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lschmoopie

lschmoopie
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I qualify for AARP....now what? Twitter: @lschmoopie Putting this here for the OS editor.

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MARCH 27, 2011 12:05PM

Words of My Mother- Part 9

Rate: 15 Flag

Mom has been living in an Alzheimer's care facility for the past three years. My sisters and I juggled her care for nearly a decade prior to making the difficult decision that her growing needs were outweighing our best-intentioned capabilities. I'm watching her slow and steady decline as this gut-wrenching disease continues to consume more and more of who she is. I struggle making the 75+ minute drive to visit her as I witness that my being there has very little impact on her anymore, yet it impacts me greatly.

Like many women of her generation she was a stay at home mom. But Mom wrote poetry. Prolifically. I have six volumes of her self-published work. Whenever I am feeling the deep pangs of losing her while she is still physically present, I pull out one of her books to remember. This morning the first page I turned to contained a poem which I'm sure was written about her volatile relationship with my father. I've gotten to understand my mother as a person through her own words. And they bring me back to who she was before the disease. Mom no longer recognizes her own written words. I brought one of her books with me on my last visit. She doesn't remember being a writer. But I remember...

DSC01074
 

WORDS

Flung thru a lowered window,

A voice made flat and colorless

by the effort to control it.

RECOIL

Drooped shoulders and bowed head.

Then, the quick shudder-

as from the sting of a lash.

TEARS

Pools of pain; glistening quickly,

brightly. Strength ebbing with

their sudden falling.

CONTROL

A desperate effort and achieved firmness.

Hurt nearly hidden

by the thoughtful directions.

WITNESS

Love- wordless but understanding.

The only balm for your wrenched

and sobbing heart.

 

*images are my own and from bing.com

Author tags:

regret, guilt, alzheimers, poetry, mothers

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I feel for you and your mother.. I do not want to end up like her and others. Those words were incredible..
sigh,
rated with hugs
It is so sad to see our elders getting this way. My mom is 80 and is starting to forget and it tears me apart. Great Post !
This is one those posts that makes me sigh at the bittersweet-ness of it all. A writer who can no longer write, a poet who doesn't recognize her work. I'm sure that writing that beautiful poetry sustained your mom through difficult times. I used to sit & read poetry to my dementia-ridden mom & sometimes it seemed to calm her -- the rhythm, maybe. The hardest part was not choking up while I read it. It must be even harder to read your mom her own words & find that she doesn't recognize her past self, either.

It's hard to watch our mother's disappear, but I'm positive that on some level she knows you're there. At some point maybe a smile, or a word. My mother, in the middle of gibberish, once told my brother she was glad he was happy, then went right back to the gibberish. It's almost like their "real self" is being held prisoner in their brain & every once in awhile breaks out just long enough to send a message.

This is beautifully written -- your own words, & your mother's poetry. She obviously passed her gift on to her daughter.
One more thing to put into the mix when considering the burning question. I may set fire to my journals yet, but so far, I haven't committed to it. This makes me think about the decision once again.

@Suzie, yes - I see and hear the same thing from my father. Gibberish, then a very clear few words completely appropriate to the moment, and *blink*, the curtain drops back down and it's gibberish again.
My drive to see my mom was an hour and I know exactly what you are saying. Will she know me today...I'm glad you have her writing even if it can be painful to read.
Such beautiful poems
her words
full of pain
full of love

rated with love
Linda: I do not either. It is one of my only fears in life, having watched her and my grandmother go through this.
scanner: It's difficult to see the huge change. My mother & I have definitely reversed roles.
suzie: Thank you for your thoughtful comments. Spoken like someone who has truly been there.
Gabby Abby: I hope you don't destroy your journals for the benefit of those you will eventually leave behind. One of my dear friend has journaled most of her life and has them all carefully saved. I guess this blog will be my journal...
Lunchlady: You and your sister are there and can relate. It's definitely an unknown with each visit.
romantic: Her words are only now leading me to understanding the relationship between my parents.
"A voice made flat and colorless / by the effort to control it." These are words that can speak for so many, sadly.

As wrenching as your current circumstance is, it is incredible that you have the gift and legacy of these words that you will also be able to pass along for future generations.
VA: It is an amazing thing to have, so true. I frequently pull them out when I am thinking of her but can't make the drive to see her due to other commitments, or because I just don't have it in me to go through it that day. I wish I could convey to her how much they mean to me...
This is amazing...I really don't know what to say...xox
my hope is that my children hang on to a piece of me through what I've written

You're mother's writing is deep and worth posting.
awww, god. this is such a terrible, painful thing - to see someone we love so much turn into a prisoner of herself. i just keep going back and reading the last lines of the poem - "your wrenched and sobbing heart." an incredibly well-done piece, schmoopie.
thank you for sharing her poetry. quite illuminating, haunting, really.
Hugs to you and your mom and to you having so much of her to keep with you and close to you.
That is not just a simple happy poem about flowers and bees. It is deep and moving. Your mom really thought and felt so much. I work with Alzheimer patients and my dad drifted off. My mom controled his every move tho so there was no room for me. Now she is almost 93 and it is so heavy. Thank you for doing the right thing with your mom. I wish I had a couple sisters to help out.
Robin: Thank you. I think she wrote some amazing things.

blinddream: I'm glad you think so. She has many more wonderful poems to share.

femme: That line got me too.

dianaani: I agree.

xenonlit: I appreciate it.

zanelle: I'm sorry you have to shoulder your burden alone. That makes it all the more difficult.
Beyond incredible!!!!
Her piercing poetry sounds like one risking escape. It must be deeply moving for you to read and know her possible meanings, feelings and venting of a time she held mainly private. Makes me wonder if my children will one day read my writings and find new revelations through words never spoken out loud. Lovely and bittersweet sharing
Very meaningful to me.
I can empathise. My Mum suffered from dementia for several years before passing and the deterioration was heartbreaking.

In some ways I'm grateful she left before she didn't know us or completely lost the plot.

We still treasure the wonderful and witty poems and anecdotes she wrote in her earlier years.

I know things won't improve, but I wish you the strength and faith to get through this.
Tink: Thanks. I think she is, too.

Just Cathy: I'd so love to talk to her about her poems, but it's beyond her now.

Sheila: I know so many of us are caring for agin parents. It's a rough road.

Linda: Thank you. I appreciate your kind words and sharing your story.