I think I'm losing it. Seriously. The pain level has mysteriously upped a few notches, and I'm just beside myself.
I got up at around 4 a.m. to go to bed (my cat woke me up from the couch) and it struck me while walking to the bathroom that my whole life has become about this pain. I'm just so drained that I don't even want to do the things I use to love so much. They don't interest me right now, and all I really want to do is ramp up the medication to a point where I'm just plain numb. That's no kind of life, of course, and with one false move, it won't be any life at all.
What's so strange about this whole debacle is that the existential questions forced upon me are questions I've been asking for as far back as I can remember. Who are we, us humans? And why are we here? I can actually remember thinking this stuff as a teenager, which I thought for sure was evidence that I was going insane as I didn't see anyone else fretting like this.
Don't get me wrong: I was all teenager and filled all the prerequisites for those years, but I always seemed to have a third eye at work, just observing everything from a curious point of view. When trauma and depression set in, this curiosity first evolved into dissociation, where I truly felt like I was a ghost in the room, and then it morphed into just plain anxiety. (This may, of course, say more about my upbringing than my curious nature.)
I suppose my point is that I've never been able to just set this existential quandry aside for any extended period of time and just relax, just enjoy. And so much of it, as it appears from where I sit now, has been about faith.
When I was a kid, my questions may have erupted from dissatisfaction with my Catholicism, where God was harsh and the nuns were harsher. If this was what God was about, I wanted no part of it.
But as I got older, I did find faith through the writings of Florence Scovel Shinn, who taught me how to affirm and pray and surrender, and I watched my life expand in glorious new ways. In fact, my journal entries during this period are almost heartbreaking to read, as they're so joyful, so full of humor. When I read them now, I can almost hear a brooding soundtrack in the background as a type of foreshadowing of what will soon befall this happy hapless victim--mainly, an abandonment so complete by who she thought was her God that she ended up in a mental institution.
I've been thinking about Jesus and his words on the cross after he'd been crucified, when he asked, "My God, my God, why have you forsaken me?" I don't think God answered him, and he certainly didn't provide him with a happy ending. I suppose one could say that Jesus then rose from the dead, and that's supposedly happy, but I'm not really sure what all those Bible stories are ever getting at. Is the lesson here that I'm supposed to endure a painful life, die an awful death, then be reborn with God? Who cares?
At least Jesus only lasted three days on the cross while hurt and pissed off. I've been bearing my own cross for five years now, and to a lesser extent, the four years before that. Enough already.
Once again, I'm coming to the conclusion that no god is going to get me out of this. Either I'll get out of pain or I won't. No magical thinking allowed.
I've known about a surgeon in Burlington, VT for awhile now who treats this, and he's come highly recommended.
I've waited out the winter to go see him, due to the weather, but it's time now to stop all this intellectual crap and just make an appointment, debt be damned.
I'd love to think that I could get well magically, through faith or faith-healing or resolving some long ago hurt that is really the key to all this, as that would ironically give me some sense of control. If I have the surgery, it will either work or it won't, but if I could resolve this in some other way, I suppose my faith would be restored, and I could go back to a more innocent existence.
I'm in a dangerous place tonight. Last week, I felt on the brink of something good, but now I just feel on the brink. My heart is breaking and I'm not sure how much more of this I want. I'm sick of being brave. I'm sick of enduring, of hoping, of trying. I'm just sick, and it's no way to live.
*****************************
I got up at around 4 a.m. to go to bed (my cat woke me up from the couch) and it struck me while walking to the bathroom that my whole life has become about this pain. I'm just so drained that I don't even want to do the things I use to love so much. They don't interest me right now, and all I really want to do is ramp up the medication to a point where I'm just plain numb. That's no kind of life, of course, and with one false move, it won't be any life at all.
What's so strange about this whole debacle is that the existential questions forced upon me are questions I've been asking for as far back as I can remember. Who are we, us humans? And why are we here? I can actually remember thinking this stuff as a teenager, which I thought for sure was evidence that I was going insane as I didn't see anyone else fretting like this.
Don't get me wrong: I was all teenager and filled all the prerequisites for those years, but I always seemed to have a third eye at work, just observing everything from a curious point of view. When trauma and depression set in, this curiosity first evolved into dissociation, where I truly felt like I was a ghost in the room, and then it morphed into just plain anxiety. (This may, of course, say more about my upbringing than my curious nature.)
I suppose my point is that I've never been able to just set this existential quandry aside for any extended period of time and just relax, just enjoy. And so much of it, as it appears from where I sit now, has been about faith.
When I was a kid, my questions may have erupted from dissatisfaction with my Catholicism, where God was harsh and the nuns were harsher. If this was what God was about, I wanted no part of it.
But as I got older, I did find faith through the writings of Florence Scovel Shinn, who taught me how to affirm and pray and surrender, and I watched my life expand in glorious new ways. In fact, my journal entries during this period are almost heartbreaking to read, as they're so joyful, so full of humor. When I read them now, I can almost hear a brooding soundtrack in the background as a type of foreshadowing of what will soon befall this happy hapless victim--mainly, an abandonment so complete by who she thought was her God that she ended up in a mental institution.
I've been thinking about Jesus and his words on the cross after he'd been crucified, when he asked, "My God, my God, why have you forsaken me?" I don't think God answered him, and he certainly didn't provide him with a happy ending. I suppose one could say that Jesus then rose from the dead, and that's supposedly happy, but I'm not really sure what all those Bible stories are ever getting at. Is the lesson here that I'm supposed to endure a painful life, die an awful death, then be reborn with God? Who cares?
At least Jesus only lasted three days on the cross while hurt and pissed off. I've been bearing my own cross for five years now, and to a lesser extent, the four years before that. Enough already.
Once again, I'm coming to the conclusion that no god is going to get me out of this. Either I'll get out of pain or I won't. No magical thinking allowed.
I've known about a surgeon in Burlington, VT for awhile now who treats this, and he's come highly recommended.
I've waited out the winter to go see him, due to the weather, but it's time now to stop all this intellectual crap and just make an appointment, debt be damned.
I'd love to think that I could get well magically, through faith or faith-healing or resolving some long ago hurt that is really the key to all this, as that would ironically give me some sense of control. If I have the surgery, it will either work or it won't, but if I could resolve this in some other way, I suppose my faith would be restored, and I could go back to a more innocent existence.
I'm in a dangerous place tonight. Last week, I felt on the brink of something good, but now I just feel on the brink. My heart is breaking and I'm not sure how much more of this I want. I'm sick of being brave. I'm sick of enduring, of hoping, of trying. I'm just sick, and it's no way to live.
*****************************


Salon.com
Comments
In the meantime, keep writing the truth. Someday, in a future you can't imagine, and may never even see, there will be at least one person, probably more, who will have heard your truth in their past.
Hold tight, through your writing, to your future and the future of those you touch with your honesty.
I'm holding your hand. I won't let go.
I don't really have anything constructive to say, but you write wicked well. Thank you for the glimpse inside. I wish I could say something useful, but no. There is nothing. I hope the surgeon is a bright light at the end of your tunnel.
Thank you for these transparent and "gut-level" documents of your journey. They have really caused me to reflect on my own existential questions- especially this post here.
I was particular struck by your words (and your comparison of 9 painful years compared to Jesus' three agonizing days- which many have used to portray him as the "poster-child" for all who suffer):
"I've been thinking about Jesus and his words on the cross after he'd been crucified, when he asked, 'My God, my God, why have you forsaken me?' I don't think God answered him, and he certainly didn't provide him with a happy ending."
I agree. The original ending of The Gospel of Mark (one of the two gospel accounts of the crucifixion featuring this quote from Psalm 22) contains no happy, neat, gift-wrapped ending.
But this is the Jesus that I think most of us who wrestle with existential questions can really and truly relate to... a human one. One who prays with no answers (check!). One who hurts with no promise of better days to come (check!). One who hopes for better days, but is ultimately unsure of what is to come (check!).
I wonder what would happen if Mark's version of this episode in Jesus' journey was the focal point of The Church's preaching instead of the Gospels' many miracle stories and lofty ideas of Jesus being some sort of magical being sent from another dimension and whose death serves some divine, supernatural purpose.
What if we set some ground rules for preaching Jesus' life, suffering and death. No magical thinking. No metaphysical explanations. No cosmic saviors. No preordained plan. No supernatural speculations about celestial matters. No favorites.
Just this human being...who suffers...in agonizing pain...in agony...feeling forsaken...wondering why the ...like us.
I would be willing to follow the encouraging example of such a one as this.
Thank you for these transparent and "gut-level" documents of your journey. They have really caused me to reflect on my own existential questions- especially this post here.
I was particular struck by your words (and your comparison of 9 painful years compared to Jesus' three agonizing days- which many have used to portray him as the "poster-child" for all who suffer):
"I've been thinking about Jesus and his words on the cross after he'd been crucified, when he asked, 'My God, my God, why have you forsaken me?' I don't think God answered him, and he certainly didn't provide him with a happy ending."
I agree. The original ending of The Gospel of Mark (one of the two gospel accounts of the crucifixion featuring this quote from Psalm 22) contains no happy, neat, gift-wrapped ending.
But this is the Jesus that I think most of us who wrestle with existential questions can really and truly relate to... a human one. One who prays with no answers (check!). One who hurts with no promise of better days to come (check!). One who hopes for better days, but is ultimately unsure of what is to come (check!).
I wonder what would happen if Mark's version of this episode in Jesus' journey was the focal point of The Church's preaching instead of the Gospels' many miracle stories and lofty ideas of Jesus being some sort of magical being sent from another dimension and whose death serves some divine, supernatural purpose.
What if we set some ground rules for preaching Jesus' life, suffering and death. No magical thinking. No metaphysical explanations. No cosmic saviors. No preordained plan. No supernatural speculations about celestial matters. No favorites.
Just this human being...who suffers...in agonizing pain...in agony...feeling forsaken...wondering why the world is so fucked up...like us.
I would be willing to follow the encouraging example of such a one as this.