Jane's expenses are next to nothing--she lives in a one-room apartment on the college campus--but even so, I know she’ll run out of money by the middle of next month, and I wonder what will happen then. Her father and I divorced many years ago but have agreed not to finance her life anymore, the way things are. I wrote a script to follow before I called to tell her we were cutting her off.
Dear Jane:Your dad and I talked. We love you, but because you have continued to drink alcohol and have stopped taking your medicine, we won’t be paying for school or any living expenses. We are both very worried about your alcohol abuse and think you need to get into treatment to get better. Right now, neither of us is willing to have you stay in our homes. We have agreed to pay your first month’s rent at the new place and will continue to pay your medical expenses for a while longer. This is a very hard decision for us both, but we think it’s the best thing we can do to help you become the responsible adult we know you can be. Love, Mom
The raising of Jane has fallen to me. This is what you’re supposed to do, right? Tough love?
It’s about a half an hour until I’m called back to the curtained area where they’ve taken Jane to get her ready for the endoscopy and colonoscopy. As it turns out, she is dehydrated, and the nurse has blown one vein before getting the IV in another, and it’s obvious Jane has been crying. In the hospital gown, she looks so small . . . about 12. I stroke her head, once, smoothing her hair, but I pull my hand away quickly, not knowing if my touch will make her lash out at me again. I just want to get through this.
The nurse asks Jane if she knows why she’s having the procedure and at first, she says, “I don’t know.” She does, though, but it takes her a minute to marshal her thoughts. She’s had stomach problems for over a year. She’s been taking Prilosec, but everything she eats still makes her feel sick. Lately, there’s been bleeding from the rectum.
After a time, they take her out on the gurney to the procedure room. I wait with the curtains drawn around me, the bed no longer there, nothing left but the blank expanse of shiny tile floor. I see myself from above, the middle-aged woman in the chair, child gone. I breathe. I think, if Jane were a normal child, I would be worrying about the possibility of stomach ulcers, even cancer, but I admit to myself what I am really worrying about is how she will be when she comes back. Will she wake up calm or fighting? Will she let me take her back to my house, even if I decide I can stand to have her there? Will she go back to her one-room apartment, where she tells me a friend has agreed to baby-sit her until the sedation wears off?
Finally, they wheel her back in. She’s out and so for a while at least I feel we are both safe. The nurse comes and goes, checking her blood pressure. Then the doctor comes in, dressed in a lavender shirt and tie, no white coat. He tells me the procedures went well and shows me pictures of the open throat, the GI tract. Jane said his teeth are bad, the kind of detail she would notice, but I concentrate instead on his calm, melodic voice, his vaguely British accent. He tells me everything is normal.
So now she’s awake, still groggy but ready to go home, and the nurse is helping her to get dressed and will bring her down in a wheelchair, as is protocol. I make my way to the parking garage, confused by the bright sunshine but feeling good that it’s over. We’ve made it this far. I find my car on the fourth level and head for the main hospital entrance to pick Jane up. But she's not there.
Where did they tell me to go? They told me here, but as I wait, the thought begins to circle in my head that maybe I’ve gotten it wrong, that I should be at the GI procedures patient drop-off and not at the main entrance. Soon the thought becomes a certain knowledge that I’m at the wrong door, so I drive to the other drop-off location and get out, but I find the door locked.
With my hand on that locked door, even though I know that if she’s not here, Jane must be somewhere in the hospital, I feel a sudden terror that I've lost her. It’s the same frantic feeling, that instant you turn down an aisle in a store and suddenly your child is gone. Heart pounding, I get in the car again and go back where I came from, and there she is in the main circle drive, smiling.
The volunteer pushing her wheelchair puts her in the car. She's woozy, unsteady, and I help her fasten her seat belt. "I’m starving," she says. She coaxes me into buying her Subway, a meatball sandwich, even though the nurse has said to just drink some juice and eat some crackers and see how that stays down. I want to give her what she wants, but I’m afraid she’ll make herself sick. Now she’s tearing into the sandwich, and I tell her, "Slow down. Just eat a little, or you’ll throw up."
She looks up at me, smiling again, and says, "Even if I did puke in your car, you’d still love me, right, Mom?"


Salon.com
Comments
{{Hugs}}
Rated with love
at the end of her life my alzheimer's mother became my child. Had to tell her she couldn't have her brownie until she'd finished the rest of her dinner on the plastic assisted living tray.
r
She is right. We love them no matter what. It is inescapable. ~r
Hang on my dear friend and I'll hang on with you.
BTW for those who would like to read more of HB's wonderful writing, just check out her lists on the left. If you'd like an 'inside out' perspective of this illness and what it does to families feel free to check out some of my writings at http://www.opensalon.com/patie001
Lezlie
but i think it'll make her sick.
Only metaphorically or megalomaniacally does she know
what is good for her....what she wants is
a mere shadow of that.
You were scared shitless when you momentarily lost her.
She is constantly scared,
then her delusions or her depression comforts her.
All societal doors seem locked to her Uber-observant eyes.
Bipolar is uber/sensitivity/thought/will.\
No cure except self esteem.
No self esteem without the knowledge that
\you are loved.
ha.if she puked of course you would love her.
Notice: her words are the perfect ending for your piece.
She is archetypal, atypical, and just plain out of reach, often.
she needs...support.from near or afar.doesnt matter
...this I know for sure
my own mental illness manifests itself in depression and adult ADD ...which is why I am on the pc too often (avoidance - hyperfocusing)
I understand exactly what you feel about fighting the urge to explain the actions to other people....My youngest brother is dramatic and self medicates with drugs and alchohol...I love him so, and have had to separate from him to the point I rarely see him - because he can cause too much unnecessary commotion or even be dangerous. Although I was always more a parent to him than a sister, and have nursed him through AIDS related struggles for 25 yrs...I could not imagine what it would be like for one of my own little ones were afflicted...
You are very brave!
hang in!
zozo
xoxo
Steph
Her younger sister wrote and read this piece for her funeral. It captures the spirit of those who are victims of this disease. Please HB know that you are not alone.
"True stability results when presumed order and presumed disorder are balanced. A truly stable system expects the unexpected, is prepared to be disrupted, and waits to be transformed."
Tom Robbins
I believe this is an impact in which Kelly had upon all of us.
The truly and utterly unexpected she continually aroused.
She made the stable,inconsistent,
The stolid,passionate,
The composed, distraught,
The rigid, flexible,
The reasonable, pretentious,
The sensible, foolish,
The enemy soon became cherished,
The discouraged, was suddenly euphoric,
And the staid, fell nothing short of eccentric.
Being in such close proximity to her, it seemed to me, we lived in chaotic limbo. As the world turned, she continued to counter the spin. Not for destruction, but to keep us, the ones catching a ride on the merry-go-round of life, from falling out of our daze of dizziness, from slipping into a conventional and boring pre-destined style of living.
Kelly's unorthodox way of living, her passionate dysfuncional actions were executed to transform the dull scenery of the world into a beautiful blurred image . An image to keep us excited for what may be next. Not able to always make out the blurry edges of our topsy-turvy lives, so that tomorrow we will wake up and wonder what will be different and more beautiful then it was yesterday, the day before, and in the past. She kept things in whirl for us to see the beauty in it, not once, but may times over.
I also believe that love is the ultimate outlaw. It just won't adhere to any rules. The most any of us can do is to sign on as it's accomplice.
Instead of vowing to honor an obey, maybe we should swear to aid and abet. That would mean that security is out of the question. The words 'make' and 'stay' become inappropriate.
Kelly's love had no stings attached.
She loved you for free.
And always will.
All together, this series is a book in waiting, a really powerful one. Certainly it has affected me to the point that all these months later, I still think about you and your daughter and wonder how you are. Your writing is amazing, as is your poetry; add your daughter's enthralling art works and I really believe you would have a piece that would not only be brilliant, but would also help people. I know during my difficult months, I reached for every personal account I could find. I admire your writing, your courage, and your honesty.
Wishing you a calm December. Peace, K