Joan's Blog

"Watch Me Pull A Rabbit Out Of My Hat"
AUGUST 12, 2012 9:38AM

Waiting

Rate: 68 Flag

While teaching my 4 0'clock Family Yoga class last week, I kept apologizing for my voice. It cracked, it was hoarse, my guided meditation must have sounded awful. I turned up the music and let them drift into Savasana without too much of my throat clearing interfering with their peacefulness.

The next day, it looked like an egg had hatched under my neck. The egg-like shape was hard and tender to the touch.It hurt to swallow.  For the past week, I've been waking up to the same egg under my skin. Eating has become nearly impossible. 

My doctor immediately took three vials of blood, and sent me down the elevator for an ultrasound of my neck.

The ultrasound tech moved the wand over the egg, frowning, moving it back again to the same spot, frowning some more. I watched her eyebrows knit together and immediately thought she would be a perfect candidate for Botox. All technicians could use it. It could be in their contract. 

You must keep an absolutely still poker face, or you will be subject to Botox injections. 

I studied her face, the lines between her eyebrows deepening. I tried to look at the screen, but the angle was just out of my sight.

I remember my only other ultrasound twenty one years ago. That one, they put in front of me practically, like a television set. Big head, five fingers, sweet images. The doctor even gave me the images to take home. They are in my daughter's baby book.

This time, there are no pictures to take home.

The doctor calls the next day. You need to schedule an MRI and a biopsy as soon as possible.  

It's a funny thing about bad news.  I hear it, but then I go somewhere else. Someone else takes over. I'm not sure who she is, but she is efficient and without emotion. The MRI is scheduled for the next day. The doctor has to use her pull to get me in for the biopsy, because the wait is two weeks. She wants it done now. 

Friday evening, the MRI place calls to say my insurance requires pre-certification, which could take a couple of days. The test is cancelled.

I am left with a weekend of waiting. 

I told a few trusted people what was going on. I asked for prayers, or good thoughts, or just good juju sent my way.

My husband asks me every half hour how I'm feeling, or if he can get me anything. I want to tell him to make this go away.  

It's the waiting that is the worst. Once there is an answer, the wheels are set in motion. Living in limbo is the worst.

So I text my friends. I call my daughter because she will make me laugh. I go out to the store and buy magazines and not so healthy snacks. (I can't swallow them anyway.) I talk to my level headed friends who calm me just by being level headed. I assure my husband I am okay, because he is more afraid than I am. 

I don't know what the outcome of these tests will be. But like most everyone else faced with a health issue, I think about dying. It comes down to that.

I don't want to die.

I love my life, I love my family, I love my friends.

I haven't seen Paris yet.

This morning I opened my email to see my daughter had sent a gift certificate to me with the words, "Treat yourself, Mom. Don't worry. I love you~"

I think how I would give up Paris every time, if I could just have years and years left to spend with her...

Yesterday I bought a magazine. I wanted to read the article, Seven Secrets of Resilient Women.  The subscription card falls out of the magazine. Two years for the price of one!  It's a great deal. I don't fill out the card because I worry if I am not here in two years, what will my husband do with MORE, The Magazine for Women Over Forty?

I have one more day to get through before they (hopefully) can give me the tests my doctor ordered.

Then there will be more waiting.

One of the wisest women I know told me, There is no comfortable way through the waiting... She is right. Waiting is supended animation. There is nowhere to go, and nothing to do to make it move any faster.

So today I will teach my yoga classes. Smile at my husband reassuringly.

I will take my dear friend's suggestion for what to do with all my peaches from the Farmer's Market: Stand over the sink. Eat. Rinse hands with cold water. Repeat. 

 

Waiting. 

 

 

 

 

 

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Please don't feel obligated to comment on this~ Just know I appreciate you reading. xox
Joan more love you that you can possibly know, here, elsewhere.

Last year we waited nearly two weeks for a similar result. Negative. Relief.

I so get this.

We are hugging you, Joan.




r for resilience
This is gonna be a long day. Dammit, if you were here there's no crap with insurance and you'd have had the MRI. I'm no doctor, but cancer doesn't produce an egg-sized thing o'night, I don't think. Probably some thyroid deal. Anyway, all best - can you doze away a lot of the day?
Somehow, Joanie, I know you will prevail. I just know it. :-)
So sorry. I don't like that egg thingy. I want you to be well. Waiting with you....
Reading your words ... understanding about the going somewhere else ... wanting you to know ... at the very least ... that as you are waiting ... you are not waiting ... on your own ...

Thinking of you ... with love ...
Oh, Joan. I hope the day goes very fast for you and then the wait for the results. Wishing you strength and peace and patience. And of course the best outcome.
I'm with Myriad here Joan... some kind of glandular thing.

But the waiting... no kidding. Good juju on the way from oZ..
Waiting with you. Thinking of you. Love sent from afar. Laura
there's no pre-certification in my wishing you well and hoping that Myriad is right; waiting can be intolerable, please know that you have much karma points on your side ... prayers and thought sent your way.
Do you think that if you slept with your mouth open that frog would just hop out and go on its merry way?

My wise old grandmother used to say about things like that, "Don't worry; nothing really serious ever comes on overnight."

(*Watching the clock - helpin' ya wait*)

;-)
.
Waiting sucks. Not knowing sucks. Here's hoping that this can be dealt with. There is nothing worse than not knowing.

You are not asking for advice so forgive my kibbitzing. Get on the horn to the insurance company tomorrow first thing. Ask to speak to a senior manager and explain why you need an authorization for this test immediately. Continue to escalate to the president of the company until that test authorization is completed.

It beats sitting around waiting. One more thing, it wouldn't hurt if you used every emotion in the book when you are on the phone with the insurance company. Trust me, it works.
The abyss. I hate that view!

While you're taking it in, as you must, a few responses from someone who mailed too many postcards from that dark dump:
tumors tend not to hurt, tumors don't grow as big as an egg over night. Our necks are one of the primary locations for lymph nodes, and a ton of swelling and infection fighting gets done there. Also worth mentioning is that ultrasound techs ALWAYS scowl. It must be something about reading that weird screen.

My doc told me not to go on the internet and research my disease. Of course, I didn't listen. Waiting without any info is hard. Without going into detail, I'll just say she was right. Try really hard not to do that, okay?

I'm holding your hand here. You feel it?
Damn weekends. Damn insurance companies. Damn lumps. Damn waiting. Thinking of you. Hang in there.
(Meant in an Andy kind of way. If I can't fix it, I hope I can at least make you laugh. That said, you need to stick around because we have a yoga/mojito date. Good juju. Love. Light.)
I don't like that you have to wait, then go for tests, then wait some more.

But I will pray for you and send you good thoughts and good vibes, Joan.

And I'm rating this because I like you.
Sorry you have to wait so long for results. Maybe it is only a goiter. That's not wonderful but still it's not life threatening. You are remembering the important things like loving your family--and we should all do that.
Oh my gosh, prayers for health and a simple solution to this. Since this is so sudden, it certainly seems more like a virus or infection as opposed to a tumor. Cancer is insidious and this egg is saying "hello world" on your neck.
I'm right there with you, Joanie, waitin' and prayin'.

Lezlie
The waiting is the worst. I had a bad mammogram that required further, more sophisticated mammograms.... three weeks later. Lost five pounds in a week. My late, great friend, Jeff, always told me, "Don't borrow trouble." And yes, I know that doesn't help so I'll just send good juju, and a prayer your way.
The waiting is the absolute worst! I don't know if this helps any, but I think you are going to be okay...and I am not usually wrong about these things.

Now, if you where pregnant and wanted me to guess the sex of your child...I would be wrong... even my unconcious would be wrong. I was wrong about the sex of my first born child, and my first grandbaby also.

I am telling you this, so that you know that when I am wrong i admit it. But, i don't think I am wrong about this. So, keep writing and waiting and let us know.
I see you and V in Paris, walking through the Tuilleries Garden, all of this angst a distant memory. It's a warm day but not too hot and everything is green and beautiful. Peace and love to you, and a whole handful of grace.
Sending you my love and hope. Sometimes these neck things are thyroid related. And from what I know...easily cured. Have just walked into the waiting room with you. Holding your hand.
Sending you lots of love, and many healing prayers, dear Joanie H! Hopefully it's just laryngitis with some giant lymph node...tell that darn egg to vamoose. Your daughter is such a sweetie, and she's right.
A few years ago, the nice mammogram people called me to come in for a re-test for something suspicious. I fell completely to pieces - surprised myself at how freaked out I was. Your response, by comparison, sounds mature and appropriately concerned. I agree with the other commenter - egg-size things don't materialize overnight. Good luck. BTW, love your writing as per usual. :)
thank you for letting me be one of those people you trust. i'm sitting here calmly, imagining you in paris. i know you'll get there.
This is one big waiting room.
The old cliche "waiting is the hardest part" is true. What we don't know, what we conjure in our imaginations, is generally much worse than the reality. When I had to wait 10 days (yes, count 'em, 10) for biopsy results (thank you, Christmas and New Year's, and thank you, pathologists, for spending the holidays with your families--truly a lesson in "I am not the center of the universe"), I couldn't help thinking about it occasionally, but I made a conscious effort not to. I went to work. Rick and I played endless games of Scrabble. We had dinner with friends. I watched DVDs (the "Rome" mini-series got me through quite a few hours). I made up my own mantra, which was the only thing I would allow myself to think when my mind started straying into scary territory: I am strong and healthy, I am strong and healthy.

When I mention that "I am not the center of the universe" thing, it isn't in a bad way. I think of Steve Blevins' post upon his PD diagnosis--the gist of which is, regardless of whether I received an unfavorable diagnosis, the world is no less beautiful today than it was yesterday. I thought about that post a lot, in fact, while I was waiting, initially and later, because there were other waits to come.

I found a certain strength in being strong, if that makes sense. I didn't do it for anyone but myself. But the one thing I had control over was my reaction--to waiting and to news no one wants to hear--and control freak that I am, I was determined to control what I could.

Keep doing what you're doing. So many people are thinking of you and sending good thoughts your way. Let us know what happens.

"All shall be well, and all shall be well, and all manner of thing shall be well." --Julian of Norwich. (Not such a bad mantra, either.)
Nothing is more important than pre-certification!
Nothing!
And that sucks...cause it means nothing is more important than money....nothing!
As for that egg...I hope it is nothing...NOTHING!

Prayers your way!
"I don't want to die." Oh damn!!! How that resonates with me. I had another close call in the last week of July and I know about "waiting." Got my fingers crossed for you and I'll be hoping for the best.
Joan!
Thanks for being willing to share this -- agghhh! The waiting....
Many prayers and hugs going out into the ether toward you, you are so cared about around here --
Not to be able to swallow? But you're so tiny already!
What myriad says makes sense to me too...when my friend had a very similar thing occur, it was about sugar metabolism issues...regardless, you and your family are very much in my thoughts and prayers.
Peaceful thoughts to you. R
best of luck to ya....
My thoughts are with you, as you might expect Joanie. After my urologist said "Well, I'm pretty sure you have cancer..." and after a saturation biopsy (27 tissue samples) that all came back negative his response was "I'm surprised." No "I'm sorry you had to go through this" was offered. The point is, I suppose, is that in addition to good news around the corner...there are the friends and family who love you that will sustain you until the good news arrives. I expect the best. And you booking a flight to Paris.
Joan - Best wishes - we're rooting for you and a happy outcome!
Joan, I wish I had something wise to say. I had a cancer scare earlier this year and know exactly how you feel about waiting. I'm glad you have friends and family in your life to bring you comfort, and I'm glad you're able to write about your feelings - I can't imagine how much worse it must be for people who have no outlet for their emotions. I wish you calm and peace in the waiting time, and I wish you luck for the rest. Sending you my good thoughts and prayers, and good juju, too.
Sending love to you and prayers for you, Joan.
Sending prayers and good karma your way, along with Paris breezes.
Waiting with you... :)
All the best, Joan. Yes, waiting is the worst. But someone once told me it's not the things you worry about that are the things that are turn out worst. That isn' t the most comforting thing, but it usually turns out to be true. And how wonderful to have a great support system!
This makes me want to use the "F" word in a big way.
Remember this about worry, it's like a rocking chair, keeps you busy but gets you no where.
Sending you calming thoughts and wishes for speedy answers.
xoxo
Joan, sweet Joan, beautiful juju wafting to you from me. See, you are held aloft by all this warmth here. We will all hold the net very tight while you are up in the air. We gotcha covered. Blessings, lil buckaroo.
so many wait with you...love and love and love
...then more.
the candles burn brightly for you here sweetie
Sending you good (and your family) good thoughts.
r./
Beautifully written, as always. A story of a journey too many of us know.

The waiting is always the worst part because we are trapped between action and inaction. Glad you're doing your class, a positive action. Keep remembering you aren't Nearly done yet. I'm positive. Period.
Yes, I know about this waiting and about going efficient and elsewhere. I found it comforting in a weird way; each 3-week gap gave me time to assimilate the news and to rearrange my life. Prayers for you and the medical professionals.
Praying and sending good thoughts and juju your way.
waiting right along with you
Oh, Joanie, I didn't know, and now I do, and you have my prayers for patience and bravery and lots of good news. Keep writing, it is too good to waste.
Joan, This song is for you today. Visualizing you ... as a Free (Wo)man In Paris.

"If l had my way/(You'd) just walk through those doors
And wander/Down the Champs Elysees
Going cafe to cabaret/Thinking how I'll feel when I find
That very good friend of mine."

http://www.youtube.com/watch?v=0k4uqcoGaCM&feature=related
Best of luck for a good outcome. Hopefully it's just an infection. It would have been nicer if she had told you what she was thinking when she ordered the tests so you could have a little peace of mind. I always try to keep that in mind, when I go through this, what would I want to hear. Hopefully, you can have a little mental savasana soon.
Hoping and sending thoughts out Joanie.
Cancer scares are awful -- I've had two. I will keep you in myo thoughts and I send you good vibes. I know you will make it through no matter what happens.
Thank you, to each and every one of you lovely people. xox
Sending only good thoughts and wonderful wishes of health. I am sure this has been said but please let us know as soon as possible that you are A-OK!
You're in my heart, Joanie. Hugs and good thoughts, flying all the way across the country to you.
Prayers and hugs! I'm thinking this will be not as bad as you imagine. If you think of it this way -- they know the worst, and have to rule that out first and have to frown, and do the eyebrow thing. More than likely they do not suspect the worst, but have to do this required eyebrow thing so that you can't try to read between the lines (forehead lines in this case). They aren't allowed to tell you anything until after tests. Even the good news can't be told to you until after tests. They can't say, we don't think this will be anything bad, but we have to run a test and make sure. So they have to do exactly what you saw them do. Otherwise, they would be in there all day with patients asking a thousand "what if " questions and getting distraught. Might be a simple infection but they have to rule out the other things. You might go in there for those tests all worried and come out all happy. That's what I'm going to wish for you. :)
Prayers ascending for patience, good news, strength, peace.
Oh Joan, I am so sorry that you are not well. The stupid insurance industry is not health care. Amazing isn't it? An important test cancelled because of them. Well, I am sending you love and light. May it all surround you and make you feel good. Best to you.
Waiting with you, holding breath with you while trying to breathe.
Joan, I don't comment often, but I read you faithfully. I hope that everything turns out well for you--I would hate to lose your voice, metaphorically and literally. My thoughts and best wishes to you.
I feel for you, Joan. My "waiting" came as a scared teenager when everyone around tried to hide my cancer from me. Hey, they thought they were doing me some sort of favor. But I am glad I learned that I had a very rare form of cancer that took the lives of three of my cousins (we became a "studied" family).

That was over 27 years ago. It's weird how lucky I often feel simply for surviving. Even with all the crap I've dealt with since then, I am remarkably...here. And I still haven't seen Paris. But something tells me that I will. Something tells me you will, too!
Hoping for the very best for you.
Dear Joan...thinking of you. Postive thoughts, positive thoughts.
The "not knowing" as you say is more difficult than the knowing, whatever that may be. I've been in these situations and the "not knowing" sucks as you well know. I tend to side with the most benign explanation because over 90% of the time, that's what it turns out to be. My thoughts and love are with you Joan...I want your waiting to be over and I want there to be great news. You deserve it more than most I know.
Just dropped by to say you're still in my thoughts and prayers. Waiting with you...
xoxo
The waiting sucks!!! Rated!!
...and thank you to the rest of you truly wonderful people who commented.
Joan, this is my first comment on your blogs but I've actually been reading your stuff for a while. You're so talented in your writing. I'm going to keep you in my thoughts that all is well. I really hope that they are.
Joan, I am supposed to be doing other things, but happened by for a minute and you were hanging at the bottom of my favorites. I count myself among those who love you and have grabbed tight to that net under you, the one someone mentioned in the comments. I have squeezed into this waiting room as well! Waiting is worse than any kind of relief/result can ever be! Love to you and peace for a simple outcome!
Sending all my positive vibes in your direction.

Brightest blessings!