Lea Lane

Lea Lane
Location
Florida, USA
Birthday
August 26
Title
freelance writer/editor
Bio
“I’ve discovered the secret of life,” Kay Thompson, the eccentric entertainer and “Eloise” author, once said. “A lot of hard work, a lot of sense of humor, a lot of joy and a lot of tra-la-la!” And that's been my life: As a travel writer for over 30 years, I've been around the block (more like around the world), and I write true stories about interesting people and places. I've lived an unconventional life in conventional trappings. Been a corporate VP, worked with foster kids, acted in an Indie ("Nurse 1"), was on Jeopardy!. I've been managing editor of a travel publication, written for the Times, and authored books. OS is my home, but I also blog on The Huffington Post, and I've contributed (mostly anonymously) to everything from encyclopedias to guidebooks. Married young, divorced late; married late, widowed early, I dated lots in-between -- and survived a scary illness. After being happily, peacefully solo for many years, I'm now happily married again. I founded and still edit www.sololady.com, a lifestyle Website for single women. I'm truly grateful for each precious day, each well-earned wrinkle, my family, my cat. Truth, laughter, friendship, late love. And this blog -- on this wonderful site!

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AUGUST 26, 2009 8:08AM

My Husband Suffered the Same Brain Cancer as Ted Kennedy

Rate: 82 Flag

  remembrance-off

 

As I read the obituaries about Edward Kennedy's death, I feel great empathy. My late husband, Chaim Stern, was diagnosed with glioblastoma in July, 2001-- the same type of aggressive tumor that killed the senator. And so I'm moved to post again a tribute to my brave Chaim.

My husband was a congregational rabbi in Chappaqua New York for over 30 years, and a liturgist who had written most of the modern prayer books for the reform movement of Judaism.

After a joyous retirement weekend we were moving to Miami to begin a new phase of our lives -- filled, we thought, with writing, travel, more time for each other, and an interim rabbinical position where Chaim could deliver the most powerful sermons of his life.

I was driving our new car near Brunswick Georgia, just north of the Florida line. He was on the cell, and when he got off I smiled at him and whispered, "We're so lucky." A few minutes later Chaim couldn't finish an article in the The New Yorker. We pulled into a motel and when we got to the room, he looked at me in a way I had never seen before, and said, "I'm so sorry," and broke down. And then he admitted he couldn't read. And we looked at a sentence together and he spoke a garbled bunch of syllables.

I thought he had suffered a stroke. I had an ambulance speed us to the nearest hospital, and after a night of tests, doctors we had never seen before told him to get his life in order.

We were stunned, of course. We had never heard the term glioblastoma. Chaim looked well and had seemed fine. I remembered that a few months before he had complained of some headaches, but he didn't complain much, and we figured he was overdoing it with relocating and celebrating.

I asked Chaim if he wanted to go back to New York and he said, "No, let's go forward." I called the temple and our friends in Miami and told them the awful news, then sped him to Miami. I turned up the Bach and wondered if I could manage the syringe I was given from the doctors in case he had a seizure.

Important papers flew out the window, we locked ourselves out of the car in Pompano Beach -- we were both in shock and hardly spoke. When we arrived at the emergency room at Jackson Memorial I was grabbed and put in a wheelchair. I must have looked worse than Chaim.

August was filled with parties despite it all. We celebrated Chaim's birthday with family and friends in his hospital room right after his first operation. We celebrated our anniversary and my birthday in another hospital room after another procedure.

Chaim hoped for two years. He got three months. Three awful, and yet, in some ways, awesome months of radiation, chemo, meaningful work and much love.

Hundreds of calls and emails poured in from throughout the world. I heard his laughter over and over. He was reliving memories with those who cared about him. The tone of his voice and writing was uplifting and even joyous. He gave a magnificent public radio interview about life. And he told many of us that these, in some ways, were the happiest days of his life.

And, too, the most precious, the most love-filled, the most appreciated, the most focused. A shy man, Chaim now hugged people and told them how much he cared. He savored each discussion with my sons, each reflection with a friend, each touch of my hand.

In the midst of our own tragedy the country mourned 9/11. He calmed people with his comforting sermons. He made light of his suffering. When he lost his hair, he wore a bandanna, and called himself "the pirate rabbi." I drove him everywhere and noticed the increased kindness as he ministered to congregants and spoke before crowds. He managed to deliver powerful, emotional Rosh Hashana and Yom Kippur services, his final goal. He seemed drained, yet happy.

The temple's Friday night services went out on the radio in South Florida, but after a while his own words, from his prayer books and his sermons, failed him. "House" became "mouse." The public listened and watched the decline, along with me.

Chaim caught pneumonia from walking in the rain to preside, ironically, over a funeral. His immune system weakened, he spent the last three weeks of his life on a ventilator, unable to speak, in an ICU unit at Jackson Memorial. Doctors tried to wean him off the ventilator but he couldn't quite make it, and he slowly, inexorably failed. We watched other patients move in and out of the bed next to his: a huge homeless Latino, a delicate Asian woman. Chaim remained.

He charmed the hardworking nurses, some so vigilant, responding to the bells and beeps going off almost constantly. But I worried that the nurses wouldn't always be there to clear his ventilator.

I visited four times a day, but couldn't stay over. At night, in the new condo we were supposed to enjoy together, I wondered if I'd get a call from the hospital. (Once I did, awakening me at 3am: The nurse said that Chaim was calling for me, and I taxied over to find him sleeping.)

We tried to please him in any way possible. My son Randall bought him tickets to a Heat-Knicks game for the following year. He was delighted. Anything that gave him hope for a while brought a grin to his face, although we all knew the ultimate outcome.

Chaim scribbled his thoughts and wishes in his notebook: "I'm in pain." Illustrations of tubes and machines. Descriptions of his love for me, to a nurse, I guess. Baseball talk back and forth with my sons, who alternated coming down from New York just about every weekend. The writings got harder to read, but his spirits stayed high till the end. He even signed a contract for a new prayer book in the ICU.

I knew it was nearly over when during the second game of the World Series he didn't seem to even notice his beloved Yankees on TV. Finally, one early November morning around 6 am I did get the dreaded call. There had been an "incident" and he was on life support. A day later, with doctors' advice, I had it removed.

With a grim diagnosis you are at least spared false hope and the ups and downs that distract from the time you have left. Accepting the inevitable, you can focus on the pleasures of the past and the precious moments of the present, carefully avoiding the difficulties of the future. Every day, fully lived, is greeted with appreciation.

And as it seemed for Senator Kennedy as well, life with a terminal diagnosis can be infused with love and caring. And gratitude for the opportunity to celebrate a full life -- surely, clearly, bravely, with reflection, and without the distraction of what might be. And despite the difficulties, there is the blessing of closure for all.

Rest in peace Chaim. And Senator Kennedy.

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Lea, this is a very moving tribute to someone you obviously loved very much. I'm touched in ways I can't describe. May angels wrap their arms around you.
A lovely tribute to your "pirate rabbi," who emerges for us as a wonderful person. You, and many others, were blessed to know him. I hope these memories now bring more smiles than tears.
Lea you tell this sad story with love here as you told it to me and Cartouche in Miami. I hope the next few days are not too sad for you.
Thank you for reposting this, Lea, as I missed it the first time somehow.

I have no words to describe adequately the range of emotions this brings out. I can only say, well written and thank you.

Highly rated.
I empathize with you, Lea, and admire this beautiful tribute to your husband. May your life be filled with joy as you carry his memory forward.
There is something so bitter sweet about going through this kind of experience. Thank you for sharing your journey with us, for honoring the memory of your late husband so beautifully, and for showing us that life can go on with joy.
Lea, you are a strong & remarkable lady. Your love for those in your life is felt through this memory of your husband. It has to be hard to relive that time, but it could be a call to us, the readers, to recognize those symptoms, as they happen.

Thank you
- rated
Lea I am so very moved by your loving tribute. Your husband sounds like an extraodrinary man who was a perfect match for an extraordinary woman. I am so sorry for your loss xo
Lea...thank you for sharing this. It is the first thing I have read this morning. You reached into my heart and found a way to give me the strength to face this day, no matter what it brings.

I didn't even know about Ted Kennedy until your post. I find myself unable to concentrate on the tv lately, especially the news.

The special way in which your husband lived shines throughout your writing. Thank you for sharing this part of your journey with me, with us. It will stay with me.
You convey this story in writing with as much heart and spirit as you did in person. There are many lessons to be learned from this and the other stories you share so generously about your life. This may very well be one of the most important, beautiful and touching. Warm hugs to you. A well deserved EP I might add.
I am so sorry for your loss, and wondrous at the grace your husband showed at his end. This is a beautiful tribute.
How touching, Lea. A deeply moving tribute- love and loss expressed, perfectly and gently. Thank you.
This is a very loving tribute to your husband, Lea. From all the phone calls and emails, it sounds like he was a well respected rabbi. You are a woman of remarkable strength. Thank you and congrats on the EP!
No words just tears for your love and faith and loss. Thank you
I remember this the first time you posted it Lea and I was just as moved reading it again. Our father (Just Cathy and my five other siblings) lost our father to an astrocytoma, an equally malignant brain tumor. It is quite devastating to be a witness to a person, vital and full of life, be taken over by this kind of malignancy in the brain. My thoughts to you and the Kennedy family.
This is a lovely tribute and a sad loss that makes Kennedy's death somehow more human, regardless of what either of them achieved in the world. You wrote this beautifully.
Lea, thank you for one of the most beautiuful and touching posts that I have read here on OS. I was full of goose bumps almost the whole time I was reading this memorable tribute to your husband.
What a wonderful man he must have been. What a wonderful woman you are!
Lea, I have my copy of "Paths of Faith" next to me right now. Your husband was a remarkable man.
Written with skill and tenderness...thanks for sharing this Lea
been there, done that, don't want to do it again.
I'm sorry to hear of your lost and, my heart goes out to all who suffered and suffering a love one, if not themselves. We need to look at the big picture that faces us, by understanding cancer is in all of us. We can't cure it but, we can return it to it's dormant stage by natural herbs, sunlight, the ocean waters and exercising as an alternative to medicine.

Michiah
Lea,

I don't have words either, but want to know how touched I am by this tribute. I trust that a "thank you for sharing this" and ((hug)) will do.

It's funny, but a few minutes ago I was concluding a meeting with a colleague, and she shared with me that her husband had died at age 55 (10 years ago) from the same tumor, and that he'd been treated here at Duke by the same physician that treated Sen Kennedy, and that her in-laws had for years told her that she didn't get him the "real experts." Today she said she feels vindicated by the fact that Kennedy had "all the resources in the world" and selected the same doctors. We finished our meeting and I opened OS for a minute nd saw your post so I opened it. I'm so glad I did.

Thanks.
Man, you gripped my heart. This tribute to your husband was heart-wrenching.

It is also a tribute to your resiliency, my dear lady.
Being really happy frightens me. I get a feeling in my gut that I must be careful not to enjoy myself too much, the Gods get jealous; they may feel the need to take me down a peg or two, remind me of who's really in charge. I was reminded of this superstitious feeling while reading your post, just as you mouth the words "we're so lucky" your nightmare begins. People say things like "oh you must be grateful for the time you had together" but though of course you are, these words fail to give solace.

Your tribute to Chaim drips with love and eloquence, and to remembered in this manner is the greatest testament to your marriage.
This was a wonderful piece,
What a beautiful, moving piece, Lea. I have a good friend struggling with glioblastoma; she's undergone surgery and radiation and chemo, and she's doubled the 18 months the doctors first gave her, but she's also realistic.

Your words -- to "focus on the pleasures of the past and the precious moments of the present, carefully avoiding the difficulties of the future" -- are powerful ones for everyone, not just those of us struggling with terminal illness. What a lesson in love and life. My thoughts are with you.
This is beautiful and a very fitting tribute to Senator Kennedy. My own father has Parkinson's and is on the end-run now, but there's so much more uncertainty with a progressive illness like that. He has his moments of grace, too. In that way, facing death courageously is the same.
this is such a moving tribute to your husband. my heart goes out to you, as well as to Senator Kennedy's family.
glioblastoma is a heartbreaking diagnosis - a great man in my life was diagnosed with this the same month as Sentor Kennedy. he is still with us but his fiancee has just started the process for hospice care for him.
i am rambling - i can't find words for any of this. just thank you for you post.
Thank you, Lea. This was beautiful.
This is a day of high emotion for a couple of reasons, so even though I won't be able to thank you all, I deeply appreciate your comments. Enjoy each day.
If we wonder, as we must, why afflictions of this sort seem to happen to the best people, we can at least take some comfort from the fact that such afflictions always seem to briong out the best in them. Having lost some one to brain cancer recently I am particularly touched by this remembrance Lea. Thanks for giving me the opportunity to read it.
Lea Lane. This is a day with Poweful Memories and Painful Awareness.
I was gone to No read bogs and rest mu weary body, bones, and feeble Mind.
Thanks for telling more about you. Longfellow wrote:`If we sat quietly to Listen to our fellow humans one-on-one ... I paraphrased this:`We lean on others to weep. Weeping is good if we weep with pure heaqrts our genuine sadness. You are kind. Nature helps you go on with Travel privilidges. O I traveled alone, met strangers, and Traveled as if I was gonna walk off the Planet Earth. That is a hyberbole.
I wish I had a Travel Partner?
No. I was grieving my `Nam.
I wish I could say everything?
Only fool tells Ya everything'
You are discreet and Thanks.
You enjoy the Travels. Great!
Lea, thank you so much for sharing this again. I know Chaim's memory continues to be a blessing to you and your family and my hope is that it will continue to be for years to come.
Lea, your great post is a reminder of the heartbreak for all involved when a tragedy like cancer becomes a sudden diagnosis for a loved one. It's been a pleasure to know you here on OS and to have shared stories both sad and happy!
My father as well. Agressive crazy 8 shaped tumor on left side of his brain, growing toward his brain stem. He lived through 2 brain surgeries and every known cancer treatment of the time for 18 months. He died when he was only 65. So sorry about your husband, Lea. It's a ruthless type of tumor and nearly impossible to detgect till it's too far gone. Ted's passing reminds us of how precious our loved ones who have passed are to us. It leaves a big hole in our hearts.
Your husband sounds like a very fine man indeed, and a beautiful tribute. Thanks.
Lea, this is very moving. Thank you for telling us this story, and making vivid and real the pain that a spouse and family feels as a much loved person dies. I was just reading the public statements made by fellow Senators about Ted Kennedy, and they made me tear up. They all spoke of in some way about how he was such a larger than life presence, and therefore what a huge void his death leaves in the Senate. Reading their words, I could feel that. And reading yours, I could feel that losing Chaim left an aching void in your life and the lives of many others, because he was such a big man (in the grandest sense) in your world and can never be truly replaced. I continue to hope, though, that love comes to you in a new and different form. You deserve it!
I feel so blessed to have read your story. Sincere thanks.
Thank you for re-posting this moving tribute to a dearly-loved spouse today. Sincere condolences on the loss of your 'pirate rabbi'.
Oh Lea. I'm just sitting here, trying to know what to say. Especially on your birthday, of all days. But re-reading your beautiful tribute made me think...

There are many of us in that cycle of our lives where birthdays aren't so welcome; we'd prefer mostly to ignore them and the passing of time they represent. Your Chaim taught us to cherish every single one. To live our days to the fullest -- for ourselves, our loved ones, our fellow human beings. The reach for every single moment, and blessing.

Even knowing his fate was sealed, he gave you, his family, friends and congregants a great gift. His example lives on in his own words ... and in yours. Thank you for sharing it with us.

To you, to life, to serenity and peace, Lea. And, as always, L'Chaim.
I lost my sister - and only sibling - to GBM as well. It's 2009, and though the complexities of cancer are well understood, it is still amazing that we cannot effectively treat any of the more deadly ones after 70 years of research. I always wonder: what if the obscene sums spent in Iraq could have been put into research funds? The piles of U.S. dollars adrift on large wooden pallets somewhere in that hellish desert. What if military spending could be put to use in Alzheimer's studies? No child or adult deserves a death sentence like pancreatic cancer, or ALS, brain tumors, or the hundreds of other killers. Out priorities as a society are really twisted, and when our planet bakes us out of existence it may be just as well.
What an amazing tribute. Peace to Chaim and to Senator Kennedy and peace to you, Lea.
Crying here, Lea, like I always am when you write about Chaim. So moved by the person he was, and the love you had for each other. Shining examples of what is possible. Peace to you today...
Lea this is indeed a beautiful tribute to your husband. I am sorry for your loss and I thank you for sharing this painful experience. You remind us to live each day to the fullest.
I hope you are enjoying your day-Happy Birthday!
I bow to what ladyfarmerjed said:`Happy Birthday.
This is my youngest son's birthday:`August 26th.
When he was born he was so blue. He didn't cry.
I feared there was something wrong. Babies cry?
I was holding my last son and we just looking.
I am so touched to recall this joyous Memory.
It was as if we did knew each other? We do. Yes.
He's as special as any human being. Blessed day.
I am glad I came back to read comments. Bless.
I recalled a beautiful fear, joy, and full wonder.
wonder and awe. New Life in midst of sadness.
Thank you Art for the poem, and the rest of you, for the wishes. A reflective time.
My mother, an ICU Nurse for 40 years here in Chicago, was diagnosed with Stage IV glioblastoma multiforme following an aneurysm in mid June. We have been given 12 months or so, even with the radiation and chemo. The passing of Senator Kennedy is a sad loss for all of us, and unfortunately a poignant foreshadowing of what is to come. Thank you for your touching words of remembrance as they offer comfort in my current circumstances....
Thank you, Lea. I was here.
Lea
your words are wisdom in the fog of sadness. Yes... Rest in peace Chaim. And Senator Kennedy.
Lea, thank you for sharing. Hopefully you can remember as he was before, not how he left. Hugs :)
Lea, thank you for sharing your love story. You are a strong and courageous woman and generous in words and spirit. Be at peace.
Thank you, Lea. Sharing grief with remembrance is the finest healing there is.
Lea -- This was a wonderful tribute to Chaim. Hugs to you!
When someone wonderful passes, I pray that I will meet them again someday in a better place.

I wish this for you.
I hadn't noticed before reading other comments that it was your birthday. I'm sorry it's a day for sadness, instead of fun and joy.
I'm so sorry. So very sorry.
What a beautiful and moving memorial to your husband.
Again, thank you all for the kind words.
Beautiful memories, Lea. I am going to recommend your website to my friend in L.A. who is becoming single. Sorry for your loss.
I am speechless. This is tragic -- and triumphant. It must have been very difficult to write. This is beautifully written. I'm glad you shared this story. And obviously, I am not alone.
Hugs Lea.

I felt this for you and Chaim (and Teddy).

I've heard about the blessings that come from such a diagnosis. And I'm glad you were able to experience them.

You had something some people never have. I'm sure that's a small consolation.

denese
Lea, it's impossible to read this without being moved. Thank-you for sharing this tragic but deeply love filled story.
thank-you for writing this.
What a wonderful tribute, Lea. Thank you.
Lea, I love this post. Thank you.
I just cried for you!
If I was in NY, I'd bring you over some nice hot bread or pie and some wine.
This was very moving, and very personal for me as well. My Mother-in-law also died from the same brain cancer 4 years ago.
Thanks for sharing your story Lea.

Here's to Chaim, Ma, and Sen. Kennedy.
It is a week for grieving the departure of two extraordinary husbands. This eloquent sharing of your precious pirate rabbi rends my heart and touches my soul, making me all the more profoundly grateful for the gift of Michael’s presence in my life, moment by moment. Thank you, Lea, for introducing us to Chaim in all his wisdom and wonder.

—Melissa
Hi Mrs. Lane,
You recently posted a comment on my blog about Senator Kennedy. My first thought was to tell you in a funny way that while I'm open to him being a nice guy, I'm not too open minded about his politics. Anyway, before I could answer I had to learn a little about you. Well, all I can say is I am so very sorry for you and your family.
Cancer is such a dreaded diagnosis, but no amout of dread can compare to what it means to actually live through it. I lost my grandfather about 14 years ago, an uncle to it after that and most recently my Mom. My heart goes out to you and your description of your husband so reminds me of my Mom. Fighting valiant, helping others and then finally the inability to fight any longer.
I want to tell you that you will be in my prayers tonight and may God bless you and your loved ones.
This was quite touching and I thank you for sharing. The news of Senator Kennedy's diagnosis, treatment and demise hit very close to where we live. My wife was diagnosed with an oligodendroglioma a few years before that tumor metastisized into a glioblastoma back in 2006. Over the past two years she has undergone two surgeries, six months of radiation and nine months (and counting) of oral chemotherapy.

We've been very lucky so far. Her remaining cancer is losing mass and she is still extremely high-functioning, but I know that the day may come soon when I find myself writing a similar post. Thank you for showing me that one can celebrate a loved one's life while mourning their passing.
This is a beautiful tribute to Chaim and Senator Kennedy and a true inspiration for all of us who are suffering through the illness of a loved one. Thank you so much for this one paragraph:

"...With a grim diagnosis you are at least spared false hope and the ups and downs that distract from the time you have left. Accepting the inevitable, you can focus on the pleasures of the past and the precious moments of the present, carefully avoiding the difficulties of the future. Every day, fully lived, is greeted with appreciation..."

I will put this in my inspirational journal and refer to it whenever I find myself slipping down the icy slope of "denial." Peace, love and light to you and your family.
So many of us have suffered through this and similar deadly cancers. We have learned the hard way that we have to live each day to the fullest and appreciate what joys we can find.

Good luck Todd. Maybe your wife will be one of the people who does beat this. I have heard of some.
Thank you, Lea.

October will mark the 13th anniversary of my wife's diagnosis. Hearing of the mortality rates and life expectancy of others afflicted with similar cancers leaves her feeling supremely lucky to be alive coupled with a heavy dose of "survivor's guilt".

We simply keep a close eye on her condition, follow her oncologist's recommendations and take it day by day. And we are thankful for each new day.

Thank you.
I hope you don't mind my saying that it's ironic that your husband was on a cell phone when he exhibited symptoms. In the news, Arlen Specter who is living with brain cancer is pushing for a hearing on link between cell phone usage and cancer.
Lea, what a story. And what a life you've had - so full of love, adventure, awareness. Your Pirate Rabbi sounds quite special. I'm sure he appreciates this, wherever he may be.
It is a strange blessing that he could make so much of the time he had left. You know you did all you could for him, and he seems to have delighted in you.
He was a great man. And you are a great woman. Thank you for sharing such a personal tribute.
I just don't think my words, as well-intentioned as they are, could ever convey my sorrow. Much love.
I don't know why cancer can attack human. I haven't experience about cancer, but I know the feeling of missing someone that have meaning full. But one that I know God have good plan and his plan never be bad for me.business directory |jobs|walk in tub
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