Formerly Known As fibrogirl

Formerly Known As fibrogirl
Birthday
October 20
Bio
I'm 35. I work in a career I love, paint, ski, nordic walk, have dogs, have a boyfriend, read incessantly, crochet, travel, sing in my car, and cook like a dream. I was misdiagnosed with fibromyalgia for the past 4 years and the some of the story is posted here. Having corrected that, I have regained energy and vitality, so I'm not online as much as before. Can't really say "F the medical establishment" enough right now. *Please excuse the mess while I readjust my online identity*

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Salon.com
Editor’s Pick
NOVEMBER 25, 2008 9:18AM

I am so tired (and I almost bought a cane yesterday)

Rate: 5 Flag

It's 8:59 AM and I don't want to get moving.  This is pretty typical in the morning as I'm usually so fatigued I can't speak.  So I hit the blog circuit and read about the lives of people who aren't like mine.

 To preface, I was diagnosed with fibromyalgia last year.  I'm 35 years old, single, a graduate student.  I work mainly on contract due to the economy.  I live in the Midwest and it's pretty boring most days.  Some days I don't think I have FM, but on days (or weeks) like today - I think someone is playing a cruel joke on me.

 And I almost bought a cane yesterday.

 A freaking cane.

Honestly, the only thing that made me balk at the purchase is that it wasn't black and I had no idea how to coordinate a brown cane with my wardrobe. Not that I'm 35, not that I shouldn't need a cane, not that it will make me look infinitely silly - because it was brown.

 Today I have a job interview.  I've been going on these quite a bit lately as I'm about 20 seconds away from obtaining my M.A.  I don't think I can walk in the building, limping like I do when the pain is this bad.

 I've been told I look ok, just tired around the eyes.  I feel stupid getting into an elevator to go up one floor because I look so normal.  I paid a girl at the grocery to take out my one bag because I felt teary about picking the stupid thing up.  I fell asleep on the couch after my walk (I do try to exercise) - but it's that slack jawed dead to the work sleep that leaves you in a pool of saliva that dripped from your mouth.  It scares me.

 I think I should have bitten the unfashionable bullet and gotten the stupid brown thing.  But I'm not ready to present myself in public with it just yet, or handle the comments.

 Maybe I should get one of the pimp canes I see on MTV? Or the flaming one like on House?  Or maybe, just maybe my M.D. will cooperate with me and give me some of the new drugs I've been hearing about lately.

But I will go to the interview.  I will, limping and everything. 

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mortality, tired, fibro

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Best of luck on the interview. There are sometimes some really cool handmade canes to be found at arts festivals. I bought one once just because it was pretty ;0) I do know what it is like to work tired and to be bored and stuck in a house and one's head due to illness. I am so sorry that you feel this way now. All that time for contemplation can be tough.
I read or heard somewhere that big doses of Vitamin D help those with fibromyalgia. It might have been on People's Pharmacy on NPR. Is this something you have read about? I wonder about this disease and haven't read too much about but can sympathize with you for your pain and suffering.

I hope you got to your interview and got the job!
To those who wished me luck, many thanks - the interview went well. I was lucky enough afterward to cash in an old birthday gift for a hot stone massage afterward, then go home for a tramadol fix.
So glad the interview went well. Several years ago, or more, I've lost track of time, I was diagnosed with FM. I had to get a special tag for my car so I could park close to everything because it was so hard to walk very far. I worked at a manufacturing plant where I was the only one to have one of these magic tags but parking was limited, so when I'd return from lunch I'd have to stop in front of the building in the no parking zone, go inside, and tell reception to announce that someone, anyone, had to vacate a disabled spot, since everyone used them as regular parking. Several people would move their cars, but I really only needed one spot.

It sucks. I know it. Somehow I managed to get better, or something, and now I only have a problem when I'm overly tired. Then I can feel an ache in my legs, and sometimes I feel like I'm dragging around two giant tree trunks instead of legs. I am so fortunate that somehow I've gotten better. I hope you do too.
I talked to my bio dad this morning, he's got fibro, too. He was so tired and in pain I could hear it in his voice. He called me back a few hours later after the medicine took effect, but then felt the need to apologize to me, since he wasn't feeling chatty because the meds were making him spacey. I am so grateful for pain medication, I can't even tell you. No one should have to manage this disease.
Go with the pimp cane. you know people are gonna look anyway, may as well give them something fabulous to stare at ;>
Have you tried eutony? It might help feel you better...
All my affection (cariños)
Marcela
I cried yesterday. I tried to walk a short distance through a mall! Stupid...I know. But I was dying to shop and look at pretty things. The reason I cried was because less than 2 hours after having dinner and looking at jewelry and intimates, my mom gave me her leopard cane, so I didn't have to lean on her. "Mommy I have to use a cane" whimpered. "Know you don't you just overdid it and need someone to lean on. Besides it's a cool cane, like House. (My favorite show). My name is Stacey, I hurt my neck dec 31,07, lost my job and I have myofascial pain, disc probs, a bunch of other junk and now they say fibromyalgia! I'm pretty, young and just got through telling my girlfriend I don't mind using the wheel chairs in large shopping stores, (people are really helpful) but that's when I thought it would be temp. Anyway saw your post.Never wrote anyone before and the "House" thing, the fashionable thing and your perseverance at working inspired me. I wish you the very best of luck.