All that is necessary for the survival of the fittest

is an interest in life, good, bad or peculiar--Grace Paley

Juliet Waters

Juliet Waters
Location
Montreal, Canada
Birthday
August 01
Bio
Montreal writer, book critic, single mom, ex-Expos fan, now rooting for the Portland Seadogs. Currently working on a book about Developmental Coordination Disorder. Also learning to code. Visit me at my new blog: Familycoding.com

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MARCH 24, 2010 10:32AM

My Son's Brain

Rate: 43 Flag

 

Photo 830      Ben, Self-Portrait #2

You may want to read the first part of this story, The Smell--if you want to find out how I ended up in an examining room at the E.R of the Montreal Children’s Hospital with my three-year-old son, Ben, his father, and a doctor I’d recently dated

“Yeah, the Internet. It’s bringing a lot of people in here these days” he said with more of a Brooklyn accent than I remembered from our date.

I’d just finished explaining the reason for our Emergency Room visit to Jason who will henceforth be known as Dr. J (because as I would later discover, he had changed his mind about quitting his medical residency.  His plan was now to finish it, but probably quit medicine eventually to pursue a deeper dream, party DJ.)

I did feel mildly insulted that he saw me more as a neurotic mother than an astonishing self-taught diagnostician.

(“So, Juliet Waters, in one morning you taught yourself enough about medicine to detect your apparently healthy three year old son’s developing brain tumor?”
 “Yes, Oprah.  Though, honestly, my googling skills and impressive instincts would have led nowhere if it weren’t for Canadian Medicare and the on-line personals at Salon.com”
)

But I also felt relief. What mother wouldn’t choose an embarrassing case of cyberchondria over brain tumor related terror?

One of the advantages, however, of talking to a guy you had recently dated and lost interest in, over a doctor you might want to impress with your responsible character, is you can say things like: “Yeah, it’s probably just me being a crazy overprotective mother. But it was weird, the way Ben reacted to this smell. The way he shifted so quickly from this intense anxiety to total calm. It was like he was on acid or something.”

“Hmm…Well, first things first, we should do a medical history” said Dr. J, switching back into doctor mode, which he was surprisingly good at when he put his mind to it.  “Any history of neurological problems in the family?”

“Not that I know of” said Ben’s father. “But most of my family is back in Israel, so there could be stuff I don’t know about.”

“My uncle has Parkinson’s” I offered, “but that didn’t start until he was in his 70s. And he had a really strong brain until then. I do have a cousin who had a brain tumor when he was young, which is probably why I’m being so vigilant.”

“You have a cousin who had a brain tumor?” asked Ben’s father, who will from here on be known as E. (The first letter of his name.)

“Yes my cousin, Jocco”

“Jocco?  You have a cousin named Jocco?

(Potential single mothers, think about having children with ex-boyfriends you only lived with briefly. It can be a real time waster in the E.R.)

How about epilepsy?” Dr J asked.

We both shook our heads.  

“What about your delivery?  How was that?”

E. let out what was now becoming his signature sigh.  “Oh man, if you let her start talking about that, we’re going to be here for hours.”

I shot him a dirty look. “It was a pretty bad delivery.”

“In what way?” asked Dr J.

For a helpful memory aid I flashed back to our pre-natal course reunion class, where we were all invited to come back and tell our delivery stories.  When we entered the class the teacher had drawn a big chart on the blackboard with every intervention, natural and unnatural, that could happen in a delivery: water breaking, labor induction, bad fetal position, episiotomy, forceps, and caesarean.  As she called out each intervention those of us to whom it had applied put up our hands and received a checkmark in the appropriate box. “Ohh… kay, Juliet, I think we’ll be saving your story until last” I remember her saying when she noticed that every single box under my name was full.

To complete the story I had to add a few things, like the 9 lb 4 ounce birth weight, and the four hours of pushing with a cheerleading midwife while the doctors were on shift change.

I still remember how the midwife warned me just before they were rolling me into the operating room that when they handed me my baby, I should be really careful not to form any first impressions.  But even with his black and blue swollen cone head and a bloody gash on his forehead from the forceps, I was smitten (or to be neuroscientifically accurate, still high on oxytocin, the natural bonding opiate the female brain starts pumping during labor. After twenty-six hours of contractions and four hours of pushing, I must have been totally whacked on that shit.)

Dr. J. wrote down the important details of my heroic story of endurance, love, and hospital negligence and then asked: “Any head injuries as a baby?”

 Silence.

“This will be a shorter story” E promised. And now it was time for my sigh.

“When he was almost a year old, I put Ben in this new stroller, and I guess I hadn’t quite figure out the breaks.  And I forgot my purse, which was right in the vestibule, like ten feet way.  But while I was reaching for it, somehow Ben managed to propel the stroller off the porch and down the stairs onto the sidewalk.”

“The concrete sidewalk” E added.

“He had a pretty bad contusion on his forehead, but we brought him right in for x-rays and they seemed to think he was fine.

“Did he pass out?

 “No.” Suddenly I realized what with the forceps gash, and the stroller skull bashing, Ben’s head had already taken quite the beating in his relatively short life.

 “Anything else?

  I quietly shook my head.

“All right I guess it’s time for me to get to know Ben.” He started with the usual doctor stuff, reflexes, heartbeat, and then he asked him a few questions to test his intellectual development.

 “Can you count, Ben?”

 “Onetwothreefourfivesixseveneightnineteneleventwelvethirteenfourteenfifteen—“

I interrupted. “He’s been counting to fifty in three languages since he was two.”

“Three languages?” said E.

“Yeah” I replied, surprised he didn’t know this.  “English, French and Hebrew.”

“Hebrew? I don’t speak to him in Hebrew.”

“You must. He’s been teaching me Hebrew for months now.  Just last week I asked him the word for eggs and told me it was peers.”

“That’s not the Hebrew word for eggs!”

We both looked at Ben, who giggled.

“We really don’t have any concerns about his intellectual development” I said to Dr. J.   Though it suddenly hit me if Ben was already mastering, at the early age of three, the fine art of messing with me, we may have solved the whole smell mystery right there.

To my surprise Dr. J didn’t see it that way. “I should really go right now and see if I can catch the neurology resident before she heads off on rounds” he said, looking at his watch. “But, listen. The important thing to focus on is that he’s obviously really healthy and bright. What you described, though, does kind of sound like a temporal lobe seizure.  It’s one of the first things they teach us in med school. So, you were right to bring him in.”
 
Twenty minutes later, the young, pretty Quebecois neurology resident agreed. She wanted to admit him overnight until they could get an appointment for an EEG the next morning.

“What worries me” she said, “is that this seizure you’ve described has happened three times in the last 24 hours. These could be signals something bigger is about to happen.  So I’d be happier if we kept him here until we have a better idea of what’s going on.”

And that’s how I learned, to paraphrase the great Oscar Wilde, that there are times when it does feel like the only thing worse than not being taken seriously is -- being taken seriously.

Next episode: I learn that the only thing worse than an extended stay in the neurology ward of a children’s hospital is pretty much nothing.

Author tags:

parenting, neurology, true story

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Comments

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Wow, Juliet. That you can write about this with suck skill and humor is a testament to your writing talent. I hope for a happy ending.
That should have read "with SUCH skill". Oy. (Consider my error a "bump"!)
You write so compellingly, and with such dry humor, that I almost feel sucker-punched when I remember this is something serious.
Thanks Cartouche! I didn't even notice the suck, which is I guess a testament to my (healthy, I like to think) narcissism.
Thanks Bellwether. I hope we can blame the sucker punches on life.

This is something I've been wanting to write about for a long time, but it's very hard for me to sit down and write about. So I'm sorry I can't give it to everyone in a nice, long, flowing package. But the encouragement does help me to get back to it.
Juliet,

Excellent post - a clear anxiety-inducing story into the pathways of neurology. I travel those roads myself with my family. I look forward to the series. Best!
This is really good. Funny, poignant, and matter of fact. Write MORE!
I'm glad you have found yourself able to write about this again. I've been wondering since the first part of this story where it is leading. (Not a criticism. Take all the time you need.) And like the others, glad to see the sense of humor in there. That's a good sign, and in stories like this one good signs become a major hope and a bit of relief when they appear.

Thanks for the update. Ben sounds like quite a charactor. If E does teach him Hebrew, that'll be four languages he speaks.
I think it's brilliant that your three year old had you convinced that he knew Hebrew for months. :) What a bright kid.
Your ordeal must have been terrifying.
I anxiously await the next episode.
I'm on the edge of my seat. You better hurry up and write the next installment, because it's pretty hard to perch on the edge of my seat like this. (r)
I hope Ben is doing well. It's impressive that you found so much humor in a period that had to be filled with tension.
Juliet, I hadn't read part one before, and am so glad to be caught up to speed now. So well written and funny, but scary, too-- I hope everything is OK. I look forward to the next installment.
Juliet, the story itself is gripping, and the writing has a gracious balance which is terribly engaging . . . and I'm hooked, fingers crossed.
Sparking, thanks for reading. Now I'm curious about your story.
Thanks Gwool. I'm working on it.
Henry, I'm glad people find the humor works in this. And I hope it will work in a way that reduces people's anxiety (not that I'm saying there's nothing to worry about.)
She Blogs. Thanks, he is pretty brilliant. But that might be the mom in me talking.
Shaggy. Okay, I'll keep thinking of your discomfort everytime I try and procrastinate writing this.

Gotta go now, but thanks Stim, Linda, Elisa and Owl. I'll keep everyone posted. Promise.
It is a true testament to your skill as a writer that you are able to write this with such a combination of realism, wry humor, and heartbreaking dread.
Fuck. What an intense story. You are a brilliant writer and you've really pulled us in.

Congrats on the EP. I hope it gets you lots more readers.
Next episode? You're killing me. Write faster, please.
Your writing pulled me into the hospital room with you. And yet, there is humor and grace amongst the droppings of anxiety...
Fingers crossed for you and Ben. Waiting with bated breath for the next installment.
Fascinating story, Juliet. I'm looking forward to the next episode already.
Wow. More, more, more....
wonderfully written. truly touching and humorous at the same time. as a parent who has been stand right were you are, feeling silly for bring my child in, and bring terrified I was right all at the same time... I completely and totally understand. thanks for sharing this with us.
Juliet, this is an amazing and well told story and I can't wait to read the next part.
Looking forward to the rest of the story. I appreciate that you make this tale of scary events raising a child readable with both your clear style and your sense of humor. I remember taking my daughter to the hospital -- I still can't think of anything funny about it.
Juliet, I'll echo other commenters regarding your skill at telling this story. Really feel like I'm in the Dr.'s office with you. I'm also wondering how this turns out and hoping for the best.
God, I hope this story has a happy ending.

BTW, would you tell your American readers how much this first rate health care is costing you?
Wow. Yikes. I'm on the edge of my seat. Fingers crossed for you, Ben...
You're a great writer Juliet; this piece was spell-binding and you're so damn smart and witty on top of all of it. I can only try to imagine...this summed it up for me, "learn that the only thing worse than an extended stay in the neurology ward of a children’s hospital is pretty much nothing." Seeing your 3 year old in a neurology ward of a children's hospital? My heart is aching for you. Thank for sharing this and I'm hoping the next installment comes soon!
I get it. Totally. I spent every day for six weeks at a children's hospital neonatal ICU after delivering preemie twins. I'm very interested in hearing the rest of this story.
Obviously a terribly harrowing time for you, but you've written about it with such style and grace. You tell the story with a clarity that I don't know I could master following such an ordeal. Well done.
~R~
I keep giggling about Cartouche's "suck skill." Somebody on OS a few months ago captured a bunch of the best typos...I think this one might belong.

Seriously engaging piece told with just the right amount of humor. Yes, dry humor as Vance pointed out.

Apropos of nothing, I love the word "Quebecois." It's sexy.
A witty veneer on a serious story. Well done!
Yikes! Now I'm really nervous. Onward...
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Your son was sick and it took you 4 weeks to take him to a doctor?

He's 3 years old for god's sake, his body and immune system are miles away from being developed, a bacterial infection left untreated for 4 weeks can do a lot of damage and store up real problems for him later on - what were you thinking?

Anyway the good news is that he's supposed to be sick at his age, the body works at building defenses against infections.

The child's immune system is an intricate network of interdependent cell types, substances, and organs that collectively protect the body from bacterial, parasitic, fungal, viral infections, and tumor cells.

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