KEKA'S BLOG

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Keka

Keka
Location
Arizona, USA
Birthday
March 10
Bio
Cynthia Dagnal-Myron is an award-winning former reporter for both the Chicago Sun Times and Arizona Daily Star whose articles have appeared in Rolling Stone, Salon, Working Mother, Orion and many others. During her Sun Times years, she traveled with and interviewed the top rockers, film stars and other celebrities of the 70’s and 80’s. And dated Arnold Schwarzenegger. Once. Her latest book, "The Keka Collection," is available at Amazon.com http://amzn.com/1453845763 and Barnes and Noble--Kindle and Nook versions available. Her latest short story, Deadline, is a Kindle book availabled here: http://bit.ly/10pqtoV

OCTOBER 9, 2011 12:59PM

Exploring the "Infinite Abyss"

Rate: 25 Flag

  The Abyss

 

Happens in all those “hero’s journey” movies screenwriting gurus suggest their students emulate. 

The hero(ine) stumbles on or over some kind of “glyph” or other illogical or even irrational hint s/he cannot decipher.  But s/he does  the “strokey beard/chin” thing (another Izzardism—love that man) and says:

“This means something…”

I had that monent in real life this week.

I now understand that I am on an epic quest into what that amazing little movie, Garden State, dubbed the “infinite abyss.”  In that movie, a delightfully eccentric couple was exploring both the literal and the spiritual abyss from a cramped Noah’s Ark perched right on the precipice.

Sooner or later, you gotta stand right where they live…and take the plunge.

My body took it before I was emotionally or spiritually ready, though--that, too, is how the "hero's journey" works. If you were ready...you wouldn't need the journey.

Here’s the backstory--sort of Memento style, moving backwards from the major incident through the events leading up to that.  

To put it bluntly:  things have taken an unexpected and decidedly scary turn for me over the past few days.  I’ve had a very unexpected, very uncomfortable and very dangerous allergic reaction to my new gout med. 

Now, to be fair, I was warned about this.  But this side-effect only occurs in about 1 out of every 10000 patients.  That's quite a few, but...I never expected that this would be the one "lottery" I'd win.

And had I not gone to Urgent Care and learned that the “flu” I thought I had was actually only the precursor of the very severe rash and itchiness to come…it could’ve been and still could be fatal.  I'll explain all that soon.

The trip to Urgent Care was one day after I'd gone to see the surgeon who had just done a recent minor procedure.   She had asked me to come in when I called to tell her that I was having chills, fever and body aches about a week after the surgery was done.  We thought it might be some kind of infection, but there were no traces in any of the exams or blood tests.

Given that, the surgeon decided that I might well have caught some sort of bug while in the hospital that day.  My throat had been far too raw as just as reaction to the tube they had inserted.  But again, all concerned felt it was just from that unidentified “bug,” and I'd be fine in a few days.

Unfortunately, on the third day of that “flu-like” illness…I developed a blazing, strawberry red rash on my chest with little patches of welts and pimply things rather like measles all over my body.  THIS…was not part of the plan. 

I tried to tell myself it would pass, because it didn’t itch much—at first.  Later in the day, it became almost unbearably itchy and painful, so I headed off to the Urgent Care less than 3 minutes from the house.

They were stumped.   Blood tests showed lots of “monocytes,” which indicate mononucleosis.  But the mononucleosis test was also negative.  Those monocytes were the smoking gun later, though--remember them.   

After the Urgent care doc admitted he and other docs he'd consulted were totally stymied, he asked a very interesting question:

"What do you think it might be?"

It took me aback at first.  I wanted to snap back, "Who's the doctor here?!"

But then I remembered something.  As a teacher, when I asked a student a question, and said student gave me that "deer in the headlights" look and just said, "I don't know..."  I would often follow up with:

"But...if you did know...what would you tell me?"

And 9 times out of 10, they gave me the right answer.   Deep down inside, that still small voice always whispered the right answer.  But they lacked the confidence to believe in themselves that much and did the Steppin' Fetchit act hoping I'd just leave them in blissful ignorance.

The doctor was asking my subconscious self to speak.   And thus freed to "improvise," I said that I had just started the allopurinol in my list of meds about four weeks earlier.  That, for the doc, was the big “Ah HA!” 

And also, the big "HO-ly shit!"

What he told me then sent me reeling, and prompted him to warn me that if I had any new or worsening symptoms I should go straight to Emergency.   He said it several times, again the way teachers do, to make sure it stuck.

Because here’s what I have—note the bolded words, and the prognosis:

Hypersensitivity syndrome (DRESS)

Definition

The term 'hypersensitivity syndrome' usually refers to a specific, severe, idiosyncratic reaction, defined by a widespread and long-lasting papulopustular or erythematous skin eruption often progressing to exfoliative dermatitis, with fever, lymphadenopathy, and visceral involvement (hepatitis, pneumonitis, myocarditis, periarditis, nephritis).[40] Blood alterations are also rather characteristic with eosinophilia in about 90% and mononucleosis in about 40% of cases. [41]

Incidence/prevalence

The incidence of DRESS has been estimated to 1 reaction per 5,000 to 10,000 exposures.[42]

Etiology/risk factors:

By definition, drugs are the causal agent. Anticonvulsants, sulfonamides, dapsone, allopurinol, minocycline and gold salts are among the most frequent culprit drugs.

Prognosis:

DRESS is potentially life-threatening. The mortality rate is estimated at near 10%. In other cases, recovery is usually total. Rash and hepatitis may persist for weeks; some cases persist for months.

(Dermatology Online. http://dermatology.cdlib.org/DOJvol8num1/reviews/drugrxn/ghislain.html)

There’s no hepatitis, but there’s a big time rash that doesn’t quit.  To keep me “comfortable” I’m on Benadryl and hydrocortisone cream.  But the first two nights they were only partially effective, so I was up all night squirming, trying not to scratch and exacerbate the problem.

My gout doc would also tell me to begin taking the Prednisone he’d already given me in case of a gout flare up.  Ever the super sleuth, he listened to the problem and came up with a little regimen designed to get this over with, after which we will decide whether I really need gout meds anymore--that was always the plan.  

Given that I just discovered that my blood pressure tends to be lower without the meds I've been taking for years than with them, I'm thrilled that he's trying to wean me off drugs instead of adding new ones. 

After all, it was a blood pressure med that started this fuster cluck.  Gout is often a side effect of triampterene, which is also one of the most effective meds for controlling high blood pressure in African Americans.  Talk about a "lose/lose" situation...wow.

But...let's get into the good stuff.   No, really, there's a gift beneath these welts. 

Maybe that's what the scratching symbolizes--my physical body trying to get at the spiritual mother lode below the surface.

Those of you who read me often may remember that my daughter flew back into the nest recently.   I now know why.  I could not be so glib about all this if it were not for her, and the “sacred clown” puppy we brought home a few weeks ago.

The pup makes me laugh.  The daughter makes me feel better when I cry.  And handles my bidness when I can’t handle damned near anything.

God is great.

But I have to stand squarely in Her shadow side for a while, to figure out why my body, as my very worried friend Roger Ebert says, is at war with itself. 

All my friends are worried.   When I sent the description of the syndrome around to friends to explain my recent silence, calls started coming in from all over the place.  A rock star friend from 'way back, now out on his latest "big stadium" tour, sent a volley of emails offering to hook me up with a homeopathic practitioner he swears by.

Love's the best medicine.  And bolstered by it,  I’ve been doing the “strokey chin” thing a lot when I wasn’t using all my will to keep from scratching.  And here's what my still small voice says:

This means something. 

And this is not a physical illness.  

This is Spirit's way of throwing me into that abyss the way some parents throw their kids in a pool to force them to sink...or swim.   It may be a really long time before I come back again to tell you what I’ve discovered.   But I’ve got enough clues to get me started.

Wish me luck.  And…if you’d send up a little light and love in your own chosen and special way, it would truly be appreciated.  It’s gonna be dark down there.

But I always find my way back.

George...give us the instructions, brother: 

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Comments

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Please count me among your friends who are worried. You have managed to write this post with your usual relative lightness, but the seriousness of your situation is crystal clear. Prays have begun already. If anyone has the capacity to beat the odds, it's you, Keka.

Lezlie
Keka - for some reason, Roger Ebert posted this on his Facebook page. Hence, I found your blog via him. I don't know if it is fortuitous or not - but I wanted to let you know that I almost died a couple of times myself and know that a weakened state can take you under. I am hoping this helps - you might consider stopping eating wheat. It sounds to me that your body is compromised in some way, and the gluten in wheat is a far more hazardous substance than most of us realize. The book, The Paleo Solution covers this topic along with a ton of other methods to assist you with strengthening your body. Even if a gluten sensitivity is not considered a causative factor by your doctors - if you omit it for 30 days, you will most probably find that your constitution improves. Also google 'the Whole30' and you will find info on how to reduce deleterious foods for a while... you will most probably find yourself feeling more strong and hence, able to battle your condition. All my best to you, Cordially, Marty
Ecotone...Roger is an old buddy from my Sun Times days, and has always kept me under his wings no matter where I wandered. I actually have never had any allergies before this allopurinol episode, which was, as I wrote, a known side effect. I just didn't know how much more serious this drug reaction could be.

But with Roger and all his fans and my other amazing friends--and generous folks like you--weighing in, I know just the "vibe" is going to change things for the better.

I'm grateful, and will study your solution closely!
Lezlie...I feel ya'! And it's a balm to my itchy soul, believe me. Love right backatcha!
I was where you are 11 years ago. Not due to an allergy (though I am deathly allergic to fish) but because of Ulcerative Colitis. I had let it go for so long that I lost 12 pounds in two weeks. Not a bad thing by fashion standards but horrible for a single mom thinking I was dying before my time. After convincing my doctor that my sudden weight loss and improved blood pressure/cholesterol was not a good thing, she put me in the hospital under 'observation' where a Gastroenterologist was able to see from a sample that all was not right in my world. I had just started a new job 6 months before but my supervisor and coworkers were a huge support for me. I was out for a month and not quite myself for 3. I still have issues and have to be monitored, but sometimes your body provides you with that alternate mirror so you can see things in a different way. It can be a blessing.
Keka, I will send you not a little light but the brightest megawatt spotlight I can find! Your positive spirit, as always, is the most powerful agent in reclaiming your health. My "still small voice" tells me you are going to be OK.
Keka, yikes!!!!
I am so glad to read this is no longer mystery, but take your friend up on the homeopath!
I do hope you aren't drinking at all, another gout culprit, but I'm sure you know this....and drink lots of water to dilute, but you must have been advised of this also...
Good luck to you on a speedy recovery, and on a new holistic approach to what your body is telling you !
Gasps and gadzooks. I can't imagine someone as smart and sassy as you letting a little ol' DRESS take you down. But I'm putting whatever spiritual weight I have along with Lady L's and all your friends' to keep the damned dumb demon off your back. Get well, Keka, and keep the lines open to us.
The rooster crows for both of us, Keka. Big beam of urgent light heading your way.
Whoa! Great that this got figured out!

There's a thing in Caballa (not the Madonna kind, well actually I don't know what the Madonna kind is, but I mean the old-fashioned occult kind) called crossing the abyss - you go so far with one foot in front of the other and then at some point you get to the edge of the abyss. You can turn back - but if you go forward, it requires a leap into the unknown. If you make it okay, then you're an adept, full of wisdom and (fairly useless) *power*, so there's that... Go for it! And report back.
I am sending you light, love and Reiki energy for healing. I am also sending my prayers that you are feeling very much better in the morning.
rated with love
Too many wonder drugs, not enough wonder. So sorry that this happened and so relieved that you spat out the illuminating answer at UTC. My allergic reaction was to a sulfa drug, cheap old diuretic my doc and I thought would help with BP that stubbornly refused to come down suffieciently with the one other drug. Not life threatening like yours, just quickly a nasty ass rash all over.

I so hope you get this cleared soon. My thought is that doctors know a little bit about a lot of stuff. I started a blood pressure med that sometimes causes a cough. My doctor warned me about it. Sure enough, I coughed. Switched med.

Even this experience you have used to share your journey. Thank you so much. Sending all good thoughts and support.
Keka:

About a month ago we had a lively health debate on FB over a friend's severe case of poison oak and of all the cures mentioned for the itch and scratch, it was suggested you take a very long hot, hot shower (raises the histimines to the surface of your skin) after the shower apply aloe vera gel (says you in AZ, probably have a plant in your yard). That dries almost right away. Then put on whatever cortizone cream or whatnot the doctors give, plus the benydryl..

Hope that helps you itch, just a little less, and thank you for sharing. I have high BP and your post has made me create a list of questions about side effect because they want me to start taking them, and I resist (denial of my high BP, no doubt). Problem is no symptoms, just this naggin' feeling).
Kate...you're a hero, too! It's the itch that has been making me crazy! So tonight...before bed, which is always a trying time...I will do exactly what you said. It will calm me and get those natural histamines to work. I bet I get a full night tonight!

BLESS you, bless you, bless you!
Sending loving warmth, peaceful thoughts and above all healing light.
(DRESS) I didn't know it had a name. Good thoughts being sent your way. Empathy re; the symptoms which can be overwhelming. A hint from a ten year veteran; pay very close attention to the foods you eat, they can act as triggers alone or in combination with the meds you take.
Grimmalf
Empathy to you. I have walked the floor at night with unremitting prescription drug reactions. Carried a pillow with me to catch the noises I made so not to wake an already worried family. I hope you heal soon and can find peace.
No doubt that you will find your way across the deep dark, you hear your little voice well enough and have a certain knack - I'll wager that your life story is chock full of 'close encounters' that you've survived to this point ; some magic follows you about me thinks ;).

But good thoughts winging their way from my dark to yours all the same!

Rated for candle power.
Count me too. It is pretty scary to have no choice but to stare in to the abyss. If you find yourself there again look around I'm probably just out of sight there myself. The culprit was Allopurinol? That really sucks since that is what I'm on now too.
You've been in my thoughts and now I understand your long silence. I'll ditto what Lezlie wrote along with my sisterly love. My very best to you, Keka.
♥R
You've been in my thoughts and now I understand your long silence. I'll ditto what Lezlie wrote along with my sisterly love. My very best to you, Keka.
♥R
I like Kate's remedy! I hope it works for you. I have also used rubbing alcohol, which sounds crazy, but it works really well, apply topically with cotton ball, for extreme systemic poison oak outbreaks, the only thing that has worked to stop itching for me, plus it dries up any blisters and oil within. It does sting, but that is actually a relief.
Again, good luck, hope you feel better soon!
Huge amounts of love and light! Lots and lots of light! Do that visualizing thingie and surround your inner body, wherever the source of this reaction might be...with tons of light and healing! Send soldiers of light and love to your major organs as fast as possible. Keep sending them in. See them rushing into your body through every pore, to take down, take out, get rid of what ails you! These soldiers have a real job to do. No more war between you and your body. Peace, love, light...heal!
Furthermore, if You plant a sprig of aloe vera, as we have it grows forever. Ours, on the terrace has been there for more than five years through all sorts os weather, and we use it for all manner of topical purposes. Aloe vera has been used for a multiplicity of ailments, including:


Abrasions
Colds
Herpes simplex & zoster
Staph infections
Acne
Colic
Menstrual cramps & irregularity
Ulcerations
Allergies
Denture (gum) sores
Nausea
Burns
Epstein-Barr virus
Chronic fatigue
Hypertension
Stings
Actinic keratoses
Constipation
Infections
Sunburns
Ulcerative colitis
Arthritis
Dermatitis
Parasites (especially protozoan infections)
Vaginitis
Radiation dermatitis
Warts
Viral infections
AIDS
Contusions
Insect bites
Tendinitis
Allergies
Dandruff
Boils
Diabetes
Ulcers
Varicose veins
Bruises
Edema
Psoriasis

http://www.aloeverahealthbenefits.info/
That you can give your mind the space to explore and play with 'new understandings' is admirable. You are obviously much loved in your life and here, so many good thoughts are holding you.
I know that I've been slow to respond, but you know from what I've told you that I probably will be a little slow on the uptake for a while. I feel better--Kate's remedy soothed the itch and calmed my nerves. I may do it whenever I'm feeling antsy from now on. It was excellent juju!

To those of you who offered words of wisdom from your own ordeals...thank you so much. I'm sorry we've all had to go through this. I had no idea how many people are having similar issues. You hear about drug reactions all the time, but I always thought it was just a matter of stopping the meds and all would be well. Not so. It's a lingering, prickly and disorienting battle that has left me in a weird space where I don't even remember what time or day it is sometimes. You're just waiting for the madness to ease up some.

Linnnn...I walked the floor, too. During the flu thing, I was aching so badly that I couldn't really pace around much, but I covered my face with my pillow at night so that I could sigh or yell or cuss or whatever I needed to do without waking the "menagerie."

You are all healing me. I can feel it. Bless you...bless you...bless you...
My Dear Dear Keka,

I know you will understand this immediately! I have been standing on my own "Infinite Abyss" for more than two months now. During that time I have been making notes for my return to Salon when I will finally be ready to release it to the universe. I am still in struggle. But this morning I returned to Salon for the first time, because that gentle voice that always whispers in my left ear, said I should come to see what Keka has to say. This is the first time I have come back. So this is my opportunity to explain my absence and to acknowledge the fact that I always see you in that parallel universe, whenever I go there.

Sending you lots of light and love!
I am in the final stages of recovery from a drug-produced rash myself (caused by blood-pressure meds), and the only thing that helped was diaper rash ointment (with zinc), which I decided to try out of desperation (no doctor recommended it). No kidding. However, my rash was mild compared to what you are going through. I wish you a speedy recovery and relief, and I am glad you have some support.
Heavy stuff, Keka, and wish nothing but the best for you with a full recovery -- and to be out of discomfort pronto. Hearing of a mortality rate connected to something ... never something one wants to hear, although it seems like the situation was addressed in time. Thank heavens that it worked out that your daughter is there with you.

As for your being a teacher, I loved the "But...if you did know...what would you tell me?" ... a great disarming approach.
A little update: I felt almost totally myself for the first time today. The rash is almost entirely gone, though a few little pink patches remain. So while I'm still doing the Prednisone to keep the inflamation down, I dropped the the Benadryl and only had a few mild itchies all day.

So I ate well, slept well and have been able to focus much better all day. I'm heeding what my body says more than ever, and finding that still small voice is remarkably astute.

Mostly, it's like waking from a long dream. But as I wake up, I'm just so grateful for the simplest things--that of course is part of the "lesson" here. I love being able to fall asleep, period--that's the best part. No more tossing and turning and walking around trying to find ANYTHING that might help me relax and get a few winks.

I'll be squeamish about meds in general for a while, and I know I'll be nervous about every little tingle I feel that reminds me. But...I think I'm out of the woods. Into which, as Mr. Sondheim knew, we must go from time to time, just...because that's where the adventures happen--the dark ones that deepen our lives and give us wisdom.

I am so grateful you're all here--the advice has been extremely valuable. Sharing stories always helps. You are loved and appreciated, every one of you!
Even in the face of potential death, you're an awesome writer. Get well soon!
Keka, I've been very sick as well. And I too came here thinking of you. For my rashes I take hot baths with Aveeno beads. That is Aveeno that has sand like effects and I throw one whole packet in and stay in the bath until I feel less itching.

Kate's advice to you was priceless and I'm so glad you are feeling better but i just wanted to add that about Aveeno since I've had such huge rashes on and off for years. I also sometimes take the antibiotic "Amoxcillan" sp? though many believe in probiatics the anti works for me. I don't know the origins of these rashes but I agree that you are doing something right. Scary stuff. Check your email. Love to you, Wendy
...and more prayers, sincere albeit tardy ones. visualizing you strong, whole, writing your grand light...xo
Wow that is so rare, you must have been terrified. Praying for your recovery dear Keka!