fingerlakeswanderer

fingerlakeswanderer
Birthday
May 09
Title
cassandra
Bio
First they ignore you, then they laugh at you, then they fight you, then you win. - Mohandas K. Gandhi (Thanks, Y.O. for the suggestion) --------------------------------------------------------- My name is Lorraine Berry. I write fiction, non-fiction, and (paid) articles for various trade magazines. I also teach creative writing. My first loves are essays and fiction, and OS has become a great place for me to express my passion for politics and to try out new material. I am grateful for the connections I have made here, and for the lessons learned here. To all of you who join each and every day, I say, Keep Writing.

DECEMBER 29, 2009 10:25AM

An Observation that the Holidays are Not Merry for All

Rate: 57 Flag

Yesterday, I went to the doctor's office again to talk about my headaches again, but this is not a story about that. This is a story about what happened afterward.

Armed with a handful of prescriptions that would all supposedly do their parts to ameliorate pain that has plagued my life for three years, I went to my local Target, where they have been filling my prescriptions since they opened, where everyone knows my name, and where, frequently, as I come in for something "heavy duty" for the pain, someone will sympathetically say across the counter, "those headaches are bad again, huh?"

Yesterday, a few people milled about. I had dropped off my scripts, and wandered through the mall, incredulous that just a few days after Christmas, people still felt the need to buy themselves something. It's funny how we can build up in our minds that Christmas, like our birthdays, or like losing 10 pounds, or like getting a new job, or like the "geographic cure, i.e., moving across the country" will solve the basic problem that lies at the heart of ourselves. Our inability to make peace with who we are, what we are. To simply be. And, so, as I walked through the mall, I was feeling attuned to a lot of frantic misery as people shopped feverishly, and a lot of overtired toddlers voiced their complaints in the only ways they know how--whining, crying, tantrums--while their parents screamed at them that they were being naughty. 

I retreated back into Target. I figured it was better to sit and wait for my prescriptions rather than to observe the bile of human misery. 

My prescriptions were almost ready, they assured me. The woman ahead of me--an older woman, who looked harried, and worried, and whose hands flew this way and that--as if this were her reaction to life that had not treated her all that well, was asked if she could be helped. "We have to wait until my daughter comes out of the restroom," she said. 

A few moments later, the daughter emerged. Despite the heat in the store, she was wrapped up in her coat. It didn't look as if she had showered in a few days. The first thing I noticed, though, was that she had her hand protectively placed over her lower belly. "Bladder infection," I thought to myself. "Damn, those hurt." 

The mother began waving as soon as her daughter approached. "She's here!"

The pharmacy rep stepped forward. "How much are these drugs going to cost," the young woman asked through gritted teeth."

"The first is $14.97 and the second is $74.55." 

"Could you ask the pharmacist which one I really need to take?"

The young woman came back in a minute. The conversation took place in hushed tones, but there's not a lot of privacy in the crowded area near the pharmacy stand. "She said this one will take care of the infection, and the other one will help with all the nausea and vomiting." 

Take them both, I was thinking. Even if you have to give something else up, you can't get better without them. I've had friends whose bladder infections have turned into kidney infections and then you're in the hospital. It's nothing to mess around with. 

The daughter was clearly angry. Her mother did nothing, just fluttered her hands around. It was clear that neither of them had the money to pay for either. 

I started thinking about my checking account. I got paid last week, but it's the first of the month coming up, and I've got rent, and a whole series of bills that are on automatic repayment. If I paid for her pills, I'd bounce something. I wanted to step forward, save the day, pay for her pills. She looked awful. 

"I'm not going to take either of them," she said, in a disgusted voice. Clearly she was mad at the pharmacist. Oh honey. It's not the pharmacist's fault. It's the fucked up system we live in. The people who run this country don't give a shit that you're suffering. But this was not the time for political speeches. 

I watched her and her mother walk down the aisle, the younger woman limping in pain. I had no idea how she was going to make it through the night. 

I do have insurance. I stepped forward, to pick up my four new drugs. "That'll be $16.27" the clerk said. "Really? That's all?"

I felt guilty, and mad, and thought, once again, about how fucking obscene this system is. 

I wonder if that woman is in the hospital yet? 

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FLW, that truly IS obscene -- where it's not insane. Those poor people.

(And I hope the drugs knock down the headaches for you.)
It is a fucked up system. It is a fucked up system. It is a fucked up system. We all know it. Why have we let the bastards hookwink us again?

Sorry. This makes me angry.
I've stopped taking my blood pressure meds and the anti-cholestrol stuff -- because I'm so damned tired of the whole system. I realize I HAVE to go back, find another dr., and get back on them but like you, it pisses me off so bad that even WITH insurance I have to pay $500 for blood work to tell me I need to take more Vitamin D.

Our system will not change until we (the people who elected those insurance-lobby-money-grabbers) organize. Maybe we should be writing their stories?
Oh, lordy. This is too true. I'm 47 and didn't have insurance for me or my family until three years ago. I had to make those kind of horrible decisions all the time. It angers me when folks think that it's some kind of failure on the part of the uninsured when they have to pay. And it angers me even more that getting my insurance card three years ago somehow made me feel legitimized.
Yeah. Been there--on both sides of this scenario. And both sides suck out loud. The only thing I really hate about being retired and having no money is that I can't help someone when the need is so obvious. If I ever won the lottery I'd be the one who gave it all away, to individuals in need (of course you have to play if you want to win and I can't bring myself to buy the tickets).

This is powerful work, Lorraine--just like everything you write. I know your head is the pits but you've got such a good heart. And that counts. A lot. Thanks for this. Rated. D
Heartbreaking, and it is played out in thousdands of towns in this country. No one deserves the pain and uncertainty...and the helplessness the mother felt.........
You are absolutely right, and you told this so well. Take away what is to me the most important argument--the ethics of suffering---and look just at the bottom line and you can still see why we need a massive overhaul of healthcare:
If/when people who don't get the simplest care go into the hospital, we all pay for this somehow. If she can't pay prescriptions, she can't pay a hospital bill, and it will get passed down to all of us in increased costs or more taxes needed to fund public facilities. No man is an island, and your neighbor's healthcare problems are yours.
But, most of us here know that. The rest are finding out the hard way.
Tragic and very, very sad.
Damn, this seems to be a theme today. A fucked up system that no one seems to be doing anything about. Food banks across the country are maxed out, and medicine, even if you have insurance, the co-pay can be the difference between eating that day or taking the medicine.Damn
R`
My mother and father only recently got insurance through Medicare. Only this past month did my father get prescription coverage. He has needed both knees replaced for about 7 years. Last year, he had the first one done, but the prescriptions after surgery were over $600 a month. So, instead of having the second one done, he suffered another year until the prescription coverage kicked in. He will finally get his second knee done next month. 8 years is a long time to suffer with excruciating pain because you don't have insurance. In fact, I think it's a violation of your human rights.
Folks, please demonstrate your anger by dialing your official, federal representative. Please remember that our leaders do not look at us as people, but as voters. Please please call your representative and let them know you and the fifty people you rounded up, want a public option or you and the fifty people you rounded up will be campaigning to return you to the status of "private citizen." Don't get mad, get Effective. That's our job. Our job is to make our leaders work for us. So please, lets not fall down on the job, okay. A copy of this terrible and terribly well written story should go to every person in the House and Senate. Oh, and in my specific case, Congressman Bilbray, I'm talking to you.

Now for the rest of you, who are you talking to?
This is so heart breaking! You've narrated the plight of so many, so eloquently. How can a country, a system, can succumb to the biggest human misery and boast of greatness concurrently?
~R
This is disgusting. I have been that person that has to chose. I have had to go to the ER for a kidney infection that could have been stopped at the bladder if I could have gone to the Doc. Right on FLW...xx A
Lorraine
I see this at my pharmacy. It saddens me that people must suffer or pick and choose meds due to pricing. It disgusts me that the majority of we americans voted for this to change.
I know how that is. Having been without insurance all of my adult life, I dread ever getting seriously ill. And I feel guilty too, telling someone that I know exactly how they feel, but that I've got to say no, I can't help even though I do want to help.
Welcome to a more corporate America Lorraine... She will either suffer through the malady or end up in the ER, nice system indeed! Hopefully her pain is brief... As a pop culture crazed society, controlled by corporate owned media, the stories sold are growing old... Thanx for keepin' it real...RRR
I'm kinda pissed at the pharmacist! If he would have CARED he could have suggested alternative / generic equivalents that Target / Walmart / etc. sell for $4.00 each! That's his job!!!! MANY of the pharma companies (who can damn well afford it) make low cost drugs available as well.... 'course that would have cut into the asshat's profits (god forbid!). It's way better to send people away without the medicines that would help them.

Oh, and a hearty FUCK YOU to all you heartless bastards who are against single payer "real" health care. Here's hoping that that was your sister or daughter that was suffering, you assholes!
It is obscene ... and horrible. My mom has to give up medicine and even a necessary ear surgery because she cannot afford to pay the deductible (she is paying $900 a month just for her own insurance ... my parents used to own a small business and filed for bankruptcy. She's too young to qualify for medicare and medicaid can't help because of the backlog on their system).

So, yes, this system is screwed up.

I hope your headaches go away soon .... they're no fun!
It sucks to get sick period, but talk about a messed up health care system. There are many that are in limbo, I have my son whos girl wants to have a baby, but she can't do it the natural way. They consulted with specialist who told them it could cost them upwards of 30,000.00 dollars, where are they going to come up with that kind of money?
So sorry. I've said it until I'm blue in the face, your system is inhumane. That said, the Canadian system does not cover drugs, but doctors usually have free samples they can give out. Big pharma is out of control. Everything is out of control.

~sigh~
The whole thing is just repulsive. I'm glad you shared this story, Lorraine. THIS is where we all need to focus and channel our combined, collective angers and frustrations. Experiences like the one you describe make me want to go straight to the mall and stand outside Roy Blunt's office there and SCREAM as loudly as I can. I think I'll do that today.
Lorraine,
A system could not be better designed - even intentionally - to add insult to injury, shame to the already vulnerable, and pain to the terribly suffering.

Sometimes I feel awful finding hope in the narratives of how you’ve suffered with this migraine malady for so long. I feel guilty drawing inspiration from your continued fight - but you chronicle it so damned well and with consummate grace.

Rated and appreciated.
Your compelling anecdote says it all, but of course the Republicans are planning to repeal whatever is passed. Unfair and obscene.

Have a healthy new year, Lorraine.
That's right. We have no use for single-payer universal health care in this country. She'll just tough it out. Like everyone else who cannot afford or has been denied health insurance. When will the people who don't understand this finally get a clue and realize that we are marginalizing and punishing a huge segment of our citizens? I'm so sick of stories like this that could so easily be prevented.
I find myself wondering why the doctor, if s/he knew that the patient didn't have insurance, didn't prescribe generics? Target does have a $4 generic program, and while s/he probably prescribed something broad-spectrum, maybe even something less potent would have given her some relief. And I know the anti-nausea stuff they give me for when I'm barfing from pain aren't that expensive.... Good question, Safe_Bet. Miscommunication between the pharmacist and the doctor.
This won't change until our elected representatives have to put up with the same shit we do (meaning they get the same damn coverage the rest of us do).

As long as they can vote themselves pay raises by NOT voting on pay raises, as long as they continue to stuff well-intentioned legislation with home-town-pork, we will lose. Corporatocracy has come to the forefront in this country.

"Hello darkness, my old friend
I've come to talk with you again,
Because a vision softly creeping
Left its seed while I was sleeping,
And the vision that was planted in my brain
Still remains
Within the sound of silence."
Everyday, everywhere, it's insane and getting worse. Maybe a hospital emergency room will be her savior, if they treat her. Sad, so terribly sad. Hope your pain will ease some Lorraine. older/exasperated
Lorraine, this posts hits me hard. I am in that womans shoes. I just applied for Medicaid here in Florida. I was asked if I had applied for SSI. I replied that yes I had and there had been no decision yet.
Even though I told her I had active Lupus she turned me down for Medicaid. She said that Social Security had to rule before I qualified for any help. So here I sit.

I have seen what you describe happen nearly everytime I do go to the pharmacy. It really bothers me. Sometimes there are no generics to replace the needed scripts.
I am sorry for your headaches and do hope you get relief. But living in a BROKEN system is hard for us all.
That is truly frustrating and really really nuts. In this day and age there are so many alternatives. Could the doc not have given her samples? As Safe said, could they not have been generics? If we had a simple single payer universal system, this wouldn't be an issue, ever.

Glad you share this Lorraine. Must have been really frustrating for you. Hope the headaches ease!
horrible, lorraine. i have had to choose before which scripts to get filled. not fun. whoever said our system is inhumane is right. not just our health care system, our whole system is so broken. how anyone could think that socialism is somehow worse, is beyond me.
The Greatest Country in the World? The politician keep telling us that. Greatest compared to what?
R
thank you Lorraine, but my God do I hate our politicians, the ones in my state the most. Our illustrious governor turning back federal money slated to help the poor in order to make some political right wing nutjob point, and we have one of the highest uninsured rate in the country. We also probably have the majority of the richest people and corporations.

And I hope you get some relief from pain.
lorraine...I've not taken the opportunity to put together a "best of" list for 09 on OS but if I did you would be somewhere near the tippy top of it for me, for just this kind of thinking/observing/intelligence/heart insight.

thanks for bringing this to our attention, sad as it might be. and happy '10 to you. and thanks for giving me hope that if we pull together this woman's situation doesn't have to be the norm any more in this country. we don't currently have a political party to save us (since there isn't a political party out there that values voters over corporate money and lobbyists), but we do have (and we need to preserve) our sanity. we need to remind people and ourselves of what it means to have a civic sense of responsibility and to move outside of the increasingly narrow politics of greed & me me me.
I hear so many horrible stories like this at work at the hospital. Things have to change. R
Terrible...this broke my heart...I just can't stand what's going on with this....xox
And that same moment is replicated all through the country every day, maybe even every hour.

The obsenity feeds on itself and then grows. Your "cheap" prescriptions? They go straight to a data base where they can be accessed by any insurance company in their tireless quest to deny you insurance. In order to keep your privacy, you have to go to an independent (try finding one) and pay the same prices as that poor, poor woman. So SOMEBODY is always getting screwed---and you found the woman getting hit hardest.

I can't imagine a more important story.
Sigh.

Thanks for illustrating beautifully the complicated mess of our health care system.
This is mind numbing . And it is going on every day in every city in this country. Will people start caring when it is THEIR daughter or THEIR mother? THEN will the system be changed?
This is so wrong. And written so perfectly.
That poor girl. There is so much suffering in this country, this rich rich country of ours. We can tromp all over countries most of us can't even find on a map, spend zillions on bombs and attempting to force our will upon populations that hate us, we can spend tremendous amounts of money on lots of bad things. But we can't figure out a way to get a poor girl some flipping antibiotics. It's disgusting.
Damn I hate this system and I hate those that stand in the way of helping others even more. How could we be a 'Beacon to the World' when we treat our people like this? And how could there possibly be enough people standing in the way of health care reform and be blind to the suffering that goes on right under their noses to halt reform? It just doesn't seem possible, yet there it is. Stories like this one are endless and still not enough people care to change the way the system kills tens of thousands each year. As a people, we suck.
It is the saddest thing I can think of that anyone in America of all countries should have no way to get the medications they need. It is so inexcusable and it highlights the reason we should ALL be on the phone calling our congressmen and other 'elected' officials. I know I will be. Good post FLW!

@Bill S. ~ perfect verse for this issue!
Great points fingerlakeswanderer! The systems are tilting for sure.

The mutual health care Insurance may be one way to fight the system from outside legislation. See sagemerlin's blog for people putting in the effort as a "think tank" for truly creative solutions and to see what resources are available now. Sometimes it is really finding what is out there, and sometimes new solutions can be forged.

My comments there point to truly non-profit entities being the only answer to taking health care back into our own hands without truly reformative legislation. I believe we can be our own answer, we have already awoken to the problem and realize we are all in this together. I vote on the side of hope!
I think that the more we can expose the unfairness of our health care system the more we can push the politicos.

The problem, it seems to me, is that the little person like that girl has no idea where to turn, what to do or who can help. So the ones who are the most disenfranchised, the least likely to even understand the system, the ones whose pain is so bad that they cannot even think --- those are the ones whom the system abuses the most. It has always been that way and likely always will be, if not on health care on a million other issues.

But we cannot give up the fight!

The irony is I have excellent health care insurance, superb drug coverage, and some conservative "friends" think I am nuts to push for a change from the mess we now have. They cannot fathom how I would be willing to take a little less, pay a little more, so that others like that girl can share in what we all would get.

Excellent post, Lorraine.
I've witnessed this scene countless times. The system is, indeed, broken. I try to prescribe generics whenever I can. Because each insurance plan has a different formulary, a particular drug might be inexpensive for one patient, but very expensive for another. The doctor may not know. For the uninsured, the problem is compounded. My advice: If a drug is too expensive, call your doctor and see if there's a substitute. Often there is. Usually there are several options within a class. A good doctor should do his or her best to reduce the burden of high drug costs. Great piece! Happy New Year.
Thank you all, for posting and commenting and venting and being outraged while I ran out in the (-15 windchill) to take the dog for a walk and then go grocery shopping. I feel as if I live in two Americas. The grocery store that I go to is full of people who look as if they are doing well for themselves, and then the other areas around here, the real edge of Appalachia, is obviously not. 90 dollars is still a lot of money to me, but if I had to pay it, I'd do so and tell one of my creditors to go piss up a rope. And I got to thinking. Maybe she has a family, and she thought that taking care of herself would take money off her kids' food table. If only I knew her story, and more than I had simply observed.
I'm haunted by her. And the hundreds of thousands that i know are just like her, maybe even right now trying to figure out: prescriptions or food?
Great post. This is a terrible system. I have insurance through my husband, so when I need a prescription, it's $10 or $15. My mother, even with her supplemental Medicare insurance, ends up getting socked. And we both feel fortunate because we have insurance. What about the woman in Target? What about my neighbors? It's a crime that people have to make decisions about whether or not they can afford medicine. Truly. Why is it so difficult to fix? What is it the legislators don't understand?

P.S. Hope your headaches are better.
Thanks for putting a face on the problem. It's not so easy to ignore the story of this Mom and daughter, as I'm afraid so many do when hearing about 'the uninsured'.
I wonder how many faces it would take? I'm thinking about the Nightline that Ted Koppel did years ago, where all they did was read the name and show the photo of the dead in Iraq that year. People bitched about it--said it politicized the war--but he was just reporting on who had died in the war. If we were able to gather up stories, just post everyone's story that we know of people who can't get insurance, don't have insurance, put them everyplace where they can't be missed, would it make a difference?
I like the suggestion you just made--put a face (many, many faces) on this problem, and get those faces in front of the public. *That* would be a true public service announcement.
Dammit! What you've just reported is a major human rights violation. This makes me all the more furious at Obama for selling out the public option.
We do not control our legislators. They control us. They run amok in Washington, making deals that best serve their own interests. While they get richer, we get poorer. And the situation is going to get a lot worse.
*banging head against wall*
Can't possibly add anything to the rage and disgust already expressed here, and you do live in Two Americas, Lorraine, we all do, though far too many are blind to this truth. All we can do is keep on pushing with anything we can lay our hands on til justice is delivered. Rated, appreciated, rave on!
I want our money back in our national treasury and I want Bush, cheney and rove arrested, tried, convicted, and stripped of their ranks, titles and benefits for life.
Hmmm well, let's see. I hit my 'donut hole' around this past September and have been paying totally out of my own pocket. Astra Zeneca is not as good about helping as they promote themselves to be , still I managed to find Advair for $200/month as opposed to the $300 others are paying. Regrettably it is one of those drugs that is hard to find a substitute for.
When I went to see my doc (and snag some samples if I could but they were maxed out as well) I showed my updated list of medicines and told her: You know unless you can provide me a compelling reason to try any thing new and fancy then let's drop back 2 generations on five of the drugs that I've sketched out. So those five drugs' equivalents for older but effective scripts are available under the $4 plan at Walmart and I've been able to make it without cutting out anything except the heart and lung drugs. But for all those out there who don't have a healthcare background and know enough to figure this out, they are getting it in the neck, as Lorraine points out. I counted out my drugs and I have enough to get to January 1st when the new year kicks in! Yippee! Of course the monthly payment has gone up a third.
you are our conscience - thank you always for that
I saw it every day as a pharmacy tech at Safeway, Walmart, and Eckerd's. It's painful when people can't afford the drugs that we need. Insurance companies and drug companies are evil empires. Apparently, they also run Congress. So how do we fight them?