esmense

esmense
Location
Seattle, Washington, USA
Bio
"Often this poet, strolling through the noisy splintered glare of a Manhattan noon, has paused at a sample Olivetti to type up thirty or forty lines of ruminations, or pondering more deeply has withdrawn to a darkened ware- or fire-house to limn his computed misunderstandings of the eternal questions of life, co-existence and depth, while never forgetting to eat Lunch his favorite meal..." Frank O'Hara Lunch Poems, 1964. This site is dedicated to the spirit of the man who wrote "I am ashamed of my century for being so entertaining, but I have to smile." Different century than the one we are all now inhabiting of course, and he did have the ill-grace to check out early, before the 1960s ended and America's contribution to that century’s ill-conceived wars, brutal assassinations and betrayals had changed our graceful, fond and confident smiles to the currently fashionable smirks, sneers, snickers and grimaces seen nightly on the news and political talk shows. But still. I hope to "limn" my own "computed misunderstandings of the eternal questions of life, co-existence and depth" on these pages, while never forgetting to eat Lunch, and always, always searching for those rare moments of grace -- when whatever it is that this century is clicks more clearly into view.

Esmense's Links

Salon.com
Editor’s Pick
OCTOBER 24, 2008 3:01PM

My Life as a Blond

Rate: 22 Flag

I’m an urban, half Italian cynic with a life-long affinity for black clothes and ethnic jewelry. Blond hair and pink ribbons have never been my style.

That’s why the woman in my profile photo seems as much a stranger to me as she is to you.

For instance, those aren’t my eyebrows. And that’s not my hair. It’s the most recent “brown” wig I’ve ordered from print and online catalogs since I was diagnosed with breast cancer last February.

The first wig I sent for was a match for my usual cut and looked, in print, like a match for my natural color too; a dark but not too dark “warm” brown with “gold highlights” that the wig maker called “Buttered Toast.” But the wig that showed up was all butter, no toast. Not even a crumb. Customer Service happily exchanged it for a more mundane looking and sounding “Medium Brown” – which, mysteriously, turned out to be exactly the same shade of golden, Republican spokeswoman blond as the first wig.

After that disappointment, I gave up my search for the “right” wig for awhile. But four months after my last chemotherapy treatment the natural hairs on my head are still nearly as sparse as feminists at a Palin rally. That means that while I’m now “cancer free” and feeling healthier every day, for months more I’ll be wearing turbans and scarves that shout “cancer patient” to the world, and, even more disturbing, reveal my strong but previously unsuspected resemblance to Dame Edith Sitwell -- early 20th Century British poet and eccentric turban devotee.  

That’s why two weeks ago I gave it another try -- with a new catalog and, at a fire sale price, a new “get real” shade; “medium brown with 10% gray.”

 That’s the “brown” you (don’t) see in the photograph.

One friend quipped that it is brown – "fundamentalist Church Lady Brown.” 

Another said, “I think the universe is trying to tell you something.”

If it is, it’s the same point the universe has been trying to hammer home for awhile; that even cancer free I’m not the same person I was ten months ago.

Some day my hair will come back. But there are things I have lost forever; my innocence of pain, my denial of mortality, my expectation that there is plenty of time – and that I will always have the energy and ability to make good use of that time.

I’ve gained things too; a more direct understanding of the suffering that others endure and the frustration of disability and dependence. Plus, a realization of the huge amount of mental effort, and loving support, required to heal, or to simply live with, the body’s worst wounds and betrayals.

Most important, I’ve gained a new sense of urgency – and, an awed and grateful awareness of all the love and friendship that supports me.

The person I was is gone. The person I will be is still to be determined. So for now I’m an unfamiliar woman in a blond wig. A woman, I hope, who is more than ever willing to try something new, in a wig that I  think makes me look a little like Kim Novak -- and, of course, like a woman  old enough to know who Kim Novak is.

 

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I think you are a kindred spirit. I am a fellow breast cancer survivor. I had a terrible time with wigs--they made my head itch and I was having terrible hot flashes and my head would sweat and, well, you get the idea. But you look gorgeous in that picture. I think the universe IS trying to tell you something.

And Frank O'Hara is my favorite poet.
This really affected me: "things I have lost forever; my innocence of pain, my denial of mortality, my expectation that there is plenty of time". These words speak to me. Although I do not (knock on wood) have cancer, I have struggled with an autoimmune disease for the past ten years and have lost those same things. I find myself wishing for me, the me I was, the one who pushed myself and could be productive without throwing myself into a flare-up that puts me in bed for days or weeks, in bed like I am now. Even after all this time, I mourn who I was and cannot accept this shell. And sometimes I wish it would just take me in the stroke or aneurysm forecast for me because I get so tired of fighting. I am so very tired.

I guess this should be a post instead of a comment. I'm sorry to be so depressing.

BTW, I think the wig looks good but it's definitely NOT brown.
"Presto" looks like it would be 'your' hair.

http://www.namebrandwigs.com/Raquel_Welch_Wigs.shtml
Judging from the photo, I'd say that color looks great on you. I've known women whose curly hair grew back straight, and vice versa. One grew back in completely white, where a few months before it was dark, dark chestnut. She loved her new look. It will be interesting to see if yours grows in blonde!
I know what you mean, esmense, about the losses. The knowledge that the cancer can come back, that I am at a higher risk than most people for other cancers, the fear that it will show up in some other place, signaling the beginning of the end--that never entirely goes away I think. So this is indeed one of those things that puts you on a new path, one you would not have chosen--but you had no choice in it.

I think the difference for Lauren, aka Pretend Farmer, is that she has an ongoing struggle that continues to debilitate. (And I'm so sorry for what seems to be happening for you now, Lauren.) It is that feeling of health that she most longs for. And while many of us cancer survivors bear some scars, and may even have ongoing problems such as lymphedema or treatment side effects, if we can shake off the cancer, we generally return to some version of our old lives eventually. And that is a good thing, of course.
Yes, Susan, a feeling of health. I haven't had that in a long time. Even when I am feeling better, I am afraid of when it will hit again. I'm trying a new med that makes me throw up but since this is med #26, I keep taking it hoping my body will adjust. My doctor says he has nothing more for me.
Thank you for this post. I traveled alongside my best friend through her diagnosis of breast cancer, needle biopsy and all, first chemo and wig shopping. I had never thought of her as a particularly self-conscious or vain person, but losing her hair was a very disturbing thing for her to face. Perhaps it took some of the focus off everything else she had to endure. Even during the hot Texas summers, she wore her wig out to even go to the grocery store. She very rarely wore just a bandana or turban.

She had also been a brunette (with a bit of chemical assistance to cover the gray) and her hair grew back a lovely silver with graceful, soft curls.

With my 7 year involvement with Susan G. Komen for the Cure and the Breast Cancer 3 Day, I have met many BC survivors and am continually in awe of how they embrace the woman who has come through as a new woman.

Again, thank you for sharing this.
Well, I cried while I was laughing. I, too, am old enough to know how Kim Novak is and I, too, just survived cancer this year. Urgency, yes, and more peacefulness. I used to think I was strong. Now I know that I am not...I am just able to get through some stuff.

There is so much to say about this (there are not enough good words to describe accurately) event that you have been through, but you have said it so beautifully, so eloquently and so purely that I feel to say more would only muddy the waters. Only, how very much I appreciated your words, humor and outlook. Keep that sparkle in your eyes and your strong heart. You just beat cancer.! You survived! and the world is there for you! Have a wonderful, fulfilling, loving, peaceful life! And may every hair on your head grow back strong and full, too!
I think you look beautiful, inside and out. Best wishes for your continued health. You're probably more of a "Brave, Wise, and Eloquent" brown than "Buttered Toast" any way.
I have always thought that if I lost my hair, I would seize the opportunity to buy a host of wigs in various colors and styles and wear them according to my whim instead of trying to match it up.

It would be bittersweet lemonade, but it could be fun until your new, more beautiful for having been missing, hair returns.

I don't want to get into it, but I understand your issues. Good luck and seriously, I hear that Rachel's wigs are the best out there short of customized human hair jobs. Dolly Parton has said that no-one outside her bedroom has seen her real hair in 30 years. She said it makes it easier to get done up for performing if they can do your hair before you get there. And when asked if her hair is really hers she says "yes!" since she does indeed own it.

Own it. Own several and switch them out. If anyone dares comment on the dramatic change from day to day, give them a bemused look and try to seem mysterious.

Best wishes to you and good luck if you try again on the color!
Excellent piece. Thanks so much for you story and your spirit!
Thank you all for your comments.

Pretend Farmer -- I have two close friends who are dealing with progressive illnesses. Intellectually I understood what was happening to them, or thought I did. But now I know I never had a clue. There are limits to what imagination and empathy, without experience, can comprehend. My experience with chemotherapy -- 7 treatments over 5 months of some very nasty drugs that, before I cried uncle, brought me to a debilitating state where lifting the bed sheet over my shoulder was, when it was achievable at all, a herculean task that left me in agony, gasping for breath -- was an eye-opener. Real physical debility and vulnerability, loss of health, agency and control, is terrifying. For me, it was a limited experience that every day I leave further behind. But you and my friends, and many others, are on a path that leads in a different direction; where the losses are continual, unpredictable, and never recoverable. There's no easy comfort that can be offered, especially by a stranger, to anyone in such a situation. With my friends I'm now more aware of the limits and losses they are dealing with -- but most of all and more than ever I want to be aware and appreciative of, and available on their terms to share in and enjoy, everything that remains.

Susan Mitchell -- I think we are kindred spirits. "The knowledge that the cancer can come back, that I am at a higher risk than most people for other cancers, the fear that it will show up in some other place, signaling the beginning of the end" as you so perfectly put it, are the things I am just beginning, with two weeks of radiation left, the determined focus on treatment almost over, to contend with. So, what's your favorite O'Hara poem? I love "Why I am not a Painter." But, no poem has ever sucked the breath right out of me like "The Day the Lady Died."
You look great in the wig even if you view it as alternate identity. Wigs can itch so I understand why you go with scarves etc.
I can't possibly pick a favorite O'Hara poem, of course, but I think it is "Meditations in an Emergency" that has the line about how he can't enjoy a blade of grass without knowing there's a subway nearby (best I can remember). I was in NYC years ago (before 9-11) and I came across a railing outside the World Financial Center that had that bit of O'Hara's poem worked into it. I sort of think it didn't survive the World Trade Center collapse because it was right there beside it, but I'm not sure. I never went back to see.

I love "Why I'm Not a Painter" and yes, I know what you mean about "The Day Lady Died." The one that I find most poignant is "To the Harbormaster," the one they read at his funeral. I do remember the last bit of it: "Yet I trust the sanity of my vessel, and if it sinks, it may well be in answer to the eternal voices, the waves that have kept me from reaching you."
You do, indeed, state it beautifully. The loss of innocence, the loss of feeling there's plenty of time. But with that loss, or from that loss, the renewed sense of attention and gratitude.

And yes, indeed, it is hard to endure a chronic, debilitating disease (post-polio, in my case), to hopefully do more than endure, to continue to find joy. But I suspect that much of what I'm going through is a preview of what most people who live to an advanced age go through. There are gifts of wisdom in pain and loss, and I'm getting them somewhat early (possibly because I'm a notoriously slow learner?). And now you have those gifts, too, as you become the person you will be.

Since I know you, I can say this: you've been incredibly brave and loving and open to being loved through this whole ordeal -- no other word even begins to describe it. And that you can express yourself so clearly to others, and obviously touch them, is deeply moving.

And a final thought, to Pretend Farmer: oh, how I know that feeling of being tired and being sad, of wishing my heart would just stop. Try to rest, try to breath -- and thank you for using the energy to share your story with us. And believe this: "being productive" may not be who you are anymore, but your true value has not changed one whit.
Congratulations on your resilience and fantastic sense of humour ("The natural hairs on my head are still nearly as sparse as feminists at a Palin rally" - is brilliant). Your sense of fun will see you through!
I was doing okay with reading this until I got to the part in the comments where you all began discussing Frank O'Hara and then for me "everyone, and I stopped breathing." It's been eight years since my best friend died of breast cancer. It still makes me cry, I am crying now. I have been married 4 times. It is much harder to replace your best friend than to find another husband.

Maureen had curly nearly black brunette hair and beautiful twinkly & compassionate big blue eyes. There were no wigs that had anything like her hair. In the wig search, strangely enough, we did find a wonderful women who had a little wig shop in a room off her soul food restaurant in Seaside, California. You could smell the vinegary chitlins cooking while shopping. Maureen got a dark brunette cleopatra bob. She looked cute in it on the one hand, but she looked like aliens had taken my friend and replaced her with a pod person too.

I've had two life threatening illnesses in my own life and nearly died both times. I still think the treatment for cancer is far worse than anything I experienced, and the stuff the medical folks did to me to get me well was really humiliating, scary and capital letters BAD, but not that BAD. Maureen had a reoccurence only moments before she reached the five year recovery date. The new wonder drugs offered nothing for the type of cancer she had, and because she was a public health nurse, she understood totally what the doctors were telling her. Geeze. What strength of character this awful disease requires!

Loved the Kim Novak reference. I think I can breathe now.
Wig or no wig...turban or scarf. I opted for None of the Above. Baldness and the occasional kufi which matched the outfit du jour, of course. Now my hair is coming back, white and wavy in a way that it was not before. It is not only my hair that has changed. I am changed. A colleague remembered me as a cancer fighter. I am looking forward to being a cancer survivor. When does one cross that line?