The Drawing Board

a journey in chronic pain

Mary Ann Farley

Mary Ann Farley
Location
Hoboken, New Jersey, USA
Birthday
January 18
Company
www.maryannfarley.com
Bio
In 1999, at the very same time I was diagnosed with a serious blood clotting disorder (Essential Thrombocythemia), I also felt my face explode in a type of pain that no one could explain. After 13 months, I finally learned that it was osteonecrosis of the jaw (also known as NICO), a complication of the blood/bone marrow illness. I've had untold numbers of surgeries during this time, having spent most of it in pain. In 2004, the blood condition caused an internal massive hemmorhage during which I lost 70% of my blood volume, which in turn made the jaw infection much worse. This blog will detail my journey with chronic pain and all of its accompanying complications and emotions. I'll try to be as honest as possible without shooting myself.

Mary Ann Farley's Links

Salon.com
Editor’s Pick
JULY 15, 2009 11:00AM

My Father, My Car and Michael Jackson

Rate: 34 Flag

It's been over a month since my last post. During this time, my dad had a heart attack, which required a week in the hospital, then quadruple bypass surgery, which required another week, and now rehab, where he's been for seven days and will be there for seven more.

To call this a stressful period for both me and my family is an understatement. Of course, the stress caused by a parent suffering through a major health issue is a given for any adult child, but what I didn't expect was the resurfacing of major issues from my childhood, which, oddly enough, has given me great insight into the death of Michael Jackson, which also happened during this time.

In a sense, I wasn't at all surprised that my dad had the heart attack, as the week before, while visiting my parents for four days, my dad was raging. Even though I talk with my mom every day, I hadn't visited them much during the spring as I was without a car, and as I have a 17-pound cat, transport to and from the Jersey shore on mass transit was just too problematic, so I wasn't aware of how bad the rages had become.

As I was struggling one week looking through the classifieds to find a used car I could afford, my dad made the extraordinary offer of buying me a completely new car, so I purchased a $13K Hyundai Accent, which was thrilling, as this was the first time in my life to own a brand new vehicle.

Over the course of my life, the way my father has so often showed his love for me has been via my cars. Before my parents sold their suburban home and moved to a garden apartment at the beach, whenever I'd visit, my dad would lavish my vehicles with the type of attention and interest that he found too difficult to express to me personally. My visits to their home often resulted in my car getting washed and waxed, a new oil change, and a full tank of gas.

Even though conversations could be difficult, as his moods were always so unpredictable, I could frequently be assured that my car would leave the drive in fine shape, and as I got older, I realized that this was an act of love on his part, and I recognized it as such.

His behavior was often bittersweet in so many ways, as I'd always known that the guy would have taken a bullet for me, yet when it came to day to day matters during my formative years, he seemed to have a pathological need to criticize me, and it was beyond him simply wanting to live through his child, as many overly critical parents are wont to do. His criticisms often had a sadistic edge, where there was clearly a perverse type of pleasure in making me self-conscious or embarrassed concerning things I could do nothing about, like certain physical characteristics.

He would also often fly into rages over absolutely nothing at all, like me having "looked at him funny," which could mean the silent treatment for weeks at a time, or saying words that were just so hurtful that it was actually better for him to say nothing at all.

To detail all of the infractions would be just too painful to relive in this essay, and perhaps isn't even necessary, as the point is that no matter what our parents say to us while we're growing up, either good or bad, we're irrevocably shaped by these words, and if they're harsh, we can spend nearly all of our adult lives trying to unlearn the falsehoods we were taught about ourselves as kids.

This has certainly been the case for me, yet during the past ten years or so, my father had calmed down considerably due in large part to the onset of hydrocephalus, a condition whereby fluid accumulates in the brain and makes the patient very tired, forgetful and quiet. While this illness made me miss the part of my dad that could be so charming and funny (at least with others), I certainly didn't miss the verbal abuse, which could still rear its ugly head now and then, but not to the extent it once had. In a a weird way, this was a blessing, particularly for my mother, who cares for him solely.

Yet for some reason, in recent months, the rage seemed to resurface, and it was worse than ever. My mom attributes it to the election of Obama, who he hates, and his constant viewing of Fox News, which fans the flames of bigotry and hatred no matter how "fair and balanced" they say they are.

The week before his heart attack, I experienced this rage firsthand when I went to the shore to show my parents my new car. What should have been a joyous gathering to celebrate my swanky, new vehicle instead turned into a four-day diatribe against me, the likes of which I hadn't experienced since I was a girl. And just like what happened in my most innocent days, I was caught completely off guard, and felt devastated by the contempt and loathing directed at me for no reason at all.

The first day I was there was innocuous enough, but on the second, while watching television together, I asked him to hit the "info" button on the remote, and he screamed that he wasn't going to "hit every goddamn button just so that you can see the year the film was made!" He then threw the remote at me before storming off to his room for a few hours.

On day three, while Obama was making a speech, he began ranting about what a liar he was, a familiar tactic to bait me into a political conversation so that he could rail against liberals and minorities. (I now just walk away from these useless discussions, as he loathes liberals, of which I'm one.) And on day four, while my mother was visiting a sick friend in the complex and I was doing the dishes, he asked, "Why are you still here?" in the angriest of tones. The list could go on, but you get the idea.

By the time I left, I couldn't get out of there fast enough, so when I got a call from my mom the following weekend that he was in the ER with a heart attack, my knees buckled a bit (despite the abuse, I never want to hear that either of my parents is suffering), but I wasn't surprised at the news. None of us was.

As we began visiting him over the next few weeks, the old dynamic took root, and I could feel that old familiar depression set in, as he was so charming, sweet and funny with all the doctors and nurses, but absolutely vile to me and my mom. (He's somewhat calmer with my sister, my only sibling who's 16 years younger than me--the "surprise" baby of the family; he's always been closer to her as he had a much larger hand in her rearing. Still, she, too, has suffered at his hands, and bears similar scars as a result.)

The unkindest cut of all came on the day he was transferred from the hospital to rehab. After my mom and I spent four and a half hours with him this one particular morning, I suggested that she and I go home for awhile, then come back a few hours later.

In a sneer, he uttered, "Don't you want to be here?" I said, "Dad, we're just going to go home for a bit. We'll be back. Please don't be offended."

And with that, his face blew up into a tomato-red balloon, he showed his teeth, then raised both fists to my face. I don't even want to recount what he said next, but it's something no daughter should ever hear from her father. I was absolutely stunned, and on the way home with my mother, I said things I couldn't believe would ever come out of my mouth. My basic premise was that it would have been easier if he'd just died.

Not surprisingly, we didn't go back that day, and for the rest of the week, I didn't go visit him. My mom did, as did my sister, and both repeatedly said he owed me an apology. At first he growled, "I don't owe her a damn thing," and when my mom said at one point that I was still very hurt, he said, "Let her stew in it."

But as the days passed, I suppose he began to think about what he had said and done, and he begrudingly agreed that he owed me an apology. So I relented and went to visit him yesterday, and upon leaving, he said, "I'm sorry we had an argument." I had to laugh somewhat, as he didn't take responsibility at all for what he had done, but I knew that was the best I was going to get. I kissed him goodbye and said, "I just want to be friends, Dad. All I've ever wanted was a loving relationship with my father."

I could see he was uncomfortable with my comment, as his eyes darted around, and he mumbled something like, "Okay," but that was that, and I came home to my apartment, where I'm tending to my own life before I head back to the shore again in a few days.

What I'm left with now, of course, is keen insight into how I've been shaped by my father's behavior towards me all these years, and despite the decades of psychotherapy, I'm realizing that while my happiness is entirely my responsibility, the scars left from the psychological dismantling of my identity and self-esteem in childhood might never fully heal, and maybe that's okay, in a weird way. It all has made me a more compassionate, tolerant and open-minded person, and for this, I'm thankful, although I'd like to think I would have been this way anyway, without all the misery.

After Michael Jackson's death, so much information came out about his own father's treatment of him, which wasn't exactly news, of course, but the revelation of the depth of Jackson's torment was something I fully understood in a way I hadn't before. And to hear that he'd become such a pill addict was another uncomfortable identification with him, as these painkillers are still a monkey on my back, but I've developed a strange comfort with this creature, as sick a relationship as it may be.

After my surgery, I did begin to experience some pain-free days (even without the hyperbaric treatment, which Medicare declined anyway), but with all the emotion stirred by this recent debacle (and the descent back into bad habits, like smoking), I've been holding onto the pills tighter than I perhaps ever have.

The emotional trauma set the pain off again to a searing level, and during the 48 hours after my father's outburst, I literally could not stop shaking or crying. I was in such a rage myself that I swore I'd never speak to him again, but I soon realized the destructive power of holding onto anger, and upon the advice of my friend Paul, I began to pray for my dad, and slowly, the rage did begin to lift.

Instead, I began to feel compassion for him, wondering what in the world had happened to him in his own childhood that created this Dr. Jekyll/Mr. Hyde personality. In talking with my cousin, who is close to my dad's age, family stories have begun to surface that are dark and cold, and it's clear that the cycle of abuse is a mysterious beast indeed.

Last night, after I came home from the shore, I had dinner with my dear friend Lynda, and after catching up on news about our own lives, we began to discuss the tragedy of Michael Jackson, particularly about the connection between his father, his plastic surgery and his pill addiction.

At one point, Lynda told me that upon hearing of Jackson's demise, she couldn't help but worry about me and my own painkiller abuse, as there were such parallels between Jackson's story and my own, albeit without the plastic surgery (not that I haven't considered it over the years, but I've never been able to afford it; plus, I knew there was much more to learn by not doing it).

When she said this, there was that pregnant pause between friends when an uncomfortable truth is uttered, and I did indeed feel a chill. As I've pondered Jackson's death these past weeks, I keep thinking, "Why didn't you get help? Why did you use the pills to squash your sadness and anger, and why couldn't you get off them? Why did you let your father's words destroy you?"

It's easy to ask these questions of another person, but not so easy to ask them of ourselves. I do ask them, of course, but that doesn't stop the next pill, the next cigarette, the next glass of wine or the relentless pain in my face and jaw. It's all a recipe for disaster and death, made all the more real by Jackson's untimely self-induced passing, and by the memory of my dad's fists in my face, and the outburst of words that can never be taken back.

I can't let him destroy me.

 

**************************

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On pain meds... Abuse vs. tolerance is tough. MJ had enablers. Chronic pain doesn't require help. As I read about your Father, I can't help but think that his actions are based partly in fear and partly in his dealing with his own demons that he acquired through life's journey. That never excuses abuse of any kind. rAted!
Mary Ann, my pain buddy!! I hate so much to hear about your Father, his heart attack, and his abuse toward you. I also believe he has the demons of childhood abuse. Back in his day, they still had the "spare the rod, spoil the child" philosophy! We both know the "pain pill train" as we are both on it. The pain management I'm on now, is working very well. I hope you can on get something to stop this pain. Medicare ain't shit when it comes to pain!!
"we're irrevocably shaped by these words, and if they're harsh, we can spend nearly all of our adult lives trying to unlearn the falsehoods we were taught about ourselves as kids."
In no way do I want to undermine your very touching post by saying "I know how you feel." But the fact is, that I do know. I lived a very similar existence as a child, though I don't share it here or much of anywhere, really, but believe me, I know.

"Instead, I began to feel compassion for him, wondering what in the world had happened to him in his own childhood that created this Dr. Jekyll/Mr. Hyde personality."
I did the same and I still wonder about this as my father's background was rarely if ever spoken of in our family, though I somehow know it was rough for him, I wonder how or why he never had what it takes to over come it, but rather chose (or not?) to transfer it to his children. All I know, is that, like you, I became the polar opposite and I'm thankful for that.
My brother, on the other hand, is a near image of him, though not quite as volatile, runs a close second in his need to abuse those who love him. I just don't comprehend it.
None of my business, but it seems you need the pain meds for your jaw. I would consider talking to your doctor about your concerns though, if they run that deep. I think you're gonna be okay, Miss Farley. You seem quite resilient.
Except for the "I know how you feel" part (because I don't), I concur with Michael's assessment. See your doctor if your concerns run deep.
So very sorry to hear of your pain (both physical and emotional). I hope that you can find some comfort here, with us.
Such an exceptional post, totally deserving of front page. My own parents were narcissistic and emotional manipulators. It's been one of the greatest struggles of my life, to see the fine line that separates self-respect and being a bully, being forgiving of others or a door-mat.

I believe that when a man is that abusive, no matter what type of bond exists, no matter what reasons he may have for his actions (is there anything under the sun that doesn't have a reason?) it's not justified to forgive him. Maybe you think praying for him is what makes you feel better, but I think saying "I don't deserve this, no one does, and won't put up with it" and following through with these words would probably do more to win back the self-respect your father took away from you. If you wouldn't allow this abuse to happen to a daughter of yours, are you worth less protection? You're not less worthy than other people, you deserve just as much respect.
I went through this process in 1991 when my father had a massive heart attack followed by quadruple bypass also and he was forced to stay with my wife and I for a week. It's was VERY, VERY difficult. At least it got him to quit smoking as nothing else could.
I hope things go better for all of you upon his return.
My father was less than perfect and I've written of his neglect. It takes a lot to become the caregiver, and in my case I had been his caregiver since I was age 10. I am one of the few people (it seems) that felt Michael's pain and need for escape from his upbringing. I don't know if he molested the kids. I can't be sure as I wasn't privied to the evidence. I know he was never convicted and no, I'm not naive that people can be bought. If he did it, I don't believe he was one who did it with destructive intents. I think he was vastly scarred and suspended in a child-like state of mind his entire life. If he did fondle, etc... those kids, I'm not defending it, I'm merely trying to understand it and not judge him since he was never convicted.

Good luck and glad to see you back.
Rated
I wondered if you were well.
Yes!
Who knows what happens?
Knowledge:`
by H.T. Thoreau. He wrote:`

Men say that they know many things;
But lo! they have taken wings,--
The arts and sciences,
And a thousand appliances;
The wind that blows
Is all that anybody knows. H.D.T.
`
Mary Ann Farley. You stay well.

Old Song:` by Robert Browning
`
The year's at the spring
And days at the morn;
Mornings at seven;
Th larks on the wing;
The snail's on the thorn:
God is in heaven light realm-
The hillside dew pearled;
All's right with the world! apology to R.B.
`
R.L. Stevenson.
And this shall be for music when know on else is near,
The fine song for singing, the rare song to hear!
That only I remember, that only you admire,
Of the broad road that stretches, and the roadside fire.
`
This is the firefly season. Enjoy it? It is more joy watching them twinkle on and on, and on and off, in my opinion, than going on the blogosphere after the setting sun. heh. huh. heehaw. Bless you.
I've had chronic pain for four years. Every part of my body hurts. I thank God for my therapist, who made me get off the Vicodan right away. My primary care doctor was trying to get me to take it three times a day, and I would be a mess right now If I hadn't heeded the right advice.

Now, I get along pretty well with over counter 500 mg tylenol and max strength NSAIDS now and again. The pain is now background noise, except when I overdo it and try to be superwoman.

You have been through a horrible time and that gives pain a front door key. Please take time to rest and for yourself. You can do things for yourself.
As sad as this may sound, I felt I could start healing from some very old wounds when my mother passed away... she would not hurt me anymore. So I understand you very well.
Try to see different doctors or approaches as regards your constant pain management; maybe some OSers can help with their advice, those who experience the same.
I consider you a very valuable person, very kind and brave. Enjoy that in yourself, protect and nurture that in yourself. As for your father, isn´t there a doctor who can send him to a psychiatrist or psychtherapist? In my modest opinion, your father is not just enraged, he needs professional sustained treatment.
A kiss to you.
I was wondering when you were going to post again. What a pleasant surprise.

Highly Rated
so much of what you have written hear of your relationship with your father and family rings veryvery familiar and persistant bells with me. thanks you for sharing this.
Abuse is truly the gift that keeps on giving. For your health, you must distance yourself from your father as much as practical. I've been there and it's the toughest thing in the world to do, particularly when someone else you love is trapped in the sphere of abuse. It's sad when it takes age and natural decline to dull the bite of abusive parents. I'm glad to see you turn to prayer, and elated that it has helped you. Mom taught us to do the same thing and it is a comfort that I loved my dad to the end even though he still actively found ways to continue his abuse. I hope you find even more peace as you unravel the darker parts of your father's life.
Abuse is truly the gift that keeps on giving. For your health, you must distance yourself from your father as much as practical. I've been there and it's the toughest thing in the world to do, particularly when someone else you love is trapped in the sphere of abuse. It's sad when it takes age and natural decline to dull the bite of abusive parents. I'm glad to see you turn to prayer, and elated that it has helped you. Mom taught us to do the same thing and it is a comfort that I loved my dad to the end even though he still actively found ways to continue his abuse. I hope you find even more peace as you unravel the darker parts of your father's life.
Thanks to you all for such kindness and wisdom. Another round of drama has me screeching mad again, so my energy is being eaten alive at the moment or I'd more thoroughly respond to each of you.

Jesus...how do angry people stay so mad all the time? Anger makes a person sick! Earlier this week, praying for my dad helped, but now I just want to kill him again. Rage is an awful, awful feeling. I don't know how he keeps it up.

But I can't get mad about being mad, or then I'll just be too mad and I'm mad enough.

Now that I've mastered pill addiction, perhaps I should give alcoholism a try. (just kidding...sort of...)
My brother-in-law was raised by an abusive (physically and psychologically) father. I sometimes think the struggle to 'make sense of it' only perpetuates it into the future. One constantly rehearses it, as it were. If only there was a way to say - yes, it was bad, and I didn't deserve it, but now it's done - and just be done with it. And go on to a happy life.
On a different topic - I too struggle with chronic pain. It can make every day hell when it's bad. I wish you luck with your s.
this is just heartbreaking. i hope you're able to stay strong and not let him destroy you.
There were many wise and sad parts to pick from here, as always. I think one of the first I latched onto was:
"no matter what our parents say to us while we're growing up, either good or bad, we're irrevocably shaped by these words, and if they're harsh, we can spend nearly all of our adult lives trying to unlearn the falsehoods we were taught about ourselves as kids."

I have struggled so with these. You are right that you seem to be a very compassionate person, but as you say, you may have been the same way even without this burden. I am sorry you have to put up with these circumstances, on top of everything else. I don't think time away from him is a bad thing. He knows you love him.
It makes me cringe, hearing about your father's cruelty. I think the best you can do is accept that this is your father & he sucks at it & you're probably never going to get the positive recognition that we should (but often don't) get from our fathers. I hope you can get past the ugly memor(ies) of your dad & keep seeing that it's not you, it's him. And that you can dump the shitty mean "dad" voice that plays over in your head, the one that makes you want to escape with pills. Between the emotional pain & the physical pain it has to be a struggle, and what you've written here is powerful. Wishing you peace.
Rated and I am just so sorry that this is happening and happened to you. Obviously it did not destroy a good heart and mind. I hope things are easier in the future.
Marvelous. Yes, we often judge what we don't understand. It is better to reserve judgment, be sympathetic, and remind ourselves: There but for the Grace of God go I.

Thank you for this wonderful piece.
"no matter what our parents say to us while we're growing up, either good or bad, we're irrevocably shaped by these words, and if they're harsh, we can spend nearly all of our adult lives trying to unlearn the falsehoods we were taught about ourselves as kids. "

There. That's it right there.

I don't want to detract from your pain by saying "I know how you feel" but unfortunately I do know some of what you feel. I love my mother but I grew up hearing constantly about how useless and stupid I was, no good to anyone. I also suffered the silent treatment for weeks at a time.

My heart goes out to you. No one should be treated like that by their parents. Stay as strong and as amazing as you are.
This is powerful stuff. It sounds like you've come through with some very hard-earned wisdom. I wish you healing.
To paraphrase Judge Sotomayor, we are all products of our backgrounds. And Marcia, I, too, felt a sense of relief when my mother died. Interestingly I've found that the most repugnant traits of my own two kids are those of their father. I don't know how that happened, but Whew!
This was so difficult to read. I am trembling as I type this. I experienced tremendous rage as I read that hospital interaction. Then it collapsed in to guilt as you expressed your compassion.I could have written this exact same essay about my own father. I have a hard time admitting how he's scarred me. I don't want to believe that it could be something I may carry with me always. My heart goes out to you. You are a good daughter, a good person, with a gentle and loving heart - he didn't win.
Heartbroken by your story. Having been there with a parent (on a very light level compared to this), I understand completely how off-guard you were when the latest abuse descended by complete surprise, like a violent summer thunderstorm.

I hardly know what to say except to offer a listening ear (through reading), and send honest good wishes that your pain will heal, that you will be able to close the pill bottles because they are not needed anymore, that you will be able to take a gentle, relaxed breath and realize that you really do deserve kindness in your life.

And good for you that you made a stand.
Moving and precise. Your relationship with your pain is so well expressed here. What a beast it is. As for your father, I get a sick feeling in my gut thinking about his treatment of you, and again a more personal empathy hits as I consider my stepmother, who was similarly unpredictable, violent and scathing in her insults to me in my youth. I too, have had "relapses" recently in my psychological state, though not accompanied by the monkey of drugs/addiction, for which I am grateful. Michael Jackson's biography and death hit me in much the same way as it did you.

Keep living and keep up the good fight against that pain monster.
Again, thank you all so much. The drama continues, as does my grappling with my rage.

While I'm trying hard to be forgiving, I find it almost unbearable to be around him now, so I don't visit him in rehab. This, of course, leaves me with tremendous guilt.

You feel like you're in one of those no-win situations; if I'm with him, I'm resentful, and if I stay away, I'm guilt-ridden.

Again, I wish I had more time to reply to each sentiment, as so many wonderful points of view are presented here, all of which soothe my soul.

I thank God right now for the compassion of OS. What a wonderful gift you all have been, not only bearing witness to my chronic pain journey, but also to this recent drama with my dad.

I'm caring for my mom right now, but please know each comment has meant the world to me.
What an amazing reveleation you have received in the comparison between you and Michael Jackson and your families of origin. Your father is not a happy man and it appears that, while you have been hurt and painfully affected, you are on a path of recovery that has evaded him. I am so inspired by you and proud of you. The struggle, guilt, anger... you are a strong and precious soul working through the pain determined to keep forgiveness in and bitterness out.

My father was pretty limited in his expression of love. He also had an anger problem which I have struggled to control in my own life. We finally reconciled a few years before he died. I'm glad we did. Thankfully, our Father in Heaven loves us just the way we are and makes up for the deficiencies of our earthly fathers.

Thank you for sharing such a personal part of your incredible journey.
this is brilliant
the compassion you feel for him is really greatness of spirit

still abuse is abuse no one deserves it, and we can't allow it to continue
Dave--How wonderful that you and your dad reconciled before he died. I'd like to think that will happen at some point with my own dad, but that will actually be up to him more than me, as I'll be open for it. I don't know if he will.

Your words are always so precious to me, so thank you.

And Kathy, thank you too for your compassion. I love how you check in on me now and then. It means more to me than you know.
i don't know your whole back-story, but i do know pain meds aren't a longterm solution for anything chronic, and booze will bite you in the ass when you're not looking. abuse can't be defined by anyone but yourself. and i think you owe it to your sanity and physical health to minimize contact with your dad ... you don't deserve to be abused by anyone.
i just read what your dx is and good god, i can see why you've been medicating every which way. i get migraines, had one recently that kept me in bed 2 days, can't imagine living like that all the time ... hope you're finding relief somewhere. still, you do have to be careful with the pills, which sucks. tough hand you've been dealt.
Your father sounds like a borderline. If he is (and you've probably talked about it with your therapist) there's really nothing you can do to change his behavior, or even to be careful enough not to trigger his craziness. It's terribly unfair, to both of you, since he didn't ask to be that way, either. Still, you don't owe it to anybody to allow them to treat you like that and you did the right thing by staying away. Please take care of yourself. I'm so sorry for your pain.
Cindy--Thank you so much for your concern. I just switched pain medications, so now I'm actually taking less and getting better results. But you're so right. Addiction is a beast, so it's a delicate balance to treat the pain without treating the soul with painkiller abuse. I'm trying hard to sort it all out.

And Sirinita--yes, my dad is a classic borderline. Whatever he's feeling is always someone else's fault. His doctor finally put him on Prozac, so here's hoping that he finally calms down now, at least for my mom's sake, as she has to care for him.

Thanks to you both for such supportive comments.
I can relate very well to the feelings of want and letting go. And I mourn for the loss of one of the great songwriters, Michael J.

Thanks,
M