The Heartland

Thoughts From The Heartland And The Heart

Jon Gregory

Jon Gregory
Location
Heartland, USA
Birthday
April 02
Bio
Father of 5, struggling to be the best parent, husband, Christian, and employee I can be. Long time blogger, mainly on mental health issues. In recent years I've slowed down, writing day-in and day-out on mental health issues takes it's own toll mentally.

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MARCH 24, 2009 2:13AM

Pervasiveness Of Mental Illness

Rate: 7 Flag

You don’t realize how pervasive it is until you decide to open up.

This evening I was talking to a lady, passing the time while I waited for my daughter. We chatted about weather, then careers, then kids. I love telling people I have 5 kids, it’s unheard of today. When I was younger that was nothing – there was a family on every block with 10 or 11 kids. But today, 5 is an eye-opener. Not that we set out to have 5, sometimes the best laid plans fail, not to mention the most careful birth control. But in the grand scheme of things, we feel it was supposed to be. But I digress.

We got to talking about dream jobs, and I mentioned that given half a chance, I’d be in law school. Even though I’m a week shy of 50, if I could afford to go without my income through law school and establishing a new career I’d do it in a second. But the sole purpose would be to more effectively advocate for mental health patients. Someone suffering from a mental illness is lost in a wilderness of vague rules in a system designed to deny, rather than grant, benefits. Social Security disability can take literally years to get. A person who can no longer work due to their illness has to typically wait 1 to 2 years to get an income coming in. What do they do in the meantime? A lot of shoulder shrugs answer this question. Once again, I digress.

When I reveal that one of my boys had bipolar disorder, it’s almost always met with a story of a friend or family member struggling to get by. The pervasiveness of mental illness in our society is really unknown until you open up and invite people to tell their stories. In this case the lady had 2 siblings die from suicide. Her eyes filled with tears as she mentions this. She asks about my son, I tell her he passed away last summer, not suicide, but an accident in our home brought about by a manic state. There are various studies that show 15% to possibly 25% of people with bipolar disorder commit suicide. But that’s the tip of the iceberg. I have found no studies addressing this, but it’s my opinion that the majority of those with bipolar disorder will not live a life that goes to “statistical term”. Psych meds are life-changing, sometimes in positive ways, too often in negative ways. Dangerous weight gains, kidney failure, diabetes, thyroid failure – all are very common side effects of commonly prescribed psych meds. Depression risks are understood by most, but few can grasp the dangers of mania, which in my opinion is a bigger danger. In an attempt to quell the storm inside substance abuse is a given. And the situations a person finds themselves in as a result of mania is the stuff of a million stories, too often with tragic outcomes. We chatted a while longer, both saddened yet somehow heartened that others understand.

In a few days, perhaps a week or a month, I’ll find myself in a similar situation. I’ll open up, and get a story in return. It’s a never-ending story.

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So true, and so pervasive. The meds are such a tough sell because the mania is so intoxicating. Who doesn’t want to have energy, make incredible connections, receive special messages, and stay up and up. It’s the lucky ones who somehow connect with the message of survival (meds) and keep themselves on this planet. Thanks for being the persistent advocate for those in need. You're an angel.
I have been intending to write a post about honesty. A year and a half ago, a woman I barely know revealed that her son had struggled with drug addiction, and found help at a particular inpatient rehab. I didn't tell her my own fears for my son at the time, but when everything collapsed around us, I knew who to call. Thank you for sharing your experience with a stranger, and with us.
I am always assumed the medications I have consumed since 1985, few of which have helped me, will shorten my life span. These meds have only been tested for short-term use, not long-term use. Many used today have been on the market too recently for anyone to know the effects of long-term use.

When I open up about my illness, people share their stories. Unfortunately I tend to write about my illness when I am on the unstable hypomanic end of the spectrum, thus coming across as crazier than I am 95 percent of the time.

One of my aunts went to law school at 45 and has had a very distinguished career. I briefly attended Columbia Law School in 1971 and a surprising number of my classmates were over 40, had had many other careers. So I urge you not to rule out law school.

My brother, 18 months younger, has 6 kids. He is the only one I know with what would have been considered an average family size among the Irish Catholics of my parents' education. When I saw you had 5 kids, I immediately befriended you.

This is an excellent post. I hope you write more about mental illness.
C
You inspired me to bring out of the closet an earlier post, Being Bipolar Means Always Saying I'm Sorry. I had deleted it and tried to bury the person who had posted it. Thank you so much.
This is so true. We're think we're alone, and we think no one else will understand. We're embarrassed and ashamed, and then when we do talk about it we hear how common it is. It is everywhere.

And I think wanting to advocate for the mentally ill is marvelous. It took Stew years to get social security disability, far too many years while we teetered on the edge of poverty. You may be an angel, like Max said.
Jon... I hear you about the lawyer/advocate thing. When you are in this hell, you don't have the knowledge/resources/strength whatever to survive a system that is 100% trying to help you without an advocate of some sort. Doing it with our system that is set up to deny you that help is next to impossible.

My wife and I were involved in one of the state's NAMI programs for a while. She worked there as a secretary until she had to quit or be fired. Even they couldn't really tolerate staff that had a mental illness.

Monique, I never fear telling the story because of embarrassment or from being ashamed.

I fear telling it because I HATE the "hero husband response" that I get every time. "She is so lucky to have you, you have been through so much, I don't know how you do it, I couldn't have done it for that long."

I am not that man. I can't ever live up to that man, and yet I can't afford to fail to be him either. I am just a man who loves his very-own-personal-redhead and doesn't know what else to do.