I didn't just have a brush with death; I died.
I was two and a half, or somewhere around there. It was just after my second easter, and I was born in the summer. I was two summers, two falls, two winters and three springs old.
My brother was born a nightmare. He was born trying to walk, but without the strength in his legs to do anything about it. He pushed his legs against the bassinet in the nursery, prone and running. He wouldn't sleep. My parents walked with him, sang to him, spent alternate nights pushing him around the house, around the neighborhood, around the city, trying to get him to close his eyes. He did not cry, but he would not sleep.
I was born a dream. I was less a baby and more a child development textbook. No early milestones, no late ones. Up every three hours for feedings, then sleeping through the night at longer intervals. If my brother and I hadn't been born with the same straight, shiny, black hair, we wouldn't have belonged in the same family.
My blonde, blue-eyed, laughing, climbing, cuddlng sister was a foreigner, when she came along two years after me.
Family myth is that I was pottytrained by accident, by being present when my brother was trained. I was that good.
I also looked like a monkey. Bowl cut. Straight hair. Round cheeks. Pressed in nose. Flat brown eyes that turned green later. Head too huge and gobby to fit age-appropriate easter bonnets.
I got sick, with something that isn't entirely clear. It may have been strep. It may have been something else. It came on fast. I was fine at lunchtime, feverish by afternoon. I ran a fever, first 101, then 102. My mother was scared; my father was away on business. Saudi Arabia. Water purification. She called the pediatrician. He said that sometimes, kids just run high fevers.
She put me in her bedroom, to keep me away from my brother and baby sister. By dinnertime, I was running a fever of 103. She called the pediatrician again; he said that if the fever was rising so fast, she must be measuring wrong. He told her to have a glass of wine and calm down. She did not. She called her brothers, trying to find a sitter so she could take me to the emergency room.
When her brother got there, my fever was 104.5. He let himself in and came upstairs, just as I started seizing. They called an ambulance. The paramedics got there.
My heart raced; my faver rose; my seizures continued. My heart stopped. Twice. Twice I was injected with adrenalin, I believe. I'm not sure.
The pediatrician said "Don't worry; children almost never get brain damage from things like this."
My mother didn't tell my father that my heart had stopped, until fifteen years later. My father and mother never told me about the stopped heart, and the suspected brain damage, until I was twenty-two.
I never knew why I spent afternoons working with an occupational therapist, needing green clay, manipulating blocks in space, endlessly working on handwriting and tying knots in cards. I never knew why testing was as much a part of my life as back-to-school shopping, or that my mother had an annual fight to keep me in regular classes, then, an annual fight to get me allowed into, and to stay in, honors and advanced classes.
The metes and bounds of the damage are either unknown to me or unknown completely. When I learned, I was about to re-enter college. I'd known of my learning disability label as early as middle school, but never been told what it was or why it was there. I've known that it meant that I was able to get some services I needed in elementary school - extra time to learn to print, special dispensation from scissors, understanding from teachers that my reluctance to give long written answers was because of my difficulty forming letters, not words. I have terrible spatial skills, shitty bodily-kinesthetic skills...but amazing verbal skills, a remarkable memory, and sundry other little talents. Are these a result of the incredible plasticity of the human brain, an increase in some abilities corresponding to a decrease in others - or a sign that, if not for a fever, I would be ask good as I am at some things, at nearly everything?
What I would like to know, more than anything, is - how much of me is me? If I hadn't had that fever, would I be any different than I am now? Would I be more organized? Would I know how to unlock a door on the first try, every time? Would I be able to make a knot in my shoelaces that stays tied? Would I stop getting into fender-benders all the time? Could I remember a face with a name? Could I land a punch without leaning in and giving myself away?
If I hadn't died, would I still be me?


Salon.com
Comments
your mother sounds like a strong and fierce advocate, you were fortunate to have her in your corner, and I guess if you're a student at the second best law school in Boston, then you've proven that you can achieve despite whatever label was put on you and whatever real limitations you suffered from, congratulations
I hope your family found another pediatrican
rated for bucking the odds
I think it's true, Roy, that we all are the sum of our circumstances, tempered by our reactions and decisions...and, yes, we did get a different pediatrician. Even before I knew the story, oddly enough, I never trusted doctors.
I often wonder if each of us has a sort of "ideal us", the template for who we are in our purest essence, recorded somewhere, kind of like Plato's forms. After we are born, our experiences push and pull us, deforming us like so much playdoh -- but somewhere does that purest form of ourselves still exist? If so, is that who we revert to being when we die?
It comes up for me when I think of my kids and their autism -- is there a "them" that exists somewhere underneath and separate from their autism? If so, will I meet that "them" after our deaths? How different will they be? Or is the autism so much a part of who they are that it has become a part of their very essence, and there is no possibility of ever separating the two?
I've also wondered the same thing when encountering loved ones in a depressed state versus a healthy state. They seem so very different -- is one really "them" and the other just a distortion, like a layer of paint applied over the pure template, a layer that can be removed to reveal their true selves? Or are we only who we are in that moment, ever changing?
Anyway, deep thoughts, and thank you for sparking them.
Live in the Now.
As a simple example, it matters too when you had this. Trivially, if it happened today instead of as a child you can see how different it would be. If you learned a foreign language before you learned English rather than after, it would change things too.
Life changes us. But life is all we are. Your question is a fun one, just because it's always good to think about how we are formed, but I hope you don't lose serious sleep over it.
I think it's great you got through that (I was going to call it “that little death” but I hear that phrase has other connotations), though; I enjoy reading your posts.
Marple - Perhaps it's a sign of the last lingering shreds of post-adolescent narcisissm that, although I've known for years that it was painful for my parents to watch me struggle with things, I never considered that they might have the same questions that I do. Now I wonder.
Kent, Coffee, Ablonde - The question only seems to become a worry, rather than an occasional pondering, when it rides in on the coattails of some other doubt.
If I can't quite get understood at work, if I make some ridiculously elementary mistake, this question is the monkey that crawls out of the backpack to sit on my shoulder. Now it's out because I'm trying (and failing) to find the last entry-level, paying, legal job in the western hemisphere.
If there's something wrong with him, none of us knows it now. Who knows but that it made him more of a fighter. He owns a house, is married and has a son, has a successful job & a lot of friends. I have a friend who was in a car accident and a coma and has the same questions though. Hard to know.