Hells Bells

Hells Bells
Location
Heart of the Heart of the Country
Birthday
February 01
Bio
Book editor, parent, MFA in poetry from a land far, far, away--and a long, long time ago . . . I'm not a psychologist, but I play one on TV.

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APRIL 14, 2009 10:36PM

The End of the Bipolar Child Story

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  "for my mom, because it has everything she likes," by my daughter

This post completes a sequence that began with this post. If you haven’t been following this story, reading Why I Wrote the Bipolar Child Story will give you the context.

 ***

I'D THREATENED to have my my daughter taken forcibly to the psych hospital, and the threat seemed to have paid off. Even though she’d refused treatment, going through the evaluation seemed to center her—and me. We agreed that she could continue living at home if she stayed in the basement. She could come up to take a shower or to fix herself something to eat. And she’d otherwise abide by the contract I’d made her sign before moving back home. I had no choice. There was nowhere else she could go.

And then, over the next few weeks, I saw her getting  . . . better. She quit talking to the sociopathic boyfriend. She had a part-time job at a grocery store, and when I shopped there, I'd see her in her checkout lane, working her charm on the customers. She'd made a few friends who seem to be going somewhere in their lives, and one of them was a girl.

If you took a snapshot now, it wouldn't show anything that out of the ordinary. You'd have a picture of your basic 19-year-old who moves out, makes some dumb decisions, then lands back in your basement.

So there is hope.

But there is also history. Bipolar isn’t monolithic—it can have vastly different outcomes for different people. Some do quite well, and some don't. Some do well and then don't do so well. And as as far as pediatric bipolar goes--we just don’t know that much about what these children’s lives will be like when they're adults.

In my heart, I'm certain that my daughter will struggle. I just don’t know exactly how.

THE ORIGINAL STORY, the metaphor about the puppy, was brutal, snaking up and down and then twisting as it did to its dreadful conclusion, but to my surprise, many people who read it thanked me. They recognized themselves and their own child, a brother or sister, a parent, a spouse—even people who had bipolar seemed appreciative.

Apparently, I’d said something other people wanted to say but couldn’t . . . or wouldn’t. I began to think that telling the story, my daughter's and mine, might have some value beyond being just a way to offload my personal pain--maybe even an audience beyond OS. But the story belonged to us both, and when I thought about writing more, or under my own name, I got stuck. Had I been disloyal to write about her at all? What would she think if she knew?

So I showed her the story.

After a fumbling introduction, I punched the story up on my laptop and set it in front of her. She was silent as she read it, and then she said, “You stretched my picture all out.” (I’d asked her if I could use her photocollage for an article I was writing about bipolar, but I hadn't told her exactly what I was writing.)

 But what about the story?

She was silent for a minute, then she laughed and said, “That’s cute, Mom.”

What could she possibly find cute?

“You know, the puppy.”

She wasn’t throwing my laptop across the room, and believe me, I was grateful, but the meaning of the story had gone right by her, like a shard of shrapnel, missing her outright. I felt relief but also . . . disappointment. Why didn’t she have anything more to say about it? Actually, why hadn't she slapped me across the face?

Here's what I know, or at least suspect:

At 19, she is immortal and invincible. Oh, sure, she’s had some bad breaks, and people have been unfair to her, but in her own eyes, she’s fine. And it’s possible she’s right.

On a bell curve, most of us bunch up around “normal.” But she and others like her trail off the edge on a narrow peninsula, a piece of real estate where it's possible to have a certain, sparkly quality—and she has it. Her artwork is sublime. Her poetry is unfocused, but she writes lines I never could, lines that drop you four floors before you can recover. I would be happy to have half her passion and instinct for survival.

I'd held up the story like a mirror for her to look in, and she saw something, but in shadows. I've seen a few cracks in her facade: After I took away her 15-year-old brother's Xbox and he threw a fit worthy of a two-year-old, she asked me, “Is that what I’m like?” And recently, in an offhand way, she said she hopes the medication she’s taking now doesn’t stop working . . . like everything else she’s tried.

IF LOVE IS DEFINED by sheer expenditure of psychic and tangible resources, then there’s no question that I love my daughter. But as a parent and a person, I am perilously flawed. She has pushed me to the edge and off it, forced me to learn things I never, ever wanted to know about myself, slammed me up against my own limits and proved my pettiness and capacity for rage. She’s taken the person I thought I was away.

But in the end, what I’ve lost or how I feel is not important:

So today, the puppy comes running up to you and wants to play. The puppy is all “Throw me the stick! Throw me the stick!” and wagging its tail. So you take it to the park, and you throw the stick, and the puppy, really a dog now, runs full out, back legs in perfect rhythm with the front, like a beautiful machine, and it is truly a lovely sight to see it so free. It catches the stick in its mouth, effortlessly, and carries it back.

Its eyes bright, it drops the stick at your feet. And you throw the stick again.

 A    P O S T S C R I P T

The other day, while my daughter and I were standing at the kitchen sink, I was thinking about how she’d read the story,  and I worried that some of it, the part that meant I was a bad mother, might actually have hit her a glancing blow.

So I asked her, stupidly, “Do you know I love you?”

She looked at me with a puzzled expression, but her answer was clear enough. She told me, “Sometimes.”

The answer was so perfect, so crystalline in its honesty that I laughed out loud. She knows I love her--sometimes.

As I did. And as I do.

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And you will love her the best you can.
You each are blessed.
rated for your humanness
The love you have for your daughter comes through in how you write about her illness. You are optimistic yet pessimistic. your daughter's highs and lows will manifest in so many different ways. as she gets older, her maturity level will infect the process. She will have struggles; she will have a seriousness of purpose that shouldn't be ignored. In my experience, most bipolars are artistic, gregarious when they feel safe within themselves. Love her, guide her, let her know you will always accompany her on life's journey, no matter the destination. --rated--
Beautifully told, all parts, and more honest than most can be about themselves or others. Wishing your family blessings and peace . . . at all the times when you need them most.
Your honesty is both refreshing and inspiring. Parenthood is an incredible journey. I hope your journey gets a little easier for you and your lovely daughter.
Thanks for part 3. I read every single one and I think you are doing a fabulous, but tough, job. I am with you all the way, having the same 19 year old bi-polar (and a few other symptoms, such as Asperger) at home.
The "sometimes " says it very well. That is also one my son says to me (as he also says: I love you, and also I hate you, depending on the high or the low....).
you hung in there that is love
This makes me feel so sad.
I know our journey with our children is not the same, but I have found so much kinship and relief in reading your story. Your honesty has had a huge impact on me. Hugs to you both.
You're still there. Of course you love her.

I'm a little shaky on this stay in the basement unless you need to bathe or eat thing. It seems degrading beyond what's necessary or appropriate. What's your reasoning behind it?
I hope time welds.
Peaches wrote:

I am giving you a list of famous bipolar people, including Beethoven , Handel Mark Twain and Winston Churchhill. It's long, but worth looking at. It's proof that indeed there is hope for your daughter!

The list was so great, I made it into its own post. Thank you, Peaches!
Allie: About being confined to the basement--she's up and around the house when she's stable, but sometimes staying out of each other's way is the only way to avoid an escalating conflict. (It's not a bad basement . . . )
Sounds like progress for both of you. I'm glad, too, that you included the very important fact that bipolar is different in each person who has it.
I'm glad to know that you showed your piece to your daughter - it's not like you were ever trying to hide anything! Perhaps the hardest thing about mental illness is that the ill ARE NORMAL for them - and they can't necessarily comprehend our version of normal anymore than we can theirs. Your daughter is very talented and I hope that can lead to a successful career or safe haven. Most great artists don't exactly fall into the "norm" of normal. Thanks again for sharing your and your daughter's story.
I think you are one of the bravest and honest writers I've read. I've really enjoyed this story, and in all honestly, it's one I probably would have read halfway and faked it. But I didn't want to stop, and it's because the honest way you put things, and how relatable it it, keeps me reading. I'm envious.

You wrote:
"She has pushed me to the edge and off it, forced me to learn things I never, ever wanted to know about myself, slammed me up against my own limits and proved my pettiness and capacity for rage."

What frightens me is that I have felt this exact same feeling as a father of two apparently "normal" boys. Compared to what you have dealt with, I can only pray that god would give me the strength to handle that if it came to it.

Thank you Hells.
See? I was so blown away by your writing that the spelling and grammar in my above post sucked. Sorry
I am glad to have read your sad, moving, tentatively hopeful story.
My niece has such battles. This part, "She has pushed me to the edge and off it, forced me to learn things I never, ever wanted to know about myself, slammed me up against my own limits and proved my pettiness and capacity for rage. She’s taken the person I thought I was away . . . and if I do hate her, it's for that." Wow. We all have those people and they don't have to be sons or daughters. Sometimes it's a co-worker, and I hate to be shown my pettiness and rage. Excellent writing. Rated and posted for my friends who have children fighting similar battles.
A calm ending to a horrifying beginning.

But as you know it's only for this story. There will be many more stories and many more endings.

Each time one learns and grows, and hopefully one becomes stronger...
Beautifully written and painfully accurate. Thank you so much for sharing your story, Hells Bells.
Very moving story, one that I'm glad you shared with us. I struggle with many of these conditions, myself and with my kids. Some moments I can't fathom the things we do to each other, and other moments we all get along like a peaceful pond. I think you and your daughter will be very close for a very long time. :)
I have kept my posts here away from family and friends. I write too close to home, and why hurt them. Honesty is truth, but it depends on where you sit. Keep writing about this. You are braver than I.
You have come out of the OS closet with your family.
"At 19, she is immortal and invincible. Oh, sure, she’s had some bad breaks, and people have been unfair to her, but in her own eyes, she’s fine. And it’s possible she’s right."

You have done something very right! And you do clearly love her.

Thank you for having the courage to share this with us -- and with her. I wrote a piece about my now-23-year-old who has Asperger's. It comes out in June in "A Cup of Comfort For Parents of Children With Special Needs." Of course he asked him to read it before I submitted it. I was SO scared of his reaction, but he was fine. It gave us an excuse to talk openly about his disability.

I hope you share your story with more people. "Cup of Comfort" doesn't have this subject among its upcoming topics right now, but keep an eye. I bet they'd like your piece. Of course there are other forums -- like OS!
A powerful and insightful triptych.

However, this is not quite the end yet- Maybe you could ask your daughter to come on OS and say a few words about her experience? Or if she prefers her own medium- have her post up some art work/poetry here. We could never have enough art/poetry on OS.
Ice: A couple of people have asked about my daughter's posting her angle. When I showed her the post, I invited her to write a response or anything else she'd like and let her know I thought she'd have an appreciative audience. She says she has her own blog, thank you just the same. Some therapist or other said you shouldn't take away someone's denial unless you have something better to offer them . . . She accepts what she can process about her illness and no more, I suspect, so a response is pretty unlikely. (I do sometimes think about writing a book with her, further down the road.)
Thanks for writing this again...it takes courage, but it does help.
Thanks for writing this again...it takes courage, but it does help.
Takes courage to be so honest and generosity to share.
Thank you for sharing your beautifully written 3 part story. I read the first part to myself, and wanted to share. I started to read it out loud to my eldest daughter, and burst into tears. While my younger daughter apparently isn't bipolar, we certainly have experienced much of the emotional turmoil with her that you share so eloquently. Please see my post: Finding My Child After 10 Years of Anger.
I am sitting here crying as I finished reading your story. My son was diagnosed at age 5 and is currently 11. We are going through really hard times as mother and son and it is affecting my younger son as well. You wrote exactly how I feel towards him right now. Thank you for that.
Some time ago I wrote a post called 'Bipolar Blues' and you wrote an articulate comment and suggested I read your post on the same subject matter. Due to my sieve like brain...I did not. My psychiatrist has asked to see that post and I 're-saw' your comment. As I result I have read all your posts about your relationship with your daughter. They are eloquent and brave.
I would like to know if you daughter has been diagnosed as a BP I or II? I cannot imagine the difficulties you have had with as you say, pediatric bipolar behaviour. I have written a new post on the 'highs' I experienced as a 'youth'. Your suffering daughter has had a very different experience than I have - it is far worse, and far more frightening to you than my mother suffered.
Because I was diagnosed later in life - my pills became my lifeline. I would never go off them - but a young woman in various situations (i.e. the crappy boyfriend) would of course make such decisions.
Again, you are an amazing woman and mother. I take my hat off to you and salute.
PS - You may or may not be interested in my post of the last couple of days describing my bipolar experience as a young woman of 19 on. It is a bit repetitive at points from the original post, but has a little more detail about being young, bipolar and unmedicated.
Your story, this series, took me to "the edge and off it". I have had similar mothering experiences where my own limitations have confounded me. I try to hold it all in but your searing honesty and naked, brilliant writing touched me so deeply, made me cry. Your uncompromising dedication to telling the truth is my teacher.
I know I read and rated this before, but just read it again and appreciated it with new clarity. Just a beautiful piece - I can't help thinking it could be a novel, or part of a compilation. Looking back at the comments on the whole series, I come away with a sense that honesty on the topic is so needed. I know in my worst days, I held on tightly to Beautiful Boy (and also to Tweak and Traveling Mercies for a different perspective).

Hope all is well for you.
Thank you for writing this. I have an 8-year old and it is hell. "She has pushed me to the edge and off it, forced me to learn things I never, ever wanted to know about myself, slammed me up against my own limits and proved my pettiness and capacity for rage." I know so very deeply what you mean by this. I used to attend a buddhist temple but my daughter would act out so violently when she did not want to be there that I finally gave up trying to attend. In fact, I have given up almost everything in my life that I love - including the person I used to be that I admired so much. But while my child "punished" me to the point that made going to the temple just another hell instead of a solace, I also realized at some point that I could not square being buddhist with being the parent of a bipolar child. I joke that if the Dalai Llama had a bipolar child, 3000 years of teachings on non-violence would be thrown out overnight.

My daughter and I have been through so much already - things that are unbelievable to people who have not lived something similar. And I know that the worst is likely still ahead. Thanks for your unbridled honesty in this piece. It does not help me to know others are going through this - I would not wish this on anyone. But it does - as you pointed out - help to get some of those of feelings outside of the dark recesses of one's soul. It is a lonely, isolating journey that can only truly be understood by those facing the same demons. Your puppy analogy is spot on. Thanks again for your courage in writing this.
can i tell you that i think your daughter probably didn't miss the point? she focused on what was easy, a cute puppy, because she is all too aware of the monster inside of her and the things that it has done and that it does and that it will do. i feel bad for my mother when i read this, because i have put her through hell as her beautiful and talented bipolar daughter.
I so identify with you and always knew I wasn't alone as far as dealing with my 21 year old bipolar daughter but often felt like the only person with the "imperfect" child.
I have dealt with guilt, hopelessness,depression,anger and just too much emotion to even describe.
She is stable right now but it seems like I am always on edge whether it is due to her cranky moods or the possibility of a breakdown.
Just like all people who have family members who have bipolar syndrome know, bipolar people often are convinced that because they are feeling fine and doing well, they can discontinue their meds.
I have been down that path with my daughter more times than I can remember and the arguments I have had to endure to convince her to keep taking her meds were were sheer hell. The worst part was having to threaten too call 911 to take her to a psych ward for evaluation.
In her particular situation, the meds she was given to bring her out of a severe breakdown in 2007 caused her weight gain and medical problems so I understand her thinking to a degree in that she had some severe side effects. Since then she has regained her health and lost the weight but meds and psych visits are always an issue because she hates both.
A lot of the time she's wonderful. She expresses her love for me and it's genuine and then the moods rear their ugly heads and she says horrid things to insult me and I almost feel like running away.
Few people except her siblings know she's bipolar and the reason I don't tell them is not because I'm ashamed but simply because I know a lot of people just don't have the capacity to understand this illness.
I've heard people say horrrible things about those who are bipolar and even call them "crazy" and it just makes me reluctant to talk about it. It may be time for me to join a support group.
Her doctor told me not to feel guilty because it's genetic and not my fault but that's just it. Her father was a very moody, violent, irresponsible person and only after throwing him out for domestic abuse did I realize that most likely,he was bipolar.He never sought help.
Therefore, it was my fault because had I married someone else, she most likely would not have been bipolar.People can say i'm being ridiculous but that facet of the situation is a reality.
I just didn't know his family history because other member of his family were unstable and it just nags at me. Maybe one day I will come to terms with it.
In the interim between today and tomorrow,I guess the only thing I can do is do my best as a mother and hope for advancements in the medical field to ease the suffering of every bipolar adult and child.
Thank you for writing this. It's good to know other people feel angry and frustrated and overwhelmed dealing with a loved one with BP.
My sis is currently in a manic crisis and unreachable....I hold my breath constantly just wondering what destruction she will do to her life. Anyhow....thank you SO much for sharing.
I googled "don't like child bipolar" and found this series. My thirteen year old step-son is the child I often don't like (hate is too strong a word, for now). So I signed up with this salon outfit. I've been thinking writing about it might help. Thank you.
Your posts have realloy touched me - my 13 year old daughter has recently been referred to a psychiatrist after a self harming incident - I've known for years that something wasn't quite right with her but now they are investigating bi-polar.........in a way I hope that this is the conclusion - at least after years of heartache and abusive behaviour from her I will have an answer and maybe even a part solution? I have cried many tears over my lovely little girl but I can't tell you the relief I felt upon reading your post Why I hate my Bi-Polar Daughter because that is exactly how I feel and it is good to know I am not the only one experiencing the guilt of feeling like that sometimes. Thank you
I asked my daughter this evening, "Do you think I don't care about you?" As her boyfriend informed me, in a fit of rage, that she has to pop a pill when he mentioned the word "mom". I spent years trying to help her, and I have not stopped. I never will. That isn't what mom's do.
Just rereading this again. It is so shatteringly honest. You are brilliant about your kids.
Just rereading this again. It is so shatteringly honest. You are brilliant about your kids.
Thank you for this. Today was probably the day that I went over th edge with pain and grief from the collapse of my relationship with my daughter. In blinding desperation I googled the topic and found your post. You piece has given me more perspective than anything I have read or encountered since I was thrown into this situation and it lifted me from hopelessness. It is the most insightful account of parenting a bi polar adult child and I feel no longer mad or bad for having identical sentiments and emotions as you. Also feel a huge sense of relief that I'm not on a solo run and there are others struggling as much as I am. Thank you again. I owe you a million bucks.
I'm.... speechless. One of my 9-year-old twin girls started threatening to kill herself and run away when she was 6 or 7. I was afraid she might actually kill her twin sister, during their multiple daily fights. She's been manic for about two weeks, because of a change in medication. Now we've lost our Psych, because of a sudden insurance change, so I at least got her back on the previous med that worked but made her gain weight. Yes, I'm willing to risk her health to save all of us. You're right that other parents don't understand, so you have no one to talk to. "Try 'Love & Logic'" or "What about '1-2-3 Magic'?" is what I get. They don't understand that I can say, "What would you like for breakfast?" and hear her scream back, "Why don't you love me?!!!!!!!!" or "I like that blue dress on you" and get "NO YOU DON'T! You never buy me anything NICE!" I could mention how blue the sky is and she might have a meltdown over why she can't have a sweet, even though we never even talked about it. I've been ready to jump off a cliff this week. My soon-to-be-ex-husband blames me for the twins' behavior (the other has ADHD) and I point at our 18-year-old "normal" honor student and say, "Are you going to blame me for how she turned out too? I'll take that blame." He was against medication until he realized how abusive he had become in response to their behavior and told me to go ahead and get them to a doctor. I just want to scream to the world, "HELP ME!" but feel like I'm in a coffin, six feet underground, and no one would hear me. Thank you for sharing your story. While no one is running to my aid, at least I know I'm not alone down here.