A Hard Day's Blog

Oh, by all means, I'd be quite prepared for that eventuality.
SEPTEMBER 14, 2009 9:09AM

Top 10 Things Not To Say To Someone Experiencing Infertility

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A long time ago in a galaxy far, far away, my husband and I spent several years navigating the rather surreal world of infertility.  Tubes were checked, sperm were counted, hormone levels were graphed, ovulation tester sticks were peed upon, and drugs were taken, both orally and by injection.  You know you've hit rock bottom when you say with great weariness, "Honey, we have to have sex tonight," and you both approach it as some kind of grim chore, not much more pleasant than cleaning out the litter box.  

Still, that was better than lying on a table under fluorescent lights, feet in stirrups, trying to think pleasant thoughts as a catheter containing the sperm that was deposited into a cup is inserted into your uterus in hopes that it will penetrate one of the recalcitrant eggs that your drugged-up, grapefruit-sized ovaries have been tricked into producing.  (Geez, can't I even have a glass of wine first?)

Then there was the waiting.  A couple of weeks of grossly inflated hopes, trying to convince yourself that this one would be the one that "took".  But it just never was.

With the passage of a lot of time and a lot of soul searching, I eventually made my way through it.  I was also helped immensely by a book that I felt at the time must have been written just for me:  Sweet Grapes:  How To Stop Being Infertile and Start Living Again by Jean W. Carter and Michael Carter.  However, I'm not going to recommend this book to anyone, as doing that would probably have to be added to my list of things not to say to an infertile person.  I found it on my own when I was ready, and I trust that other people will do the same.

After I put the finishing touches on this blog, I googled the phrase "things not to say to an infertile person", and I found several other lists with many similarities to mine.  That made me feel confident that I'm not making this stuff up or exaggerating.  These were all things that were said directly to me, in person or online.

So here, in no particular order, are The Top Ten Things Not To Say To Someone Experiencing Infertility (with bonus pithy commentary):

(1)  You need to relax!

The fact that rape victims can get pregnant puts this one to rest pretty quickly.  I can't think of too many situations that are more stressful than that.

Of course, I was experiencing anxiety over this, but telling me that I need to relax sounds like you're blaming me.  Infertility is a kind of illness, a malfunction of one of the body's systems, so please treat it that way.  You wouldn't tell a cancer patient that she'll get well if she will "relax", would you?

(2)  You should just adopt!

Adoption?  Why, I've never heard of that!  You say you can pay thousands and thousands of dollars, have every aspect of your life scrutinized, get put on a potentially years-long waiting list, and then possibly have the biological parent change her mind?  Sign me up!

Seriously, though, this one really irks me.  After two miscarriages and several years of infertility testing and treatment, we were tapped out physically, financially and emotionally.  

It's not just some kind of checklist you go through

  1. Try naturally:  Check.  
  2. Go through testing:  Check.  
  3. Clomid and timed intercourse:  Check.  
  4. Injectables and IUI:  Check.  
  5. IVF:  Check.
  6. Adoption:  Check. 

and only when you complete the checklist are you allowed to grieve your inability to have a child.  No matter where you stop, you're still allowed to grieve. 

After spending years trying to become pregnant, considering adoption is a complete switching of gears, and it's just not always possible to do that. Sometimes you just want it all to be over.

The fact that we didn't adopt doesn't mean that we really didn't want children enough.  We decided to start a family for the same reasons most people do - we wanted to create a being that was a part of us.  Is it selfish?  Of course it is.  So what?  Most people don't have to think twice about it, though.

Anyway, it is not the responsibility of infertile couples to take in all the unwanted children of the world.  I am in awe of those who have chosen this path, but my heart just wasn't in it.  I don't think one should do it under those circumstances.  That doesn't seem terribly fair to the child.

And I wonder if couples who already have one or two of their own biological children and are considering having another ever have this suggested in such a dismissive way.  After all, if anyone should consider adoption, it should be those who have already been blessed, right?

Look, it's just a very personal decision, and it's not the "answer" to every couple's infertility problem.

(3)  You want kids?  Please, take mine!

Oh, I get it.  Raising kids is hard!  Thanks, but I think I already knew this. And besides, I don't want your kids.  They're funny looking and rude (I'm kidding - your children are adorable). Also, you don't really mean this.  You're just trying to be cute, and you're not succeeding. 

(4)  There's probably a reason for it.

Like, maybe, my potential child was going to be the next Hitler or Manson? Something like that?

I do actually know the reason for one of my miscarriages.  It was an abnormality resulting in a fetus with a genetic makeup that was "incompatible with life".  (That's exactly the way it was phrased in the report.  I find it kind of strangely poetic.)  But, what was the reason behind that?  It's simple:  there is no reason for these things. 

Would you ever tell a parent with a severely deformed child that there was a reason for it?

Sometimes bad stuff just happens, and that's that.  At least that's the way I look at things.  Please respect that.

(5)  Oh, you're still young.  It'll happen.

I'm not that young and how do you know it'll happen?

You are not clairvoyant.  Don't give me false hope based on nothing more than your need to be "supportive". 

(6)  My cousin adopted a baby, and then one year later, boom, she was pregnant!

Well that's certainly a good reason to adopt, isn't it?  I'm also pretty sure this doesn't always work.  I can just hear the discussion now...

Joey:  Mom and Dad, why did you adopt me?

Mom and Dad:  Well, we really thought that, if we adopted a baby, then we'd get pregnant.

Joey:  But I don't have a brother or a sister.  So it didn't work, right?

Mom and Dad:  No it didn't.  But we've got you.  And you're the next best thing! 

(7)  Have you tried accupuncture - meditation - standing on your head after sex, etc.?

Certainly not all at the same time!  But, yes, believe me, we explored just about every avenue, be it based on medical science or on an old wives tale.  We even went to a Chinese herbalist, who kept talking about "the house of the baby" (I assume he was referring to my uterus), and I spent two weeks drinking some sort of dark brown liquid twice a day that tasted like a combination of tree bark and liver.  It made me want to throw up, which is the closest to pregant I got with it!

(8)  I wish I had that problem!

So you're...what?  Hyperfertile?  There are things you can take for that, you know.  Now please go away before your water breaks on my carpet.

(9)  There are too many people in the world anyway.

Thank you Mr. Malthus!  I fully realize this, and I promise that, if I'm lucky enough to have one, I'll immediately kill myself so it'll all even out.

Besides, you should be talking to the Duggar family.  They live in Tontitown, Arkansas, and they probably have their own page in the phone book.

(10) I think that people who have infertility treatments are selfish.

I am actually torn on this one.  I did think it was kind of selfish when I was going through it.  Selfish for me - I'd never judge someone else for it.  It was also incredibly expensive and mostly not covered by insurance.  I know that medical resources are a finite commodity, so, yes, I was conflicted.  I went as far as considering IVF, but took one look at the procedure and knew that I just couldn't go through with it.  

But is it only the treatment that's selfish, or the desire for a child in the first place?  Frankly, I thought they were both selfish (again, for me), but it seems like it's only the infertile person who is "lucky" enough to hear this one.

In situations like this, here's a good rule of thumb:  Not every opinion that is in your head needs to be voiced.

____________________

 

I know that people want to help, they want to be encouraging, and they want to say something.  I truly appreciate all of the people who listened, who cared, who prayed, and who felt some empathy with us.  I don't believe that any of the inappropriate things people may have said were said with malice or out of spite.  And believe me, I'm not perfect either, so I learned from my own "foot-in-mouth" experiences what not to say to other people going through this.  The same principles can be applied to any other situation where someone is suffering and you want to say something.  Acknowledge the pain, offer your support, and express your hope that things will get better.

If someone shares their infertility issues with you, I think the best thing to say is something like this, "I'm sorry you're going through this.  I know it's difficult, and I hope things work out for you.  Let me know if there's anything I can do."

And if any of you now reading this are going through it, that is what I want to say to you.

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Comments

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Thank you for posting this - I have a friend who is currently trying to get pregnant but with some pretty significant barriers to over come and I never quite know what to say to her. I always feel like I need to 'make it better' but , like grief, this isn't something that I can make better, and that's not necessarily what she's asking for.
This is a very lucid testimony, acknowledging your first-hand insight (which we feel sure you wish you lacked), needfully pointed, and through it all, deeply caring. Thank you Jeanette.
We heard all these. Had I been in possession of your civil answers, perhaps we would not have needed a new bunch of "friends".
No regrets. So it goes.
This is perfect. This subject sits in my "too painful to write about" file. I'm glad you did it so well--so I don't have to. Every single one of these is exactly right.

I remember once, in a past marriage, looking at the itemized bill from the lawyer managing the adaption; and seeing on the piece of paper that there was a total of NINE people I'd have to write checks to--some for an indeterminite amout of time, if I wanted to go ahead with the adaption. And this was even an adaption from THIS country. The public in general simply doesn't get the emotional, financial or pragmatically logistical cost of adaption. It ain't like a Hallmark TV movie.

I hope you figure out a way to get wider distribution for this than you are likely to get here. Because reading this would help a LOT of people.
Your thoughts and insights here are priceless. Thank you for sharing this piece. It's hard to know what the "right" thing to say is. Hopefully it helps others, and hopefully it has helped you.
Well done, Jeanette. Funny, sad and true. Thank you for sharing this. I also share the hope that this gets the EP it deserves and gains a wider audience.
Thank you all so much for your kindness!. I think everyone probably has a "top ten" list of things that they wish people hadn't said to them when they were going through a difficult situation.

Does anyone else find it ironic that my google ads are for IVF, a fertility specialist and an adoption agency? :-)
People staying stupid things is why I've become a big fan of, I'm so sorry, that just. . . sucks.
I shuddered in horror at the idea people say these things. Jeanette, I'm so sorry.

But I did laugh, just a little, at your ads...
Mrs. Michaels, I like that one. Most of the time, I think that's all that needs to be said.

Ash, it's OK to laugh. I can't tell you how glad I am to be in a place where I can laugh at it.
also...if after trying for 6 years, someone does actually get pregnant only to miscarry after a few weeks. Do not, i repeat...do not tell them all things happen for a reason. or better yet (my husbands neice told me this one) if i had accepted Jesus Christ into my heart i might have been abe to carry it to term...nice huh?
Wow, Indie Girl, that definitely wins the prize for most hateful, ridiculous thing to say. How do people like that sleep at night?

I'm so sorry that happened to you - all of it.
Jeanette, this is great! I know it comes from a lot of pain, but you have transformed it into something extremely helpful and even quite funny in places (and I'm happy you can joke a bit about it now, too, although I know it will always be sad for you).

I think many if not most people just don't know how to respond to painful situations, especially ones that make them feel helpless. They want to "fix" it, they want to make it go away, so they offer unhelpful advice or platitudes. As you note, we all have done it, and will continue to sometimes in situations that we are clueless about or which make us uncomfortable. The more people talk openly as you do here the more we'll be aware not to do that.

I will say that for some people there is in fact a process such as you list in #2. But far from everyone. And having had 2 close friends adopt in the past few years, I've seen exactly what you say, which is a very very long, complex and difficult process. One friend was really on the edge by the end of it, although in both cases it ended up wonderfully. But people who blithely recommend it don't understand not only the emotional reasons some may choose not to adopt but the very real difficulty of adopting these days, esp in the US. Both of my friends ultimately had to do international adoptions to even have a chance at getting a baby, and those are even more difficult, and it took years even after they decided to go international. People think it's still the pre-choice 1950's when a lot more single women were giving up babies in the U.S. and it was easy for married couples to adopt. It's actually quite hard now.

In any case, I think you have done a real service here turning your pain into something useful. This should be on the cover of OS!!
Silkstone, thanks for sharing the stories of your friends who went through the adoption process.

And something else you said makes me want to clarify Item #2. You're right in that it is a checklist, in that you do go through things in a certain order, for the most part. What I think I really mean is that not everyone wants to or has to complete the checklist in order to feel "worthy" of being able to grieve their infertility. I may go back and update the main text to express that thought.
*In his best snagglepuss voice*
Well said. Extremely well said, even!

*
for those not familiar with snagglepuss:
http://www.youtube.com/watch?v=k4qFxTTi8q0
*

In situations like this, here's a good rule of thumb: Not every opinion that is in your head needs to be voiced.

That is something every human being should have tattooed on the back of their hands, or someplace always visible.

Thumbed. Sincere hopes for everything working out for you.
i'm in the boat with the people who just say something to the effect of "god...i am just so sorry." it's way too easy for me to put my foot in my mouth. also, i have had "helpful" comments from some friends about a medical condition i have, and those people had nooooo idea what they were talking about. p.s...if i have put my foot in my mouth without realizing it let me know!
"...they want to say something." I truly think that when people are uncomfortable and don't know what to say, they say stupid things. Most people going through something hard just want someone to listen. Most people don't know how to just listen.

Thanks for sharing. I know this couldn't have been easy. Rated.
Bill S., I haven't thought of Snagglepuss in many years. Thanks for the video link! And thanks for the good wishes. Everything has worked out. Not the way I might have planned, but life is still good.

Gwen, that's so true. And that's why I can't be angry at anyone. That impulse to want to make things better is so human (and humane), I can't fault anyone for that.
Couldn't agree more. Thanks for taking the time to share these insightful recommendations...
You wrote:
"We decided to start a family for the same reasons most people do - we wanted to create a being that was a part of us. Is it selfish? Of course it is."

I really appreciate you writing this. A lot of people used to call our own 'childfree' lifestyle choice "selfish" - my response was, whatever could be more selfish than wanting to create a child yourself in a world where thousands of children languish in foster homes and orphanages, unable to get suitable adoptive parents?

Wanting to have a child is one of the most selfish acts a person can do. You're creating another living, breathing being that will consume limited resources on an already stressed planet.

That having been said, I have no problems with people who choose to have children. Hell, maybe we'll still change our own minds someday. But when and if I do decide to have a child of my own, I'll definitely know why I'm doing it - utter selfishness.

And there's absolutely nothing wrong with it; if you can admit it. Just don't delude yourself.

Rated.
Jeanette, I am so glad that we connected over this. Our stories are different, and you had to go through a lot more physical stuff than I did, but I know we can relate to each other. After my first miscarriage I had a close family member tell me that's why we shouldn't have told anyone I was pregnant until I was further along - I guess because if we would't have told them then we wouldn't have to tell them I miscarried? I don't know. The only thing you can ever say, whether it's a situation like this or a death or anything like that is "I'm sorry". So many people just don't get it. Bless you for telling your story. I'm sorry this happened to you.
I just posted my second ever post and it is about this - I then had the great idea of searching for others who have gone through this and I found you! Thank you for writing this post, I love it. It's perfect.