Greg Correll

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Greg Correll

Greg Correll
Location
New Paltz, New York, US
Birthday
September 21
Title
Founder, Chief of Deselopy (small packages); Editor (doesthismakesense.com)
Company
small packages, inc.
Bio
I write.

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JANUARY 19, 2012 12:14AM

Found

Rate: 114 Flag
Today four mild doctors on the Upright East Side, four Mosi from Mt. Sinai, tell me it's Parkinson's.

No. It's not.

They turn my hands and watch me walk, hold one arm and elbow while making me touch finger to thumb, and they nod and query – did you know you do not swing your right arm when you walk? – and whisper and type, and because they are The Best I get quality eye-contact and bright sentences and a sincere promise to monitor my decay every four months from here on in.

From here on in.

Their office is between 5th and Madison, near the Met. Nice. I go across the street to Central Park, after, to a bench below a specimen tree. Old, giant-sized, with strong, thick, twisted limbs – I decide to visit this tree after every appointment, even when it becomes new to me, and I am ever after, even when the word Tree and the idea of Limb are lost to me, and I am just the act of seeing, the shaking green, the changeable cirrus, the oaken splendor, until I am all verb and noun and no syntax.

Not a quivering care in the world.

I post my confusion on Facebook. Kindness, in clicks and chunks. It does not penetrate. I will look again later.

I go to the New York Public Library, a few blocks away. No, I stumble there. It is cold outside so it looks like my eyes are wet and stinging from the wind. Well, good. I can be myself. I look up Parkinson's in Volume Two of "The Gale Encyclopedia of Neurological Disorders" – why, of course I do – publication date 2005, page 646. Early signs: tremors (yes, severe, spreading), slow movements (yes), stiffness or rigidity (not yet). It begins on one side (yep, my entire right side, and it is starting to occur in my left hand, which means it is accelerating), the shakes increase when you rest (oh yes, night time is grimace city, manic movement, Pagannini palsy), and dizzyness and 'postural instability' when standing up (yes, going back five years; this is one of the indications that I am early onset and it is advanced; I am 56, the average age for onset for most lucky ducks is, let's see: 62).

Ah, ok. Well, shit. There is a whole sad list of signs and wonders: the reduced voice volume and impotence and foot cramps and handwriting changes and sleep disturbance – yes yes yes yes yes – and so much more. Let's peek at what's ahead: dementia, full body quaking, permanent rigidity, paranoia. And then there's the ineffectiveness of the drugs after things progress, and the side effects they cause: confusion, hallucinations, nausea, vomiting. I write down the names of the drugs and what kinds of drugs they are, and about mysterious and wonderful LSVT, and how this and that can slow it down, buy time for the 65- and 70-year-olds who add it to the list of What's Not Working. I look for encouragement. I find terror.

Don't look at me that way. This is my first day, my very first hours. Later I will soldier on and game face and all that but I want to know, I need to know, what might happen to a younger man like me, a man who will still have vigor when it is stolen by spastic distortion and hideous drugs that stop working anyway.

I write down: see: David L. Cram, "Understanding Parkinson Disease: A Self-Help Guide." I hiccup a laugh and then I lose it, Niagara Falls, right there at the old wooden table, dishonest tears of hilarious self-pity for the idea of "Self-Help", when the Self has left for Siberia, or is locked up in angry, useless jell-o. I embarrass myself, so I leave. I walk downstairs.

I call a friend who knows about grief. We chat in the musty library foyer. She talks to me in ordinary declarations and soothes me, sets me right, for about 5 minutes.

I walk. I think nothing. I think about forgiving someone. I think about the next three to five years, my realistic, fairly-certain window of opportunity. I let it sink in: it's Parkinson's.

No. It's not.

I sit again. Purebred dogs on nice leather leashes. A gangly puppy comes straight at me sitting there, like He Knows. A simple-minded licking machine: there, all better. Plucked and coifed runners in lycra smug past. Students on cell-phones, aging trust fund babies. Fucketyfuckfuckfuck. I hate this part of town.

Nannies with toney strollers, cursing at the cold. Will I know my grandchildren? It's Grandpa, who speaks in vowels and makes everyone uncomfortable. I watch those damn cirrus clouds.

I walk downtown. I go ahead and wince and blink. I let my hands shake, instead of hiding it as I usually do. It's not usual, none of it, from here on in. It just is. Let's see what happens.

It's good to feel empty. Not morose, just...blank. I am still me. Same as yesterday. I ache, though – my chest, my jaw. I feel that grief ache – that skull, sinuses, burning-eyes-brimming thing – until we emerge from the Holland Tunnel and curve into the laid-out dusk of New Jersey, on the bus going back home, upstate.

The sun has set, minutes ago. I am empty empty now, smelling diesel, feeling nothing but the pull and momentum of eight wheels and ten tons on the Garden State concrete. I look out the window – and it's this world, see?

I am just like that switched from ache and empty to ache and wonder. All the same sensations, but now I am crazy love for the lost sunlight, for the light that's still left, the after-sunset-pure-oil-paint-bue-and-orange, reflected in a canal in Jersey, for God's sake, glimpsed from a Trailways window.

How can this be? This beauty transforms me, a beauty that needs a new word, an infinite, ancient word that has never been uttered.

I think maybe I finally know what I mean. What I always and forever mean.

I mean: I rest my forehead on the cold glass and watch this light, and I lean in and hear this new old word, as old as everything in the new old world, and it kills me. I swoon. All of this, the whole life and Earth and time, all of it. It kills me.

I mean I feel this: from here on in? Hear o Israel, all infidels and freckled babies and all lovers in covers; o best beloveds, hear me: it's not Parkinson's.

I am. I am Parkinson's. And I am not it. I am Parkinson's and ok, mortal decay, and if so then I am all in, in all I see and smell and hear and touch. And the feeling lasts, I am one even with all of the endless retail ugliness of Route 17, and this un-repentance in my ignorant hand, and yes, I am war in the trenches, down the line, sure, and I am cirrus up there in the dying light, the faux rose before the black night, and I am guilty of all I have done and will do, I am, and I am my shake and grimace and tremor, my compulsive tics and lost parts, I am, and I am the decay that is to come, ok, and I am an end, I am The End, ok, but I am not bitter. For no good reason; really just because. Because...because the light blesses sodden ruin on a lousy waterway, because a final glow blesses me and my toxic byways; because a light, a light! is in me now and forever, until I lose all and end, and so I am Parkinson's. I am. I am the belled and forgotten and terrible beauty of my self, forgiven and forgiving, rocked on a bus, going home, indistinguishable from what I see and who I love and what the world is now, and now, and now, whole and turning under us all, and I am not lost.

No. I'm not It. I am losing It, the false and empty It that keeps us bleary and absent-minded and lost.

I focus now. I am mindful. Watch this: lean in with me: the water, the cirrus, the last light, me, my involuntary and rebellious me, and all of this, now now now? is just all, the unknowable word known, the it world of parts made whole, and oh, oh well, yes, later I will be lost, ok, fragmented, cruelly shaken to pieces, and and and even so NOW I own all, I let all go, known and unknown, for the sake of nothing. For corpuscular photons bent by dense oxygen. The majesty of absurd reality. Silly me.

Later I will not recognize these words, I will not know this was me, here – but now, right now, I am not lost. I am the water, I am the light, ugly and true and blazing still.

And I am Found.

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You are. You are Greg Correll, writer.
Damn man..
I'm ... staggered. This is sort of the anti-Buddha path to enlightenment.
what tr ig said - I have no other words
A differnet neuro rock is mine to push up the hill, but you have so eloquently captured the beginning. The beginning, the beginning. You learn to live with it or to find a state of denial that allows you to live your life. You will play the hand you are dealt and you - you - will play it with the utmost aplomb. I wish it were not so but I am also confident, you can.
yes, we are definitely a puff of breath, & on a precipice & trying to deal with all the blows & find something luminous in the process of failing health. You seem to have found that luminous place, & I hope you keep finding it during despairing moments/hours/days of this shitty fucking "disease." The older I get, the more I wonder what exactly is going to plague me. The ideal I had as a young woman of this sexy old lady in perfect health is not so realistic as before, & the only bizarrely positive note in the whole deal is having friends who are all dealing with crucibles past troubled kids & divorces -- now we deal with cancer & heart palpitations & diabetes & Parkinson's.

What I'm trying to say -- & not very well -- is that we also offer "clicks & chunks" of "kindness." And a willing ear for eloquence, joy, laments, whatever you give us. Wishing you peace with this crappy life-dealt card in this "strange & terrible world."
leaning in WITH you-now, now, now
and NOW: You ARE the light.
You said this, "but now, right now, I am not lost. I am the water, I am the light, ugly and true and blazing still.

And I am Found." Yes, I think this is true. And I am truly sorry for this thing that has entered your life. I loved your "leaning into it". I think perhaps that is the place we can find joy. R
Found is simply profound.
oh my.
You are not a disease, Greg. You are a damn fine writer. You're a husband and a father. You happen to have a disease.

It's a one way trip for all of us. You happen to know how yours is gonna end.

That's all.

You're a writer.
♥╔═══╦╗╔╗╔╦═══╦═══╦════╗♥
♥║╔═╗║║║║║║╔══╣╔══╣╔╗╔╗║♥
♥║╚══╣║║║║║╚══╣╚══╬╝║║╚╝♥
♥╚══╗║╚╝╚╝║╔══╣╔══╝─║║
♥║╚═╝╠╗╔╗╔╣╚══╣╚══╗─║║
♥╚═══╝╚╝╚╝╚═══╩═══╝─╚╝ I am so glad I FOUND this....Cheers!
Your posts have always been inspiring and so why am I not surprised that you have ALREADY taken the feelings of loss and despair and turned them into pure lyricism and light? Carry on, sir.
Thoreau was wrong, Freud a junkie, Correll a writer.
This
For once in my life I can say I know this.
ah Greg ther will be those of us always there to tell you that you are among the very finest persons and writers we have ever known



r.
Stim, Greg is the Buddha. And in this magical moment, so are we.
I'm saddened by your illness Greg...and at the same time carried gracefully along by the genius of your written thoughts on this. This piece is perhaps the best essay I have ever read on this issue...more later...
As my husband stumbles forward with M.S. and cancer, he is living what you write and I'm living it also. Last night I told him: you are brave to get surgery; if I get cancer I will do the least invasive method. Minimal. I am not interested in survival at all costs; but we each have our own path.
My body is my unfaithful friend; it will eventually betray me.

Lew
Beautifully written. My heart goes out to you. My mom had Parkinson's, diagnosed in her 50's, and lived into her 80's, dying of old age. We had to play around with medications, and she had some stumbles, but mainly she had a good life, and good years, to the end.
Thank you for this very honest and moving reaction to what must be devastating news. I have a few symptoms myself that may or may not be PD. But there are also medical advances to consider that may alleviate symptoms considerably. Keep writing and sharing!
What a perfect expression of how we feel when finally we know what has caused the betrayal of our bodies, the taking control of our thoughts about it. Greg, thank you for writing this...I will go back to this every time I also hurt, question the reality, then go on and live as fully as possible.
You are not (only) this illness. You will never be (only) someone who is ill and struggling. Your talent is huge and your ability to connect and communicate will not diminish.

I am very sorry you've been slammed with this terrifying news.
My first thought: I am so sorry.....I can imagine the pain of realization and the fear that accompanied it. My second thought: There is always hope....for newer cures and better meds that will allow you to continue living as you desire. I will keep you in my prayers.....
here for you, ordinary for extraordinary
In this writing, I see the endless circle of ourselves. You have mastered this step into the melange of utter complexity. You have shared something that dare not speak its name aloud and made it our experience if only for a slim wink of time. This is something, like fresh baked bread that is overpowering in the moment and best shared with all who can read. It carries the meaning of the universe deep within it.

Algis posted this on my work this morning, and I pass it on to you:

* BEAUTIFUL SOUL AWARD!**** Once you have been given this award, you are supposed to paste it on the wall of AT LEAST 5 women/ men who deserve it. If you receive more than 3, you know you are truly special....You rock!! Its just to appreciate each other. It is always sweet to know that someone thinks you're a wonderful and special Person ♥♥♥ you are dont ever forget.

.....

It is not the gift, but the thought that counts. You have made our world here reach beyond its small dimension of electronic time and space. Thank you for sharing.
Reminds me of Martin Buber's writing. I and thou. I was inside your mind there for awhile and it was tough. Thank you for this. Please write more.
Your last 3 sentences are beautifully composed. Keep them in your heart as you face the future, which will probably be difficult one moment and enlightening the next. All the best, Greg...
Utterly profound. Touching, truthful, and powerful.
Yes, but we will always know this was you, and, in the end, that may be all we have--these fragments of memories in other people's minds. You are found, indeed. xo.
I wish my dad could have read this. He spent the last fifteen years of his life with Parkinson's. He never gave up. This was the most beautiful piece of writing I have ever witnessed. You are truly blessed with insight and strength. Thank you Greg. Rated of course.
Your poetry rings clear and true in this amazing realization.
You are the water - You are the light
You will burn bright for a very long time
and your words will bring the planet peace
rated with love
I have glimpsed this thing you have found through lighted candles and ash remains of incense, in mountain tops and jungle heat, through prayer and chants and meditations and mantras, during times of intense joy and mostly sorrow.

Peace.
Well ... damn. I'm terribly sorry, Greg, And that's just so inadequate.

If you don't mind a suggestion, you might want to read Michael J. Fox's autobiographies in which he details his life with Parkinson's. They're inspirational, telling, truthful, funny and sad, all at once. He is an admirable person.

There's also a website detailing his efforts in Parkinson's research and funding: www.michaeljfox.org/ To date, the foundation has raised $270 million in cash and partnerships.
You are many amazing things Greg, especially an amazing writer, but also an excellent Dad and husband and one of the good guys all around. I have full confidence that you will find a way to bear this horrible news and your new reality with aplomb and live a long and productive life.
That you are already writing is amazing. You won't be on this journey alone, Greg.
The news shocked me -- You are in my thoughts. This piece is so devastatingly beautiful, honest and deep.
Your words, writing are profound. I will be reading to you even when you do not know me.
and Greg, you will never cease being a mentor, even unwittingly, to all of us who take our writing as seriously as you do yours
Moved to silence. I can think of nothing intelligent to say. Fuck Parkinson's!
poem, prose, expose,
cry I AM,
brutal truthful essay
all this is
yes...
you are more
and yet again
more
Cookies. Comfort food. Always my way of caring for a friend. Email your address when you are ready for some.
What everyone else has said, Greg Correll. Stunningly crafted piece; heartbreaking and wise. This piece of yours will be long with all of us and all of us however best we can be, with _you_. Not, as you said, "it". You. Are a marvel.
Sending my shaky love into the universe, on a Trailways bus to NY and you.
This is so gorgeously written. I am so sorry. I was going to say I can't imagine, and then I realized your writing has helped me to, a little.
I've read from a distance for a very long time. Now, I am here, leaning in with you, whispering in your ear:
You are fearfully and wonderfully and beautifully YOU. This newest mountain you will climb will not be one you will climb completely alone or without the love and steadiness of those who have been fortunate to have you in their lives - both in arms reach and at a distance.
These words you have written, the tears you have brought to our eyes, are evidence, beyond all else, that you are, indeed, Found.
Honestly painful, and painfully beautiful....
Such an eloquent description of a place we will all visit, alone. That is the hardest part, the alone. Many can hold your hand, but you can't take anyone with you.

There is never much to say, except "shit", which is oddly comforting. You come to recognize those who use a certain tone of voice, a look of pity in their eyes. They aren't invited to sit on the bench. You begin to squeeze the juice out of every day, suck each one dry like a husk. Maybe you'll write about it some. Just like this.

Shit.
Shit.
Shit.
Greg, I have done something that I rarely ever do. I have shared your story on FaceBook and I did that because I think everyone should read your story. I can only hope that, if I am ever faced with this sort of adversity, I will react with even half the courage and grace which you have shown. You have my unqualified respect.
We are all boxers, entering the ring with youth and vigor and a certainty that we will prevail against all odds. I've found the further you go, the harder it is when you get that first unexpected gut punch, it sucks all the air out of your lungs and freezes time as you wonder why the hell you can't breathe, can't see anything for the sudden tunnel vision.

Sending you good thoughts and prayers, Greg.
[ ]

That is the space where I would have put words, if I only had them.
Once again, as on FB, checking in after a looong line of people who love and admire you, Greg. Sending my love.
You made me laugh.
"It's Grandpa, who speaks in vowels and makes everyone uncomfortable."
My grandpa's voice became this way, for the same reason, but I knew there was much more to him despite there being only six shared years.
You will always make an impact.
You distill so much of Life into your words, your truths, and make me Feel with a capital F.
forgive me my silence. I am veering from work, ordinary work, distracting and necessary, and seeing this kind and penetrating outpouring. Well, damn. I know it is like that momentary light I saw, that this is today and tomorrow will be other news, recipes, diversions – but thank you for today. I think perhaps in a few weeks I will make a short video and post it, a thank you, and a coming out. I was told to stop hiding this, to stop masking the involuntary movements, stop dosing myself with Xanax. That my attempts to hide it are only making me compulsive and shamed and ill. Ok, so that's it. I always do what I saw I will do, so: I will vid me reading a short poem or some such and let you see. And then maybe I will see: it's not so bad. I can live with this. And if I get worse in a few years, I will look so much better now! Ha!
Lets sing, sing, sing 'til we are gone. Nothing that matters can be touched by this any mere 'thing'. You are glorious Greg and already your voice soars. All hail Greglet!
genuine eloquence in the extreme. I am going to do something daily for you, pray fervently that a better curative is found to prolong the quality of your life here on this plane. Keep writing - writing is obviously your calling in this lifetime. Keep hoping - there is more in the unseen and unknown than the seen and known. Keep going places and seeing sights you have never seen before. Keep a journal of your journey from here on out for others to traverse... you have already left your mark on people's hearts and you have more work to do and people to touch.
Any comment I could post would be woefully inadequate.
Greg- When I wrote about my mother's Parkinson's diagnosis, Steve Blevins wrote and dedicated this post to me and to her. I am not sure if you have read it and I wanted to make sure you found your way to it. I think about his words almost every day. Wishing you a world no less sublime...with love to you and to Steve.
http://open.salon.com/blog/steve_blevins/2009/04/01/a_world_no_less_sublime
Well, I stalled long enough, searching for something profound and soothing to say, until I got near the end of the comments and saw yours. And there it was. Your sense of humor had beaten back the pain long enough for you to make a joke. Yay, Greg. You have shown with this piece that your talent allows you to turn shit into beauty. Stop hiding, come on out and shower us with all the beautiful words you'll have to come.

Lezlie
I am so sorry but I thank you for being willing to tell your story.
Thank you for writing this. Life is not fair.
This might be the best thing I've ever read on Open. It's one of the best essays I've ever read anywhere, for that matter. Blessings to you on this journey. And thank you.
R
Four mild doctors and one devastating diagnosis add up to an infinite rush of thoughts and emotions. Blindingly, searingly, brilliantly told. I was unable to tear my eyes away; you threw open the doors to your very soul. Yes it is, but you're not it - your blaze overwhelms it and lights your way.
blazing still

May your candle burn at both ends
make a mockery of foes & find comfort in friends
bathing us all in a lovely light

that will never be extinguished

Strength & Honor to you Greg
Dear friend, I love you.
That was one of the most beautiful stories I have read in a long time, anywhere. You are an incredible writer, Greg. Hold fast.
all the things i could say, wish i'd said, what i thought as i read this piece have been written here already by you and many of the commenters, our friends here. i am, as usual, astonished by your insight (and in/sight) and how your paragraphs make me feel as though what you're experiencing is happening to me. you may have entered a strange and terrible world, but that world (and we folk in it) will benefit from your ability to describe it so astonishingly well.
Courage and grace - that is you, Greg Correll.
~R~
VERY powerful. Wishing you peace.
Greg,
This is absolutely wonderful writing. Vital and deeply inspirational. All I've said before I would say again now. You're an incredibly talented soul with an awesome heart. I'm honored to know you.

Thank you for giving us your best - always.

Rated and appreciated with much, much, gratitude.
Peace be with you brother, and thank you for your shimmering, ardent prose.
I am stunned by your writing. And inadequate in anything I could say. Write on, man, and do not go gently.
Scientists and doctors only address items of corporate, solid state, five sense being.

Correll can obviously address the soul. No, wait. This essay goes beyond soul! It goes to the God Particle.

And his God Particle is in 100 percent perfect health.
I'm so sorry to hear this unfortunate news. You've written about it in such a moving way.

I lost my dad to Parkinson's 4 years ago. After spending so much time with him during that journey, I'd never wish the experience on anyone. He was 60 when he was diagnosed, after showing symptoms for a few years. We lost him when he was almost 73, and he never gave up until the very end.

I hope that finding moments of beauty in the here and now can give you comfort on your journey. Let your family and friends be with you and help you.
I don't know whether to weep or rejoice. Few things in life are quite this fine. Thank you for sharing.
What is the meaning of "Mosi"? I looked in a number of places, but all I found were acronyms that didn't fit.
Oh, my.
Your writing unleashes. I am pole'd.
Am thinking of you. So hard.
You have many allies, in the medical world.
Best,
Cmc
Amen...forever and ever.
I felt like someone stabbed me in the gut when I read this Greg.

One of my teachers in my ministerial studies used to tell me that it was important to teach folks how important the words are that we choose to use to complete the sentence that begins with "I am." You've demonstrated a transformational understanding of the grounds for that lesson and I am so glad that you are here.
If I knew this would get an EP, Greg, I would have gotten Parkinson's a long time ago. This might offend some, but this doesn't change how I feel about you as a writer or virtual friend. I still gotta be me...and you still gotta be you.
Wow that's some amazing writing, Greg. Truly impressive. I wish you didn't have to write about this, but I'm glad you did. Up on my FB page.
Greg, So sorry to read this but your words - if any consolation - soar here . We have a brother-in-law who has had Parkinson's for about 5 years now. There are miracle drugs out there and, well, they are performing ... miracles.
You continue to be one of the best writers on this site. And you bring so much to our lives.
So eoloquent. And this - the essence of a writer's fear: "until I am all verb and noun and no syntax".
Just getting in line to add my support, my praise for your writing and my ear to listen to all you have to say on your journey.
you are an AMAZING man, with an AMAZING heart. The rest we will help you get through, hard days, good days, and all the in between.
No matter how many private tears and pain and twitches and fears, you are courage incarnate. Brilliant writing, overflowing with humor, insight, determination, perspective and crucial messages for all who face similar challenges. Yes, tomorrow will bring other stories, but yours remains with those who love and admire and respect and support you.
The truth of anything/everything light and dark that comprises the human experience was channeled in this devastating post. You ARE the medium. My heart aches for you as my soul nods in astounded agreement.
So beautifully written, conveying your feelings profoundly. No words from me can give comfort but you are loved and respected more than I can say.
Gregory,

Please watch for my:

Unforgettable Nam Era Hippies

Jim
Greg!! WHAT???!!! Such a shock and a shock and a shock... I'll be praying... You be writing. Blessings and love....
Powerfully written Greg. It's a daunting condition, no doubt about it, and you've captured the intrusion of mortality we all face. I think I've never taken it as seriously as other conditions because, well, "Parkinson" just sounds so innocuous. Kind of a clean, official name. Sounds like an accountant. Good luck with the coping.
With you in thoughts and grateful for your writing. ♥
I'm with Stim. I also love the jagged, natural flow of language, the inner conflict that tosses us to and fro. It's an "in the moment" piece. It's jazz in feel to me. Really amazing piece.
Deeply moved here.

I should also like to say that this was not only the best thing I ever read on OS, it was one of the best pieces of writing I have ever read.
everything, even illness, can be a journey...and you're an amazing traveler. thank-you for sharing this with us.
Beautiful, healing, intense, meaningful, and connected. You truly own who you are, and your ability to share transcends......The remarks reflect the beauty, and majesty of this community. Rated, and shared to fb, as your writing deserves wide dissemination.
Wow. You have my admiration for this incredible piece of writing. It's gutsy and real and beautiful. And you have my sympathy for your diagnosis. But first, first, you have my admiration.
You have the right to be all these emotions Greg. You're writing is stunning and I thank you for sharing with us. You will always be an incredible human being.
I am speechless from this profound and beautiful piece of writing.
This is so beautifully written and with such powerful emotion I feel breathless. You are a wonderful writer and a good person I'm sure of, and your soul will shine on. Please keep hope in that so many medical advances get made everyday. Don't give in and let IT be you. You are you and you are truly amazing.
I wish I had magic words...
Oh man, Greg. Holding you in the Light and sending love.
Greg, I like your comment about the video. You have the capacity to share this like no other and we will have the grace to learn.
I don't know what to say that will make a difference. I lost my mom to Alzheimer's. I have episodes of random neurological events, dizziness, cataplexy, minor seizures. It scares me to death. You've shown more courage in this piece than I have mustered in the last 20 years of dreading the decline of my brain. Mind if I use you for a role model? Your situation is tragic, but not the tragedy of defeat.
Well. This piece is now on Big Salon. Now the whole world can meet your glorious self. Peace to you.
Thank you to all of you, and to the many PMs and personal stories and tips and wishes for me. Wotta deal, these internets: live, then type, then live, more typetype, live, wallop! and somehow our trembling selves chime together for a time, the useful first brief part of the new time, post-wallop. A stone groove, together like this, before we resume our ragged, plodding, solitary walks again.
And Big Salon, cover, go figure. Emily is so sweet, she warned me it might be a bit rough in the comments. Those darn internets. It'll be good for me. I ain't fragile, just shaky. I said all comments reflect on the commenter, not us.
Love love love to all sentient beans. Watch the skies!
Take a sick day, pal.
What J.P. said. [Meanwhile; special thanks for "I ain't fragile; just shaky". That should be a motto posted somewhere for all PD-ers (and their families) to enjoy and take heart from!!]

R+++ [again ;-)]
I've read several pieces here that parallel a similar personal revelation and crisis but few, if any, have been so compelling and well-written. Bravo.
I am so saddened to hear of your diagnosis. This was a stunningly moving and beautiful and sad and inspiring and uplifting piece. I hope that light that you see will fill in all the holes and cracks and broken places until all you can do is blaze brightly for us all.
Not looking. Reading again. Again. Heart weeper.
Greg, I tried for two hours to figure out why I couldn't post a comment at Salon, and ended up emailing their helpdesk. Be aware that I'm probably not the only one having difficulties doing that, ever since they changed their requirements for commenting. My guess is you have many more who would leave their sincere compliments if they could.

Anyway, I can at least do it here, and tell you how your transcendent writing leaves me wishing with all my heart that I could wield words and sentences with such grace.
Greg: this gave me chills, made me cry and gave me hope— one right after the other. God bless you.
I would know it's you. Couldn't be anyone else. Peace and love.
You are amazing man, writer, feeler of truth and knower of what is to come. You endure it. You wing it. You live it and live it well. Love, blessings, light and joy.
Responding to a friend who forwarded your astonishing piece, I realized it should rather add to the conversation here...
"A stunning piece and clearly one where a select group of readers find themselves/ourselves nodding fascinated and horrified at the
piercing light he/you shine(s) on those private dark moments as we gasp with recognition and simultaneously take great pleasure
in his/your fine and generous perceptive spirit."
brutal and yet very beautiful. art that imitates life but is not life.
Yes, Greg, in far more ways than you may know ... as you write such words ... and bring us there ... inside ... with you ... you are ... for yourself ... and for all of us who come ... and read ... the light ... may you not be the only one ... here ... found ...

How your words touched me ... and then ... I saw Molly’s words to you ... words of love ... all of these ...