I finally convinced him to run the damn test. I tested positive, but it seems, NOT POSITIVE ENOUGH for standard treatment.
I know in every fiber of my being that my pain and other symptoms are caused by hormones and the metabolic processes that are out of whack in my crappy, unreliable body. My background in biology and research tells me so. But the sanctimonious bastard cannot take the time to LISTEN to me. He cannot take the time to LOOK AT THE CONCRETE SYMPTOMS STARING HIM IN THE FACE.
I've had enough, but have nowhere to go to find relief.
This is why people give up, check out, and somehow file for disability. This is why people who are sick and cannot seem to communicate that maybe, just maybe, they don't fit into the diagnostic lines the doctor wants to color in, lose their shit in doctor's offices, go doctor shopping, and generally make pain's in the asses of themselves. This is why people self medicate, either with street drugs or things they find on the internet.
This is why people who are sick with so called "untreatable" syndromes commit suicide.
Screw them all. Me and my overseas pharmacy are going to have a little talk. Then I'm going to the overpriced alternative clinic that doesn't take my insurance and have another little talk. My G.P. will not get any more visits out of me unless there is no other option.
Why does it have to be so difficult? (Yeah, I dare Dr. Amy to comment on this one.)
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I have a quick question and I apologize if you have answered this before: Have you seen a Rheumatologist? I tend to hate them but they are good at offering treatment for fibromyalgia. I've also had very good luck with an acupuncturist but they are expensive.
i go to a poor people's clinic. i have medicare since i am on disability. my PA is wonderful but they work with homeless addicts there so my immune system problems are kind of luxury diseases. i've been asking for cortisol because i know my adrenals are shot and to have a saliva hormone test but, yes, much too expensive and not even possible.
so i get what you are going through and i'm so sorry. it's the pits to be patronized when you know what is wrong and it gets you nowhere. it may be worth getting at least temporary disability to get your meds paid for
Yes, I still ache. But like you I have also found ways around the "medical establishment" to get some pharmaceutical help...
As to the "why" of it, I only wish I could come up with a real, legitimate, understandable answer that wasn't wrapped in layers and layers of cynicism.
teddy/theo and the wonderpups
Good luck!
Now, at long last, I'm no longer crippled with spastic pain and chronic exhaustion, and am no longer depressed to the point of seriously planning suicide, but it took almost 40 years to finally get the right diagnosis and help. I hope and pray, FibroGirl, that you, too, find the medical care you need, and that it happens for you ASAP.
Good Luck with your NEW search for a doctor that will treat your condition with the respect you deserve.
Hubby has RSD and took forever to find a pain management Dr that would take him and listen to him.
I understand some of what you're going through.
We're hoping to some day be able to go to this guy
http://www.brain-spect.com/
to get things checked out. Since everything starts in the brain, we're hoping we'll get some answers there.
It will be a long time before we get there though