fingerlakeswanderer

fingerlakeswanderer
Birthday
May 09
Title
cassandra
Bio
Lorraine Berry lives in the Fingerlakes region of New York, although it's her transplanted home. On weekends, she can be heard throughout the area, cheering on her beloved Manchester City F.C. When not writing at Does This Make Sense? or Talking Writing, she can be found hiking with her two dogs, hanging out with her two daughters, eating what her beloved Rob has cooked for her, or teaching creative writing at a small college in the area.

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MARCH 7, 2010 6:33PM

My Biggest Fear: Withdrawal

Rate: 55 Flag

(an apology for the format of this post. my shift key is broken, making it difficult to write in a more formal style)

 

my biggest fear has played the largest role in my relative absence from os the past couple of weeks. many of you know that i have cluster headaches, for which i have taken pain medication on and off for the past three years. this upcoming friday, my doctor wants to put me back in the hospital, to rid me of my latest spate of cluster headaches, and to get me off oxycodone once and for all. 

narcotic withdrawal and i are not strangers. i have been hospitalized to go through detox, and i have been treated at home. this time, i'm doing it on my own, and for the past week or so, i've been weaning myself off oxycodone while continuing to deal with the headaches. why? because i'll be damned if i go in the hospital for the seventh time for these headaches. i'm done being handcuffed to an iv, tired of having the cluster headaches respond to the treatment i can only receive in the hospital, only to find that within a week, they have come back full force, and i'm downing pain killers ... again. 

it always starts the same. i give the oxycodone to my partner, rob, who locks the pills in a safe. we start out that i can have no more than two per day. then the pain gets worse. now i'm asking for four. some days, when i manage to get the combo to the safe, i might take extras--six or eight for the day, combined with muscle relaxants--anything to make the bottle-opener pain in my sub-orbital bone fade away. 

some people deal with pain by taking to their beds and lying in a dark room. i deal with pain by distraction. i take pain pills and then keep myself busy. i cannot stand the idea of allowing pain to slow me down. i can't stand being sick, either. you can blame my childhood. you can blame my inability to cut myself a break. you can blame a lot of things. but the idea of going and lying in a dark room and allowing pain to win is loathsome. and so, i push myself, and i push by taking pills. 

unfortunately, opiates push back. 

in the past several weeks, things have gotten fucked up. i've been having blackouts, where i can't remember conversations i had with people, or the television show i watched the night before, posting something on facebook, or, even truth be told, writing something for os. 

and that scares me. because that means the drugs are winning. i'm no longer in control. 

and so, i know what i have to do. 

give them up. 

the doctor has offered to put me in the hospital on friday, the beginning of spring break, and both temporarily kill my clusters and get me off the opiates the easy way--with methadone and ativan and lots of supervision. 

but i don't want to do it that way. as much as it frightens me, i need to do this alone. last sunday, i took eight oxycodone, today i've taken one. 

what does withdrawal feel like? for me, the worst symptom is the shakes. my body trembles, as if i'm having a full blown panic attack, and soon after, i break down into full-blown crying jags. tears that won't stop. anger at what getting off the drugs is doing to me. 

the nausea isn't too bad. i have drugs for the nausea.  i try to keep moving, because moving makes the tremor less noticeable.

what comes next is the stuff that nightmares are made of. you see, i'm convinced that oxycodone has a brain of its own. it knows my weaknesses. it finds the thing that scares me and begins to obsess over it. over and over again. like the hamster on the wheel that drops dead of a heart attack because it's convinced that it has to get somewhere. this week's nightmare has been that i have been a lousy mother to my children. 

my achilles' heel. and the fact that my eldest child is in india means that i have no way to check in with her about how she's doing. whether i need to make amends. whether i really was the shitty mother that the oxycodone is telling me that i am. 

the oxycodone also tells me that, without it, i have no creativity. that i cannot write. that i'm just a hack. that i need to give up writing and stop wasting everyone's time. 

withdrawal is frightening to me, before i go through it, because i always envision myself lying on a tile floor, puking my guts out and begging for a "fix." instead, withdrawal is not all that physical for me. withdrawal is knowing that the demons are going to come out of the brain, that  part of my uncharted brain where "here be dragons" and i don't know what they're going to attempt to burn me with.

waking up while you're going through withdrawal is dreadful. i never knew what that word meant until i felt the dread of being awake. when the first thought that goes through your head is "i wish i was dead," you know it's going to be a rough morning until you can find the ways to cope. 

but you know what? i'm doing it. by the time i go see the doctor on friday, i'll be completely off the oxycodone. i'll be working at getting myself off the muscle relaxants. i won't be having constant crying jags. maybe, i can even find beauty in a cerulean sky, or the call of the mockingbird, who have moved back into the area, despite the snow. 

fuck fear. 

for those of you who have not read my previous writings on pain and addiction, here are previous blog posts. 

 

 

http://open.salon.com/blog/fingerlakeswanderer/2009/01/29/for_those_who_have_been_through_it_or_are_in_the_midst

 

 

 

http://open.salon.com/blog/fingerlakeswanderer/2009/01/30/detox

 

 

http://open.salon.com/blog/fingerlakeswanderer/2009/03/09/my_name_is_lorraine_and_i_am_an_addict

 

 

http://open.salon.com/blog/fingerlakeswanderer/2009/07/13/the_withdrawal_diaries--a_photographic_essay

 

 

 

 

 

 

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Comments

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FLW, this is so touching. I know you can do it, I have the feeling that you are a strong and determined lady. You show that in the beauty of your writing. Concentrate on the magic you see "in a cerulean sky, or the call of the mockingbird, who have moved back into the area, despite the snow. " Nature is a healing source. My heart is with you. ~R~
Dear Lorraine
I know this pain and I know this fear. I sent you a pm and am sending armloads of love with it.
Lorraine
I've traveled the road you are navigating. I read this not in judgement, but in sympathy and spirit for you my dear friend. Tonight I will talk to Heaven... Listen and look for the mockingbird.
It is a big bad fear, but you know it for the liar that it is. Courage.
I am sorry for all that you have to deal with--the pain and the withdrawal and everything that goes with it. There is no easy way, with what you have to do.
Did not know. Cannot imagine.

Myself, I'm a long time junkie, clean six years. I never had reason like chronic pain/headaches though. What a spot to be in! I've done withdrawals and the fear/guilt trips it spins, but I didn't have chronic pain waiting for me on the other side. My life actually got better pretty quickly. It just took a long time to walk thru all the consequences I had built up for years, but none of that was physical pain. I cannot imagine...

To the small extent I can relate, I feel ya...to the extent you are beyond my experience and imagination, my prayers are for you there.

Thank you for letting us in. You are a blessing here.
Oh Lorraine, this is such a magnificent post. May you get off these with minimum difficulty, and be spared further pain.
I know plenty about pain and withdrawal Lorraine. Both are a bitch. Equally well.
I find your inner strength here in your writing. You will beat it and do it well.
Peace can be a heartbeat away. {{((Lorraine))}}
Those are angels around you dear.
Lorraine, you poor thing. This makes me want to cry. I don't have any real experience with this nor the words to make it better for you. Please just know that I'm in your corner.
FLW, you are one helluva fighter . . . if anyone can find the key, you'll end up being the trailblazer. We're in your corner. Our fingers are crossed, and our thoughts and prayers are running your way.
you're hardly a hack, my friend, if you can write like this in the midst of opiate withdrawal and a pounding headache.

dope is a bitch, isn't it? there's nothing like stopping, that almost indescribable out-of-your-mind experience. but you can obviously do it, are doing it, while we all applaud. you are amazing. thank you for letting us know what you're going through. i'd send a PM but you probably already have a million and -- maybe -- don't need more stuff to do. know you're in my thoughts ...C
Lakes, I've been on Percocets for ten years. I also have to do a time-release pain medicine. I'm so sick of this things. But, my pain isn't something that will stop. It's just going to get worse. I hope you come through this clear headed and without the headaches!
my baby is lying on the couch with me. i'm sucking a lollipop, drinking lemonade, and getting ready to watch the oscars. nights are okay. mornings are horrible. my wish tonight is that i wake up tomorrow and i think good things instead of having to shake my way through the morning. knowing that you are all cheering for me is lifting my spirits. it is such a good place to be, this place. thank you.
What a brave post. I was really touched by your honesty I will be checking in and hope this journey is your last down this road.
This is a horrific fear. I take .25 of xanax daily for anxiety and my next step is to wean myself off. As well as drinking less alcohol. Those are my 2 achilles heals and haunt me daily. I want to be addiction-free when I turn 50 this July. I hope you can pull this off. You're tougher than me, I would beg for hospital supervision.
This is such an honest, open post. I cannot imagine having such courage. Because you are truly courageous. And come Friday, and throughout the week, I'll be thinking and praying for you.
L, sending a PM, just thinking of your tonight.
This is the most powerful fear post. Oh FingerLakes, I hadn't read all your back posts, had no idea you were going through. I'm stunned that you've been able to write such insightful comments and posts.
And the mockingbirds! What a gift, for you to notice and celebrate such things when you are suffering so much. You're my hero.
i'm cheering you on from my neck of the woods. loud. heartfilled words. claps. & silence when you need it. i am cheering you on.

best of wishes...
Sending you strength, Lorraine, although I know that if there's anyone already strong enough to beat this, it's you. Much love to you.

P. S. You are NOT a hack. Far, far from it. Tell that voice to STFU pronto.
There are a lot of people pulling for you, and I am one of them.
If you are a hack, Lorraine, I don't know what that makes the rest of us. *hugs*
you are a remarkably strong person. i know what oxy can do to a person. and you may be a lot of things, including a sufferer of cluster headaches et al, but you are NOT a hack. stay strong. keep your eye on that cerulean sky and listen for that mockingbird...
I'm grateful for posts like this. It helps me see things through the same lens as I do, but at a different power.

I wish you all the best on your journey/struggle.
Love to you, Lorraine....you are in my prayers...your honesty here about this problem will help many....xox
I'm heartened to know you realize the anxiety/obsessive thoughts come from the drug and that they're simply lies. I know you worry about your daughter in India--I'm worrying with you. But re-read the comments on your post from a few days ago about her and her blogging. We ALL know you're a strong, courageous and gifted mom. I know, from past posts, that the road you've traveled thus far hasn't been easy--but you've done what you had to do and you and your kids have survived and thrived. That's powerful stuff, Lorraine. And you're powerful stuff, too.

We're here, sending warm fuzzies, good thoughts and many prayers to surround you while you're going through yet another challenge. We'll see you on the other side and rejoice with you when you're through the worst of it. Breathe. Enjoy whatever you can find to do and think about that makes you feel happy. Hold on. D
good luck, lorraine. I'm pulling for you.
Somewhere I read a quote that said that fear is really anger. Sometimes anger is useful. You can do this!
Please know that you are doing all of the right things, and that everyone here loves you. I think that I can speak for everyone when I say that we are all impressed that you can continue to write with so much clarity and passion given your circumstances!

(and your daughter is having the experience of a life-time.....trust her......we do.)
The good news is that once you get through the withdrawal, you never ever have to go through it again. For me, that was a great motivator for staying clean/sober.

You can do this. If you need or want help, I have listed several organizations that are alternatives to the 12 step approach in the links section of my blog here at OS that can offer you support and tools. I used SMART Recovery, myself, and I never went to a face to face meeting. Some offer services via online chat room meetings, message boards, and other interactive features.

My drug of choice was alcohol, and I have been sober for three years.
Sorry to know you are going through this ordeal yet again Lorraine. I cannot imagine the sort of pain you are forced to endure.
Lorraine, you can do it. Don't listen to the lies, but feel the truth in your heart. You are strength (and creativity).
That Oxycodone is nasty shit. They gave it to me for the first time last week after surgery. For two days it was hell, then Michelle asked them about it and told them to put me on a morphine drip instead. I don't like taking pain medications mainly for the reason you state. My hope is you can overcome this and your Doctor can find a root cause for your headaches. You are lucky you have Rob and your family, I'm sure that you can banish from your mind that they would never think of you as a bad person and love you more each day and would give anything of themselves to help you get better. Listen to the song of the birds, they can sing wonderful stories for the heart. My love and thoughts to you, older/exasperated S) Never give up my friend *****R
You are in my prayers, Lorraine. Your strength is amazing and inspiring. Sending you big (((hugs))).
xoxo
Kim
Timely, so timely. I am coping with chronic pain and have limited choices as to what I can take (I seem to have problems with most pain relievers at any level). I can't imagine the pain being in the head; I'd be out of my mind, so to speak. But the drug choices are no good and I'm really, really proud of you for giving freedom from pharmaceuticals a try. I hope it works; I really do.
Praying for the best and hoping to hear wonderful news. The drugs don't want you to know how much more you will be able to create without them. I'm glad this got an EP.
so, i got up this morning and, as soon as my love left for work and i had taken my morning regular meds, the puppy and i took a two-hour nap. then we went for a walk, and now i'm at school getting ready to teach. the w/drawal hit me about half an hour ago, so i allowed myself on oxycodone. amazing to think that something that wouldn't have affected me before has given me some relief. tomorrow, i get to take a half, and by friday, i'm done.
it's a gorgeous day, and i tried and i tried to see its beauty. there was a cardinal practicing his mating call and i listened, i really listened, and i felt a little frisson of joy. this is the tough part. when i can't find my happiness. i know it will come back. i know that, soon, i'll look at this amazing landscape i live in and it will suddenly strike me that i'm lucky, and happy, and secure. right now, the battle continues to rage between the oxycodone monster, that wants desperately to be fed and so makes everything grey, and me, who knows there's a better world without it. i'm so grateful for the support you are giving me. i truly am. your comments have brought me to tears. out of nowhere yesterday, my daughter said 'if you're never scared, you can never show your courage.' and i just looked at her like she had been told to say that by someone watching over me. words of wisdom from a 12-year old.
I will be pulling for you. I really hope they figure out what's causing your headaches so that you never have to worry about it again. And you are an amazing mother - giving your children an example of strength and courage in the face of adversity. Those are lessons they will keep forever. R
The only "oxy" you need to write is "oxygen".

You are always in my thoughts and prayers, Lorraine.
Lorraine - No wise words, just wanting you to know I will be holding you in my thoughts. Hoping you find the peace you deserve.
hang in there Lorraine....xxa
You have good reasons to do this on your own, but I know I'd be in the hospital. Pain in my head is worse than any other pain I've had . . . I mean, it's in there WITH you. All best, HB
hang in there, you're a hell of a writer and you don't need it to post on here.
I will keep you in my thoughts and send you good vibes.
You needed the pain pills so no shame in that. All of us here wish you a final recovery. You were not doing this for fun. You are in pain. May the docs cure it once and for all time. Prayers for you!
Thank you for the lucid writing...you have some moxie, girl!
This is a challenge and it is touching how you write about it. Love and peace to you and thank you for sharing.
I wish you the best and very sorry you are going through this. Thank you for writing this. I have only had to take such painkillers for a three month period during cancer treatment . . . had to as you have to . . . and people were incredibly judgmental about that. I lost friends who could not understand the blacked out conversations, the overwhelming emotional upheavals etc. It frightened my kids. For that reason in the past month I have refused painkillers for broken ribs and serious dental work (nothing compared to cluster headaches -- I don't know how you cope) and rely on a regimen of Ibuprofen every four hours and Tylenol every three. Only hurts when I breathe ;0) I hope they can find something that will work to help you.
Oh dear. I'm so sorry you are going through this. What a heroic fight.
I've never had to take 'em for more than a couple of days, but I've been with folks getting off and I know it sucks. I can't imagine your pain, but I feel your strength. As for the early morning thoughts, I keep inspirational books on my nightstand so my first thoughts of the day are not my own. Sending love and hugs.
I had to have my hips rebuilt. When I picked up my discharge meds, among other things, there was 100 oxycodone and 100 oxycontin.

I took them for about 4 days and figured enough of this stuff. You could end up in trouble here. After the 4th day I may have taken one at bedtime if I was having a bad day.

I can really see how this stuff helps, but I can just as easily see it being trouble.

Good luck
Just another set of good wishes and appreciation for sharing this. It is very illuminating. I do not know this kind of pain, but I offer you my admiration for coping with it, and good thoughts to the cosmos for your improvement and healing.
I have also lived with chronic pain. For the past 5 years of my life not a day went by when I was not in pain at some point in the day. For the past 2 years I had pain and fatigue. In other words my life was about pain and fatigue. There was no room for much more. I too used narcotics and when the pain was un believable I sucked in a lot of pills. But for me once that cycle started I went back to my Dr to find another way to go because I knew once I built up a tolerance addiction was not far off. While I never went that far I saw what happened to others. I knew that pain, fatigue and addiction would be too much for me. So I am glad you told us your story and I hope that what I have to say will help you find another end to your story so this will not happen again. Unfortunately when we are at our weakest it is up to us to find our own treatment and to not stop searching. Pain takes on a life of its own and takes our life away. So does addiction. Be strong and do not give up looking for something to help you live with those atrocious headaches. I know you suffer from them and they disrupt your life. So does addiction. Stay strong and find someone that can help you. I am sorry. Those of us with pain understand each other. Those that do not live with pain thank everything and everyone that this is not your life.
My father suffered from cluster headaches and I can still remember the screams coming from his bedroom. I would hear my mother's gentle voice trying to soothe him to no avail. I have nothing but compassion for you...I wish of course you suffered none of this. And yet in this post, what shines out the most is your bravery and your determination. And your hope. Thank you.
I missed you so came here to find out how you were. I have nothing of import to say except that I'm here and I would kick that Oxycodone's ass if I could.

Let me know if I can help in someway.
fuck fear indeed.

"today i've taken one"

I am down to to 1 xanax, from 4 a month ago. fuck the shakes; I will live with it.

I know this: "...the dread of being awake". I am with you. we are NOT dead, and i am glad for you and i that wishing we were doesn't make it so. Or doom us.

dine out on OS, make use of us. I just saw the birch post so I go backwards into this, and already know you are reaching out with works, here, in this sacred OS.

hugs, L
I missed this Lorraine...I just want you to know I've been there. And, I admire your courage. Withdrawing alone almost killed me, so I hope you are careful. Take very good care and I am sending blessing upon blessing your way...
Ah, my friend. I'm so glad you're here. So glad.

I like that this piece was in lower case. It seemed appropriate - a choice you were making, under the circumstances.

I think many addictive substances feed our worst fears. Have often thought that. They bring the shame out in us.

Please keep us posted and sending you my direct, to the heart love.
Oh god, Rainey, this is really incredible, your wish to tell this and your ability to do so even in the midst of what I know, from personal experience, is a horrendous challenge. This is especially so for a really good writer. Yet here it is, and all I can say is well said and well done. It will be Friday soon. Neither of us is a stranger to this ordeal nor to the nightmares it brings. What astounds, though, is your profound consideration for the rest of us in sharing all this with us.

If you feel a hand squeezing yours over the next 48 hours, it'll be mine -- and no doubt quite a few others as well. Continue to take in the beauty around you. This is huge. You are not alone.
Great post and sorry for your pain. rated.
You are amazing, Lorraine. I really didn't know that breaking the need for oxycontin could have that much impact on your thoughts, emotions, and dreams. I am so sorry. I wish I had more than my words to send to you. I want to send you healing, comfort, and peace.

Here it goes...to you with love.