My son seemed okay when we left last night, his fever down, his blood pressure good.
When I came in this morning most of his medicine was turned off and when I touched his hand I knew he was no longer in his body.
He had a major stroke when the shunt in his head plugged up which is what happens with valley fever.
I called his fiance and she rushed over and we had the talks keeping him on life support and such but those weren't options for my vibrant, loving son.
We let our families know and we made the decision to end his suffering.
I let my daughter know when we unhooked him and her Tibetan teacher said a long prayer for his peaceful passing. He died within 20 minutes of being unhooked. You could tell he was no longer in his shell and I refused to look at that body. I don't want to remember him like that and refused to look at Toddy either.
I tried so hard to make a trade with God I have had a long life and I wanted to trade places but....
I keep thinking I will wake up..
I am staying another night at the hotel afraid to trust myself on the road so I have been in touch with the cremation society and started the paperwork. My daughter will pay for it and Suzie is trying to get him a place by Grandma.
I can't believe my first born, my beautiful boy is gone and I don't know that I will ever recover this time.
What am I going to do without him?
I will be back when I am ready to tell Joey's story but so many of you had been offering prayers and love I felt I needed to let you know and thank each and everyone one of you for your love.


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Comments
♥
HUGGGGGGGGGGG
HUGS
Terri, there aren't any words.
Just love.
God bless.
Peace to you and your family.
You have my condolences, prayer and hopes that you will rest and heal.
Lezlie
I love each and every one of you and reading the comments may make me cry but I think today that is needed so thank you...
To live in this world
you must be able
to do three things:
to love what is mortal;
to hold it
against your bones knowing
your own life depends on it;
and, when the time comes to let it go,
to let it go.
From "In Blackwater Woods", by Mary Oliver
I am so terribly sorry for the loss of your beautiful boy.
Hopefully, your separation will just be a temporary one.
It's so unfair, but sometimes we have to stop seeking reasons and have faith. You have been so dignified and unselfish throughout this ordeal and I now hope you can find some comfort and solace somehow. Love and kind thoughts from across the pond.
Oh! I am so so sorry.
.....many hugs to you and yours.....
May peace find you each day.
R
Thank you all so very much...
I hope you know how much you are loved. We see how much your son is loved. I am convinced love is what matters most... and what helps us survive the impossible.
Wakan Tanka nici un. (Go with God)
:(
Godspeed Joe.
Rated for there's little more to be said that will help.
I am so sorry. Sending prayers and love your way.
Love, my dear. Love your way.
peace, condolences.
Anyway, I don't know if we ever knew about our both having special children and the scary stuff that comes with it. And our limitless love and the greater love we receive from our kids -- with or without needs.
I love you and just know you are being loved by so many. I wish I could release you from your pain. I wish I could bring your son back. I hate what you are going through.
Let yourself be embraced by all of us who know you matter and how our lives wouldn't be the same had we not met you. Love, Joan xoxoxox
your loss is beyond comprehension
my thoughts and prayers
to you and yours
When I started reading your post and all the following comments,a text came to my mind,and I will see if I can write it down for you.
So please look for it later.I need a little time for it.
My deepest sympathy is with you,and I am trying to hold you in your agony.
I have learned in life,that love is what keeps us going.A lot of love has been offered to you here.
Peace be with you.
This is what I want to share with you.
Later in the day,I will send you the translation.
I heard this music often when my younger brother died.
I find it comforting and this is why I have sent it to you.
I hope you like it.