Hells Bells

Hells Bells
Location
Heart of the Heart of the Country
Birthday
February 01
Bio
Book editor, parent, MFA in poetry from a land far, far, away--and a long, long time ago.

OCTOBER 30, 2009 8:28PM

Goodbye, Bipolar Brother

Rate: 52 Flag

Bill1

 1969

When my mother died three years ago, there was no funeral. At age 85, she had few friends left and was the last of her siblings to go. We weren't close with our cousins, so it was just me and my brother, Brian . . . and I knew Brian wouldn't make the trip, so what was the point of having a funeral? I emptied the safety deposit box, made the arrangements with the funeral home, and cleaned out her condo.

Actually, I'd seen Brian only a few times in the past decade, even though he lived just a couple of hours drive away. But when we were little, we were close, or as close as it was possible to be in our family, where my mother and father had an uneasy detente, and the only time we saw each other was briefly, at the dinner table.

When we were children, we played together, and as he grew into adolescence, Brian let me me tag along after him and his nerdy friends. Brian himself defined the term nerd. He had flat feet and wore orthopedic shoes. He had a chemistry set and built radios from kits. He played chess and as a high school student worked on the first computer ever built by an educational institution. His IQ was off the charts.

Brian was also a voracious reader, and he let me read everything on his bookshelf--Asimov, Heinlein, Mad Magazine, Salinger, Playboy, Faulkner. I listened to his albums on the stereo: Jefferson Airplane, Jeff Beck, Mothers of Invention, Coltrane. When our parents went out of town, he let me smoke his pot and didn't rat me out when my boyfriend came over.

In 1969, Brian went off to Carleton College (it was that or Oberlin), but something happened to him, and he had to come home. My parents were very hush-hush about the whole thing, even more than they normally were, but I gathered they were taking him to a psychiatrist. He'd shaved his head and was terribly skinny, like the people I'd seen in pictures of concentration camps.

Bill2

1970 

It was bad for a while, but gradually, Brian got better. Our parents moved to the east coast, while we stayed in our home town and went to the university there. We lived near campus in two studio apartments in the rabbit warren of a converted Victorian house. He kept an eye on me, but not too close. I cooked for him occasionally.

Brian graduated summa cum laude in political science. He'd taken the civil service test on a lark, and when he was offered a job as a programmer in a city a couple of hours away, he took it. No one understood this--he was so brilliant. Wasn't he meant to do more than this? But he stayed with Department of Army, working his way up the pay grades.

During that time, I saw Brian every once in a while, but not as often as you'd think, given that we lived so close. When I did see him, it was clear to me his life had become very circumscribed--work, stamp collection, electronic equipment, work again. He never married or had a girlfriend, or seemed to have any friends at all, for that matter. He never went anywhere. I was concerned about him, but I had my own life, chaotic but vigorous.

He hated his job right up to the day he retired at the age of 54 with full benefits, which is something you can do if you've put in your time with Department of Army. Now it was over. And he went on a manic. The fact that it was a manic was abundantly clear to me--as clear as it is to me now that what he had suffered in college was a major depressive episode.

During the manic, he decided to move back to our hometown, where our mother now lived, and made the mistake of trying to befriend her. My mother, a narcissist, was a disappointment to him--but then, so was I. Eventually, he moved back to the city where he'd worked.

Shortly after he did, he met a woman at a singles event sponsored by Mensa, the organization for people with stratospheric IQs. Apparently, he'd ridden the manic to a point where he seemed well, or well enough, and the woman moved in with him. She has been his devoted partner ever since, taking care of him through his inevitable depression, his late-life diagnosis of bipolar disorder, and several hospitalizations.

Last year, two years after our mother died, I drove over to see Brian, and his partner made us a lovely lunch. I arrived about 11 o'clock. Brian seemed old and fat and very sedated--and the contents of the pill sorter box I saw on the toilet tank were alarming, worse even than my own. We ate lunch, but afterward he said he needed to nap. It was clear that he wanted me to leave.

Not too long ago, I got the idea that my 16-year-old son and I could drive over again--that way, my son could get some highway miles in on his learner's permit. I e-mailed Brian to suggest the idea, but he e-mailed me back: We have other plans for the weekend.

I knew that to be a lie: Where would he go? What would he do?

So I replied: I'm sorry it won't work out, but would a visit be possible some other time?

And he said no.

I was shocked, but never one to leave well enough alone, I called him. In a weak and watery voice, he answered yes and no to the questions I posed, with looooong pauses between answers. In the middle of the conversation, I realized that I was manufacturing the dialogue, guiding Brian toward an explanation of why he might not be able to see me that I could wrap my head around, something other than the fact that he just didn't want to--or couldn't.

I suppose I could turn up on Brian's doorstep with candy or flowers or fruit, but who would I see after his partner opened the door and I stepped inside? My brother is still my brother, but he is also gone. Almost, it seems, as gone as my mother and father, both dead.

I know Brian is very, very ill, and unlikely to get better. Even so, I long for the old connection, for the brother who ridiculed me fondly, who let me tag  along and read his books and smoke his pot.  The picture of us together, brother and sister, is a persistent one. It's  painful, but I doubt it can be extinguished.

Car

1961

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Beep, beep. Take a ride in our car.
I wish I could give you reassurance that Brian will again gain the verve to visit with you and your son. The unpredictability of his illness, you know all too well. Your longing for the old connection is normal and gives me pause to reflect on what is and isn't in my life. I wish you peace. ~R~ (I do like the new avatar)
"The picture of us together, brother and sister, is a persistent one. It's painful, but I doubt it can be extinguished."

I think perhaps... it shouldn't be extinguished, because as you write, it probably can't be.

I'm sorry for this. Such losses from mental illness. So many losses.
Thank you for making, and keeping, room in your life for this damaged soul.

What love. What pain. What strength. And what sorrow.
Bipolars die. Then they resurrect. And die. And resurrect.

He is too young for you not to foresee another possible resurrection.

Resurrection is initiated by an upsurge of interest in things
others are generally not interested in. Lifestyle changes ensue. Bipolar charisma is irresistable. It dwindles and dies
when the circumstances are not conducive to the final escape through the tunnel...there is light there at the end, or...
nobody is there to turn on the light.

It is an awesome responsibilty to love a bipolar.

Just remember to leave a light on
at the end of his tunnel...
This is heart-breaking. Someone who is there but not there is one of the cruelest jokes life has to offer. It sounds as though your brother has settled in on himself and pulled the world onto him as a shroud. Mental illness is so cruel.

I see him at 1969 and I see your resemblance to him now.
Stressful situations are a huge trigger for bipolar people, and I'm sure he has a lot of complicated feelings about you. I've had my own mental health problems, and when I was in that hole, I just couldn't bring myself to call or see anyone. I completely isolated myself. I avoided my family not because I didn't care but because I cared SO MUCH that I felt ashamed. I'm so sorry this has happened, but he's not alone out there, and you have good feelings about his partner.

I wouldn't give up on the relationship if I were you. I'd make contact regularly (weekly?) and keep it short and calm. It will probably be hard for him at first, but he may adapt just fine. Sometimes it's wise to help people out of their comfort zone a bit at a time. If nothing else, it will provide evidence to him that he is loved, and that can be powerful.
There are complicated feelings here but this was so beautifully done.
I really hope there is some way this all works out.

That last picture killed me.
I'm sorry. It's so hard. My father has bipolar, too. You can't count on anything. You can't predict anything. You can only keep loving the essence of who they are.
Oh HB, I wish there were something I could say that would change the difficulty, but blessings on you, and your strength, and your love for your brother.
Beautiful post.
Oh I would miss him too. This is terrible. Why can't his meds make him better instead of worse?
I have always bemoaned the fact that I was an only child, and wished desperately for a sibling until it became an impossibility. To have a brother such as yours, with whom you shared so many good times growing up, and to have lost him is terribly sad. But he is still here and there is still hope that his condition may improve, I hope with all my heart it does and that you are able to renew an active relationship.
Oh, my dear!....This touched me so much, for so many heartfelt, tender, profound connections!

I'm wishing you and your's well..........

LOVE...LIGHT....LAUGHTER....JOY...PEACE
When I can't find words to say, well, that then says just about everything. I can't imagine what it is like for EITHER of you. The writing is beautiful though the pain is evident. Ouch.
Is there any way you can talk to the partner about your brother--bipolar can be managed, and if his drugs aren't working, there are things you can do, through the partner, or by yourself, if he can't function. In dire circumstances, you can get power of attorney or conservatorship and work with the psychiatrist directly, or in a lesser situation, you can act as an advocate and do research and go to the doctor appointments with him. I know from my condition that having my husband to be there as a liason and to push for treatment that works makes all the difference. of course, if you don't want to get involved, I can understand, but the situation isn't hopeless...
HB, solid post, well-written, concise, poignant.

In reading several of the comments, I realized how diverse they are. Confusing. I didn't understand several....

My point? I liked the way you relayed your story. And your brother.
My brother Brian....yep...this photo could have been us...and now he is gone. Remember the good times, it' all we get sometimes.

R
Douglas Coupland's new book begins with a character's discussion of how his family latched on to understanding him as ADHD, as means to escape guilt, and more painful inquiry. Don't let scientific taxonomy get in the way of human love and continuation. It's not a fair trade.
I always wonder if my mothers funeral will be like Liv Sopranos. Then again all the women on her side live till 90, so she will probably outlive me.
I know you know it's his illness that is speaking. His heart must still love you so. The little boy, the brother who played with you, who (as you said) ridiculed you fondly, is still there. But I also know it doesn't diminish the pain or the loss you must feel when you try to reach out to him.
There may someday come a change. Keep that hope alive, just as the love is still alive.
Maybe it's just he is cycling long in his depressive state and he will feel differently when it passes. Not much reassurance, I know, but never give up hope.
Oh Hells, you do know that I understand what you are going through. The awful, awful thing about this disease is its ability to rob us of our emotional and psychic connections to the ones we love and cherish. Tall Girl (TG) and I have found something of a help...when she is ranting or upset with a decision I"ve made about the household , I ask if I am talking to the disease or to her. Fortunately she is so invested in acquiring and maintaining a healthy and complete life that she will stop. But I miss her because this damned demon is always lurking in the background to further erode the fragile repairs we try and make in building trust.
Big Hug ((((Hells)))))
I confess I never ever believe it is too late until the grave. Have you tried talking to his partner? I was very long into this heartbreaking post before I realized Brian is not dead.

Lovely new avatar.
No doubt because I am myself a manic depressive, I am less likely to curse the illness for family tragedies and tend to look for other explanations. This did strike me as a possible motivation for your brother's coldness : "During the manic, he decided to move back to our hometown, where our mother now lived, and made the mistake of trying to befriend her. My mother, a narcissist, was a disappointment to him--but then, so was I. Eventually, he moved back to the city where he'd worked."

Siblings tend to punish each other for their parents' sins.
Such a heartbreaking post. Don't give up on your brother. Let him know you care for him no matter what.
Sounds like he needs a little shock treatment. Get those chemicals flowing.
You certainly have your share of sorrows. Such a shame, on so many levels. Perhaps he will pull out of this. So very sorry.
Heartbreakingly poignant, well written memoir of your brother. I am so sorry for him an for you also..
Heartbreaking.
Rated
I'm sorry. I've been there so many times with my brother. And every time he comes back, I convince myself he's back to stay. Until the next time. Bipolar disease is a cruel taskmaster.
I love the picture of you and your brother.
Rated.
I have lost at least one person recently—someone who is still alive and lives close by but refuses to connect. It's heart-breaking and enraging and deeply senseless. When someone is ill in this way, their spirits really are damaged. It's terrible. I am sorry. I thank you for writing about it in such lovely, elegiac, unsentimental prose. R.
Hells Bells. Thanks for this. You share.
Send this pain wound off into the universe.
No person can bear all the inner hurt alone.
As I lay in my bed tonight, my heart will sighs.
But, that's Life:`We bear:`we 'lift another' up.
People bear one another's sorrow, and aches.
That's it!
Thanks,
share,
we are:`
Richer.
Beautiful and heartbreaking. One of the great mysteries of family is how those we love sometimes live so beyond us, so far away, that it's hard not to despair of ever reaching them.
"something happened to him, and he had to come home"...this line meant so much to me as that's when it "all started" as I remember with my sister. This is so well written and heartfelt. As so many others said, "it's just the disease". When he does come back, embrase him for as long as he stays.
I'm coming back for this one.

(I like your new picture).
So very heartbreaking, both in its honesty and in its familiarity, and thus rated.
Oh, I know what it's like to love an older brother and lose that relationship because it drifts away, or he does. So painful. So sad. Sorry.
Your talent goes beyond in this telling. Many here, myself included, know/have this brother. Be it mother, father, child, sister, brother, it is the reflection we discover here. You weave us into what we have been unable to express. Then, there are the brilliant lines, such as, "but I had my own life, chaotic but vigorous." Good. Very good. Rated.
And the avatar....keeper.
Such heart felt memories as well as daily thoughts of your brother Brian. I don't know if you know it helps me and others that you shared your story. I have a brother that I don't see for many reasons, but we were close as children going through life's issues. Thank you for sharing from your heart!
This story moved me to tears. It is so hard to lose someone when they are still alive. Don't give up. Even if he slams the door in your face and ignores your emails, you will know that you are still trying to connect to the bond you once shared. He will know, too.
This is so sad. I feel your pain. It's so hard to have someone we love disappear like that. Thank god he has a devoted partner to take care of him.

If he's seeing a psychiatrist (which he probably is if he's on all those meds), maybe he would be up to doing a family counselling session. It's actually encouraged for bipolars to having a session with close family so that they can better understand the illness.

Hugs!!!
This is a very sobering story, HB. I have a family member who suffers from manic dp, but she's been actually doing quite well these past 2 years. I hope your brother enjoys an up cycle soon. It is so very hard. Blessings.
how bloody awful awful
I am so sorry
What a horrible tragedy
do feel lonely because of the loss of your family, or do others compensate enough?
don't mean to pry, I was just wondering how you were doing
I'm sorry it's take me several days to get to this. It's searing, powerful and beautifully written. the pain you describe is one I've heard from others who have mentally or emotionally ill family members. You can tell yourself it's not personal, that it's the illness treating you that way and not your brother (or sister or mother) but it doesn't feel that way. I'm sorry you've lost your brother -- or perhaps never really had him. And I'm sorry that he's lost the chance to know you, from lacking the ability to connect with you.
As a bipolar myself, I feel Brian's mood changes will possibly reunite you again. Maybe not right away - but in time he may miss his loving sister.
I'm speechless...almost. Just pondering the things we get used to. Wondering about the relationship. Glad he's not alone. And sending hugs.
I feel this. I fear this. I have a son who disappears. His explanations are monosyllabic, and I pry information from him. He just wants to retreat. He's also brilliant. I'm sorry for this pain, this separation that you endure. I hope. I'll keep hoping for you and your brother.