Keep Breathing

Erica K

Erica K
Location
New Jersey, USA
Birthday
September 26
Bio
Grew up in Jackson Heights, New York, but now live in Jersey. Married and the proud owner (servant?) of 4 cats, including a little blind guy named Quincy. Jobs have included: English teacher in U.S. and abroad, cabaret performer and member of a NYC sketch comedy troupe; now a full-time legal secretary and freelance writer. Other jobs: canvasser for NYPIRG/cannery worker in Naknek, Alaska (a fisherman told me it was "the ugliest part of Alaska")/dog kennel cleaner/member of the swine and poultry crew on a California farm. This year a memoir piece will be published in Telling Our Stories Press and poems in The Awakenings Review. Currently working on a one-woman show. "Ever tried. Ever failed. No matter. Try again. Fail again. Fail better." Samuel Beckett

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Salon.com
FEBRUARY 3, 2012 12:17PM

Mom and Rita Hayworth

Rate: 20 Flag

Although she didn’t become famous, my mom and Rita Hayworth have a few things in common.  In addition to being an incredibly talented actress and singer, Mom used to draw.  Her drawings were of an ethereal nature:  plants, gardens, girls in diaphanous gowns and the family cat Mitzi.  Hayworth painted still lifes and flowers.  They both read voraciously and survived the Great Depression.

 

They both changed their names for the stage.  Mom’s given name was Dolores Wozodlo which she changed to Katherine Lind, after Jenny Lind, the opera singer, also known as the “Swedish nightingale.”  Mom always hated both her first and last name.  Well, you can’t blame her.  Dolor means “sadness,” “anguish” or “mental suffering.”  Wozodlo was too clunky for an actress.  Hayworth’s real name was Margarita Carmen Cansino.

 

Both she and Rita were glamour girls.

 

Rita Hayworth
 

 

photo
   

 

Also like Mom, Rita Hayworth had Alzheimer’s disease.  In the late 70s, Hayworth became very ill with what some doctors misdiagnosed as “alcoholic dementia.”  Although Hayworth did have a drinking problem, her daughter Yasmin Aga Khan said she believed it was something else as evidenced by her mother’s confusion, disorientation and panic.  Hayworth had an alcoholic “breakdown” in 1978 and was diagnosed with Alzheimer’s in 1980.  At the time, little was known about the disease.  Khan learned that some Alzheimer’s sufferers turn to alcohol for comfort when their memories start to fade.  I did not know this.  Ms. Khan took care of her mother who was living in a small apartment on Central Park West until she died in 1987 at the age of 68. 

 

Like me, Khan worries about inheriting the disease.  She watched her mother suffer with it for seven years.  Near the end, Hayworth was bedridden and did not recognize anyone.  She was not alert when her only grandson was born in 1985.

 

This may be one of the most difficult posts I have ever written.  I am feeling very vulnerable right now.  I am not a princess like Khan and my mother was no Hollywood icon, but this disease seems to dissolve all barriers between people. 

 

The 2009 documentary I Remember Better When I Paint will be airing this Sunday afternoon (EST) on PBS.  It shows how painting, drawing and museum visits contribute to an improved quality of life and some restoration of memory and identity for those with Alzheimer's.

 

Later in life, Hayworth took up painting again which brought her great comfort.  I am thinking this weekend I will bring my mother an easel and some paints and see if she will paint with me.  I am no artist, but I can draw simple flowers and stick figures.  She will clearly outshine me here.

 

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My grandfather & great-grandmother & great-grandfather had Alzheimer's, my mom had dementia -- it's a real heartbreaker. And now -- as we get older -- I'm losing friends to Alzheimer's. Noooo! I think anyone who takes care of someone with the disease is bound to worry that they might be next. I have a friend whose mom & dad BOTH had Alzheimer's. She has learned to appreciate each day as it comes, & tries not to worry about what may lie ahead. (Fingers crossed for a cure.)

My plan is, if I get it, in the early stage I'm just going to do all the "dangerous" stuff I don't do now for fear of getting killed. I'll finally take that trip to Scotland with my husband & maybe I'll wander off at a distillery & fall into a vat of Scotch & mercifully drown, or step off one of those craggy cliffs while trying to take a photo of the sea.

I really like this idea of painting as a link to remembering & functioning! & it's a good thing (& you are clearly a good & loving daughter), painting with your mother (who is a knockout in that photo & from your description sounds like she's had quite the life!) As for stick figures, clearly your creative skill is with words.
This hits home. It is one of the worst things that can affect a person. At least with cancer, you have your memories with you when you die. But to die, knowing nothing about your whole life is worse than anything I can imagine.
Nice story about about a horrendous disease that affects far too many people like you.
Suzie, what a great idea. I will do the same. You had me laughing out loud at the falling in a vat of Scotch or falling off a craggy cliff. Thank you for your kind words.

scanner, I agree. My next door neighbor had to put her husband into a nursing home a few years ago after he started getting violent with her. She had no choice. She also says she would have preferred if he had cancer.

Mary, thanks very much.
I think there may be a few rays of hope on the horizon. Well told.
I'm sorry for all that you are going through. It is a terrible disease. You're mother is so beautiful and talented, and so are you. She has the painting talent and you have the writing talent. I'd never heard that about the painting and artwork. That's really interesting. I hope you have some good quality time with your mom Sunday. And please know that we all care and are here for you.
And that was a really good piece too.
Erica my mom is in Assisted Living now ( about nine months ) ~ no loss of any faculty but slow macular degeneration. A lot of the other folk there ( nice place, thank goodness ) show varying signs of Alzheimer's. I'm beginning to do do workshops there, same as I once did with children : step-by-step, simple materials to more complex processes.
The clip you put up from the documentary is inspirational, thank you. I'll try to find it all here.
I wish you every success with your mom.
I can't imagine anything more wonderful/scary/momentous than drawing or painting alongside my elders, childhood roles reversed, or not ... each of us exploring, in our own way.
Thanks, Joanne. I don't know if Mom can still paint, but I'm going to see what happens. I brought her a sketch pad and some colored pencils last spring and she never wanted to use them.
Kim, it's great that you are doing workshops at the facility. I wish I could spend more time there with mom but lately I go once a week. I hope she enjoys the painting. Thanks for the kind words.
Can hardly see through tears here. So clearly I remember a phone call I received so many years ago ... mid 80s. My mother rang to tell me that my father had Alzheimer's. My immediate fear ... then ... was that were I to board a plane immediately and fly straight home that my father may never again know me, remember who I was. My mom was wrong. I think she really just wanted to find a reason for me to come home. But as I read your words here, I remember so vividly my fear of such an unknown. One way and another, I don't suppose that ever goes away. Perhaps I just want to honor your feelings of vulnerability as you do write this piece and share it here.

What lifts me, as I read and watch, is hope. Always, I think, connecting is what matters most ... however we can manage it. The role of art, of creativity, and its ability to allow connections in the ways shown, suggested here ... bring different tears.

I've followed Kim and so have seen his words as well. Thank you for offering these words. I will think this weekend of you and your mother and the paints you will bring. You have given gifts here even before you lift the easel this weekend.
Anna, I am so sorry to hear about your dad. Thank you for the beautiful things you said. I hope she will paint with me.
This was such a sad post. Be heartened that keeping one's mind active helps to stave the onset and progression of the disease. Your mom was very beautiful.
Great idea to paint with her. Did this idea just come to you as you wrote this post? If so, hallelujah, OS! Incidentally, my parents named my sister Jennifer Lynn after Jenny Lind. Good luck with the painting. Looking forward to hearing about it.
Thank you, Miguela. I think the painting will help her.

Chicken Maaan, I didn't think about painting with her until I heard about the documentary on PBS. I brought her a sketch pad and pencils last year but she wasn't interested. We shall see. What a small world!
Your mom was (is) very beautiful. I'm sorry to hear about her condition. It's scary to think that one day I, too, will have to deal with my parents getting old.
Thank you, Jacqueline.
Stick figures can be quite creative, actually. Think of Dali and let them grow. I hope you have a wonderful time with your mother.
It is hard for me to read about this as is now my biggest fear- that my mother will get dementia or Alzheimers. You seem like such a lovely person and your mother was so striking. I'm really sorry that you have this rough road. I hope you enjoy painting together this weekend.
I can say nothing worthwhile about the disease, except that no one can take your memories away. This is a beautiful read and I enjoyed it very much, Erica. R
I can only imagine your feeling of vulnerability, Erica. I am so sorry.

I wonder if, along with painting, drawing and museum visits, if something like attending an opera or musical would be beneficial too?

But spending some time painting with your mum ... sure sounds like it could be a whole lot of fun! Dare you to post your paintings!!!
Phyllis, yes, you're right. I can actually draw figures too, but I'm not that good at it. Thanks for stopping by.

fernsy, Alzheimer's is genetic so I doubt she will get it (hoping not). My maternal grandmother had it too, I'm pretty sure, although we all thought she was senile because she stopped speaking English and went back to her native German and didn't recognize her daughters toward the end. Thank you for being so kind.

Thoth, absolutely. As the song goes, "You Can't That Away from Me."

Little Kate, thank you. I will see if I am so bold! xox
Thoth, correction with song, it's "They Can't Take That Away from Me."
Erica, Although I am a subject in an AD study and I read anything new on the disease, I never put the alcoholic connection together. My mother and older sister both died of cirrhosis. Mom at 60 and sister at 66. I now wonder if their need for alcohol was related to AD. My mother's father, two brothers, and a female cousin all died because of AD, but alcoholism is rampant in that side of the family too. My oldest brother is in the final stages....won't eat unless fed, incontinent, lost the ability to walk. So the six of us siblings wait for our call. That's why I volunteered for the study. I get spinal taps, MRIs, CAT scans, blood tests, and the more familiar memory tests annually. And I have signed over my brain for research when I die. I have also been recording in what I call "The AD Journals" any slip I make that might be an early sign. My daughter is my study partner. She is interviewed several times a year about any changes she notes in my behavior. She and I have agreed--very quickly and without tears because that's the only way we could do it without breaking into tears and screams of fear--that should the diagnosis come, we will write the story together. Maybe one patient's journey will help as much as my bodily fluids, pictures of my innards, and mind game tests. At least I can feel I am doing something to fight back. I won't go without a fight, so I begin my resistance before they can tell me whether I am one of the lucky ones, or not. You are not alone in this.
Hi Erica,
I had to read your post again. I was at work yesterday when I read it, and I got very emotional. It almost froze me. I can't explain it. My heart goes out to you so much.

As you know, I had to watch my dad slowly fade away, not from Alzheimers, but from not being able to eat. When he passed I had regrets like, should I have done this or that better. But I didn't regret that I never spent time with him, and that is some comfort now that he is gone. I couldn't see him every week because my parents lived upstate, but I went every few weeks and I spent time sitting with him. I told him everything I wanted to, and I'm so glad I did. You should never have any regrets, because you have done so much for your mom.

I hope this never ever happens to you, and I feel for you for having those fears. I didn't know it was hereditary. There are so many advances in medicine, and hopefully there will be advances in this awful disease soon. And I'd be glad to walk in the alzheimers walk next time. You and your mom will be in my prayers always.

xxo
Beauty, you are a very brave person. I am not ready to submit myself for testing such as spinal taps, although the topic has come up in meetings with my caregivers support group: one of the women thinks she may do the testing. Perhaps I don't want to know. I admire your courage. If I ever got AD, I would donate my brain to science. At the Alzheimer's walk in October I stopped by one of the research tables and a woman asked if I had considered donating my mother's brain to science. I said I hadn't thought of it. I'm still not sure what I will do in that regard. Thank you for sharing your story with me.
Joanne, you are so dear. I am glad that you have no regrets. You did all you could. It would be great if you did the walk with me--we usually go in a group, me and the women from my caregivers support group. It's always a good turnout and a lot of fun. It is scheduled for October, I believe. xo
Erica, go for it! I have to share this with you - my sister said she showed my Monkey Appetite post to Annecim. She looked at her paintings many times. A couple of days later she said to my sister, "I think I should make pictures again. So I can leave a souvenir for my daughters. I sit all day empty handed".

My sister has provided her with all the materials, I sent her cards with flowers, but she hasn't started yet. A dear friend said that the fact she even thought of and said what she did was a precious in itself.. Just as jour post is to me. Thank you for sharing this.
Great read. It should be a Priority for all who donate to charities to find a cure & its cause. R
Fusun, that is wonderful. I may show your pics to my mom. A dear friend who is a visual artist did art therapy at an Alzheimers Day Center and said they really enjoyed it, but to be patient-not all of them take to it right away.

I think so too, Marilyn.
Your mom is so lucky she has you. You're a wonderful daughter. I pray for an Alzheimer's break through. And your mom really was quite a beauty.
Thanks, Margie. Me too.