The Drawing Board

a journey in chronic pain

Mary Ann Farley

Mary Ann Farley
Location
Hoboken, New Jersey, USA
Birthday
January 18
Company
www.maryannfarley.com
Bio
In 1999, at the very same time I was diagnosed with a serious blood clotting disorder (Essential Thrombocythemia), I also felt my face explode in a type of pain that no one could explain. After 13 months, I finally learned that it was osteonecrosis of the jaw (also known as NICO), a complication of the blood/bone marrow illness. I've had untold numbers of surgeries during this time, having spent most of it in pain. In 2004, the blood condition caused an internal massive hemmorhage during which I lost 70% of my blood volume, which in turn made the jaw infection much worse. This blog will detail my journey with chronic pain and all of its accompanying complications and emotions. I'll try to be as honest as possible without shooting myself.

Mary Ann Farley's Links

Salon.com
NOVEMBER 22, 2009 8:25PM

Untitled

Today the pain is relentless and over the top. I just got off the phone with my friend Anne and I was sobbing. I said the truth that I've been thinking of for awhile now, which is that I don't want to live this way anymore. It's not that I don't…

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NOVEMBER 15, 2009 11:52AM

Results of My Relativity Experiment

In my last post, I said that if all things really are relative, then the truths I learned about emotional health during my years in therapy should at least have some application to healing my physical state, which is one of chronic pain.

So I decided to do a five-day diet of…

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NOVEMBER 10, 2009 12:34PM

That Lovely Ring of Truth

While shaving my head a few minutes ago (when's the last time you heard a woman say that?), I thought about my old therapist, for some reason. A couple of months ago, her daughter had called to tell me that she'd finally passed away of Alzheimer's.

I was a patient of this…

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NOVEMBER 6, 2009 3:00PM

Musings from the Brooding Aftermath

Ever since I can remember, I've always questioned the meaning of life, even as a teenager, which back then made me think that I was insane...seriously. While all of my friends seemed to go about the daily business of boys, school, skin issues and just general life, I always had a…

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NOVEMBER 1, 2009 10:00AM

Pills For Enlightenment

It would seem impossible that I could live a life without painkillers at this moment. This morning was a bad one that required one morphine pill, a Xanax and three Vicodins to get the pain to a somewhat bearable level, but I can no longer stand what these medications are doing… Read full post »

OCTOBER 21, 2009 2:52PM

"Gurney" (new song lyrics)

I'm a loser
The Lotto ticket says
I'm a bruiser
Veins are running red
Like a river
Flowing to the sea of redemption
Flowing back to me

I'm a bleeder
The gurney and the lights
I'm a cheater
Saved again in spite
Of the sorrow
Tears are running red
Like a river
Flowing from my head

And I say...
Strike up another number… Read full post »

OCTOBER 11, 2009 11:29AM

The Healing Power of Honesty

Well, Open Salon has done it again. In my darkest hour, I poured my heart out in a post, feeling somewhat guilty for expressing such a bleak mood concerning the bleak circumstances of my life, yet instead of chastisement (which at this stage of my life I still fear), OSers opened…

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I've so had it. I try to stay positive, try to be hopeful, try to think of the bigger picture, but in all honesty, today I'm fed up.

I haven't written here in awhile simply because of the malaise of chronic pain. I actually had a decent summer pain-wise, and after my… Read full post »

Make no mistake, I'm experiencing the mother of all boredom attacks.

I can't remember when my life has felt this dull. With all the things I love to do--write, paint, make music, dance, bike--you'd think something would catch my interest. But nope. I got nuthin'. I don't even feel like watching TV… Read full post »

AUGUST 6, 2009 2:35PM

When Love Is Enough

I awoke this morning with an aching emptiness, as I knew this was a day that I was going to take a much harder look at myself, without the crutch of abusive substances.

What's been a little disturbing lately is my glass of wine in late afternoon, after my day is pretty… Read full post »

Editor’s Pick
JULY 15, 2009 11:00AM

My Father, My Car and Michael Jackson

It's been over a month since my last post. During this time, my dad had a heart attack, which required a week in the hospital, then quadruple bypass surgery, which required another week, and now rehab, where he's been for seven days and will be there for seven more.

To call… Read full post »

JUNE 9, 2009 10:31AM

The Taming of the Blue

It's been a little over a year since I wrote my History Repeating post about the plague that engulfed Europe in 1347. Like a number of essays on this blog, it was inspired by a show on the History Channel, which just happened to air again yesterday.

I was just as fascinated…

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MAY 16, 2009 5:52PM

Praying for Rain

I watched the Farrah Fawcett documentary, Farrah's Story, last week about her two-year battle with cancer, and it was extremely moving, particularly since she's seemingly so close to death. Rarely do people document their health ordeals in this way, and what struck me most was her journal writings, w…

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APRIL 21, 2009 2:59PM

Understanding Suicide

During the past few weeks or so, I've noticed that on some mornings, I've been waking in a state of depression, which is a bit alarming as I know all too well just how devastating a full-blown clinical depression can be.

Obviously, I'm struggling deeply with the wear of chronic physical…

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APRIL 13, 2009 11:40AM

A Toll On My Soul

I was procrastinating on Saturday, as usual, so when I went to pick up my pain medication at the pharmacy across the street, I found that they'd closed a little early, and I was absolutely freaked that I wouldn't have enough meds for the following day, yesterday (Sunday).

For someone in chronic…

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APRIL 10, 2009 1:58PM

The OS Terms of Service Debate

To my new OS pals:

When I signed up for OS, I didn't read the Terms of Service (TOS), but my friend Joe did and alerted me promptly. The language is downright scary! It basically says that everything we write is automatically licensed to OS, which OS can use as it… Read full post »

APRIL 4, 2009 2:39PM

A Big Bubble of Love

It caught me completely off guard. On Wednesday I was walking down Washington Street, a main shopping avenue here in Hoboken, and I was suddenly overcome by what I can only describe as a deep sense of peace.

The night before I did some jaw exercises, which mysteriously alleviated the pain…

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MARCH 31, 2009 12:53PM

Hotel Heaven

The pain is overwhelming today. I thought I was really onto something with my last post, and maybe I am, but that doesn't console me right now.

Pain like this is ruthless, brutal, cruel. A few days ago I was on top of the world, which makes this crash all the harsher.

It's…

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MARCH 28, 2009 1:59PM

Full Speed Ahead

Something remarkable happened this week, and I'm almost superstitious about reporting it.

I had an insight, which was this: How I feel about this pain, every single experience I have of it, precisely repeats how I felt in my childhood. The pattern is almost an exact recreation of the players and the…

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MARCH 20, 2009 1:44AM

Sleeping With the Enemy

I've been reading a lot about Buddhism lately and I like it. It doesn't mince words. The very first thing Buddha teaches is that "life is suffering," and the religion basically goes on from there. What a concept. I suppose it's not surprising that I'm drawn to a religion that takes…

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MARCH 14, 2009 3:32PM

Chaos Theory

I have a piece of paper taped to my wall next to my drawing desk, on which I long ago scribbled the definition of chaos theory: "The more complex the pattern, the simpler the underlying reality."

I heard it on TV once, and I read it often, as science and the human…

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MARCH 8, 2009 8:29PM

No Magical Thinking Allowed

I think I'm losing it. Seriously. The pain level has mysteriously upped a few notches, and I'm just beside myself.

I got up at around 4 a.m. to go to bed (my cat woke me up from the couch) and it struck me while walking to the bathroom that my whole life…

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MARCH 7, 2009 3:17PM

Using the Monster

Sometimes I think this illness is just a waste of time, a waste of energy, a waste of potential, until I remind myself that as long as I keep up this journal, none of the journey is wasted, particularly if it can help another person.

It ain't easy, though. And it's…

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FEBRUARY 26, 2009 11:14AM

The Wrestler

Spoiler alert: While I don't say what happens in The Wrestler in the following post, I do talk about insights and personal conclusions, so read at your own risk!

*************************************************

Friends and family are noticing something different about me, and I notice it, too. I feel…

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FEBRUARY 21, 2009 12:44PM

My Brush With Greatness

 

A shot of Senator Robert Menendez and me in my studio at the 2008 Hoboken Artist Studio Tour. That guy wasn't going to get out of my studio without me grabbing a snap of us together! :)
Posted by Picasa

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