Hells Bells

Hells Bells
Location
Heart of the Heart of the Country
Birthday
February 01
Bio
Book editor, parent, MFA in poetry from a land far, far, away--and a long, long time ago . . . I'm not a psychologist, but I play one on TV.

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APRIL 7, 2009 10:33PM

Why I Wrote the Bipolar Child Story

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 "disloyal," by my daughter

LAST MONTH, I posted a story about what it’s like living with my bipolar child. I’m mostly a poet, and I tend to think in images and metaphors—so it was an extended metaphor about a puppy:

It's like having this beautiful puppy. And sometimes it's great being with the puppy. It climbs up  into your lap, and you stroke its soft fur. It looks at you, and you can see it loves you. It even says, "I love you." And you love it back, and it feels like everything is going to be all right.

But sometimes when you put the puppy's dish down, it growls, "I despise you. Get away from my dish." And you try to explain, you don't need to growl at me, I'm just trying to feed you, but the puppy has a certain look in its eyes that makes you feel afraid, so you back out of the room, slowly, and leave it alone to eat.

 If you're honest, you'll admit that the puppy has actually bitten you, and drawn blood. Sometimes you get out the bandages and bind up the wound yourself, without telling anyone. You feel ashamed.

 Sometimes you wish you had never gotten the puppy to begin with. Sometimes you think it would be best to knock the puppy into next week, and then you can't believe what a horrible person you are to think such things, because you still feel love for this puppy. You know that no one else will understand it or take care of it the way you do, and there are still times when it's good, and you want so much for the puppy to be happy and to have a good life.

So today, the puppy comes running up to you and wants to play. The puppy is all "Throw me the stick! Throw me the stick!" and wagging its tail. So you put aside your doubts and take it to the park, and you throw the stick.  The puppy--really a young dog now--runs full out, and it is truly lovely to see it so free. It catches the stick in its mouth, effortlessly, and brings it back to you.

Its eyes bright, it drops the stick at your feet and says, "Here's your fucking stick, bitch."

THE CHILD is my beautiful 19-year-old daughter. She has light auburn hair, with green eyes and freckles, and stands about five-two.

After high school, she took up with a boy a few years older who was charming and charismatic and almost certainly a sociopath. She began to spend more time with him and finally moved into his apartment. His disease fed her disease, and she went off her meds. He hit her. The neighbors frequently called the police.

 She got very thin, and sometimes her hair and clothes were dirty. After a while, she lost the job she had packing orders for a sporting goods company. It seemed to me that it was only a matter of time before someone really got hurt or went to jail . . . for more than just a night.

I tried hard to follow the advice they gave me at the women’s shelter—not to pressure her but to let her make the decision to leave him in her own time—but sometimes I just lost it and yelled at her to stop being such an idiot and get out.

And then, finally, she did leave him. She moved back home, into my basement. She started taking medicine because that was one of the conditions on the contract I made her sign. And in a few months I saw her gradually . . . getting better. She ate and slept more regularly and began to look more normal.

We signed her up for classes at the community college, and I made her get up every morning and drove her there. When I let her off, the whole thing reminded me of taking her to kindergarten--the backpack, maybe, and something in the determined set of her shoulders as she walked away from me.

But as she was getting better, I was getting . . . worse. She was still extremely irritable and irrational. It was crazy even to attempt to reason with her, but I tried anyway. Even her good moods made me edgy. Her enthusiasm was better than her abuse, but not a lot. It was exhausting and there was something off about it. I was afraid of her getting too happy, because I knew that after too happy comes the next thing.

And the next thing came--she had three major meltdowns in a span of about ten days.

When she broke a window, I demanded that we go to the psych hospital, even though I was scared to get in the car alone with her. A police officer I’d talked to during one of the domestic disturbances between her and her boyfriend had told me that if I called 911, they’d send an ambulance and take her forcibly for an evaluation. The threat was enough to get her to go voluntarily, but of course she didn’t agree to treatment. She was over 18. There was nothing I could do.

I could also see my 15-year-old son was having a hard time, though he denied it. During one meltdown, I left her briefly to see if he was okay. I found the door to his bedroom shut and the light off. He was huddled in his closet with his laptop, but he was fine, Mom, really . . . fine.

I’d wanted her home so intensely that it was a gnawing physical sensation, like a hunger pang. But now I didn’t. Now I wanted her out.

I knew I could lock her out with the second set of locks I’d had installed. But she told me she’d just break in, and then what would I do? I’d have to call the police to arrest her. Would I press charges for trespassing or get a restraining order against her? And where would she stay if she left? She had no friends, and her dad and stepmom wouldn’t have her in their house. I pictured her on the street, where she would wind up really sick, or hurt . . . or worse.

But if she didn’t leave, it seemed certain that I would self-combust. My hypervigilence during the day meant I’d gotten strung out from lack of sleep, and couldn’t concentrate at work. The stress had aggravated  my own anxious depression, and none of the meds I was taking helped. If I couldn’t function, soon I’d be no good to anyone--her or my son.

The conflict was excruciating, and I wrote the story. Before I posted the piece, I debated long and hard over pushing the “publish” button. But after I did, I felt better. At least the pain inside of me was now outside. 

 Of course it was. I’d given it to you.

NEXT: What happened when I showed her the story

 

 

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This story is compelling. On OS I'm known as writer, but in my professional life I worked as a counselor, helping psychiatric patients. I do understand the minefield you've crossed, the shrapnel you've felt.
--rated--
You've described so well the excruciating struggle between truly loving someone and needing to love yourself...when those two don't go together.

I teach at an at-risk school and deal with some fraction of this often. I finally found some peace in two Biblical stories (which surprised me). One tells me that we must go after the lost sheep. However, the other tells us that some people, no matter how hard we try, won't hear us. We're told, then, that we must leave and wipe the dust from our feet (which I feel means we can't let it eat us up, or else we'll burn out and be of no use to anyone).

I wish you luck on this and am looking forward to your next post. Thanks for sharing such a personal and yet common struggle.
Hells Bells, I don't know what to say. I wish there was something anyone could say to help. I so admire your courage and compassion. Keep hitting the publish button.
Your "Why I Hate My BiPolar Child" comforted me immensely. Because you were brave and honest, your post inspired me to blog about my own experience with my BiPolar child. Today, reading your post, I felt not so alone.

And that was because of you.

Thank you.
This is so painful, and so important, as was your first post. So many impossible decisions, whether the child has mental illness or addiction. So much you never could have imagined when they were tiny and you rocked them to sleep. Prayers for you, and I'm eager to read more of your story.
Hi Hells,
I am sympathetic to your problem, it seems my now just turned 17 year old daughter also has those strong surges. She has been dealing with a new crew of somewhat misfit girls, I'll call them. They are an interesting lot, she barely comes home, claiming that the house smells, (hardly). She was decent at her birthday party, after me and her father convinced her to come hang out, at a friends local pizzeria, while her father was singing. We were campy, and I dressed in some modern hippie fashion chic out fit. Her friends were decent for the age, and we actually were singing songs from the 70's, a favorite activity for me. She laughed, thankfully, maybe shes not seeing me and her father as such a threat anymore. We have been trying so hard, to not fight about stuff, knowing what we know, that she and her father could become very violent in a matter of minutes is definitely frightening. You would never know it, other wise, strange. But what ever your daughter is experienceing I hope she finds some kind of peace to deal with it. It sounds like you are doing as much as you can on your end, I feel for your 15 year old as well. But if he's more centered, he'll figure out, it's just the way she deals with stuff, that she can't deal with. Good luck
You do wonderful work. I have broken my OS fast to come back to your story, which as Mr.M says, is compelling. Especially since I have hit the same "Publish" button on my story, and then after less than twelve hours, and a relentless anxiety, copied, then deleted it from OS. It made me too nervous to leave my bi-polar story exposed to the real world. Maybe another time...but for now, what you are learning from your story helps me to understand my story. Thank you so much for having the courage to tell it. Peace be to you and to yours.
You do wonderful work. I have broken my OS fast to come back to your story, which as Mr.M says, is compelling. Especially since I have hit the same "Publish" button on my story, and then after less than twelve hours, and a relentless anxiety, copied, then deleted it from OS. It made me too nervous to leave my bi-polar story exposed to the real world. Maybe another time...but for now, what you are learning from your story helps me to understand my story. Thank you so much for having the courage to tell it. Peace be to you and to yours.
If I could rate ten times I would. Because I live this story too.
Wow, wow, wow. This is a triumph.
Holding my breath for the next installment.

I have nothing but sympathy for you both.
What a compelling, complex story. I can't wait for Part II. Please alert me when it's posted if you can...
I am so sorry you suffered all this. I hope I never made you feel bad about any of your writing. I think she can come through this, but it must be awful on you all.
I understand this story intensely, personally, profoundly well. I am the stepmom here, but.....ah god, I know it SO well, every word! Every feeling! How even the happy is nervewracking and offputting...ah gods. I so, so understand.

Please keep writing...and fast!
I feel your pain. I grew up with an unmedicated manic depressive mother who self medicated with alcohol. Great post, beautifully done.
It is wonderful to use writing as an outlet. My husband was diagnosed bi-polar, having schizophrenia and PTSD. I had to have a come to Jesus party with him. I told him I could not be behind him on anything if he didn't take his meds. I couldn't trust him without him. I am so blessed because he now takes them faithfully. He now doesn't want to be without them. He is much easier to live with...but in someways I miss the man that was so energetic and enthusiastic, but he just kept getting worse and worse. I am going to the Veterans clinic with him Friday to see if they can adjust his meds. I am afraid he is just becoming stagnant. I am looking forward to your next post. It is nice to commiserate. rated
I prefer this more direct and truthful writing style over the style used in your analogy to the puppy and the use of "you" rather than "I".

Your story is very compelling both emotionally and intellectually.

I will continue reading your next installment. Hoping for you and your son and daughter that you can all get some rest and relax a bit.
It's an insidious disease that can sometimes have very hopeful outcomes, though tragically sometimes not. I do not have a bipolar child but had a bipolar friend who killed himself 6 years ago. He went through hell because the meds did not work on him. He also made everyone else miserable during and after his life. I find myself still trying to sort out the good from the bad.

I also have and have had teenagers, and I can't imagine the combination. Very scary.

Hopefully you've read Kay Redfield Jamison's books (Touched by Fire, etc.)
If you titled your post "Why I hate my diabetic child" or "Why I hat my child with cancer" would it have ended up on the cover of OS? Would there have been an outpouring of support? As you know, bipolar disorder is caused by abnormal brain chemistry and is extremely stigmatized. I believe your catchy title only adds to the stigma of mental illness.
I always admired your choice of title: it got people reading! As for the "abnormal brain chemistry", yes yes maybe,but i've never met a non-brilliant bipolar, have you?

Impatience with constraints of some kind---whether delusional or real---is what causes bipolar violence, I firmly believe. So---it's rational , or irrationally rational, somehow, not just a splurt of some nasty chemical. Mind-body connectedness is real, mentality is never not reflected in biology,but we're focusing way too much on biology. This pat "oh it's a chemical imbalance" dodge really bugs me.

You and your daughter are caught in a beautiful, terrifying dance. One misstep and your partner will stumble, as you know. Keep yourself healthy and sane at all costs. You've got to express this stuff, because that's what you're all about: expression.

Keep the faith & duck! Jim
Another thought jumped in my head after i pressed the "post" button:

We bipolars love nothing more than drama.So in a weird way, you are gratifying her, even if she doesn't quite see it yet. You've made her a star on OS! Use it in yr healing regimen...

ha!Jim
Sometimes writing it out is the best way through. And you write it well. I hope you and your family find healing.
My heart goes out to you. You are trying to make sense of what is so senseless. And to live, and love, and find peace.

If it makes you feel any better, after reading this, I'm not so crazy about your Bipolar Child, myself!
During my 15-mo disastrous marriage, I too dealt w/a bi-polar stepson. The big problem was that his father (my now-XH) refused to acknowledge that anything was wrong w/HIS son.

Compounding the felony was that SS sold drugs for a living, w/a complicit father encouraging him. That's when I got outta Dodge.

Even though I never had kids, I felt, and still feel, that I tried my hardest to be open to SS. But he too had all the symptoms HB describes: the sudden mood swings, the violence. I know he was physically abusing his GF--I heard him a few times--but when I told his dad, it was, oh well, that's them.

SS finally died, 13 mos after a colon cancer diagnosis, at age 28. He had moved in w/us after he stopped working, and the ugly truth came out. But even w/his illness, his bi-polarity and its untreated symptoms that were deliberately ignored by XH were just too much to overcome.

So--yes, I completely relate, and don't feel so guilty. That's no comfort, but please know you aren't alone.
What a tough row to hoe for you. I really want to read that next installment though! I wonder if you could get your daughter to write out her side of the story?
Bipolar is so difficult to deal with, for all parties involved. Thank you for sharing your story.
I have a child with similar issues. It makes me feel better to read the context of the previous post.
What a dilemma! Bless your heart....parenting normal, healthy children is as hard and challenging as can be, but how you stay sane is beyond me!

Let me add that schizophrenia, bipolar, and major depression are three universal illnesses. They occur everywhere, which, of course, indicates their "illness" status and the likely disruption or abnormality of brain chemistry. Have you looked into how other cultures treat bipolar? Has the medical establishment here really helped your daughter at all? Keep looking.....for your son's sake as well.
Looking forward to part II.
On the few occasions I have written about my bipolar child, I got tons of comments outside of my circle of friends who usually read my stuff. Most said the same thing: Me too. We aren't alone. It is possible to restore function to a disfunctional household. One of the reasons I put my daughter out was to protect my younger daughter. For years she didn't bring friends over. When she started high school I was determined she deserved a normal life as possible. "Rose" might have died out there or gotten tossed in jail. But no one said being a parent was going to be easy. Since substance abuse was involved I joined AlAnon and got the support for the decisions I had long suspected were tough but necessary. By putting up with the nonsense, I was paying for the dope. Fuck it. No more. I have asked myself, Gee, what if Rose reads this. I don't want to send her over the bend. I decided I needed to write and perhaps she needs to read and see what it's like living with her.

Look forward to the next installment. Keep writing.
My heart goes out to you. I know what you are speaking of though I am not ready to reveal more than that. You are very brave. But at some point... you go.. .what the heck I may as well share the story. It gives others courage.
Bipolar is an illness and MRIs are there to show the chemical imbalance. Sometimes it is accompanied by other symptoms and/or mental illnesses. My 19 year-old son is Asperger (high-functiouning autism), OCD (which often goes hand in hand with autism or PPD -NOS, or paranoia, or schizophrenia) and bi-polar. When he is off his meds, it does not take long for the monster inside my son to show his teeth again. The "impatience" expressed in violent acts and/or words is the result of the imbalance, or lack of meds... Because when on his meds, he is my little boy again.
When combined with autism or another mental illness, bipolar becomes more than the possibility of having a peculiar creative streak (all bi-polar are geniuses? really?), it becomes a threat to the person who has it and to the others around him or her.
I have been asking myself all kinds of questions since 2006 when we finally got a diagnosis after 16 years of worries, concerns, interrogations, doubts, self-hatred (the feeling of guilt a mother has at not having been a good mother, believing it's her fault and therefore hating ehrself for what is happening), etc... Sometimes I try to be hopeful, but most of the time I am scared: who will be there for him when I am gone?
Oh you are doing a nice job, woman. I'm enrapt by your story. And by no means do I mean to diminish its importance. I'm just trying to remind myself that OS is first about the writing, second about the topic...if you know what I mean. And you're doing a great job. In a very difficult situation.

I'm glad you just hollered at her and told her to get the hell out of that relationship. Enough of the eggshells. She's a person first and foremost, with logic and reason, before she's a woman with bipolar. (I hope I'm not being too bold or too off base but heck, sometimes I just want us to burst out of these constraints!)

This sounds like a codependent situation to say the least. I think you need a Salsa class, a massage and a martini - all in Greece. For two months. Phone free!

Again, not to diminish. I applaud your bravery and sharing it. Two thumbs.
Hells, I hurt for you and your daughter, and for your son. I hope things get better for you.
HB - I hope things are improving between you and your daughter. I showed my daughter your daughter's artwork and she (who is also artistic) loved it and now asks about your daughter. If you think that would please her, please let her know that others are thinking well of her!
I finally got the nerve to read your piece.

I'm much older than your daughter. I'm 44 years old, and none of what you've written surprises me.

You had to do what you had to do. If someone doesn't want to take his medication, you can't force him. And the consequences shall fall on said person.

I was diagnosed with it several years ago. And have been on so many kinds of medications, I could build a bomb shelter with the empty bottles. If you want proof, I've spent a king's fortune on medication alone. My checking account says it all!

I won't write about the comments here since many come from a different viewpoint, some similar, too. And there isn't anything I could add to it that you've haven't heard before.

But I do understand...
Hells, I am impressed and encouraged by your beautifully honest posts.

Seemingly forever I avoided putting familiar words on paper... tucked them safely away… but then I read your words and wonder if perhaps there is purpose to sharing to my own keystrokes.

Severe manic episodes lasting several weeks to several years, they say a person loses touch with reality; I question “who” loses touch -- my son: 23 years old early onset bipolar l, my other six children, my husband, the doctors, society, me?

To your "excruciating conflict", I share my own experience that there is blessing in a skinned knee and faith above reason in exile.

Perhaps, finding courage in your words, I will finally write the story behind my now cryptic syllables.

ps- I sense "disloyal" is the responsive dialogue.
I feel as though I am seeing my own daughter's future.
This morning I dialed 911. I had my finger on the send button. I just couldn't do it. This time. I went to work with the left side of my face still red and stinging from the slap she gave me on the way (finally) out of the house.
I thank you for sharing your pain. It makes it just a little easier to deal with my own.
Hells -

You are an inspiration. Thank you for your honesty. It allowed me to feel and feel honestly.

Erin
www.justatadbitcrazy.blogspot.com
Your story is so like mine...my daughter is now 28, a mother of 4 boys under the age of 3. She has gotten worse with each pregnancy. She has alot of the traits of bipolar since she was 2, especially the verbal and at times, physical abuse. She has not been diagnosed, as I was told children don't have bipolar(not true). On my own, I have been reading stories of parents with bipolar children and they mirror my husband and mine experience. I suffer with guilt as to why I didn't get help for her when I could, but I was ashamed to say anything, as her public behavior didn't match her behavior at home. She has disowned us now, and will not allow us to be apart of our grandchildren's life because we are holding her accountable(finally) for her abusive behavior with us and with her brother and his fiancee. I thank you so much for having the courage to post your experience with your daughter; you are helping others like myself who have no place to go, and cry in silence.
A perfect metaphor. I completely understand. My bipolar daughter is 22. Things have been good the last couple years, but there were "issues" this evening. Its amazing how easily all those feelings of anxiety, etc. come rolling back. Thank you for sharing your story with us, and your poetry.