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I Love Life

I Love Life
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Missouri,
Birthday
June 28
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I love learning and am constantly delighted when that happens. There is so much I want to know and experience.

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Salon.com
JUNE 28, 2009 2:51AM

Dear Alex

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Alex is the 20 year old neighbor/friend of mine and my kids who lives just up the street from us. My last post was about her. She came home from the hospital yesterday to live out her remaining few days of life. She is dying from esophagus cancer at almost 21 years old. Her birthday is on June 29.

I've been wanting to see her, to speak with her before she dies....and  yet, I didn't want to see her  under these tragic conditions. So, I decided to write her a letter so she can read it or someone else can read it to her. In this letter I express my feelings and love for her. I decided that it was more important that she know of my feelings about her rather than actually see me in person. Seeing me losing control of my emotions around her, would not be  helpful to her....I rationalized. So I went to her house to give someone the letter. Fortunately for me, she was asleep and so I didn't have to "visit" with her. Instead I visited with her relatives while Alex lay in the next room soundly asleep. Just before I was getting ready to leave, feeling relatively lucky that I didn't have to say anything to her, her relative asked me if I would like to see her. Even though I didn't want to, I was sort of  curious to see what she looked like. Since she was asleep, why not take a peek at her? How difficult could  that be? It might help with closure. I slowly walked into the sitting room and imediately my eyes fell upon a soundly sleeping Alex. She looked so peaceful and without pain. Yes, she looked frail. Yes, her head was bald. Yes, her skin looked yellowish, but even with all that, she didn't look as intimidating or pathetic as I thought she would look. All I could do was look at her young cancer filled body and carefully place a gentle kiss on her sleeping head.....amazed at how peaceful she looked as she slept.

Did I shed some tears? Of course I did. How could I not? Once more before I left the house, I reminded her relatives to please read my letter to her. It was important to me that she know how I felt. They assured me they would. I left Alex's home feeling much more at peace than I had for about a week or so. I felt just a tad less sad than I had been lately. I was definitely glad that I went over to her home with my letter.

 Later in the evening, I recieved a phone call from a priest at my church whom I knew. He told me that he stopped by to visit with Alex shortly after I left. I was suprised since Alex and her family had not been practicing Catholics. He told me he met her while making hospital visits and that she ended up rejoining the Church which included receiving the sacraments she had never received as a younger child. He told me that Alex started reading my letter, but was having a little trouble doing so and so her brother took over. After he struggled because of tears, the priest took my letter and read it out loud to Alex and those near by. Apparently, the letter meant a great deal to her and her family. As a matter of fact, her brother also called me to thank me for the letter. I was so touched by the gratefulness of them. I also heard that Alex's Dad made a comment that I was no coward to be able to write that letter. Once again, I was touched. Why is it, that when I go out of my way for someone else, I just about always end up on the receiving end? Below is my letter to Alex:

Dear Alex,
 
I've been wanting to visit with you so badly....and yet, I haven't wanted to. Why?   I'm a pathetic coward, that's why.   I'm so afraid of seeing you in your condition....frail and suffering.  I want my image of you to be the one I've always had of you.....your  beautiful face with the gorgeous smile and contagious laughter.  I don't want to see you hurting.....I can't see you hurting.  Another reason I decided not to visti with you (besides the fact that you might not want visitors) is because I know all I'll do at your bedside is cry, cry and cry. I can't help it, but that's what I do when I'm so sad.....so sad that I can't control my tears. You don't need to experience that flood of emotion coming from me. That would not help you the least bit.  And yet, I NEED to express my feelings to you  and about you.
 
Lately, I can't get you off my mind.  You and your situation has taken over all my thoughts and emotions. I can't seem to shake what is going on with you. For what it's worth, I've been praying for you every single night since I found out about your cancer. Unfortunately, my prayers weren't heard....at least not answered the way I desired.  I am hoping that something good ....even if it's just a little something good came out of the prayers. Last night I had a dream about you. I dreamt that when I visited with you, you looked healthy and felt good. In the dream I felt so happy and relieved to see you that way.
 
I'm not sure who I feel worse about....you or your Dad. You, because you're so young and this shouldn't be happening to you.....your Dad, because I know he adores you so much and as a parent, I realize that this is the hardest thing he's gone through. A huge  part of your Dad has died because of your own illness and suffering. After you're in heaven with God, you will no longer suffer....but your Dad will continue his deep suffering for years. I am so sad for both of you.
 
Alex, I will never, never forget you....not only because you've been a friend of the family for so long but also because you are unforgettable! Ever since I've known you, you always had a beautiful smile on your radiant face and it seems like you were always giggling or laughing about something when I was around! Maybe it was me! Maybe you were laughing at me and I didn't know it!   No, I know it wasn't usually me that caused you to smile and laugh so much.....that is just who you are!   You ALWAYS  had a kind word for me, Kevin  or for one of my kids....and we ALWAYS had a kind word for you! My whole family has always thought so much of you, Tyler and your Dad! We are all blessed to have known the three of you.
 
Alex, I'll never forget how YOU tried to comfort ME over Facebook when you and I chatted for a few minutes and you had just told me your latest prognosis. Remember? I started crying and told you I was crying (see why I don't want you to see me in person?) and you tried to make me feel better by trying to convince me that you were ok with things and what was happening. Alex, I am the adult, I was supposed to comfort you...the one who is sick and I couldn't....but you reached out to ME. I'll never forget that....
 
Even though things don't look so good for you, I am still hoping for a miracle for you.....one that will take away your pain and restore your health. That's what I and everyone else wants for you.  But just in case, God has decided that HE wants  YOU with HIM in heaven, I want you to know that I will miss you so much. I will think about you every time I'm at the pool. I will think about you every time I go by your house. I will think about you every time I  walk into CVS...just like I did last night. I will think about you every time I see Tyler or your Dad.  And then there will be times when  you will just randomly pop up in my mind for whatever reason and I will think about you then also. You have impacted my life....obviously, I wouldn't be crying right this minute or have shed any tears at all in the past if you hadn't effected my life.
 
Thank you for the joy you've added to my life and please know that I love you....and will miss you terribly.
Also, if it is time for you to go home to God, will you PLEASE remember me and my family and pray for all of us? And especially pray for your Dad and Tyler. They will need you and your prayers more than anyone.
 
I love you.
Patricia
 
 
P.S. I'm so sorry that I'm a coward and can't be with you physically. I want to hug you and hold you so badly. I wish I was stronger....

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On one hand, I feel a little guilty for posting this personal letter because I don't want to come across as exploiting Alex's situation. On the other hand, I want to share what I've been going through because of Alex's cancer and how one young person could truly touch my life....even though she's just a neighbor and friend of my own kids. I can't help but want to share my feelings and love for this human being with you. It helps me to do so and I'm hoping it will touch someone else's life.
::HUG:: My prayers are with Alex, her family and friends... and of course, you.
Unfortunately, words fail me in situations like this
Prayer is a powerful tool,and are often answered.
Sending you a Big Hug.
There's nothing really to be said here.

My favorite author, James Carse, wrote Breakfast at the Victory for and about the death of his wife. Carse is a theologian and philosopher and his wife similarly accomplished. So, what they might share with us about death should be chock full of meaning. But he punctures that balloon for us. There's a passage in the book where he relates discussing with here her long illness and pending death where she asks him "Do you know what I've learned from this experience?" And he waits expectantly, for her sage answer. But she says "Not a goddamned thing." Death has nothing to teach us, it is simply the end, sometimes the heartbreaking end for someone we love. It just isn't fair that this kid should go through this suffering, and then at the end of it, die. But know that you have done all that you can to help and comfort him. Publishing this comforted you. I'm sure he would be pleased, knowing that.
Coward, you ain't no stinkin' coward!! A little something to lighten up your mood. WOW. When I go, I just hope that I have someone who cares for be as much as you care for her. To say she was lucky would be stupid. To say she was lucky to have a friend like you is amazing!!
Your love and concern and enormous sadness for Alex is touching and lovely and human and kind. That's your tribute.
How very sad! Esophageal cancer rarely affects young people. My prayers are with you at this difficult time.
Thank you for posting this, Patricia, though you had misgivings about it. It is important to know that our love endures after us, that Alex has lived and will live on in our lives.
(Have you seen David Newman's post, http://open.salon.com/blog/david_newman called 'death be not proud' about the death of his child's friend? Perhaps you can help each other by sharing the pain.)
You faced your truth and shared it with Alex as she faces hers. She will take your words with her and leave behind many memories that you can keep as life goes on.
All any of can do is play the hand we are dealt. I'm certain Alex appreciates you playing the hand you were dealt.
It is indeed horrible to watch someone die. I watched my best friend and mother of two die and all I learned about death, a long slow death from cancer, was that it was a horrible thing. I agree, it teaches us nothing; it is living which teaches us. We all need to know people love us and will miss us. You did that for Alex. Her death is a tragedy: any death of a young person before he or she has had a life is a tragedy. You have done what you can and you are good to do it.
This is such a difficult tsituation to deal with there is no shame or cowardice involved in letting some trusted people see your thoughts. I can only speak from my experience so take my advice with a grain of salt. Go see her, don't wait until it is too late. Give her that hug and cry for her. If you don't you will regret it forever. From my point of view, the seeing her at her weakest and most frail will not overshadow your memories. In the case of my father and my younger brother I find it difficult to remember them as they were when they died. I see them as they were when they were vital and healthy. None of this is within your power to control. Even though she is weak and suffering, she is still that person you loved in every way. Only the body is failing.
My thoughts and prayers are with you and of course with Alex and her family. I'm learning from hard experience that whatever people do is a mitzvah, a blessing, appreciated by those soon to be gone and those left behind. Not cowardice, loving kindness.
WHAT A LOVING PERSON YOU ARE. I AM AMAZED AND HUMBLED BY THIS.
I am trying to get caught up on posts I've missed, and just read this and your previous Alex post. What a heartbreaking story. I can't help but think about Monte Canfield's recent post on love, and the passage from First Corinthians about how love "bears all things, believes all things, hopes all things, endures all things". Your letter to Alex is that love in action. My prayers are with you and Alex tonight. Peace be with you, Patricia.
Thank you so much to all of my OS friends. I truly am grateful to you and for you. Writing Alex that letter and seeing her sleeping on the sofa yesterday certainly helped me with the acceptance of her illness. I do feel more at peace. Tomorrow is her birthday and I plan on stopping by to wish her a "Happy Birthday."
{{HUGS}} I this has got to be tough to take. Beautiful letter, and post. My heart and prayers go out to her, her family and also to your family.
patricia, you did all the right things and you let your heart give you courage that you did not know you had. I am sure that Alex appreciated the words and the love that they contained.

This coming time will continue to be very hard for Alex' family and I know that you will be there for them as well. Not in an obtrusive way but just by letting them know that while you cannot walk in their shoes you can walk beside them as they walk this dark path. Ultimately the final chapter in our lives is not up to us to say the time, the place or the way it will play out. But it is possible for us to share the love we feel and to be a ministry of presence when the hardest of times hit those we know and care about.

My prayers continue for Alex, her family, for you and all who will struggle not only with this pending death but with the hard road ahead that leads into the sunshine again. But given time the sunshine shall be found again, and friends will help until it is.

God bless you.

Monte
my god how heart wrenching.
Hugs to you and Alex.
We all should be fortunate enought o have a friend such as you nearby when the time comes.....


Rated
BTW...Happy Birthday!!!!
You told Alex how you felt before it was too late. That was very important for her and you.
As importantly, you confronted honestly your own fears about death. So few do that.
This is all can I can say at this moment.