympathize. It is hard to keep your "patient kindness" in mind even when you are damn well aware of the best that you can expect.
R
i'm glad you're nice to her regardless of the past
Mission, thank you for the words of support, my friend. I'm still sad thinking how you had to give up your sweet doggie.
This is the most lucid interaction with your mom that I have heard in a long time. Long days, travel, lots of food, and physical demands take a lot out of all of you. I am proud you pulled it off, and know you can look to this as being a mostly wonderful day.
I do sympathize with you. Although all the parents and in laws are deceased, there were some moments that you described that sounded too familiar.
Mental illness is not fun. I wish my mom would be a little fuzzy tho. She is manipulative and doesn't miss a thing. Treating her nicely is the most difficult thing I have ever done in my life. Thanks for sharing. You are in good company here. Writing helps.
That's a nice, well-written story. My mom is starting to cop out a little, too, and it's hard to adjust to. I'm glad you took your mom out for the holiday. Funny how she's demanding the chips and coke--and ramming the wheelchair into the fire screen. "Give me my chips!"--ram ram.
Right you are, Rodney. Merry Christmas to you and yours!

"Redolent," great word, Lea. Thanks for reading.

Thanks, noah. We can't live in the past and resent our lives away, it's not healthy, is it?

Thoth, I'm a Laurel and Hardy fan too! Do you have a favorite movie?

Ash, thank you. Patience is a virtue, and I am trying hard not to lose mine.

Zanelle, I'm sorry your mom is a manipulator. That's the worst. I hope you can continue to make the best of a bad situation.

MWG, thanks for stopping by. Yes, she fixates on things and becomes quite repetitive, like Rain Man with Dustin Hoffman. Best way I can describe it.
Sarah, thank you. It's a lonely battle most of the time. No other family members help me with her.
Dianaani and Sheila, thank you both. It is physically and mentally exhausting unpaid work.
When my mom was in a nursing home, she had both lucid and not lucid moments. Once, pushing her wheelchair through the small garden space, she said simply, "We've changed places." I had tears in my eyes, but was able to tell her that she would always be my mom. You won't regret the time you're spending with your mom. And you'll be glad you wrote about it.
A wonderful story of a changed relationship that you have dealt with in a most kind and generous way.
You're right, jl, about those lucid moments. These are the best and worst of times. I treasure the good times we have, but hate the disease.

Thanks, Mary.
She sounds fascinating. Very poignant post, Erika. Your mother and the cats are lucky. March of the wooden soldiers is holy to me. I have not watched as an adult cause it was just too much magic as a kid. Sorry it took me so long to find my way here.

Well deserved Editors Pick!
Wow, Erica. What incredible strength you have to be there for your mom and struggle through all of this. Especially given the past history with her. I have a friend (single and only child) whose mother is starting to go downhill quickly with Alzheimer’s and often when I talk with her she is in tears. I'm sending her this story...and I'm sending you the biggest hug. Please take a day for yourself and care for you. xoxoxo
Your writing is so sincere and touches my heart so much. Family can be difficult, but there are blessings to be found. Maybe it is a blessing your mom has softened so you can spend this time with her, as difficult as it can be. I've said it before, but I think you are such a wonderful daughter.
Thanks, fernsy. My mom is a fascinating woman -- she was an incredible actress and singer and had quite a vibrant career as a young woman. She can still charm the pants off you on a good day!
Isn't March of the Wooden Soldiers the best? Nothing beats it, although I am a sucker for "It's a Wonderful Life" too. Thanks for the congrats. xo

thank you, Ingrid. Does your friend belong to a caregivers support group? That really helps. The Alzheimer's Association has chapters all over the country and many support groups. Happy Holidays to you and your family! xo
Joanne, thank you. You are very kind.
When we trade places with our parents, the worl seems skewed...but in your case, you have found a way to appreciate the change, which is why this post is so beautiful. I love reading about her (so I don't think you write about her too much). xoxo J
Thanks, J. I try not to wallow in the bad stuff, and also show the good. xox
"Lorin said that his dad despised my mom for upstaging him in song at the Thanksgiving of 2009. Oh, to have a monster truck-sized ego!"

Goodness, that sounds like more than ego. Maybe your mom is not the only one who has a touch of the mentally ill virus. What a day you all had!
You hit the nail on the head, Margaret. He is also "touched."