I met Eric Lowen while both of us were serving on the board of the newly formed Folk Alliance Region West, better known as FAR-West. ( www.far-west.org ) The FAR-West is the Regional arm of the Folk Alliance International. ( www.folk.org ) We serve the Western part of the US from Arizona to Montana, California to Alaska and including Hawaii.

Eric was a part of the Contemporary Folk  duo Lowen and Navarro. Both are excellent song writers and popular live performers.  

It was not long after we had scheduled our first conference that was to be held in Woodside California that Eric contacted we fellow board members and told us he had been diagnosed with Amytrophic Lateral Sclerosis, ALS, or more is commonly called "Lou Gehrig disease".  It was a shock to us. Eric had always appeared as the picture of health.

That was in March 2004.Our concern was for Eric and his family. For myself I had known a few who had been diagnosed over the years with ALS and few survived more than several months after their diagnoses. I feared that this also would happen to Eric and his voice and guitar would be silenced far too soon.

Eric has surprised us, he is still alive today, and up until a few months ago was still touring with Dan Navarro his partner.

Eric and Dan had recorded a song just prior to Eric’s diagnose written by Dave Moore, and Iowa singer/songwriter who for a time was the band leader for “Prairie Home Companion”.  The song title was “All the Time in the World”.  Eric did now know at the time of the background for the song, even after his diagnoses. I knew Dave Moore and knew what the song was about and told Eric and why it was so significant for them to record it at that time.

Dave had been touring shortly after the birth of his daughter. He was on the road when his daughter died of SID’s. He returned home and did not record or tour for over a decade.  The song is written for his daughter. It is beautifully written, even if you are not aware of the songs significance. For Eric, it gained even more meaning and he and Dan were then to seek out Dave.

I am posting this as someone reminded me of the article Eric wrote in June of 2006 for the now defunct Performing Song Writer Magazine.

This is the last day of the decade and for some of it may be the beginning of the next.  I would ask of you to view the video “Augie’s  Quest –If I were the Rain”  and read what Eric wrote three years ago. He ended it with Lou Gehrig’s quote, “Today I feel like the luckiest man on the face of the earth.”

For you to are among those who are the "Luckest People in the World".

 I would also ask to go to this page to view the video as well and please consider a donatation:

http://whatkindofworlddoyouwant.com/videos/view/id/1845029

From the June, 2006 issue of Performing Songwriter Magazine

Survival, Success and the End Of The Road
by Eric Lowen

I count myself among the lucky ones.  Although my partner Dan Navarro and I have never had the kind of across-the-board success we may have hoped for when we started out, we have made our livings at music for a long, long time.  We finally got an opportunity to make our own record in 1990 after a few years of having some success as songwriters and many more years before that of laboring away in nearly total obscurity.  It was the chance of a lifetime and we were pretty convinced that it was going to be “once in a lifetime”.  The fact that it turned out not to be so and that we would go on to make many more records and tour for the last 16 years, still leaves me black and blue from pinching myself.  We are journeymen, working hard for a relatively small return, but it has been the most satisfying and rewarding experience I could ever hope for.  We have, through luck and persistence and a commitment to our long-running motto, “we try not to suck”, connected with a remarkable group of fans and friends who have kept come to see us, bought our records. and supported us in every way.  If they are to be believed, we have made a difference to many of them through proposals, marriages, divorces, child rearing and even the loss of a child.  That is a kind of success that would have been hard for me to imagine, but has been ultimately so much more meaningful than all the money we never made.

Life has a way of turning on a dime and a matter of a few hours or a few days or even a few minutes everything can seemingly come unglued.  On March 17th, 2004, I was diagnosed with Amytrophic Lateral Sclerosis or more popularly “Lou Gehrig’s Disease”.  ALS is a Neuro-muscular disease involving the brain cells that control the voluntary muscles.  The brain cells die, the muscles atrophy and  you are left paralyzed with very little or no muscle control in a matter of months or a few years.  Stephen Hawking, the famous physicist is a well known survivor of the effects of the disease, having been diagnosed in 1964.  He is the longest known survivor, but he has assisted speech, a ventilator for breathing and a feeding tube.  In my mind, I saw the familiar image of him hunched over in his powered wheelchair when the doctor gave me my diagnosis on that St. Patrick's Day morning.
 
It had only been the day before that I had returned from Northern Virginia where Dan and I were recording our ninth Lowen & Navarro record.  We were working with a great cast of musicians and a fine producer, John Whynot, and the creative juices were flowing.  The studio was up a flight of stairs which already was quite difficult for me to climb, but is is a far cry from where I am now, barely able to take a few small steps while holding on to something.  During the sessions we had recorded a song by Dave Moore called, “All the Time In the World”.  It was rare for us to record a song we did not write, but it was for a planned future record of all cover tunes and besides, the meaning of the song hit me very hard because for about a year I had noticed changes in my body and I knew that something was horribly wrong.  During the rest of the recording, my sickness became the “600 pound gorilla” hanging over us.

For me it was a time of decisions and some confusion about how to proceed with my life.  I was engaged to be married and the family that was going to be created would include five ten year olds (her triplets, my twins, three days apart).  There was a school of thought that I should immediately quit my nutty job as singer-songwriter touring musician.  There were also some questions directed at my wife in the nature of “ are you still going to get married?”  Well, she did still marry me, I have lots of 12 year olds now AND I kept my crazy job in spite of becoming disabled.  It became really obvious to me that what I have spent my life doing is much more than just a job, it’s more of a “calling” as my clergyman father would have referred to it.  Music has huge elements of something magical in it and it has the power to reach people in ways that nothing else can.  I don’t want to paint it that I have continued out of some sense of responsibility to the audience, although I do feel one, I want to do what I am doing, and in the twenty-odd years I have been pursuing it, it has become a large part of who I am.  My partnership with Dan Navarro has been a very long one too and with the many musicians and writers we collaborate with.  They make up a musical community that has been a huge support for me through these tough times.

What has happened for me is that the experience of being a performer and a songwriter has deepened in ways I could never have foreseen.  Dan and I have always tried to make sure that we wrote about issues that mattered to us.  In some cases it may have hurt us (on one release we had not one, but two songs with the word “middle-aged” in them . . . not a wise move for getting radio play).  We have written plenty about relationships and growing up.  While that never got us a mainstream audience it did resonate with the amazingly loyal fans we did connect with.  Now I have a new sort of viewpoint to add with the addition of a serious illness.  I have written a few songs that deal with it directly, but what strikes me is that the things I am facing and the lessons I am learning really apply to all of us, we all face inevitable physical decline at some point and of course we all die.  A dear friend of mine gave me a good perspective on it at the time of my diagnosis when she said “ we are all on a journey. . . you just have a better map.”   

A songwriter named Michael Smotherman once told me “in this business, survival is success.”  I have survived and I actually feel successful, although some might not agree if they checked my tax returns.  Now I am facing the end of all that in the uncertain future dictated by a serious illness.  Eventually, I will no longer be able to make my guitar speak, that friend who got me through puberty and still comforts me today.  Finally my voice will be mute as the disease takes its inevitable course.  That will be harder than I can express, and I am sure that well before then, I will have had to stop flying around the country doing gigs. Right now though, I am thrilled to still be able to do what I truly love and feel I was born to do.  I am able to educate audiences about ALS and still able to make a connection that matters, both to me and hopefully to them.  If there is distaste on their part watching me be hoisted on the stage and placed in a chair, they don’t show it.  They don’t even mind that my fingers can’t do all they once did on the fingerboard, what seems to matter is that the music is still doing the magic that music does and that the connection still happens.

This job is not a chosen one, it chooses one.  It has never been easy and it is getting harder now, but I would never trade the experience for anything.  The mysterious and magical thrill of writing a song, the charge of being in front of an audience, and also the exhilaration of speaking in the language of music with other musicians.  It will end for me, but the songs will go on and the memories are mine forever.  I think I really understand what Lou Gehrig meant in his famous retirement speech when he said, “Today I feel like the luckiest man on the face of the earth.”