So I’m playing with this little piece of walnut-looking growth on my leg—about twelve inches up from my ankle. It’s hard, crusty and black. It’s been something of a friend of late. I run my fingers over it through my trousers whenever I’m nervous. Something about its small hideousness fascinates me. What’s a handsome guy like me doing by producing this ugly little stinker?
I’m in my dermatologist’s office. I’ve got a rash that I know I got from the horses in Peru where I worked for two months this past summer as a volunteer with mentally and physically disabled kids. It was a horse therapy camp, and I’m sure this purple rash came from the animals. The doctor says it’s a possibility and prescribes something for it.
“Oh, before I forget,” I say. “I’ve got this mole that’s really black, and a growth of some sort; it’s black too.”
He looks. “I’ll do a biopsy on both of them but the growth is a harmless wart.”
I’m back in his office this past Tuesday. He’s all cheerful. “I tried calling you...but I couldn’t…”
I slap him in on the arm. “You didn’t try to call me,” I say laughing. I ask: “How were the results?”
His handsome face lights up.”Oh, they’ll be just fine.” I realize he does not have them at all, but just then his assistant walks in and hands him a chart. He peers closely, then looks at me and says:
Uh-Oh. You’ve got Squamous Cell Carcinoma”
“What’s that?”
He points to my purple friend whose head is shaved off because of the biopsy two weeks ago.
“That’s not a wart, that’s cancer, and it’s the type that can spread all over your body,” my handsome doctor informs me.
His joviality gone, he does not mince words. His expression is somber.
There are three basic types of skin cancer: Basal Cell Carcinoma, which is the least aggressive and most treatable; Squamous Cell Carcinoma, which is more aggressive; and Malignant Melanoma, which, although highly treatable, is the real killer.
It doesn’t sink in. Even after he says we have to get it all out and I can smell my flesh burning as his laser dagger tries to rid my body of my evil enemy, it still doesn’t sink in.
As I’m riding home, I begin to think of forms of death, of the ways in which people die; of the method of dying that Nature has in store for each of us. An awful thought hits me. What if I’ll die in my seventies or eighties but the process has already started. These thoughts arise as I instantly recall the spate of illnesses that have besotted me in the last five years: minor surgery for sinus gone awry—as I’m drowning in my blood I hear a doctor say: “Is he still here? He probably won’t make it.”
Blood in the lungs is like acid on meat. As soon as I begin to heal they find two blood clots in my lungs—hospital; I heal, then: meningitis—hospital. I heal—then pneumonia. I heal, then—
I begin to wonder what sort of Karmic debt I’m paying.
The most perplexing thing about this whole experience is the response of close friends. More and more I realize people don’t want to be around death and sickness, and it is not only because confrontation with the disease or illness of another person will shore up their vulnerability. I believe that there is a logic of contagion at work unconsciously in the minds of people. By mere association with you they’ll be contaminated—physically or metaphysically.
Aside from my mother and my partner, none of my friends have responded to this bout of cancer in my life. One friend makes clucking noises in the back of her throat. I want to say: "honey talk the way your mouth was born. There is no conceptual vocabulary for the vibrations you’re making.” She does not ask about it, expresses no curiosity about treatment. Nothing. Another friend wants to know what I did to cause it; maybe I was sending the wrong message to the universe. No kidding, this New Age addict can justify how little children get raped---they will it unconsciously. Even my brother refuses to mention it. His wife has already told him. When he calls, he speaks as if there is nothing wrong, as if he does not know at all. Finally, after about forty-five minutes into the conversation, I broach the subject and in a lowered voice, he says: “I know.”Another friend of over thirty years sends chit-chat emails as usual after I tell him. Pissed at all of them, I send him a wrathful letter. He claims he sent a long email about the cancer.
I make my peace with it all. The care centers in people’s hearts go into panic overdrive during crises of illness. To confront the decay of the body is to see all of one’s illusions about immortality come tumbling down—smells and all. Too many people are hard on themselves, they’ve never been able to be gentle with who we are at the core—creaturely beings. It’s our creatureliness and our animality which we lustrously conceal through the artifices of our human-made civilization that frighten us the most.
Healthy yesterday. Cancer today. I hope it’s all gone. I hope my handsome doctor got that ugly little cretin before it got me. I don’t miss the purple friend—purple being the color of death. But I do have a new relationship to my body. Perhaps this is Nature’s method for starting the Death Game. If it is, then calm acceptance is the only rational response. I have a deeper respect for my fragile body, a sense that, aside from caring for it, it’s pointless to make too much of it. In the end don’t we all look alike behind the skin?


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Comments
Oh, and you are not paying a karmic debt. I mean, I guess we all are, but I don't think that explains your health stuff. I think your point about nature starting the Death Game is spot on. At 42 I already see it in myself.
This. Is why stupid people. Should not. Be allowed. To read "The Secret" or watch Oprah or wallow in "What The Bleep Do We Know?"
I hope you can find or create the kind of support you need. You're right about many people falling along the unhelpful-to-useless scale when faced with illness and the reality that we're all mortal, but others aren't. Go find 'em.
I suspect some of us are here already, waiting to listen.
Ayway, I try to see how their own unacknowledged vulnerability makes them a bit insensitive.
Verbal Remedy, you crack me up. I love Oprah but her moo moo mysticism drives me up a wall sometimes...all these male gurus and all. Thanks for the kind words.
I believe anger is a useful emotion at such a time, much better than turning into a puddle of mush. I had family and friends who were rocks for me and some who were hopeless. We move on. We treasure our survival and make new friends.
One of these days you'll drift off to sleep and realize, wow, I didn't even think about mortality! The problem with anger is that it interferes with your ability to treasure each day, and THAT is what you now need to do. Best wishes to you, fellow survivor.
Be as tough as you can, do whatever you need to in order to get up off the canvas and kick it right back.
it's hard to contemplate things that we don't often let ourselves contemplate. it's sad about your friends though. harder, i imagine, to feel alone at a time like this when you really need their support.
Adversity can be a friend--apparently better than some of the ones you have now. It is often the "acquaintance" who will suprise you by coming alongside to support you as you chart these unknown waters.
Please let us know how you are doing.
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I am sorry to hear about that diagnosis. I had a cancer scare myself recently and it does remind us that we are all living on borrowed time....I believe everything will work out fine. Sorry about your friend's comments....some people are so daft. I will never forget when my mother passed from complications from a stroke and I informed a friend from church and she said that maybe my mother wasn't obedient to God in some way that's probably why he took her. I was dumbstruck and I still marvel as to why I didn't make it possible for God to take HER that day.
Thanks a lot for all your comments. I'm still baffled by people's response, but you've all re-inforced my notion of a benevolent world
I have done quite a bit of volunteering for/with people with cancer and it's not at all uncommon for friends to disappear or otherwise fail to cope with what's going on. As you say, illness and death are nearly taboo in this culture at this time, which is why idiots suggest you brought your disease on yourself - hey, we're Americans, we always control our destiny, right?? And people do often have some visceral irrational fear that "cancer is catching" or something like that.
But I think more often it's simply that people just don't know what to say or do, so they do nothing and avoid the person. One thing that can help is to be honest with your friends and tell them what you want or need, and what you're feeling. If you do that, you may be surprised who comes around. It seems so simple, but I've seen it work many times.
Take care!
For what it's worth, most of the people I know have shown tremendous courage in their battles with cancer. I think of them daily, and, while we've not met, I will add you to the list, for what it's worth.
I'm sorry about your experiences with friends and family members who are having trouble grappling with your illness. Perhaps a support group in your community might prove helpful.
Just my two cents on the silence. Great writing btw.
Hang tough and don't worry too much. I know it's easier said than done. Glad you remembered to get him to look at it!
Big brotherly hugs my friend,
Greg
Squamous cell is usually very treatable. Several family members have had it on my end and they are all fine today. I'm guessing you're having what's called MOHS surgery on it? That's considered to be the best method of eradicating it...
Best of luck with its destruction! You did not get a death sentence...that would have been melanoma, and actually I know someone who had melanoma and ten years later is just fine...and of course we know the McCain story. So....there is lots to be thankful about. I think you're lucky you got to it when you did, and not later when it could have developed into something worse. Your cup is more than half full, altho it may not seem that way right now!
I have been sitting on a post about a drug called DCA which has been found to cure some forms of cancer, but won't be in common use in the USA in our lifetime because there is no money to be made. I've not posted it because I am waiting for a friend who ordered some from Canada to report in. I tried to get some from Mexico, but as DCA is not made there it was not available in the farmacias.
What you have is often not life threatening if caught in time and I hope it was. Mortality can be chilling. I used to do crazy things when I was younger and did not think much on death. It was part and parcel with the military. I would probably so the same things again today, but I would think about it more.
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Secondly, I know it's a scary diagnosis but at least it is not melanoma. That's what killed my father. Squamous cell is very treatable and removable. I hope your doctor got it all.
Godspeed and good luck. I'm sending virtual hugs your way.
Good luck ... thoughts & prayers ... take care of yourself and proceed with power and confidence ... in yourself & your doctors.
((((((((( big hug )))))))))
I'm holding you in my thoughts. I have had those experiences where one day, the world is right, and the next day, well, your world has been turned upside down. And anyone who tries to tell me that 'it's for the best" is not going to be the kind of person who I'm going to hang out with when I'm going through what's going on.
Whatever you need, you have only to ask. Post here, and if you need us, know that you will be answered.
All my best.
As for the things people say, from the mundane to the narcissistic, I've come to the conclusion that they are mostly just scared. That's where the "he must have done something (consciously or un-) to cause it" comments come from, so they can tell themselves it's something they didn't do. The "I had a mole on my back once, too" comments are not so much narcissism as a desire to identify with you in some way, to use the "compare and contrast" centers in the brain to categorize what is happening to you. Only it doesn't come out right.
I don't think these people wish you ill, although I know the things the healthy and UNbereaved say to the sick and bereaved sometimes make US wish THEY were! (Well, I'll just speak for myself.)
Please keep writing.
Greetings from a 5 year squamous cell carcinoma survivor. It was eerie reading your post because I had the same reaction to the news that you did.
One thing to remember: When cancer is diagnosed you immediately become a "cancer survivor, not a cancer victim."
I'm 100% in remission and I hope that you will be too. My thoughts are with you.
Roger
I also want to say that I am here for you to talk to whenever you want or need to about your cancer. I will not shy away, avoid, distract you. I care a lot about you as a person. You are my friend. I am your friend. I will be holding you in my heart.
Our society certainly discourages those kinds of discussions. It may have begun as a good impulse--a desire not to further upset the ill or grieving person, for example--but it has had the effect of leaving us without the ability to talk about disease and death. I find that if you have had to confront these things often enough you begin to see it all as just another part of life. And you no longer feel such a deep need to avoid it.
There are plenty of us here. Just holler if you need us.
I hear what you are saying about the mixed response from others. I was diagnosed with breast cancer at 40. I was healthy and fit with no family history. My first mammogram caught it. I was like a deer frozen in the headlights of an oncoming semi truck, in utter shock and disbelief.
After spending my entire life in health care, I was on the receiving end. No one knew how to respond. My boss, who has the emotional constitution of Atilla the Hun, burst into tears when I told her. My mother went into hysterics. Everyone sent flowers & cheerful Get Well cards. My home looked like a funeral parlor. My mother called 5 times daily to tell me about the remedies she'd heard about - eat cinnamon, drink green tea, cut sugar, take Vitamin D. Friends made rare, polite, uncomfortable phone calls. But many of them withdrew, even my brother. I was at first somewhat hurt and angry. Exactly as you described. Did they think that not talking about it would immunize them!? Did they think I was contagious!?
My friend/neighbor brought her baby girl over daily as I recovered from my succession of surgeries. We visited in the sunshine of my garden, but she never once spoke of it, or asked me any questions about the cancer. She never commented about the Frankenstein tubes sutured into my chest and protruding from my blouse. No comments 0n any of it. Ever. I could have been angry, but then... conversely...I found it welcoming. I was swimming in cancer, and to hear and see and know that life goes on was healing. It was very important to me to have days that cancer was not the center of the universe because I was so damn sick of cancer. I found myself grateful for those visits and grateful to be able to play with her beautiful baby girl in my flower garden. I was grateful for phonecalls with friends & family so that I could hear about them, their lives, and experience vicarious thrills, and laugh and laugh. They gave me moments free from thinking about my illness. What a gift! And as I was able to laugh more & be a little lighter, they grew more comfortable talking with me, even about the cancer. Recouping my sense of humor helped erode their fears.
It's funny to find that, sometimes, when YOU are the one with the diagnosis, it's up to YOU to console others and make them feel comfortable with the situation. I guess people can be funny that way - as if they're waiting for a que from you as to how to progress. I've been guilty of that myself. Now, because of cancer, I know better. What a valuable lesson, huh?
I want you to be healthy and happy. I hope your cancer never returns!!! And I hope that should a friend or loved one get a bad diagnosis, you'll be able to show them the compassion & love that they didn't know how to give you. I am sure you will!
I had a big BCC dug out of my left temple about 5 years ago. I had let it go too long so the doc put me under so he could take the time to do it right as an outpatient in the hospital.
Two years ago in the dermatologist's office I had a SCC like yours taken off my back near the spine. Last Spring I felt a lump there and about fainted. The doc took that out and it came out to be scar tissue.
I look at it this way, and it works for me because it is true. Think of all the cancers you could have. Of all of those, BCC and SCC skin cancers are the most treatable, metastasize the least and, if they come back usually come back in the same place.
Cure rates on those two types are well over 90%, which is pretty good odds if you think about it. If I am asked about either cancer I just say, " Well if you have to have cancer these were the kinds to get."
The only real problem is that since I am a lot older than you a lot of suspicious skin spots pop up as I age. My wife thinks that my dermatologist is using my body for practice in biopsy!! I have had since that first BCC somewhere around 15 biopsies. I really have lost count.
But once you have a skin cancer you need to go into the dermatologist every 6 months for a full body check up. Don't fail to do that. Make sure the doc looks carefully everywhere. That is no time for him/her to be in a hurry and no time for you to be shy. And if he says, "maybe we ought to take a closer look at that" then just let him do it. So far all my biopsies have come back as something other than cancer, something non-threatening.
There are so many people with cancer that are so much worse off than you and I. As a pastor I see them, spend time with them, listen to their fears and their hopes, and, yes, too often I bury them. Their situations put mine in a different perspective than I would have if I didn't know what they have gone through.
I never say "there but for the grace of God go I, because I don't think God sits up there somewhere deciding who gets his grace and who does not. But over the years I have come to believe that whatever is thrown my way I only have to look around me with a little empathy and I will see someone else who has it far rougher and is showing amazing courage in the face of his or her situation.
I will pray for your continued healing.
Monte
I'm a real redhead and live in the Mojave desert. I don't always remember to wear sunblock, and am on a monthly to six-week visit schedule with my dermatologist. I call her Monica and she calls me Sweetie. I've lost track of the number of "things" I've had removed over the last year.
I have had things frozen off me that actually had a NAP by the time I got them removed, but they turned out to be acitinic keratoses, seborrheic keratoses, and plain old verrucas. I've got a thing on my left breast right now that is large and ugly but isn't cancer, but I have to save up to get it removed (no health insurance). Actually, it might be more accurate to say I have a large "thing" on my left side that has a breast under it. Sigh. Keep getting those checkups. Wear sunblock.
We want you around and writing for a long time to come.
Well, son, I'll tell you:
Life for me ain't been no crystal stair.
It's had tacks in it,
And splinters,
And boards torn up,
And places with no carpet on the floor --
Bare.
But all the time
I'se been a-climbin' on,
And reachin' landin's,
And turnin' corners,
And sometimes goin' in the dark
Where there ain't been no light.
So boy, don't you turn back.
Don't you set down on the steps
'Cause you finds it's kinder hard.
Don't you fall now --
For I'se still goin', honey,
I'se still climbin',
And life for me ain't been no crystal stair.
I may need to apologize for being trite but what can you expect from a guy who resides in a state where the best thing anyone can think of to put on our license plates is " Famous Potatoes."
To all the wonderful people to submit comments. This man is a wordsmith of the highest order isn't he? Reading his posts is always an odyssey that I look forward to taking. Everyone of his efforts should have this many comments and attention. There is a bunch of good writing on this site, which I love so much, but Jason D. Hill's work is steps above us all. His posts are art, pure and simple. I read his stuff and then read mine and its like comparing a college professor to a fourth grader. It's like he is using a fine calligraphy pen and the rest of us crayolas. I swear he could make a post on getting a root canal inspiring.
Jason, get well in all ways and thanks for always commenting and encouraging me in my writing efforts.
But what really struck me is the title of your post. You say "healthy yesterday" and then describe what sounds like 5 years of hell. Almost anyone else I know, if they had gone through what you have, would consider themselves invalids for life. Amazing attitude, amazing life force. Good on you, mate.
I really hate these people. Really.
Jason, I'm sorry too--everything that's been said above. What a shock, what a scare. And to feel as though you can't share this with the people closest to you.
People are just weird, aren't they? They generally don't mean to be, but they are.
{{HUGS}}
When people seem to change the subject and tell you about the illness they've experienced, they are not (only) being narcisistic, they are saying, "You are not alone."
You are not alone.
I recommend a lovely book called "Cancer Vixen" by cartoonist Marisa Acocella Marchetto for inspiration.
yrs,
Andy A
You are not alone. And those of us who have been there weep and hope for you.
As a nurse I have found the best way to put others at ease which, sadly, becomes your job, is to get rid of the elephant in the room and talk about it. Put it into your conversation at the appropriate moment and tell them it's OK with you to kick it around. This provides relief and conversation.
.
I've also found that, when a friend is afflicted, up-front sympathy works well. "Boy, it must be tough dealing with that. Does it give you [stomach aches, headaches, back pain, etc]?" And don't ask how you can help -- TELL the person you'll be bringing dinner over next Tuesday and does she/he like pasta? Give them the opportunity to control even a little bit of their lives. Remember, the lack of control is at the heart of the fear. Control provides autonomy and they will have you to thank.
If you would ever care to contact me, put it into a blog and I'll find you. I wish you well, and commend your wonderful command of the language. Well written blog. Best, Judy
I think the above statement nails it. We, as a society, have so sterilized the concept of death that we have lost touch with it, as we have with other aspects of nature, not to mention human nature; the false dichotomy we create between us and nature. Sometimes it seems we don’t even know ourselves anymore as a species. My guess is that some of your friends just did not know what to say, but I can’t know that, because I don’t know them; it’s just a guess that may apply to some of them.
I sincerely hope you caught the cancer in time and that it does not reappear. Stay on top of it.
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