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Kay W

Kay W
Texas, United States
June 22
Teacher, tinker, geek, mother, wife


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MARCH 29, 2012 8:07AM

Not Apathy, But Weariness: New Numbers, Same Dance

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The Canary Party's Ginger Taylor has broken the embargo (courtesy LBRB) and revealed the new 1 in 88 rate that the CDC will be releasing (yes, I guess I've broken it to, except I wasn't given the embargoed information). Age of Autism has a piece on the Canary Party revealing the new number, so it looks like the gang's all together. All we need to make it complete is Orac to cover it, and Liz to start collating the posts on the new statistics, and it will be like old times.

Wait, we need outrage on one side about the numbers as proof that there's a horrible tsunami coming our way. And we need folks blaming the "bloated vaccine schedule." Oh, the Canary Party already did the second. I'm sure Anne Dachel will do the former. Then we need people writing that this is just improved counting, that the kids were always autistic at that rate and there's nothing to see here. Cue the nasty posts and the name calling. And don't forget the charged rhetoric on all sides designed to push their agendas. Autism organizations will leap on the new numbers about the increased cost of autism and use that to whip its supporters into a frenzy of giving.

And I read these things and I sigh. It's not because I don't care, but I think I grow weary of seeing the same things  playing over and over and over again, with little constructive change occurring.

I don't know if the increase in numbers represents a true surge in autism or reflects more kids being diagnosed. You know, like the surge in ADHD diagnoses. I don't see the same level of fever-pitched histrionic rhetoric about the tsunami of ADHD kids reaching adulthood. 1 in 10 kids are diagnosed with ADHD and there's considerable overlap in symptoms in ADHD and autism. Some professionals ignore the DSM and co-diagnose the two conditions, but the symptoms in ADHD are accounted for in autism--the inattention, the impulsivity, and the hyperactivity.

I'm in the trenches, working my butt off with my three kids, who are working their butts off, to help them be the best thems they can be, to find workarounds for those gaps and challenges that cause them serious roadbumps, or where we can't even do that, to not see those gaps as making them less than those who don't have them.

We all have issues; some more than others. Neurotypicality is a myth and the denigration of neurotypicals is just as bad as the denigration of others with neurological differences. Don't think that NT is a myth?

16% of kids in school have a neurological difference causing learning difficulties. The NIMH has a list of disorders and their prevalence and cost. "Mental disorders are common in the United States, and in a given year approximately one quarter of adults are diagnosable for one or more disorders. While mental disorders are widespread in the population, the main burden of illness is concentrated among a much smaller proportion (about 6 percent, or 1 in 17) who suffer from a seriously debilitating mental illness." And that's just adults. Children: "Mental disorders are common among children in the United States, and can be particularly difficult for the children themselves and their caregivers. While mental disorders are widespread, the main burden of illness is concentrated among those suffering from a seriously debilitating mental illness. Just over 20 percent (or 1 in 5) children, either currently or at some point during their life, have had a seriously debilitating mental disorder." And we're talking serious, not those who are less impaired.

So I'm not inclined to freak out about these numbers. I don't dismiss them either, but we've got to (as a society, as professionals in the medical, psychiatric, and psychological fields) get better at naming things, defining them and sticking to that definition. As long as the APA is going to frak around with what autism is and professionals are going to inconsistently apply the criteria, as long as families have unequal access to health care (including the diagnosing of neurological conditions), we're not going to know what the real picture is.

I'm not inclined to fall for the assumption that all families dealing with autism are devastated, as it's just not true. Some families are undoubtedly financially devastated because of severe autism, but severe autism is not the lion's share of diagnoses being given.

I'm not apathetic. I have empathy in abundance for families and individuals struggling, but don't expect me to go to extremes of emotion over the latest round of numbers. That doesn't create change. We need to not freak out--we don't need heights of emotion. We need calm resolve to do the hard work to create real change in the real world. We need better training for parents and caregivers, more effective education (job related, especially) for those with autism and other neurological differences, and we need companies who respect the value and abilities of the disabled to pay them an equal wage for an equal job (see Business Week for a serious fail).

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