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Erica K

Erica K
Location
New Jersey, USA
Birthday
September 26
Bio
Grew up in Jackson Heights, New York, but now live in Jersey. Married and the proud owner (servant?) of 4 cats, including a little blind guy named Quincy. Jobs have included: English teacher in U.S. and abroad, cabaret performer and member of a NYC sketch comedy troupe; now a full-time legal secretary and freelance writer. Other jobs: canvasser for NYPIRG/cannery worker in Naknek, Alaska (a fisherman told me it was "the ugliest part of Alaska")/dog kennel cleaner/member of the swine and poultry crew on a California farm. This year a memoir piece will be published in Telling Our Stories Press and poems in The Awakenings Review. Currently working on a one-woman show. "Ever tried. Ever failed. No matter. Try again. Fail again. Fail better." Samuel Beckett

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Salon.com
FEBRUARY 13, 2012 12:23PM

Everybody's Talkin' At Me

Rate: 16 Flag

“Everybody’s talking at me.

I don’t hear a word they’re saying,

Only the echoes of my mind.

People stopping staring,

I can’t see their faces,

Only the shadows of their eyes.”

            Fred Neil (music), Harry Nilsson (lyrics)

 

The big news at yesterday’s Grammy Awards was the passing of Whitney Houston.  I appreciated Houston’s talent, but was never a huge fan, and rarely watch the Grammy’s.  When I heard that Glen Campbell received a lifetime achievement award and various artists performed a tribute to him, I was moved.  Campbell joined in at the end of the tribute singing “Rhinestone Cowboy,” and the audience sang along.  75-year-old Campbell came “out” last June as the latest celebrity victim (hate that word, but will suffice for now) of Alzheimer’s disease.  I suppose whenever I hear about a celebrity’s struggle with the disease, I am more sympathetic to him or her, since my mother has it too.  This morning, I tried to watch the video of Campbell singing, but got too choked up to watch the whole thing.

 

When I hear the name Glen Campbell, I think of “Everybody’s Talkin’ At Me,” that magnificent ode to the loner, of the stranger in a strange land, the song that injected even more poignancy into the film Midnight Cowboy.  I remember Glen Campbell in the original True Grit.  He wasn’t much of an actor, but he was charismatic and had a wholesome, boyish charm. 

 

He and his family decided that it was best for him to come out of the Alzheimer’s “closet” so people wouldn’t think he was drunk or high onstage if he appeared confused or forgot lyrics.  His band features three of his grown children, Cal, Shannon and Ashley, who, along with his wife Kim , are a great support system. 

 

When asked about his illness, Campbell told CNN (June, 2011), “I am content with it.  Don’t cry over spilt milk. Get up and be a man and do what you have got to do.”

 

“Everybody’s Talkin’ At Me” might be the perfect theme song for Alzheimer’s people (trying to avoid overuse of “victim”).  So much of the time they have no idea what you are saying to them, and they are in a world of their own or a fugue state.  I know my mom is.  I tried to get her to do more art with me yesterday.  Last week she painted a bit and this week I brought children's Play-Doh.  She only worked with one color, green, and I gave her a ball of orange to add to her creation.

 

photo  

Play-Doh art from February 12, 2012.  Mom did the green flower with the orange center.

 

She said, “I don’t want to work when you’re here.  I just want to relax.”

 

“I thought this would be relaxing,” I said, and worked with the Play-Doh myself.

 

It seems that everything is work for her:  going to the bathroom, washing her hands, getting ready for bed. 

 

We watched a cooking show for a while, and then she said, “I’m sorry.  I didn’t do anything for you.”  Meaning, she didn’t work with the clay which she thought I wanted her to.

 

“You don’t have to do it for me,” I said.

 

I felt like giving up.  I didn’t know what more I could do for her.  She is in incredible pain and can barely get up off the toilet seat to be changed, which happened yesterday.  I had to hold her above the toilet seat while Comfort, the aide, diapered her.  If I ever need an aide, I want her name to be “Comfort” too.

 

I mourn for the time when Mom could walk for miles, and enjoyed shopping and going to Catholic mass in the city.  I hate to see her in pain.

 

Maybe next week I’ll try singing with her.  She was always wonderful at that, although she said she can’t sing anymore.  Maybe I’ll tell her about Glen Campbell and we can watch Midnight Cowboy, one of her favorite films.  I’ll try anything.

 

 

 

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Comments

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Oh god... I know what you are going through and I understand your Mum. I do not want to be a burden for anyone, therefore if I am sick I never go to a professional. Just let me go and not let anyone stand beside me fretting and crying.

I feel so awful for the both of you. On thing to cherish is the love you have for each other. Its there in plain sight.
This made me cry.
HUGGGGGGGGGGGGG
Thank you, Linda. I am very sad today. I appreciate your kindness. xo
Nice. Sad, as usual, but so very well done.

I always liked "Wichita Lineman" myself.
I admire what you're doing for your mother. It is hard. I would just sit with Mom and let her be whatever she wanted that day. She was very accepting of the situation, though. Take care.
I don't know "Wichita Lineman," Mary. Will have to check it out.

Thanks, Phyllis. I'm not going to force her to anything anymore. Will just sit with her and eat cookies, drink coffee and watch TV, and take her for spins around the floor. That's what she likes best.
Sorry you and your mom have to go through this, Erica. I commend your efforts to keep her engaged through art. I agree with Mary on "Wichita Lineman." Google it and you'll recognize it. Such a haunting song.
I know the feeling. It's hard to watch anybody disappear. It was hard to watch Campbell last night.

This was notable: "If I ever need an aide, I want her name to be “Comfort” too."
Oh, Erica, I can so relate. I saw the story about Glen Campbell as well. He seemed really pretty good, and it is amazing to me that he can still go on stage with the help of his kids and a teleprompter. Peace to you on this journey I know so well.
Thanks, Margie. Not sure I'm in the mood for more haunting today, but I will check out the song another day.

alsoknownas, I couldn't watch him, started to cry.

Bernadine, thank you. I appreciate it.
I understand all this, Erica, in my own way. My heart is with you.
Thank you, Fusun. Trying to cheer up and see the positive amidst the gloom.
Erica, I'm so sorry you are going through this difficult time. Both my parents died when I was so young, but my Aunt and Uncle have dementia. Good luck to you. r
Thank you, Christine. I appreciate the support. Best, Erica
This must be so hard for you, Erica. My grandmother lived to 98, and during the last six weeks of her life the dementia took over and scared the living daylights out of me. I love your gentle touch with your mom.

Lezlie
Lezlie, Mom is 82 years old. I hope and pray she doesn't live to 98--too much suffering; her mother lived to be almost 98. Thanks for reading and commenting.
I watched the Grammy's for Glenn Campbell and the Beach Boys. My heart went out to him for his bravery and his down to earth ways.
His accomplishments are great and he is amazing to us an encore.
I am so sorry for your mother's pain and yours watching her suffer.
My mother was in so much pain and her mind was so confused with paranoia, it was a very hard time in my life. She was a big Glenn Campbell fan.
rated with love
yes i wanted so bad to be "like a
rhinestone cowboy!" when i was perhaps ten.
him & manilow & billy joel.

i love the implication you so
gently put suchly:

"the latest celebrity victim
(hate that word, but will suffice for now)
of Alzheimer’s disease. "

the greatest damn prez of the 20th century,some say,
succumbed to it ...there is a new book out about that old boy,
that cowboy,
yet why does no one see:
we had an ill president..

we adore him.

my dad fell to dementia too. never stopped adoring him.

it's sad, whitney..but kinda inevitable, no?

that is a disease of choice, is the difference.
to put it more harshly than i mean......................................
I've never had to deal with this one in my family. It must be so hard, what you are going through. "Midnight Cowboy" is one of my favorites, too.
Love that Harry Nilsson song ; love that play-doh art.
Glenn Campbell's Galveston woke me from a deep deep slumber.
RP, I'm sorry you went through it with your mom too. Glen Campbell is a real inspiration. xo

James, yes, I grow weary of the term "victim" used in connection with Alzheimer's patients. Aren't we all victims in one sense or another? I guess it depends on our attitudes.

Me too, Luminous. Great movie.

Thanks for stopping by, Kim.
I totally get what you're saying and love the way you say. Thank you for choosing Red's Rants and Raves as a favorite! I hope you'll visit my "serious" blog, too. It's where I try to write about my struggles with my mother who has Alzheimer's. A burden shared is a burden halved, as my grandmother used to tell me. Go to Red's blog and click on Essays with Humor. Thanks again and I'll be following yours, too!
Sheila
Sheila, thanks for reading and sorry about your Mom. I will follow your more serious work as well. I write as much funny and light stuff as I can too. -E
Erica, I miss my brother terribly. He is so far into AD now that he can't speak a sentence that makes any sense. We used to have extended political and religious discussions, digging deeper and deeper into the issues. He was more than my big brother, he was a father figure, a mentor, a teacher. My loss is profound, but what I am so fearful of is that maybe he is in there and trying desperately to be understood. That would be such a horror.

You will be glad you have done all you have for your mother. My sister-in-law has sacrificed for years to take care of my brother. It was very difficult for her to put him in a care center when his frustration led to violent reactions. It's more difficult for her than anyone but him. Everyday she watches the man who used to take care of everything for her unable to walk or toilet himself. This is such a horrible disease.

Your actions tell your mother how much you care, how much she means to you. She knows. All the best...
beauty, I'm sorry about your brother. No words can describe what it's like unless you're living with it or have loved ones you are watching or caring for who have it. I wish us both strength, and your sister-in-law and brother.