The Drawing Board

a journey in chronic pain

Mary Ann Farley

Mary Ann Farley
Location
Hoboken, New Jersey, USA
Birthday
January 18
Company
www.maryannfarley.com
Bio
In 1999, at the very same time I was diagnosed with a serious blood clotting disorder (Essential Thrombocythemia), I also felt my face explode in a type of pain that no one could explain. After 13 months, I finally learned that it was osteonecrosis of the jaw (also known as NICO), a complication of the blood/bone marrow illness. I've had untold numbers of surgeries during this time, having spent most of it in pain. In 2004, the blood condition caused an internal massive hemmorhage during which I lost 70% of my blood volume, which in turn made the jaw infection much worse. This blog will detail my journey with chronic pain and all of its accompanying complications and emotions. I'll try to be as honest as possible without shooting myself.

Mary Ann Farley's Links

Salon.com
APRIL 4, 2009 2:39PM

A Big Bubble of Love

Rate: 24 Flag
It caught me completely off guard. On Wednesday I was walking down Washington Street, a main shopping avenue here in Hoboken, and I was suddenly overcome by what I can only describe as a deep sense of peace.

The night before I did some jaw exercises, which mysteriously alleviated the pain (usually they don't work), a state that lasted into the next morning, so at first I thought this newfound contentment was just a result of having a good day catch me by surprise. But there was an otherness to it that I'd never quite felt before--a feeling that it wasn't coming from within me, but rather something that was surrounding me, like a big bubble of love.

I was so invigorated that I decided to keep my appointment with my life coach, Nancy Colasurdo, and afterwards had the energy to do multiple errands around town, which ordinarily would feel like lifting boulders but instead felt effortless.

In a nutshell, I suppose I was just plain calm for the first time in months.

When I got home that evening, I didn't check email for some reason, which is unusual for me. It wasn't until noon the next day that I finally opened my inbox, and to my complete astonishment, there were dozens of emails alerting me to all of the responses to my new blog at Salon. (Even though I publish primarily at Blogger, I recently signed up for a blog at Open.Salon.com, which takes your feed and reproduces your blog post for post, creating a perfect duplicate.)

When I began reading the comments, I was overwhelmed by their compassion, intelligence and offers of prayers, which made me wonder: Was this the reason for that sense of peace the day before?

Wednesday morning, I did read one Salon comment from Vonnia in response to one of my posts in which she said, "I'm holding your hand, and I won't let go." It was so powerful, so sincere, so touching that I carried those words with me throughout the entire day. And I was so surprised at the intensity of my reaction to them, as they felt just so real--like someone was really there holding my hand, bearing silent witness to my suffering with a type of strength and fortitude I couldn't summon on my own.

Who was she, this anonymous woman who offered such a simple promise that has me in tears as I write this?

And who were of all these amazing souls, for that matter, who took the time to write such powerful, warm words straight from their center, who got down in the trenches with me to offer such solace, such understanding, such compassion.

I truly believe that the combination of everything was that fuzzy thing that wrapped around me that afternoon, a full day before I knew where it was coming from.

There are forces out there that we still don't understand, that we haven't fully harnessed, for if I could feel so strongly this outpouring of love, imagine what we could do as a people if we focused our prayers (in whatever form they take) in a collective way on specific issues. Perhaps we really could change the world just by channelling the love in our hearts. That might sound naive, but I know what I felt Wednesday afternoon.

While I've written a lot of words here, there are none that can express my gratitude for this generosity of spirit from perfect strangers. For a chick who's got a lot to say about everything, I'm speechless.


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Comments

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Pretty cool, Maffy.
Dave
Yep, you've discovered the magic which is Open.

:)
Love and compassion can be very powerful. I hope you continue feeling peace and lightness in doing.
that is very exciting, mary or mary ann, whichever you prefer. :-) i totally believe in the power of prayer/good vibes being able to fortify us in a way we can't (or often can't) do on our own. here is to this creating a chain reaction of feeling good for you.
Good, glad to hear it! Lots of great people here.
A big bubble of love... what a beautiful image! small, daily miracles occur, I am happy one happened to you Mary! I am not much of a believer, but I do believe in this energy you so well describe, and your happiness is making my evening, thanks a lot! Big kiss to you.
Tink has it right.
This place is magic.
Welcome.

(thumbified with hope for a multitude of good days)
You have blessed and strengthened the faith of all of us who have prayed for you. Thank you.

I praise God for showing you the true power of love. I praise you for sharing it with us. I believe, as you do, that we can change the world with the focused intent of the love in our hearts to do so.

I won't let go. You are loved, Mary Ann.
What a blessing it is that you have had some peace from the relentless pain. I pray that will continue.

We will continue to pray for you and be here for you when you need a helping hand, a shoulder to lean on or a place to vent.

Monte
That's what the OS community is all about--kindness!
I wish for you many many more good days.
so glad to hear you're feeling some peace!
welcome to my addiction. you can check out any time you like but... well, you know the rest.

there truly are a lot of wonderful people here.
The best people in the world hang out here on OS, you can believe it. I am glad you got some relief.
Welcome to OS, and I hope you hang around :D
I entered Nancy Colasurdo´s link on your post, she is GOOD, I liked her a lot!
One of the strangest things I've found about OS (among many strange things) is the acceptance by complete strangers -- along with their encouragement and support. I'd like to think of them as colleagues, but that's not fair. Most of my colleagues in the working world had not an iota of the compassion nor the capability of OSers.

Welcome aboard.
Right back at'cha, Mary Ann!
We're a strange but wonderful community here and a whole lot 'o' luv!
Nice to know that even strangers are there for you when it tryly matters.
Then again, we're really not strangers through our words, thoughts, emotions, beliefs and a common motivation.
Cheers to today! Feel wonderful!
This is an amazing community, and you have added something wonderful to it with this post. Thank you - I hope you will continue to let us know how you are doing.
In Honor of National Poetry Month, and in honor of your travail:

"When you've fallen on the highway
and you're lying in the rain,
and they ask you how you're doing
of course you'll say you can't complain --
If you're squeezed for information,
that's when you've got to play it dumb:
You just say you're out there waiting
for the miracle, for the miracle to come. "

[Leonard Cohen, with Sharin Robinson]
Gluais faicilleach le cupan làn.

~~~~~~~~~~~~~~~~~~~~

"May the blessing of light be on you - light without and light within. May the blessed sunlight shine on you like a great peat fire, so that stranger and friend may come and warm himself at it. And may light shine out of the two eyes of you, like a candle set in the window of a house, bidding the wanderer come in out of the storm. "
I think that the more time you spend here the more you will find that most of our little community are far above the normal when it comes to compassion. You have found a great crowd here. I truly hope you like it here as we can always use more quality people.
I totally agree with you in this statement---There are forces out there that we still don't understand, that we haven't fully harnessed, for if I could feel so strongly this outpouring of love, imagine what we could do as a people if we focused our prayers (in whatever form they take) in a collective way on specific issues. Perhaps we really could change the world just by channeling the love in our hearts. That might sound naive, but I know what I felt Wednesday afternoon.
Mary Ann, I'm really glad you felt this way and I'd like to believe we helped and may continue to help. I have bought myself a book of Nuala Nic Dhomhnaill's poetry, so I shall share this piece with you as it seems appropriate:

Celebration
Rise, small bird, to the top of the tree,
and clasp the topmost branch with your feet
sing out from your throat
your torrent of glorious notes
and then your melody re-enact:
remind me, earthbound, of some basic facts -
say if love leaves me I'll hardly lose my mind
and though grief is great so's the music of life.
(translated by Michael Hartnett)
this is what i want to believe in...
This is powerful, very inspiring.
I am so glad you felt pain free. I am very glad you have found the magic of this site. This is the best place. But addicting. I keep saying I will take a break, and here I am again.
These are all good folks here and I am glad you have added your voice, Mary Ann. Be well and find peace.
peace to you this day
Following the Feed.
This was the first post I read yesterday.
I didn't know what to comment. I thought about this n and off all day.
I had you in mind when I read what I posted today. I am doing those hitchhike blogging?
Pain is pain.
Beauty is truth.
Truth is beauty.
Ode. That's true.
There's a lotta love here, that's for sure. We fight, we make up, just like any family, but we're always here for each other. I've had the same knocked out feeling on posts of my own, when the compassion comes flooding in. Amazing how affectionate you can feel toward people you've never met!
You keep writing and sharing with us.
Being without pain, after such a long time must be amazing. And there is a great energy in this universe that is unexplained. It's like when I asked for OS's to pray for Terri, She's getting out friday, and looks great. I really do believe this family, when putting their heads together can do wonderful things. This is cool as hell.