madcelt

madcelt
Location
Halifax, Nova Scotia, Canada
Birthday
May 18
Bio
Life is good for the most part. If only I could win the damned lottery.

MY RECENT POSTS

Madcelt's Links

New list
Editor’s Pick
OCTOBER 30, 2009 7:10AM

How I Found, By Chance, That I Was At Risk for Breast Cancer

Rate: 15 Flag

There’s been a lot of breast posts lately, and rightly so. Whether it be breast feeding or breast cancer, our breasts can be our friend or foe.

 

I am adopted, and although not obsessed with finding my bio-mom, wanted to know all the family’s medical history (my bio-dad seems to be long gone) and perhaps a few facts about the family itself. We do not have open adoption in Nova Scotia, so one has to go through social services, they then track down bio-mom or dad. You then send a letter  addressed to the bio-parents and social services check if the parent wishes to have the letter. She  was willing to receive my first attempt at contact 11 years ago via the letter only.

 

I have NO blame whatsoever to place upon my bio-mom. None of this ‘you gave me away’ business. I ended up with parents that if you could choose, you would choose. It must have been awful being pregnant and unmarried at the age of 18 in 1957. I told her so in my letter, and thanked her for giving me up to such fine parents. It was a nice letter. She responded to social services that there had been a ‘death in the family’ and that all she would do was to provide some medical history. Fair enough. I had a father and grandfather both die of emphysema (I then quit smoking) and 4 aunts who had breast cancer. The survival rate was not included.

 

In Nova Scotia, we have free mammograms. At a certain age, they pick up the rate that they do them. I’m in that age group. But they are only concerned with immediate family when it comes to even more mammograms, and as my bio-mom had not had breast cancer at last contact,  I was happy to go for only my yearly visits (well no one is happy to have a mammogram). I’ve been clear each time.

 

Then for some reason, eleven years later, I had the urge to see someone who looked like me. Find out who did what in the bio-family, was anyone else plagued by a bipolar disorder and did I have siblings. Again this was not a stay up at night fretting sort of thing, just a thing. So social services told me to send them another letter and they would see if she would receive it. Uh uh, no way. According to the social worker she sounded frail (she would be only in her early 70’s) and didn’t even want the letter. And to think I had included such a cute picture of me with my dog. She did mention as a reason for not seeing me or receiving the letter that she had high blood pressure  and – had a bout with breast cancer.

 

I nearly hit the roof. It was the first time I was actually angry with bio-mom. She could have easily picked up the phone and asked SS to pass this on to me, knowing it was critical information. But no, she kept it to herself, because she was frail. I understand she may not have been well, but it doesn’t take much to make a phone call. If she was so detailed in her first encounter with social services, I fail to see how she would think her breast cancer would have nothing to do with me. Perhaps it was ignorance (maybe she lives in a trailer with a black velvet Elvis Presley on the wall), or perhaps it was just not giving a damn.

 

If I hadn’t made the second effort to see her, or even speak to her – I would never have known.

 

I had a mammogram recently. They ask the usual questions first, “have you had breast implants, lalalala”. Then the big one comes – ‘do you have immediate family that have had breast cancer’. ‘Yes, my mother has’. The pause. “Oh, well then we’ll have to do more frequent mammograms on you considering your age and family history’. Thank god.

 

I’m still mad at bio-mom, first for being a wimp, second for putting my life at risk. I no longer smoke (an occasional Cuban cigar), I lost 75 lbs to deal with blood pressure, diabetes, and cholesterol, and now have more frequent mammograms. There’s a part of me that just waits for the 'you have a lump' and although I don't dwell on these things, I feel it will be  inevitable…but at least they may catch it very early thanks to the multitude of mammograms.

 

She may have saved my life – but only out of the attempt to not see me – mentioned it as a reason. This is not good enough. For all you adopted people out there, push hard to find out if your bio moms (or dads if available) have serious medical conditions. It may save your life.

Your tags:

TIP:

Enter the amount, and click "Tip" to submit!
Recipient's email address:
Personal message (optional):

Your email address:

Comments

Type your comment below:
As important as it is to know one's family history - God only knows why bio-mum held it to herself - it's equally important to know that one can have no family history of breast cancer and still be diagnosed with breast cancer.

But, to find out - it could be interpreted as almost by accident - that one's mother and four aunts had it? I'd be mad as hell.
We are ALL at risk, family history or not. It's a crapshoot and a numbers game. The most important message here is for everyone to be as vigilant as possible about their own health (and you are lucky, you live in a country where health care is provided to its citizens) and get mammograms. We are not as lucky in this country and there are plenty of people without health insurance, adopted or not that may die of cancer because it was discovered too late and they couldn't afford treatment. That does not make it the fault of the adoptive parent but certainly says a lot about the value our government places on its citizens. Can you see this a little differently now?
True enough that one can get breast cancer without a family history. But family history as you suggest, means a lot to the likelyhood of being at high risk. I am mad as hell.
I see it differently because of the health care you receive vs. ours. I think it is an abomination that you do not receive the necessary measures to keep people literally alive. Yes, we are all at risk - but family history does play a role.
I'm going out to buy Hallowe'en candy as we ate it all ourselves. I will however respond to everyone who posts when I come back with my bag of sugar.
As odd as it might sound, your mother is old enough that maybe she is truly clueless about genetics. Or maybe she is the type that wouldn't want to know and didn't think it was something you would want to hear.

Not that you shouldn't be pissed off. But it sounds more like cognitive carelessness than an explicit wish to make your life more dangerous.

Also, there is another set of genes and maybe that side all live to their 90's and are healthy as draft horses.
Rated for common sense (an uncommon commodity)
I would be furious too. Even if she could not tolerate sustained contact she could have been more thoughtful.
Nick - quite true, but it is the mother that they concern themselves with mostly e.g. my father's mother or sister might have breast cancer but it is the mother (in our country) that is key. I hope you are right tho!

Thanks B1 - as usual.

Mypsyche - that's what peeves me off. She knew enough to give medical history 11 years ago - she must have had the common sense to know that this was a major issue. That's what it is mp - thoughtfulness.
It is very annoying she didn't let you know. But O'Really is also right. There are no longer higher risk people. Women everyday get breast cancer who have "no risk." We were told when I was breastfeeding how breastfeeding your children reduces the risk of breast cancer. How it helped you is more mammograms so I can see why it was important that she called you. I'd be pissed too.

Every woman I know recently who has cancer, breastfed. We've been fed a pack of lies. God Bless. Here's hoping you don't get it!!
Thank you Deborah. Yes, any woman is at risk, but there are some genetic factors involved as well, and I'm sure you know that. But clearly OTHER things factor in as well. I am simply glad that I found out, and can get checked more often. I wish you guys down south could get these things for free - it's just not right.
I can imagine how angry you are with your bio-mom. But try to let the anger go--it will bring you nothing but more stress and pain. The important thing is that you did find out and you will get the necessary mammograms. And like everyone else has said, just because your bio-mom had it, there is no guarantee that you will too.
I think you are rightfully angry. That is such an important thing to know. My cousin died of breast cancer before she was thirty. Good luck to you.
Karen and Jess - Thanks for reading the post. No, I'm not consumed by the anger at all. It's more like 'what a dolt'. Anyway, am clear at this point, and as you say - may avoid the whole thing completely. My thoughts go out to all who have not been as lucky as me.
I wonder if bio-mom didn't have an enormous case of denial about the whole experience of having you. It SHOULD have occurred to her that this was a need-to-know sort of thing, though. Best, HB
Hell's - you may have a good point there. I think a lot of denial is involved. Well said.
I wish you will do fine. I agree with O'Really. My advice is not to lose so much weight.

Well written.
Rated.
Thanks, Thoth - I needed to lose that weight though - I was a real porker.
Glad you got the info, and I can see why you were angry at your bio-mom. There are so many facets to this reunion (or no-reunion) story, yet we rarely hear something as straightforward and well-told as your version of frustration as an adoptee.

I'm an adoptive mom, and my young son likes to reassure himself that some day he'll get a chance to meet his birth parents. I say I'll help him if I can. I also try to say (gently) that I can't make promises.

I want to promise the moon to my kid, of course, because he deserves the moon and the stars and as much information as he wants about his biological line of ancestors. But sometimes life doesn't dish up the moon.

Thanks for this—rated.
Martha - you are so correct. Bio-parents may not be receptive to overtures from adopted children, or there may be a spouse or family who is unaware of the 'event'. I'm not angry at my bio-mom for that...truly. Only that I had wished she had let Social Services know that she had a major health problem. I wish the best to you and your son - and maybe the moon will rise.
What kind words, JK. Yes, I am lucky and I hope my post did' not soud to complainty. I feel good in my life and fortunate to have found out this information early. I apprediate your post. Thank you.
So, so thankful the stars aligned and you found this critical information out! It is sad, indeed, how you did, but critical none the less. Blessings to you!
Thank you, Kate. Yes, it was rather a bit of serendipity in a funny kind of way. I feel lucky in so many ways.
Is it just me, or is that odd?
So complicated. Cancer complicates relationships; relationships complicate cancer. Get your mammograms. Be well.

And, yes: that's odd.
Thanks Frank. Yup, life is complicated - but in a way, all is well now. Anger does no one any good.
madcelt, I hear you Sis! That's outrageous!

Please repeat this every morning as soon as you open your eyes, "Thank you for my very happy, healthy and perky breasts!"

That works for me. My mother died when I was in high school as a result of breast cancer. Two of my aunts did too. My cousin is now Stage IV. She's fighting like mad. She's going to be healthy by sheer will. My lips to God's ears.

Hope
Oh, Hope - I'm so sorry for the losses in your family to this terrible disease. Please accept my sympathies.
If only my breasts were perky - they are hanging on my knees now - but at least they're there.
madcelt, thanks Sis!

Please join me in song.

If your breasts hang low,
If they wobble to and fro,
You can tie 'em in a knot,
You can tie 'em in a bow,
You can throw 'em over your shoulder,
Like a continental soldier,
If your breast hang low.

(This must be sung to the tune of Your Ears Hang Low.)

Sisters, sing it with me! Let's all sing! It beats crying.

Hope
XOXOXO
I sang it and my spouse came running in afraid I'd had a breakdown. But it felt good!
madcelt, keep on singing Sis! Keep on singing!

Hope
I be singin'! I be singin!
Very interesting and poignant. I have lots of patients who were adopted, and they never know about their family medical history, which is, as you point out, important for assessing risk. Thanks for the post.
Well, at least I found out in a round about way. The most important thing is that I found out, Steve, and can be screening more often. Thanks for reading the post and by the way, my brother's name is Steve.