Papers on my desk are covered with numbers in columns that sum to tidy totals. Step 1 made each page and added it to the stack. The stack grows, waiting for me to do Step 2 which, if I did, would reduce the stack by one page. Steps 3 through 6 are done by the computer program, but they wait for Step 2, for me.
I should work on the numbered papers today. All morning and some of the afternoon hours are quiet and mine. Clutter and letters and email and voicemails got sorted/answered/deleted yesterday. I should work on the numbers.
But I want to go where the words are, the ones that dip and swoop in my mind, that swirl into phrases, sentence, like birds wheeling into a flock that grows until it nearly fills the imaginary sky. I want to watch them appear on the screen, letter by letter, a thought turned into black lines and curves by my tapping fingertips, words that describe my fear, this horror that widens my eyes. Words like Mayo and masses, lymph nodes and narcotics, aggressive, invasive, surgical, staging. I think if I send the words through my hands to the screen, I won’t feel the beat of their wings on the inside of my skull.
My brother was the first baby I was allowed to hold in my four-year-old arms. There is a picture. A towhead girl with a baby boy on her lap, her hands on him like starfish on a rock. His almond eyes are the color of caramels, hair like dandelion fluff blowing straight up in the warm Hawaiian breeze, an eager, curious, adorable face. The little girl is beaming.
If I work on the numbers, there will be order and certainty. Dollars and cents, checks and balances, totals and remainders. There are no what-ifs in straight arithmetic.
I loved math and its predictability, the formulas (formulae!) that had precise, perfect results, either right or wrong. Making lists, being organized, getting the answers right, not leaving messes were all ways of controlling as much of our childhood as I could, carving a safe cave out of chaos, a place where I read my books, shelved according to height one year, color the next, and where I tried to watch out for him.
He grew into a brilliant, thoughtful boy, loopy and hilarious and dry, a natural musician, a wordsmith. His letters from the road with his band are masterpieces; I’ve saved every one. He had olive skin and golden brown curls, a nose we teased him about mercilessly, perfect pitch, a voice made for harmonies, fingers for guitar strings and keyboards.
They say this is treatable. He is calm. He is accepting and fine with whatever is the outcome of this terrible diagnosis. I am not.
The words are running now: transoral, tonsils, throat, three, robotic, rasp, radiation, pain, Percocet. Feeding tube. Dad, died, identical. Get them out, write them down, get them out.
Last night I reached for a package of chicken in the refrigerator, my chef’s knife in my other hand. The glinting blade, the pink flesh made the chilled air vibrate like a plucked string.
Later today my sister-in-law will dial my number and the phone will ring. She will have numbers: what stage is it, how many days in the hospital, how many radiation sessions, how many weeks, survival percentages at five years.
I want to rip these disgusting things out of his throat with my clawed fingers and fling them toward the sun to be eaten by vultures. I want to shriek: I am his sister, his rescuer, his protector. He was my responsibility. I have to save him. I’ll do anything. Please.
But the histrionics will not help, so we’ll go back to the numbers and the plodding sequences of appointments and prescriptions and dosages and dollars. And I will know that, no matter what the numbers or the words are, what the past was or the future is, he knows how much I have always loved him.


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Comments
Rated.
matt: i know. isn't it awful? there should be a rule that two really crappy things can't happen at one time. i'm so thankful for you.
abby: i know you know. gah. just waiting and hoping ...
dear owl: i just hate to think some people might think ... you know. i'm just too weird. but thanks for pushing through anyway, old friend.
lc: yep, two shoes. (won't say 'so far' so as not to jinx ... actually, there was a third but it's already been resolved, so we're ok. i think.) waiting for this one was probably the worst. still waiting for the phone ... glad you're there. always.
tink, do you know how much i love you? do you? no one i can think of could make me laugh at a time like this except you. kick those damn numbers!!!! yes!!! tink says so!! xoxo
sharon: thanks for the positive energy. every tiny bit of it helps, i'm convinced.
julie: crossing fingers all over the place. thanks for yours, too.
fusunA: your words are always a comfort. thank you so much.
irish: absolutely. one can never have too many brothers, i don't think. you're unofficially one. thanks!
drema: ~hand tapping heart~ pointing at you~
fay, keep 'em crossed. still no news, no phone call.
sixty: you know what? i'm thinking angry is ok. i'm plenty angry about this. he's such an amazing guy. send those good thoughts out there. they must help.
joan: i'm glad you are. i'm not, but i'll take any pray-ers we can find. all praying is welcome. our good little boy is a pray-er, too. thank you so much, so much.
Lezlie
I will pray, too.
He Ain't Heavy ... He's my brother ...
I nearly posted something about my brother today as he would have been 60 and I refrained. Now I know why. Love to you xox
{{{{{Your brother}}}}}
BIG hugs to you.
xo
Kim
sheba: thank so much for stopping by.
lezlie: i'll take the positivity anytime. thank you so much.
bell: i'm glad to hear all your peeps beat the villain. thanks for the good wishes.
vanessa: thank you. pray hard, ok?
kim: sisters *are* cool. i would never mess with some guy who had a sister bent on defending him. thanks, down under guy.
scarlett: i know your brother from what you've written about him. and i know you. and that you absolutely get this. thanks and love to you, too.
monkey: it is, isn't it, nasty and awful and just bad news. i hope, too, but i'm just so fucking sad. thanks, dear friend.
rita: i'm seeing those good things coming at me from your eastern skies, friend. keep sending. you're a big sis who gets this.
thank you, smithery. thank you, thank you.
kim: there was a reason, wasn't there? thank you for the prayers and for being such a good friend. especially today.
Commenting is just fine..relax and take it in.
Finding words to express the helplessness we feel when loved ones are suffering—let alone suffering in the same way that others we love have suffered—pulls hard on our souls. There's no shortage of love to fuel our desire to write, but there is a very real disconnect because our hearts are elsewhere, bound to those who are fighting their good fight.
You’ve done so well at capturing feelings many of us have felt in situations that are similar, yet never exactly the same. And the words you’ve written have moved me, and I am certain many others, to offer continual thoughts and prayers for your brother’s complete restoration to health and to his entire family.
Truly.
Sorry for your pain, ff. You all are in my thoughts and prayers. E
But medicine is not physics. Sometimes, the numbers lie.
xo, Candace. Thinking about you.
Crossing my fingers too ...
My best to you both......
So dump it here; let us share; lets us pray and hope and comfort ... here! ... so that when you are *there,*all of your energy can be positive for him. That's your role. And however we can, we will help you through it all. ((((R)))) ((((Femme))))
dennis: your comments always leave me more heartened than i even expect - and from you i expect a lot, with your kindness and thoughtfulness always evident for us all to see. i just can't thank you enough, not this time, not any time.
grif: your words mean a lot, and your prayers. i'm sure they helped.
trilogy: ((hugs)) back at you, friend.
mynameis: i do, too. i do, too. thank you, E.
lschmoopie: sorry for what you and your sister have gone through and hope it was a good result in the end. nice to meet you and thanks for coming over. *love* your name, whether it's real or not. will check. ;
ken: i'll find the story now that i'm curious. thank you for helping me think about what might be our reality and not just the predictions. xo
little kate: it sounds like you *do* know. those brothers, what can we say? thanks for the crossed fingers.
skypiie0: thank you for the good wishes and the comment.
blue: i'm so glad you're back. thanks for the positive thoughts. i'll see you on your blog later today.
rod: ah, my old friend. i'm glad you found this and came by and left me this encouraging comment. you're such a trooper, my florida friend. it's the people like you who make this place such a refuge for us writers who have to just pour it out or self-destruct. thank you a thousand times.
a final note. my brother spent the night in the ICU but i heard from his wife this morning. the surgeon believes he was successful in removing the cancer from several locations in his throat and removing a few lymph nodes. he says we have reason to believe that, after extensive radiation (5 days of every 7 for many weeks), his long-term prognosis is good. the next few months are expected to be unpleasantly painful and drugged, but craig is the most positive guy i know. his motto is, "Attitude is only everything." he expects to sing again.
thank you all, every one of you who read this and stopped to comment (or didn't) for being in this place where many of us write, in large part, because of the other writers who are our readers, who offer such incredible support. as 'mynameis' said above, god i love this place.
Those last nine words, my friend. They're all that matter.
And they are true, true, true.
Two weeks ago I spent a perfectly good Friday in the hospital because of a heart issue. Just yesterday I spent the morning in the Doctor's office having a stress test done.
Maybe Craig and Scott and Gary and I are mortal after all.....Nah, couldn't be.
Let's say I'm honored to tears. Thanks for leaving out all the crappy parts, may all your brothers and friends learn the lesson and stay on the upside of the journey. Thanks also for the love, such a strong gal guarding my bloodline beyond what I deserve.
Going forward, there are some chips off the old block but the boat remains underway with a passion (and miles to go before I sleep). Bless your tender heart.